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  1. Book ; Online: Power and Dysfunction : The New South Wales Board for the Protection of Aborigines 1883-1940

    Egan, Richard

    2021  

    Keywords Australasian & Pacific history ; Indigenous peoples ; Aboriginal History ; NSW board for the Protection of Aborigines ; Australian history ; Indigenous studies ; policy
    Size 1 electronic resource (390 pages)
    Publisher ANU Press
    Publishing place Canberra
    Document type Book ; Online
    Note English ; Open Access
    HBZ-ID HT021231612
    ISBN 9781760464738 ; 1760464732
    Database ZB MED Catalogue: Medicine, Health, Nutrition, Environment, Agriculture

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  2. Article ; Online: Embodied decisions unfolding over time: a meta-ethnography systematic review of people with cancer's reasons for delaying or declining end-of-life care.

    Young, Jessica / Lyons, Antonia / Egan, Richard / Dew, Kevin

    BMC palliative care

    2024  Volume 23, Issue 1, Page(s) 45

    Abstract: Background: Barriers to accessing hospice and palliative care have been well studied. An important yet less researched area is why people approaching the end-of-life decline a referral when they are offered services. This review focused on synthesising ... ...

    Abstract Background: Barriers to accessing hospice and palliative care have been well studied. An important yet less researched area is why people approaching the end-of-life decline a referral when they are offered services. This review focused on synthesising literature on patients in the last months of life due to a cancer diagnosis who have declined a referral to end-of-life care.
    Methods: Six academic databases were systematically searched for qualitative literature published between 2007 and 2021. Two researchers independently reviewed and critically appraised the studies. Using meta-ethnographic methods of translation and synthesis, we set out to identify and develop a new overarching model of the reasons patients decline end-of-life care and the factors contributing to this decision.
    Results: The search yielded 2060 articles, and nine articles were identified that met the review inclusion criteria. The included studies can be reconceptualised with the key concept of 'embodied decisions unfolding over time'. It emphasises the iterative, dynamic, situational, contextual and relational nature of decisions about end-of-life care that are grounded in people's physical experiences. The primary influences on how that decision unfolded for patients were (1) the communication they received about end-of-life care; (2) uncertainty around their prognosis, and (3) the evolving situations in which the patient and family found themselves. Our review identified contextual, person and medical factors that helped to shape the decision-making process.
    Conclusions: Decisions about when (and for some, whether at all) to accept end-of-life care are made in a complex system with preferences shifting over time, in relation to the embodied experience of life-limiting cancer. Time is central to patients' end-of-life care decision-making, in particular estimating how much time one has left and patients' embodied knowing about when the right time for end-of-life care is. The multiple and intersecting domains of health that inform decision-making, namely physical, mental, social, and existential/spiritual as well as emotions/affect need further exploration. The integration of palliative care across the cancer care trajectory and earlier introduction of end-of-life care highlight the importance of these findings for improving access whilst recognising that accessing end-of-life care will not be desired by all patients.
    MeSH term(s) Humans ; Terminal Care ; Hospice Care ; Palliative Care ; Anthropology, Cultural ; Neoplasms/therapy ; Qualitative Research
    Language English
    Publishing date 2024-02-19
    Publishing country England
    Document type Systematic Review ; Journal Article
    ZDB-ID 2091556-1
    ISSN 1472-684X ; 1472-684X
    ISSN (online) 1472-684X
    ISSN 1472-684X
    DOI 10.1186/s12904-024-01342-5
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article ; Online: Spirituality in Aotearoa, New Zealand: Personal Reflections From a Spirituality in Health Care Researcher.

    Egan, Richard

    Journal of pain and symptom management

    2018  Volume 57, Issue 5, Page(s) 1031–1034

    Abstract: Spirituality is about what is of utmost value; it is a values lens that asks "what really matters most to me, my family, our community, our country, and our world." This personal reflection comes from a New Zealand academic who works in the spirituality ... ...

