Article ; Online: Illness as Transformative Experience: Implications of Philosophy for Advance Care Planning.
Journal of pain and symptom management
2019 Volume 59, Issue 1, Page(s) 172–177
Abstract: Advance care planning has been shown to improve patient outcomes and is recommended as part ... for advance care planning, using the hypothetical case study of Jean, an older person with advanced kidney disease. Finally ... might enhance current approaches to advance care planning. ...
| Abstract | Advance care planning has been shown to improve patient outcomes and is recommended as part of routine care for people with a life-limiting illness. Nevertheless, developing an advance care plan can be complex and challenging for both patients and family members, and the clinicians who support them. One complexity is that illness and its treatments often cannot be deeply understood without lived experience. In this paper, we explore this idea, highlighting how lived experience can bring about unpredictable changes in an individual's values and preferences. We examine the implications of such "transformative experiences" for advance care planning, using the hypothetical case study of Jean, an older person with advanced kidney disease. Finally, we consider consequences for clinical practice and how an understanding of transformative experience might enhance current approaches to advance care planning. |
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| MeSH term(s) | Advance Care Planning ; Aged, 80 and over ; Decision Making ; Female ; Humans ; Kidney Failure, Chronic/psychology ; Kidney Failure, Chronic/therapy ; Terminal Care | |||||
| Language | English | |||||
| Publishing date | 2019-03-01 | |||||
| Publishing country | United States | |||||
| Document type | Case Reports ; Journal Article ; Research Support, Non-U.S. Gov't | |||||
| ZDB-ID | 639142-4 | |||||
| ISSN | 1873-6513 ; 0885-3924 | |||||
| ISSN (online) | 1873-6513 | |||||
| ISSN | 0885-3924 | |||||
| DOI | 10.1016/j.jpainsymman.2019.02.025 | |||||
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| Database | MEDical Literature Analysis and Retrieval System OnLINE |
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