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  1. Article ; Online: Loneliness and belonging: Exploring experiences with the COVID-19 pandemic in psycho-oncology.

    Schellekens, Melanie P J / van der Lee, Marije L

    Psycho-oncology

    2020  Volume 29, Issue 9, Page(s) 1399–1401

    Keywords covid19
    Language English
    Publishing date 2020-07-22
    Publishing country England
    Document type Journal Article
    ZDB-ID 1118536-3
    ISSN 1099-1611 ; 1057-9249
    ISSN (online) 1099-1611
    ISSN 1057-9249
    DOI 10.1002/pon.5459
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  2. Article ; Online: Bridging the distance: Continuing psycho-oncological care via video-consults during the COVID-19 pandemic.

    van der Lee, Marije L / Schellekens, Melanie P J

    Psycho-oncology

    2020  Volume 29, Issue 9, Page(s) 1421–1423

    Keywords covid19
    Language English
    Publishing date 2020-07-22
    Publishing country England
    Document type Journal Article
    ZDB-ID 1118536-3
    ISSN 1099-1611 ; 1057-9249
    ISSN (online) 1099-1611
    ISSN 1057-9249
    DOI 10.1002/pon.5468
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    Zs.A 3550: Show issues Location:
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  3. Article ; Online: What patients with advanced cancer experience as helpful in navigating their life with a long-term response: a qualitative study.

    Zwanenburg, Laura C / van der Lee, Marije L / Koldenhof, José J / Suijkerbuijk, Karijn P M / Schellekens, Melanie P J

    Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

    2024  Volume 32, Issue 4, Page(s) 222

    Abstract: Purpose: Despite improved survival for people with advanced cancer due to new medical treatments, a growing group of long-term responders (LTRs) has to learn to live with uncertainties that affect several life domains. At the core of their experience, ... ...

    Abstract Purpose: Despite improved survival for people with advanced cancer due to new medical treatments, a growing group of long-term responders (LTRs) has to learn to live with uncertainties that affect several life domains. At the core of their experience, they neither feel like a patient nor feel healthy. Despite growing awareness of LTRs' experiences, learning more about how they cope with their long-term response can provide insight into how to best support them. Our study aimed to gain a deeper understanding what LTRs experience as helpful in navigating life with a long-term response.
    Methods: We conducted an exploratory qualitative study using thematic data analysis. Semi-structured in-depth interviews were conducted with 17 participants with advanced melanoma or lung cancer with confirmed response or long-term stable disease while on immuno- or targeted therapy.
    Results: LTRs reported several strategies to navigate life with a long-term response, for example, by involving the social environment, seeing uncertainty as an opportunity, and being present in the moment. This helped them to reclaim a sense of control, alter their perspective, and reshape their lives according to their values.
    Conclusion: Using different coping strategies enables LTRs to acknowledge both their sick and healthy side. Striking a healthy balance between being oriented on feeling sick or feeling healthy can help LTRs and their close others to navigate life with a long-term response. Healthcare professionals can provide support by recognizing whether LTRs are oriented at feeling sick or healthy, and by actively involving close others during medical appointments.
    MeSH term(s) Humans ; Palliative Care ; Lung Neoplasms ; Patient Acceptance of Health Care ; Qualitative Research
    Language English
    Publishing date 2024-03-12
    Publishing country Germany
    Document type Journal Article
    ZDB-ID 1134446-5
    ISSN 1433-7339 ; 0941-4355
    ISSN (online) 1433-7339
    ISSN 0941-4355
    DOI 10.1007/s00520-024-08398-2
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    Zs.A 3697: Show issues Location:
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  4. Article ; Online: Intensity of mental health treatment of cancer-related psychopathology: the predictive role of Early Maladaptive Schemas.

    de Vlaming, Irene H / Schellekens, Melanie P J / van der Lee, Marije L

    Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

    2023  Volume 31, Issue 6, Page(s) 325

    Abstract: Purpose: With the limited availability of mental healthcare, it is of utmost importance to provide care that matches the needs of patients: short if possible, but also more intense when necessary. This study explored whether Early Maladaptive Schemas ( ... ...