    Abstract Spirituality is about what is of utmost value; it is a values lens that asks "what really matters most to me, my family, our community, our country, and our world." This personal reflection comes from a New Zealand academic who works in the spirituality and health care research field. Although largely biographical, this reflection offers some insight into the New Zealand context and this emergent field.
    MeSH term(s) Culture ; Health Services Research ; Humans ; New Zealand ; Research Personnel/psychology ; Spirituality
    Language English
    Publishing date 2018-12-27
    Publishing country United States
    Document type Journal Article ; Personal Narrative
    ZDB-ID 639142-4
    ISSN 1873-6513 ; 0885-3924
    ISSN (online) 1873-6513
    ISSN 0885-3924
    DOI 10.1016/j.jpainsymman.2018.12.331
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  4. Article ; Online: Adrenal incidentalomas.

    Hadjikyriacou, Eleni / Egan, Richard

    The British journal of surgery

    2022  Volume 109, Issue 8, Page(s) 647–649

    MeSH term(s) Adrenal Gland Neoplasms/diagnosis ; Adrenal Gland Neoplasms/surgery ; Dexamethasone ; Humans ; Incidental Findings
    Chemical Substances Dexamethasone (7S5I7G3JQL)
    Language English
    Publishing date 2022-06-11
    Publishing country England
    Document type Journal Article
    ZDB-ID 2985-3
    ISSN 1365-2168 ; 0263-1202 ; 0007-1323 ; 1355-7688
    ISSN (online) 1365-2168
    ISSN 0263-1202 ; 0007-1323 ; 1355-7688
    DOI 10.1093/bjs/znac138
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  5. Article ; Online: 'Survivorship care is one big gap': a qualitative study of post-treatment supportive care in Aotearoa New Zealand.

    Bateman, Jerram / Egan, Richard / Maclennan, Karyn

    BMC health services research

    2023  Volume 23, Issue 1, Page(s) 594

    Abstract: Background: This study focuses on the provision of supportive care services and programmes for cancer survivors post-treatment in Aotearoa New Zealand (NZ). It aims to aid our understanding of an often challenging and fragmented phase of cancer ... ...

    Abstract Background: This study focuses on the provision of supportive care services and programmes for cancer survivors post-treatment in Aotearoa New Zealand (NZ). It aims to aid our understanding of an often challenging and fragmented phase of cancer survivorship, and lay the groundwork for future research into the development of survivorship care in NZ.
    Methods: This study employed a qualitative design using semi-structured interviews with a range of healthcare providers (n = 47) involved in service provision for cancer survivors post active treatment, including supportive care providers; clinical and allied health providers; primary health providers; and Māori health providers. Data were analysed using thematic analysis.
    Results: We found that cancer survivors in NZ face a range of psycho-social and physical issues post-treatment. The provision of supportive care to meet these needs is currently fragmented and inequitable. The key barriers to improved supportive care provision for cancer survivors post-treatment include a lack of capacity and resources within the existing cancer care framework; divergent attitudes to survivorship care within the cancer care workforce; and a lack of clarity around whose responsibility post-treatment survivorship care is.
    Conclusions: Post-treatment cancer survivorship should be established as a distinct phase of cancer care. Measures could include greater leadership in the survivorship space; the implementation of a survivorship model(s) of care; and the use of survivorship care plans; all of which could help improve referral pathways, and clarify clinical responsibility for post-treatment survivorship care.
    MeSH term(s) Humans ; Survivorship ; New Zealand ; Maori People ; Cancer Survivors ; Qualitative Research
    Language English
    Publishing date 2023-06-08
    Publishing country England
    Document type Journal Article
    ZDB-ID 2050434-2
    ISSN 1472-6963 ; 1472-6963
    ISSN (online) 1472-6963
    ISSN 1472-6963
    DOI 10.1186/s12913-023-09580-8
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  6. Article ; Online: Mental health promotion practice in Aotearoa New Zealand: findings from a qualitative study.

    Craik, Brooke / Egan, Richard / Kewene, Francis / Morgaine, Kate C

    Health promotion international

    2023  Volume 38, Issue 5

    Abstract: Mental health promotion (MHP) is integral to improving the overall health and well being of individuals, communities, and populations. However, knowledge and reporting about MHP which occurs throughout Aotearoa New Zealand (NZ) is limited. This article ... ...

