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Article ; Online: Caring for patients with end-stage renal disease during COVID-19 lockdown: What (additional) challenges to family caregivers?

Sousa, Helena / Frontini, Roberta / Ribeiro, Oscar / Paúl, Constança / Costa, Elísio / Amado, Leonilde / Miranda, Vasco / Ribeiro, Fernando / Figueiredo, Daniela

Scandinavian journal of caring sciences

2021  Volume 36, Issue 1, Page(s) 215–224

Abstract: ... experiences of family caregivers of non-COVID-19 patients with end-stage renal disease undergoing in-centre ... Introduction: Caring for a patient with end-stage renal disease undergoing in-centre haemodialysis ... haemodialysis during the COVID-19 lockdown.: Study design: A qualitative study was performed with a purposive ...

Abstract Introduction: Caring for a patient with end-stage renal disease undergoing in-centre haemodialysis can be a stressful experience, likely to involve significant burden. Within the context of the new coronavirus pandemic, these patients are highly vulnerable to infection by COVID-19, which might increase the care demands and burden of family caregivers.
Aim: This study aimed to explore the subjective experiences of family caregivers of non-COVID-19 patients with end-stage renal disease undergoing in-centre haemodialysis during the COVID-19 lockdown.
Study design: A qualitative study was performed with a purposive sample.
Methods: Semi-structured telephone interviews were conducted with 19 family caregivers (50.7 ± 14 years old) of patients undergoing in-centre haemodialysis in April 2020.
Findings: Four major themes were identified: (1) emotional distress; (2) changes in caregiving responsibilities; (3) educational and supportive needs; and (4) coping strategies to deal with the outbreak and with the lockdown.
Discussion: The findings suggest that family caregivers of patients undergoing in-centre haemodialysis have to manage several additional care responsibilities due to COVID-19 lockdown. The dialysis team should consider the development of educational and supportive interventions to meet family caregivers' needs, mitigate emotional distress, fears and concerns, and prevent caregiver burden during the COVID-19 pandemic.
MeSH term(s) Adult ; COVID-19 ; Caregivers ; Communicable Disease Control ; Family ; Humans ; Kidney Failure, Chronic/therapy ; Middle Aged ; Pandemics ; Patient Care ; Qualitative Research ; SARS-CoV-2
Language English
Publishing date 2021-03-28
Publishing country Sweden
Document type Journal Article
ZDB-ID 639217-9
ISSN 1471-6712 ; 0283-9318
ISSN (online) 1471-6712
ISSN 0283-9318
DOI 10.1111/scs.12980
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