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  1. Article ; Online: Research with Marginalized Communities: Challenges to Continuity During the COVID-19 Pandemic.

    Sevelius, Jae M / Gutierrez-Mock, Luis / Zamudio-Haas, Sophia / McCree, Breonna / Ngo, Azize / Jackson, Akira / Clynes, Carla / Venegas, Luz / Salinas, Arianna / Herrera, Cinthya / Stein, Ellen / Operario, Don / Gamarel, Kristi

    AIDS and behavior

    2020  Volume 24, Issue 7, Page(s) 2009–2012

    Keywords covid19
    Language English
    Publishing date 2020-04-28
    Publishing country United States
    Document type Editorial
    ZDB-ID 1339885-4
    ISSN 1573-3254 ; 1090-7165
    ISSN (online) 1573-3254
    ISSN 1090-7165
    DOI 10.1007/s10461-020-02920-3
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    In stock of ZB MED Cologne/Königswinter

    Zs.A 6451: Show issues Location:
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  2. Article: Research with Marginalized Communities: Challenges to Continuity During the COVID-19 Pandemic

    Sevelius, Jae M / Gutierrez-Mock, Luis / Zamudio-Haas, Sophia / McCree, Breonna / Ngo, Azize / Jackson, Akira / Clynes, Carla / Venegas, Luz / Salinas, Arianna / Herrera, Cinthya / Stein, Ellen / Operario, Don / Gamarel, Kristi

    AIDS Behav

    Keywords covid19
    Publisher WHO
    Document type Article
    Note WHO #Covidence: #32415617
    Database COVID19

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  3. Article ; Online: Research with Marginalized Communities

    Sevelius, Jae M / Gutierrez-Mock, Luis / Zamudio-Haas, Sophia / McCree, Breonna / Ngo, Azize / Jackson, Akira / Clynes, Carla / Venegas, Luz / Salinas, Arianna / Herrera, Cinthya / Stein, Ellen / Operario, Don / Gamarel, Kristi

    AIDS and behavior, vol 24, iss 7

    Challenges to Continuity During the COVID-19 Pandemic.

    2020  

    Keywords Public Health ; Public Health and Health Services ; Social Work ; covid19
    Publishing date 2020-07-01
    Publisher eScholarship, University of California
    Publishing country us
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  4. Article ; Online: Research with Marginalized Communities

    Sevelius, Jae M. / Gutierrez-Mock, Luis / Zamudio-Haas, Sophia / McCree, Breonna / Ngo, Azize / Jackson, Akira / Clynes, Carla / Venegas, Luz / Salinas, Arianna / Herrera, Cinthya / Stein, Ellen / Operario, Don / Gamarel, Kristi

    AIDS and Behavior

    Challenges to Continuity During the COVID-19 Pandemic

    2020  Volume 24, Issue 7, Page(s) 2009–2012

    Keywords Public Health, Environmental and Occupational Health ; Infectious Diseases ; Social Psychology ; covid19
    Language English
    Publisher Springer Science and Business Media LLC
    Publishing country us
    Document type Article ; Online
    ZDB-ID 1339885-4
    ISSN 1573-3254 ; 1090-7165
    ISSN (online) 1573-3254
    ISSN 1090-7165
    DOI 10.1007/s10461-020-02920-3
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

    Full text online

    More links

    Kategorien

    In stock of ZB MED Cologne/Königswinter

    Zs.A 6451: Show issues Location:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
    bis Jg. 2021: Bestellungen von Artikeln über das Online-Bestellformular
    ab Jg. 2022: Lesesaal (EG)

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  5. Article ; Online: Mitigation strategies to safely conduct HIV treatment research in the context of COVID-19.

    Henderson, Merle / Fidler, Sarah / Mothe, Beatriz / Grinsztejn, Beatriz / Haire, Bridget / Collins, Simon / Lau, Jillian S Y / Luba, Maureen / Sanne, Ian / Tatoud, Roger / Deeks, Steve / Lewin, Sharon R

    Journal of the International AIDS Society

    2021  Volume 25, Issue 2, Page(s) e25882

    Abstract: ... with HIV research from both PLWH and the research community despite the ongoing SARS-CoV-2 pandemic. How ... challenges to conducting clinical research in PLWH. Guidelines regarding how best to implement HIV treatment ... of clinical trials involving people living with HIV (PLWH) during the SARS-CoV-2 pandemic. This consultation did not ...