    Abstract Mental health promotion (MHP) is integral to improving the overall health and well being of individuals, communities, and populations. However, knowledge and reporting about MHP which occurs throughout Aotearoa New Zealand (NZ) is limited. This article reports findings from a qualitative study that sought to understand NZ health promotion practitioners' (HPPs) MHP practice. Semi-structured interviews were undertaken with 15 HPPs employed at various health promotion organizations. Thematic analysis of interview transcripts identified three key themes. Two themes (planning and evaluation) related to practice directly and included various subthemes: needs assessment; principles/approaches/frameworks; operationalizing equity and te Tiriti o Waitangi; collaborative approaches; planning for evaluation; process evaluation domination; and evaluation challenges. The third theme related to the context of practice and encompassed various system influences restricting HPPs from practising as they wished. These were represented in four subthemes: contractual agreements; field fragmentation; in the shadows of mental ill-health and workforce capacity. Study findings highlight several opportunities to improve MHP practice in NZ. Most pertinently, the need for system-level action to address the factors restricting HPPs' practice.
    MeSH term(s) Humans ; New Zealand ; Health Promotion ; Mental Health ; Workforce
    Chemical Substances N-succinimidyl-3-(4-hydroxyphenyl)propionate (34071-95-9)
    Language English
    Publishing date 2023-10-21
    Publishing country England
    Document type Journal Article
    ZDB-ID 1027448-0
    ISSN 1460-2245 ; 0957-4824
    ISSN (online) 1460-2245
    ISSN 0957-4824
    DOI 10.1093/heapro/daad137
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  7. Article ; Online: Love all, trust a few, do wrong to none.

    Bowman, Christopher R / Kearns, Mollie / Egan, Richard J / Lewis, Wyn G

    Postgraduate medical journal

    2023  Volume 100, Issue 1182, Page(s) 207–208

    MeSH term(s) Humans ; Love ; Trust ; Leadership
    Language English
    Publishing date 2023-12-23
    Publishing country England
    Document type Journal Article
    ZDB-ID 80325-x
    ISSN 1469-0756 ; 0032-5473
    ISSN (online) 1469-0756
    ISSN 0032-5473
    DOI 10.1093/postmj/qgad122
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  8. Article ; Online: Narratives of loss: the impact of Covid-19 lockdown on experiences of loss, grief, and bereavement.

    Dew, Rhiannon / Heath, Lis / Egan, Richard

    Journal of primary health care

    2022  Volume 14, Issue 4, Page(s) 345–351

    Abstract: Introduction Restrictions imposed to eliminate the spread of the coronavirus disease 2019 (COVID-19) virus had significant implications on peoples' experiences of caring for family/whānau at the end of life, and on their own bereavement process. Aim This ...

    Abstract Introduction Restrictions imposed to eliminate the spread of the coronavirus disease 2019 (COVID-19) virus had significant implications on peoples' experiences of caring for family/whānau at the end of life, and on their own bereavement process. Aim This qualitative research explored the impact of COVID-19 lockdown restrictions on experiences of loss, grief and bereavement in Aotearoa New Zealand. Methods This qualitative narrative research used semi-structured interviews with 10 participants who experienced the loss of a loved one during Levels 3 or 4 lockdown in Aotearoa New Zealand (23 March-13 May 2020). Interviews were coded using NVivo software and inductive thematic analysis was used to evaluate the data. Results Results were grouped into three themes: death experience; mourning in isolation; and availability of support. These themes provide insight into the challenges and difficulties participants faced when they experienced the death of a loved one during a COVID-19 lockdown, and the impact of these restrictions on their experiences of grief and bereavement. Discussion The findings from this research suggest there is an increased risk of prolonged grief among those bereaved during lockdown. Primary care professionals need to be aware of this increased risk in order to identify need and provide access to bereavement support.
    MeSH term(s) Humans ; COVID-19/epidemiology ; Communicable Disease Control ; Bereavement ; Grief ; SARS-CoV-2
    Language English
    Publishing date 2022-12-31
    Publishing country Australia
    Document type Journal Article
    ZDB-ID 2572943-3
    ISSN 1172-6156 ; 1172-6156
    ISSN (online) 1172-6156
    ISSN 1172-6156
    DOI 10.1071/HC22090
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  9. Article: Evaluation of Ebola virus disease surveillance system capability to promptly detect a new outbreak in Liberia.

