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  1. Article ; Online: Commentary on "Leisure Time Physical Activity in Children and Young People With Cerebral Palsy: A Population-Based Study".

    Longo, Egmar / Shrader, Claire

    Pediatric physical therapy : the official publication of the Section on Pediatrics of the American Physical Therapy Association

    2022  Volume 34, Issue 2, Page(s) 238

    Language English
    Publishing date 2022-04-06
    Publishing country United States
    Document type Journal Article
    ZDB-ID 1036679-9
    ISSN 1538-005X ; 0898-5669
    ISSN (online) 1538-005X
    ISSN 0898-5669
    DOI 10.1097/PEP.0000000000000902
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article ; Online: F-Wörter und Interventionsinhalte in der Frühförderung nicht gehfähiger Kinder mit Cerebralparese: eine umfangreiche Literaturübersicht.

    De Campos, Ana Carolina / Hidalgo-Robles, Álvaro / Longo, Egmar / Shrader, Claire / Paleg, Ginny

    Developmental medicine and child neurology

    2023  Volume 66, Issue 1, Page(s) e23–e34

    Language English
    Publishing date 2023-09-23
    Publishing country England
    Document type Journal Article ; Review
    ZDB-ID 80369-8
    ISSN 1469-8749 ; 0012-1622
    ISSN (online) 1469-8749
    ISSN 0012-1622
    DOI 10.1111/dmcn.15756
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  3. Article ; Online: Impacto do vírus Zika congênito e COVID-19 na deficiência infantil na América Latina.

    Schiariti, Verónica / Longo, Egmar / de Campos, Ana Carolina

    Developmental medicine and child neurology

    2021  Volume 63, Issue 11, Page(s) e3

    Language English
    Publishing date 2021-10-15
    Publishing country England
    Document type Editorial
    ZDB-ID 80369-8
    ISSN 1469-8749 ; 0012-1622
    ISSN (online) 1469-8749
    ISSN 0012-1622
    DOI 10.1111/dmcn.15046
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  4. Article ; Online: Impacto de la infección congénita por Zika virus y COVID-19 en la discapacidad infantil en América Latina.

    Schiariti, Verónica / Longo, Egmar / de Campos, Ana Carolina

    Developmental medicine and child neurology

    2021  Volume 63, Issue 11, Page(s) e1–e2

    Language English
    Publishing date 2021-10-15
    Publishing country England
    Document type Editorial
    ZDB-ID 80369-8
    ISSN 1469-8749 ; 0012-1622
    ISSN (online) 1469-8749
    ISSN 0012-1622
    DOI 10.1111/dmcn.15045
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  5. Article ; Online: Early intervention evidence for infants with or at risk for cerebral palsy: an overview of systematic reviews.

    Damiano, Diane L / Longo, Egmar

    Developmental medicine and child neurology

    2021  Volume 63, Issue 7, Page(s) 771–784

    Abstract: Aim: To perform an overview of systematic reviews and more recent randomized controlled trials (RCTs) on early motor interventions in infants aged 0 to 3 years with or at risk of cerebral palsy to inform current clinical and research efforts and provide ...

    Abstract Aim: To perform an overview of systematic reviews and more recent randomized controlled trials (RCTs) on early motor interventions in infants aged 0 to 3 years with or at risk of cerebral palsy to inform current clinical and research efforts and provide a benchmark to assess future interventions ideally initiated within the first 6 months.
    Method: Standardized searches of the PubMed, Embase, Scopus, and Web of Science databases were conducted for systematic reviews (2009-2020) and RCTs (2015-2020).
    Results: From 840 unique records, 31 full texts were reviewed, yielding three systematic reviews encompassing 46 studies, 16 with comparison groups, and six additional RCTs that met the criteria. Two enrichment- and activity-based approaches had medium effect sizes on motor development, only one with low risk of bias; two others had large task-specific effect sizes but some bias concerns; and three enriched environment studies with some bias concerns had medium effect sizes on cognitive development. Most had small or no effect sizes, bias concerns, and uncertain diagnostic determinations.
    Interpretation: Data synthesis revealed limited data quantity and quality, and suggest, although not yet confirmed, greater benefit from early versus later intervention. Research efforts with greater early diagnostic precision and earlier intervention are accelerating, which may transform future outcomes and practices. What this paper adds For over 50% of trials within the reviews, the intervention was compared to standard care with only two showing efficacy. Similar to results in older children, constraint-induced movement therapy (CIMT) emerged as efficacious with high effect sizes. CIMT was not superior to similarly intense bimanual training or occupational therapy. Goals-Activity-Motor Enrichment intervention initiated before 5 months of age was superior to equally intense standard care. Several other enriched environment strategies promoted cognitive and/or motor development.
    MeSH term(s) Cerebral Palsy/diagnosis ; Cerebral Palsy/therapy ; Child, Preschool ; Humans ; Infant ; Infant, Newborn ; Physical Therapy Modalities ; Randomized Controlled Trials as Topic ; Systematic Reviews as Topic
    Language English
    Publishing date 2021-04-06
    Publishing country England
    Document type Journal Article ; Review
    ZDB-ID 80369-8
    ISSN 1469-8749 ; 0012-1622
    ISSN (online) 1469-8749
    ISSN 0012-1622
    DOI 10.1111/dmcn.14855
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  6. Article ; Online: Impact of congenital Zika virus and COVID-19 on childhood disability in Latin America.