    Abstract Introduction: The International AIDS Society convened a multidisciplinary committee of experts in December 2020 to provide guidance and key considerations for the safe and ethical management of clinical trials involving people living with HIV (PLWH) during the SARS-CoV-2 pandemic. This consultation did not discuss guidance for the design of prevention studies for people at risk of HIV acquisition, nor for the programmatic delivery of antiretroviral therapy (ART).
    Discussion: There is strong ambition to continue with HIV research from both PLWH and the research community despite the ongoing SARS-CoV-2 pandemic. How to do this safely and justly remains a critical debate. The SARS-CoV-2 pandemic continues to be highly dynamic. It is expected that with the emergence of effective SARS-CoV-2 prevention and treatment strategies, the risk to PLWH in clinical trials will decline over time. However, with the emergence of more contagious and potentially pathogenic SARS-CoV-2 variants, the effectiveness of current prevention and treatment strategies may be compromised. Uncertainty exists about how equally SARS-CoV-2 prevention and treatment strategies will be available globally, particularly for marginalized populations, many of whom are at high risk of reduced access to ART and/or HIV disease progression. All of these factors must be taken into account when deciding on the feasibility and safety of developing and implementing HIV research.
    Conclusions: It can be assumed for the foreseeable future that SARS-CoV-2 will persist and continue to pose challenges to conducting clinical research in PLWH. Guidelines regarding how best to implement HIV treatment studies will evolve accordingly. The risks and benefits of performing an HIV clinical trial must be carefully evaluated in the local context on an ongoing basis. With this document, we hope to provide a broad guidance that should remain viable and relevant even as the nature of the pandemic continues to develop.
    MeSH term(s) COVID-19 ; HIV Infections/drug therapy ; HIV Infections/epidemiology ; HIV Infections/prevention & control ; Humans ; Pandemics ; SARS-CoV-2
    Language English
    Publishing date 2021-12-31
    Publishing country Switzerland
    Document type Journal Article
    ZDB-ID 2467110-1
    ISSN 1758-2652 ; 1758-2652
    ISSN (online) 1758-2652
    ISSN 1758-2652
    DOI 10.1002/jia2.25882
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  6. Article ; Online: Research and Management of Rare Diseases in the COVID-19 Pandemic Era: Challenges and Countermeasures.

    Chowdhury, Sanjana Fatema / Sium, Syed Muktadir Al / Anwar, Saeed

    Frontiers in public health

    2021  Volume 9, Page(s) 640282

    Abstract: ... The need to provide high-level care for an enormous number of patients with COVID-19 infection during ... challenges due to the pandemic. Many ongoing research projects and clinical trials for rare and genetic ... diseases were stalled to avoid patients' and research staff's transmission to COVID-19. Still ...

    Abstract The ongoing coronavirus disease 2019 (COVID-19) pandemic has disrupted every aspect of our life. The need to provide high-level care for an enormous number of patients with COVID-19 infection during this pandemic has impacted resourcing for and restricted the routine care of all non-COVID-19 conditions. Since the beginning of the pandemic, the people living with rare disorders, who represent a marginalized group of the population even in a normal world, have not received enough attention that they deserve. Due to the pandemic situation, they have experienced (and experiencing) an extreme inadequacy of regular clinical services, counseling, and therapies they need, which have made their life more vulnerable and feel more marginalized. Besides, the clinicians, researchers, and scientists working on rare genetic diseases face extra challenges due to the pandemic. Many ongoing research projects and clinical trials for rare and genetic diseases were stalled to avoid patients' and research staff's transmission to COVID-19. Still, with all the odds, telehealth and virtual consultations for rare disease patients have shown hope. The clinical, organizational, and economic challenges faced by institutions, patients, their families, and the caregivers during the pandemic indicate the importance of ensuring continuity of care in managing rare diseases, including adequate diagnostics and priority management strategies for emergencies. In this review, we endeavored to shed light on the issues the rare disease community faces during the pandemic and the adaptations that could help the rare disease community to better sustain in the coming days.
    MeSH term(s) COVID-19 ; Humans ; Pandemics/prevention & control ; Rare Diseases/epidemiology ; SARS-CoV-2 ; Telemedicine
    Language English
    Publishing date 2021-04-15
    Publishing country Switzerland
    Document type Journal Article ; Research Support, Non-U.S. Gov't ; Review
    ZDB-ID 2711781-9
    ISSN 2296-2565 ; 2296-2565
    ISSN (online) 2296-2565
    ISSN 2296-2565
    DOI 10.3389/fpubh.2021.640282
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  7. Article ; Online: Research and Management of Rare Diseases in the COVID-19 Pandemic Era

