Article ; Online: Follow-up Care Education and Information: Identifying Cancer Survivors in Need of More Guidance.
Journal of cancer education : the official journal of the American Association for Cancer Education
2016 Volume 31, Issue 1, Page(s) 63–69
Abstract: ... Adjusting for race and comorbidities, survivors who wanted more information to guide their follow-up care ... to prepare cancer survivors to adopt engaged roles in managing long-term follow-up care and health risks are ... comorbidity (AOR =1.16, CI 1.01-1.33) were more likely to want additional information to guide follow-up care ...
| Abstract | Cancer survivors engage in cancer screenings and protective health behaviors at suboptimal rates despite their increased risk for future illness. Survivorship care plans and other educational strategies to prepare cancer survivors to adopt engaged roles in managing long-term follow-up care and health risks are needed. In a sample of cancer survivors, we identified patient characteristics and psychosocial predictors associated with increased follow-up care informational needs. Cross-sectional surveys were administered to early-stage breast and prostate survivors (N = 278; 68 % breast) at least 2 years post treatment from four community hospital programs in New Jersey between May 2012 and July 2013. Patient demographics, medical history, psychosocial characteristics (i.e., worries about the future, fear of disease recurrence, and patient activation), and perceptions of oncology and primary care were assessed. African-American survivors (AOR = 2.69, 95 % confidence interval [CI] 1.27-5.68) and survivors with higher comorbidity (AOR =1.16, CI 1.01-1.33) were more likely to want additional information to guide follow-up care. Adjusting for race and comorbidities, survivors who wanted more information to guide their follow-up care reported greater worries about the future (p < 0.05) and fears about disease recurrence (p < 0.05) compared to those who did not want additional information. Results emphasize the need to develop cancer survivorship educational strategies that are both responsive to the needs of specific populations (e.g., African-American survivors and patients with multiple comorbidities) and the psychosocial profiles that motivate requests for more extensive follow-up guidance. |
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| MeSH term(s) | Breast Neoplasms/prevention & control ; Breast Neoplasms/psychology ; Continuity of Patient Care ; Cross-Sectional Studies ; Female ; Follow-Up Studies ; Humans ; Male ; Middle Aged ; Needs Assessment ; Neoplasm Recurrence, Local/prevention & control ; Neoplasm Recurrence, Local/psychology ; Patient Education as Topic ; Physician-Patient Relations ; Prognosis ; Prostatic Neoplasms/prevention & control ; Prostatic Neoplasms/psychology ; Surveys and Questionnaires ; Survivors/psychology |
| Language | English |
| Publishing date | 2016-03 |
| Publishing country | England |
| Document type | Journal Article ; Research Support, N.I.H., Extramural ; Research Support, Non-U.S. Gov't |
| ZDB-ID | 632898-2 |
| ISSN | 1543-0154 ; 0885-8195 ; 1543-1154 |
| ISSN (online) | 1543-0154 |
| ISSN | 0885-8195 ; 1543-1154 |
| DOI | 10.1007/s13187-014-0775-y |
| Database | MEDical Literature Analysis and Retrieval System OnLINE |
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