    Abstract Purpose: With the limited availability of mental healthcare, it is of utmost importance to provide care that matches the needs of patients: short if possible, but also more intense when necessary. This study explored whether Early Maladaptive Schemas (EMSs) play a predictive role in the intensity of needed mental health treatment of cancer-related psychopathology.
    Methods: EMSs were assessed before mental health treatment in 256 patients who sought help at a specialized mental health care centre for those affected by cancer in the Netherlands. Data about treatment indication and intensity of mental health treatment were collected. Univariate and multivariate logistic regression analysis were used to assess the predictive value of the EMSs total score and specific domains on treatment indication and treatment intensity.
    Results: The presence of more severe EMSs predicted an indication for a more intense mental health treatment before start of the treatment, and actual more intense mental health treatment. The domain Impaired Autonomy and Performance appeared to be conceptually close to the domain Disconnection and Rejection, we left the latter out in our multivariate analysis and then found that Impaired Autonomy was the best predictor of intensity of mental health treatment.
    Conclusion: Our findings imply that assessing EMSs could help to identify patients who will receive more treatment time.
    MeSH term(s) Humans ; Mental Health ; Surveys and Questionnaires ; Psychotherapy ; Psychopathology ; Multivariate Analysis ; Adaptation, Psychological ; Neoplasms/therapy
    Language English
    Publishing date 2023-05-08
    Publishing country Germany
    Document type Journal Article
    ZDB-ID 1134446-5
    ISSN 1433-7339 ; 0941-4355
    ISSN (online) 1433-7339
    ISSN 0941-4355
    DOI 10.1007/s00520-023-07764-w
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    Zs.A 3697: Show issues Location:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
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    Jg. 1995 - 2021: Lesesall (2.OG)
    ab Jg. 2022: Lesesaal (EG)

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  5. Article ; Online: Effectiveness of a guided online primary care intervention for fear of cancer recurrence: A randomised controlled trial.

    Luigjes-Huizer, Yvonne L / Helsper, Charles W / de Wit, Niek J / van der Lee, Marije L

    Psycho-oncology

    2023  Volume 32, Issue 12, Page(s) 1839–1847

    Abstract: Objective: Fear of Cancer Recurrence (FCR) is highly prevalent among cancer survivors and leads to decreased quality of life and increased healthcare costs. We assessed the effectiveness of a guided online primary care intervention for FCR, compared to ... ...

    Abstract Objective: Fear of Cancer Recurrence (FCR) is highly prevalent among cancer survivors and leads to decreased quality of life and increased healthcare costs. We assessed the effectiveness of a guided online primary care intervention for FCR, compared to waiting list.
    Methods: In this RCT, participants were recruited online and randomised 1:1. All adults who finished successful curative cancer treatment between 3 months and 10 years ago, wanted support for FCR, and had sufficient Dutch skills were eligible. The intervention consisted of a 10-week online programme and three to five video calling sessions with a trained mental health worker. After 6 months, the control group received the same intervention. The primary outcome was the difference between the groups in the change in FCR severity from baseline (T0) to 6 months (T2), measured online with the short form of the Fear of Cancer Recurrence Inventory.
    Results: One hundred and seventy-three participants were enroled and randomised to the intervention (n = 86) or control group (n = 87). FCR severity dropped 2.1 points more in the intervention group than in the control group (2.7 points (SD = 3.9) versus 0.6 points (SD = 3.6), t(154) = 3.4, p = 0.0007). General mental well-being also improved significantly in the intervention group and remained stable in the control group. These improvements remained at 10 months follow up.
    Conclusions: This easily accessible and relatively inexpensive intervention effectively reduces FCR and has potential to replace or precede existing more intensive psychological treatments, improving patients' access to care.
    Trial registration: The trial was prospectively registered in the Netherlands Trial Register on 25-02-2019 with number NL7573.
    MeSH term(s) Adult ; Humans ; Quality of Life ; Cognitive Behavioral Therapy ; Neoplasm Recurrence, Local/therapy ; Neoplasm Recurrence, Local/psychology ; Fear/psychology ; Primary Health Care
    Language English
    Publishing date 2023-10-18
    Publishing country England
    Document type Randomized Controlled Trial ; Journal Article
    ZDB-ID 1118536-3
    ISSN 1099-1611 ; 1057-9249
    ISSN (online) 1099-1611
    ISSN 1057-9249
    DOI 10.1002/pon.6231
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    In stock of ZB MED Cologne/Königswinter

    Zs.A 3550: Show issues Location:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
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    ab Jg. 2022: Lesesaal (EG)

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  6. Article ; Online: Exploring the dynamic interconnectedness of protective and perpetuating factors of cancer-related fatigue.

    van Roozendaal, Anne S / Schellekens, Melanie P J / van Woezik, Rosalie A M / van der Lee, Marije L

    Psycho-oncology

    2023  Volume 32, Issue 12, Page(s) 1876–1884

    Abstract: Objective: Approximately 25% of cancer patients suffer from cancer-related fatigue (CRF) after cancer treatment. CRF is a multi-factorial condition affected by several interrelated protective and perpetuating factors. As most studies merely assessed ... ...