    Shannon, Fulton Quincy / Bawo, Luke L / Crump, John A / Sharples, Katrina / Egan, Richard / Hill, Philip C

    BMJ global health

    2023  Volume 8, Issue 8

    Abstract: Introduction: Liberia was heavily affected by the 2014-2016 Ebola virus disease (EVD) outbreak. With substantial investments in interventions to combat future outbreaks, it is hoped that Liberia is well prepared for a new incursion. We assessed the ... ...

    Abstract Introduction: Liberia was heavily affected by the 2014-2016 Ebola virus disease (EVD) outbreak. With substantial investments in interventions to combat future outbreaks, it is hoped that Liberia is well prepared for a new incursion. We assessed the performance of the current EVD surveillance system in Liberia, focusing on its ability to promptly detect a new EVD outbreak.
    Methods: We integrated WHO and US Centers for Disease Control and Prevention guidelines for public health surveillance system evaluation and used standardised indicators to measure system performance. We conducted 23 key informant interviews, 150 health facility assessment surveys and a standardised patient (SP) study (19 visits) from January 2020 to January 2021. Data were summarised and a gap analysis conducted.
    Results: We found basic competencies of case detection and reporting necessary for a functional surveillance system were in place. At the higher (national, county and district) levels, we found performance gaps in 2 of 6 indicators relating to surveillance system structure, 3 of 14 indicators related to core functions, 1 of 5 quality indicators and 2 of 8 indicators related to support functions. The health facility assessment found performance gaps in 9 of 10 indicators related to core functions, 5 of 6 indicators related to support functions and 3 of 7 indicators related to quality. The SP simulations revealed large gaps between expected and actual practice in managing a patient warranting investigation for EVD. Major challenges affecting the system's operations across all levels included limited access to resources to support surveillance activities, persistent stock out of sample collection materials and attrition of trained staff.
    Conclusion: The EVD surveillance system in Liberia may fail to promptly detect a new EVD outbreak. Specific improvements are required, and regular evaluations recommended. SP studies could be crucial in evaluating surveillance systems for rarely occurring diseases that are important to detect early.
    MeSH term(s) United States ; Humans ; Hemorrhagic Fever, Ebola/diagnosis ; Hemorrhagic Fever, Ebola/epidemiology ; Hemorrhagic Fever, Ebola/prevention & control ; Liberia/epidemiology ; Disease Outbreaks/prevention & control ; Public Health Surveillance ; Surveys and Questionnaires
    Language English
    Publishing date 2023-08-04
    Publishing country England
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ISSN 2059-7908
    ISSN 2059-7908
    DOI 10.1136/bmjgh-2023-012369
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  10. Article ; Online: Mentoring: A Traditional Cook Island Approach to Support Men.

    Patterson, Tess / Egan, Richard / Gross, Julien / Leov, Jessica / Hobbs, Linda / La Rooy, David

    International journal of offender therapy and comparative criminology

    2023  , Page(s) 306624X231172638

    Abstract: The present study examines a unique Cook Island approach to the rehabilitation and support of men, particularly those who have been convicted of criminal offending or who are experiencing other mental health or interpersonal difficulties. The culturally ... ...

    Abstract The present study examines a unique Cook Island approach to the rehabilitation and support of men, particularly those who have been convicted of criminal offending or who are experiencing other mental health or interpersonal difficulties. The culturally appropriate method of enabling change is offered via a community-based 24-hr mentoring system to support men. Run by men, the program is based on traditional Pacific ways of male mentoring in which one man helps another. This study examines the male mentoring program via qualitative analyses of semi-structured interviews. Seven men who had experienced mentoring and six mentors who deliver the program describe the mentoring system and their experiences. The study identifies several perceived benefits or themes in relation to the program. The unique Cook Islands' male mentoring program is viewed as beneficial in that it allows males to be open and supported to make change to be re-absorbed into the community, have healthy functioning, and reduce re-offending via the ongoing supportive care.
    Language English
    Publishing date 2023-05-13
    Publishing country United States
    Document type Journal Article
    ZDB-ID 218274-9
    ISSN 1552-6933 ; 0306-624X
    ISSN (online) 1552-6933
    ISSN 0306-624X
    DOI 10.1177/0306624X231172638
    Database MEDical Literature Analysis and Retrieval System OnLINE

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