    Schiariti, Verónica / Longo, Egmar / de Campos, Ana Carolina

    Developmental medicine and child neurology

    2021  Volume 63, Issue 11, Page(s) 1241

    MeSH term(s) COVID-19 ; Child ; Disabled Children ; Health Services Accessibility ; Humans ; Latin America ; Zika Virus Infection
    Language English
    Publishing date 2021-09-28
    Publishing country England
    Document type Editorial
    ZDB-ID 80369-8
    ISSN 1469-8749 ; 0012-1622
    ISSN (online) 1469-8749
    ISSN 0012-1622
    DOI 10.1111/dmcn.14998
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  7. Article ; Online: F-words e ingredientes de las intervenciones tempranas dirigidas a niños no ambulantes con parálisis cerebral: Una revisión exploratoria.

    de Campos, Ana Carolina / Hidalgo-Robles, Álvaro / Longo, Egmar / Shrader, Claire / Paleg, Ginny

    Developmental medicine and child neurology

    2023  Volume 66, Issue 1, Page(s) e1–e11

    Abstract: La atención centrada en la familia (incluyendo coaching e intervenciones realizadas por los cuidadores) y el entrenamiento formal de los padres son estrategias efectivas para los niños con niveles IV y V de la GMFCS. Los ingredientes de la tecnología de ... ...

    Abstract La atención centrada en la familia (incluyendo coaching e intervenciones realizadas por los cuidadores) y el entrenamiento formal de los padres son estrategias efectivas para los niños con niveles IV y V de la GMFCS. Los ingredientes de la tecnología de apoyo pueden promover varias "F-words" (funcionamiento, estado físico, familia, diversión, amigos y futuro). Se encontró el nivel más bajo de evidencia para diversión, amigos y futuro. Otros factores (provisión de servicios, formación profesional, dosis de terapia, modificaciones del entorno) son relevantes para los niños pequeños con niveles IV y V de la GMFCS. Ingredientes de la intervención y F-words en intervenciones tempranas dirigidas a niños no ambulantes con parálisis cerebral.
    Language English
    Publishing date 2023-07-25
    Publishing country England
    Document type Journal Article ; Review
    ZDB-ID 80369-8
    ISSN 1469-8749 ; 0012-1622
    ISSN (online) 1469-8749
    ISSN 0012-1622
    DOI 10.1111/dmcn.15716
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  8. Article ; Online: F-words e ingredientes das intervenções precoces para crianças com paralisia cerebral não deambuladoras: uma revisão de escopo.

    De Campos, Ana Carolina / Hidalgo-Robles, Álvaro / Longo, Egmar / Shrader, Claire / Paleg, Ginny

    Developmental medicine and child neurology

    2023  Volume 66, Issue 1, Page(s) e12–e22

    Abstract: Cuidados centrados na família (incluindo coaching e intervenções fornecidas pelo cuidador) e treinamento parental formal são estratégias eficazes para crianças nos níveis IV e V do GMFCS. Os ingredientes de tecnologia assistiva podem promover várias F- ... ...