    Abstract Objective: Approximately 25% of cancer patients suffer from cancer-related fatigue (CRF) after cancer treatment. CRF is a multi-factorial condition affected by several interrelated protective and perpetuating factors. As most studies merely assessed bivariate associations, more insight into the complex relationships among these constructs is needed. We applied the multivariate network approach to gain a better understanding of how patients' fatigue, perpetuating and protective factors are dynamically interconnected.
    Method: Between February and August 2022, 30 cancer patients filled out a carefully developed ecological momentary assessment questionnaire (EnergyInSight) five times a day for at least 21 days while being on the waitlist for psychological care for CRF. We performed a multi-level vector autoregression analysis to examine the interconnectedness among fatigue, protective factors (allowing rest, acceptance, and self-efficacy) and perpetuating factors (worrying, catastrophizing, and feeling guilty).
    Results: In the contemporaneous network (concurrent associations), higher acceptance and self-efficacy were associated with lower fatigue, whereas all other factors were associated with higher fatigue. The strongest relationships were between worrying and feeling guilty and between acceptance and allowing rest. In the temporal network (lagged associations), fatigue was related to two factors: higher self-efficacy preceded lower fatigue, and higher fatigue preceded increased allowing rest.
    Conclusions: Taking all included factors into account, the networks identified self-efficacy and allowing rest as key protective factors of CRF. Patients may benefit from psychological interventions that cultivate self-efficacy, as it seems to pave the way to reduced fatigue.
    MeSH term(s) Humans ; Fatigue/psychology ; Neoplasms/complications ; Neoplasms/therapy ; Anxiety/psychology ; Catastrophization
    Language English
    Publishing date 2023-10-30
    Publishing country England
    Document type Journal Article
    ZDB-ID 1118536-3
    ISSN 1099-1611 ; 1057-9249
    ISSN (online) 1099-1611
    ISSN 1057-9249
    DOI 10.1002/pon.6235
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  7. Article ; Online: What web-based intervention for chronic cancer-related fatigue works best for whom? Explorative moderation analyses of a randomized controlled trial.

    Schellekens, Melanie P J / Bruggeman-Everts, Fieke Z / Wolvers, Marije D J / Vollenbroek-Hutten, Miriam M R / van der Lee, Marije L

    Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

    2022  Volume 30, Issue 10, Page(s) 7885–7892

    Abstract: Purpose: Approximately 25% of cancer patients suffer from chronic cancer-related fatigue (CCRF), which is a complex, multifactorial condition. While there are evidence-based interventions, it remains unclear what treatment works best for the individual ... ...

    Abstract Purpose: Approximately 25% of cancer patients suffer from chronic cancer-related fatigue (CCRF), which is a complex, multifactorial condition. While there are evidence-based interventions, it remains unclear what treatment works best for the individual patient. This study explored whether baseline characteristics moderated the effect of web-based mindfulness-based cognitive therapy (eMBCT) versus ambulant activity feedback (AAF) and a psycho-education control group (PE) on fatigue in patients suffering from CCRF.
    Methods: In a randomized controlled trial, participant suffering from CCRF participated in either eMBCT, AAF, or PE. Complete data of the treatment-adherent sample (≥ 6 sessions) was used to explore whether sociodemographic, clinical, and psychological characteristics at baseline moderated the intervention effect on fatigue severity at 6 months.
    Results: A trend showed that baseline fatigue severity and fatigue catastrophizing moderated the intervention effect. That is, at low levels of fatigue severity and catastrophizing, patients benefited more from AAF than from eMBCT and at high levels of fatigue severity and catastrophizing, patients benefited more from eMBCT than from PE.
    Conclusions: This study found some preliminary evidence on what treatment works best for the individual suffering from CCRF. These findings emphasize the potential gain in effectiveness of personalizing treatment. An alternative approach that might help us further in answering the question "what treatment works best for whom?" is discussed.
    MeSH term(s) Cognitive Behavioral Therapy ; Fatigue/etiology ; Fatigue/psychology ; Fatigue/therapy ; Humans ; Internet-Based Intervention ; Mindfulness ; Neoplasms/therapy ; Treatment Outcome
    Language English
    Publishing date 2022-06-21
    Publishing country Germany
    Document type Journal Article ; Randomized Controlled Trial
    ZDB-ID 1134446-5
    ISSN 1433-7339 ; 0941-4355
    ISSN (online) 1433-7339
    ISSN 0941-4355
    DOI 10.1007/s00520-022-07223-y
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    Zs.A 3697: Show issues Location:
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  8. Article ; Online: Barriers and facilitators for healthy lifestyle and recommendations for counseling in endometrial cancer follow-up care: a qualitative study.

    de Korte, Anne M / de Rooij, Belle H / Boll, Dorry / van Loon, Ingrid / Vincent, Noor / Hoedjes, Meeke / Lammens, Chantal R M / Mols, Floor / van der Lee, Marije L / Vos, M Caroline / Ezendam, Nicole P M

    Journal of psychosomatic obstetrics and gynaecology

    2024  Volume 45, Issue 1, Page(s) 2340465

    Abstract: Objectives: Lifestyle promotion during follow-up consultations may improve long-term health and quality of life in endometrial cancer patients. This study aimed to identify barriers and facilitators to improve and sustain a healthy lifestyle that can be ...