    Sanjana Fatema Chowdhury / Syed Muktadir Al Sium / Saeed Anwar

    Frontiers in Public Health, Vol

    Challenges and Countermeasures

    2021  Volume 9

    Abstract: ... The need to provide high-level care for an enormous number of patients with COVID-19 infection during ... challenges due to the pandemic. Many ongoing research projects and clinical trials for rare and genetic ... diseases were stalled to avoid patients' and research staff's transmission to COVID-19. Still ...

    Abstract The ongoing coronavirus disease 2019 (COVID-19) pandemic has disrupted every aspect of our life. The need to provide high-level care for an enormous number of patients with COVID-19 infection during this pandemic has impacted resourcing for and restricted the routine care of all non-COVID-19 conditions. Since the beginning of the pandemic, the people living with rare disorders, who represent a marginalized group of the population even in a normal world, have not received enough attention that they deserve. Due to the pandemic situation, they have experienced (and experiencing) an extreme inadequacy of regular clinical services, counseling, and therapies they need, which have made their life more vulnerable and feel more marginalized. Besides, the clinicians, researchers, and scientists working on rare genetic diseases face extra challenges due to the pandemic. Many ongoing research projects and clinical trials for rare and genetic diseases were stalled to avoid patients' and research staff's transmission to COVID-19. Still, with all the odds, telehealth and virtual consultations for rare disease patients have shown hope. The clinical, organizational, and economic challenges faced by institutions, patients, their families, and the caregivers during the pandemic indicate the importance of ensuring continuity of care in managing rare diseases, including adequate diagnostics and priority management strategies for emergencies. In this review, we endeavored to shed light on the issues the rare disease community faces during the pandemic and the adaptations that could help the rare disease community to better sustain in the coming days.
    Keywords COVID-19 ; rare disease ; clinical management ; counseling ; telemedicine ; Public aspects of medicine ; RA1-1270
    Subject code 610
    Language English
    Publishing date 2021-04-01T00:00:00Z
    Publisher Frontiers Media S.A.
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  8. Article: Pivoting a Community-Based Participatory Research Project for Mental Health and Immigrant Youth in Philadelphia During COVID-19.

    Birkenstock, Lyena / Chen, Thomas / Chintala, Asha / Ngan, Andrea / Spitz, Jenna / Kumar, Ila / Loftis, Theo / Fogg, Melissa / Malik, Nadia / Henderson Riley, Amy

    Health promotion practice

    2021  Volume 23, Issue 1, Page(s) 32–34

    Abstract: ... lessons and practical implications in pivoting a program during COVID-19 to continue working ... with marginalized communities with limited resources, including barriers to technology access, at a time ... through youth discussion and engagement in a variety of art workshops. As a result of the COVID-19 pandemic ...

    Abstract Research has documented the need for mental health services among refugee and immigrant youth. A joint collaboration on a community-based participatory research (CBPR) research project between a university, a local art and health collective, and an immigrant and refugee organization sought to identify and understand the mental health needs and strategies for immigrant youth in Philadelphia through youth discussion and engagement in a variety of art workshops. As a result of the COVID-19 pandemic, this CBPR research project was forced to make several programmatic changes, such as shifting to a virtual setting, that impacted project implementation and intended outcomes. These changes highlight valuable lessons and practical implications in pivoting a program during COVID-19 to continue working with marginalized communities with limited resources, including barriers to technology access, at a time when effectively addressing mental health for immigrant youth has become both more challenging and pressing.
    MeSH term(s) Adolescent ; COVID-19 ; Community-Based Participatory Research ; Emigrants and Immigrants ; Humans ; Mental Health ; Pandemics ; Philadelphia ; SARS-CoV-2
    Language English
    Publishing date 2021-08-20
    Publishing country United States
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 2036801-X
    ISSN 1552-6372 ; 1524-8399
    ISSN (online) 1552-6372
    ISSN 1524-8399
    DOI 10.1177/15248399211033311
    Database MEDical Literature Analysis and Retrieval System OnLINE

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