    Abstract Objectives: Lifestyle promotion during follow-up consultations may improve long-term health and quality of life in endometrial cancer patients. This study aimed to identify barriers and facilitators to improve and sustain a healthy lifestyle that can be translated to behavioral methods and strategies for lifestyle counseling.
    Methods: Endometrial cancer patients from three hospitals were recruited to participate in a semi-structured interview. The data were transcribed and coded. Thematic analysis was applied to identify themes and the behavior change wheel was used as a theoretical framework. Data saturation was confirmed after 18 interviews.
    Results: Barriers included knowledge gaps as well as lack of motivation and environmental opportunities to engage in health-promoting behavior. Facilitators included applying incremental lifestyle changes, social support, positive reinforcements, and the ability to overcome setbacks.
    Conclusions: We propose the following intervention functions: education, persuasion, training, environmental restructuring, and enablement. Suitable behavior change techniques to deliver the intervention functions include information about the consequences of certain behavior, feedback on behavior, credible source, graded tasks, habit formation, restructuring of the environment, prompts/cues, goal setting, action planning, and social support. Including these recommendations in lifestyle counseling could aid lasting lifestyle change since it suits the needs and preferences of patients.
    MeSH term(s) Humans ; Female ; Quality of Life ; Aftercare ; Qualitative Research ; Healthy Lifestyle ; Counseling ; Endometrial Neoplasms
    Language English
    Publishing date 2024-04-15
    Publishing country England
    Document type Journal Article
    ZDB-ID 604816-x
    ISSN 1743-8942 ; 0167-482X
    ISSN (online) 1743-8942
    ISSN 0167-482X
    DOI 10.1080/0167482X.2024.2340465
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    Zs.A 1780: Show issues Location:
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  9. Article ; Online: Coping with and self-management of chronic painful chemotherapy-induced peripheral neuropathy: a qualitative study among cancer survivors.

    van de Graaf, Daniëlle L / Mols, Floortje / Smeets, Tom / Trompetter, Hester R / van der Lee, Marije L

    Journal of cancer survivorship : research and practice

    2023  

    Abstract: Purpose: Patients with chronic painful chemotherapy-induced peripheral neuropathy (CIPN) may experience a negative impact of CIPN on daily life. They can use various coping (i.e., dealing with symptoms and resulting impairments in general) and self- ... ...

    Abstract Purpose: Patients with chronic painful chemotherapy-induced peripheral neuropathy (CIPN) may experience a negative impact of CIPN on daily life. They can use various coping (i.e., dealing with symptoms and resulting impairments in general) and self-management (i.e., practical actions to reduce symptoms) strategies to live with their limitations. This paper aimed to examine experienced helpful coping and self-management strategies of patients with chronic painful CIPN.
    Methods: Semi-structured interviews were conducted with twelve patients with chronic painful CIPN. We applied a hybrid deductive-inductive coding approach. ATLAS.ti was used for coding.
    Results: Generated from the data were two themes and nine codes for coping and four themes and 31 codes for self-management strategies. Coping of patients often included active strategies like planning, seeking social support, and acceptance. Additionally, patients often used passive strategies such as focusing on and venting emotions and suppressing competing activities. The most common self-management strategies were mostly passive (i.e., medication, deliberate choice of shoes, resting, sitting, and consulting healthcare professionals) but also active (i.e., exercising) strategies.
    Conclusion: Patients exhibit a great variety of coping and self-management strategies that they perceive as helpful to deal with chronic painful CIPN. However, research has shown that certain strategies are not that helpful or even come with aversive effects. More research into the effectiveness and implementation of psychosocial interventions is needed since it may help patients adopting helping strategies. In addition, healthcare professionals need to refer patients with CIPN in a timely manner to physical therapists, occupational therapists, or rehabilitation teams to reduce or prevent (further) impairments.
    Implications for cancer survivors: Patients can consult one of their healthcare providers in case of problems in dealing with their symptoms, to get proper guidance and possible referral.
    Language English
    Publishing date 2023-09-23
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2388888-X
    ISSN 1932-2267 ; 1932-2259
    ISSN (online) 1932-2267
    ISSN 1932-2259
    DOI 10.1007/s11764-023-01466-2
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  10. Article: Bridging the distance: Continuing psycho-oncological care via video-consults during the COVID-19 pandemic

    van der Lee, Marije L / Schellekens, Melanie P J

    Psycho-oncol. (Chichester)

    Keywords covid19
    Publisher WHO
    Document type Article
    Note WHO #Covidence: #640753
    Database COVID19

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