    Abstract Cuidados centrados na família (incluindo coaching e intervenções fornecidas pelo cuidador) e treinamento parental formal são estratégias eficazes para crianças nos níveis IV e V do GMFCS. Os ingredientes de tecnologia assistiva podem promover várias F-words (funcionalidade, saúde, família, diversão, amigos e futuro). O menor nível de evidência foi encontrado para diversão, amigos e futuro. Outros fatores (prestação de serviços, treinamento profissional, dose de terapia, modificações ambientais) são relevantes para crianças pequenas nos níveis IV e V do GMFCS. Esta revisão de escopo identificou os ingredientes de intervenções precoces para crianças com paralisia cerebral em risco de não serem deambuladoras, e os mapeou-os de acordo com a estrutura das F-words. O treinamento formal dos pais e a tecnologia assistiva se destacaram como estratégias para abordar com várias F-words.
    Language English
    Publishing date 2023-07-25
    Publishing country England
    Document type Journal Article ; Review
    ZDB-ID 80369-8
    ISSN 1469-8749 ; 0012-1622
    ISSN (online) 1469-8749
    ISSN 0012-1622
    DOI 10.1111/dmcn.15717
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  9. Article ; Online: Go Zika Go: feasibility study with modified motorized ride-on cars for the mobility of children with Congenital Zika Syndrome (CZS).

    Felix, Jean Bendito / de Campos, Ana Carolina / Logan, Samuel W / Machado, Julianne / Souza Monteiro, Karoline / Longo, Egmar

    Disability and rehabilitation. Assistive technology

    2024  , Page(s) 1–14

    Abstract: Purpose: To explore the feasibility of an intervention using modified ride-on cars in terms of acceptability and potential changes in goal attainment, mobility, social function, and participation of children with Congenital Zika Syndrome (CZS).: ... ...

    Abstract Purpose: To explore the feasibility of an intervention using modified ride-on cars in terms of acceptability and potential changes in goal attainment, mobility, social function, and participation of children with Congenital Zika Syndrome (CZS).
    Materials and methods: A pre- and post-intervention feasibility study was conducted with children with CZS, levels IV and V of the Gross Motor Function Classification System (GMFCS). The intervention consisted of 12 weeks of training (3 times a week for 40 min per session) and 4 weeks of follow-up. The primary outcomes included adherence, satisfaction, and learning in mobility. Secondary outcomes encompassed goal attainment, mobility, social/cognitive function, and participation. Descriptive statistics were performed. To explore potential individual changes with the intervention, Wilcoxon test was used to analyze Pediatric Evaluation of Disability Inventory - Computer Adaptive Test (PEDI-CAT) data and Young Children's Participation and Environment Measure (YC-PEM)/Participation and Environment Measure for Children and Youth (PEM-CY), along with standard error measurements of the PEDI-CAT domains.
    Results: Four children participated (median age 4.75 years; two females: three at level V on the GMFCS). Adherence was 75% of the total intervention time, and family members reported being satisfied or very satisfied. Children showed gains in learning the use of the modified ride-on cars and an increase in goal attainment after the intervention. Individual changes were observed in the PEDI-CAT domains (mobility and social/cognitive), but there were no significant changes in participation outcomes.
    Conclusions: Children with CZS at GMFCS levels IV and V can learn to use motorized ride-on cars, attainment goals, and experience satisfaction.
    Language English
    Publishing date 2024-01-02
    Publishing country England
    Document type Journal Article
    ZDB-ID 2221782-4
    ISSN 1748-3115 ; 1748-3107
    ISSN (online) 1748-3115
    ISSN 1748-3107
    DOI 10.1080/17483107.2023.2300052
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  10. Article: Restrictions on persons with disabilities for participating in family and community activities.

    García-Puello, Floralinda / Herazo-Beltrán, Yaneth / Pinillos-Patiño, Yisel / Suarez-Palacio, Damaris / Longo, Egmar

    Revista de salud publica (Bogota, Colombia)

    2023  Volume 22, Issue 1, Page(s) 62–68

    Abstract: Objective: To identify the influence of functional impairments and limitations activities for persons with disabilities to particípate in family and community activities.: Methods: This is a cross-sectional study with 4 044 persons with disabilities, ...

    Abstract Objective: To identify the influence of functional impairments and limitations activities for persons with disabilities to particípate in family and community activities.
    Methods: This is a cross-sectional study with 4 044 persons with disabilities, selected using probabilistic sampling and a door-to-door active search model in 5 towns in the District of Barranquilla. The data were processed with univariate analysis and bivariate analysis to determine the relationship between the study variables.
    Results: 55.9% of the population were males, 41.6% were between 15 and 44 years of age, and 92.9% belonged to the lower socioeconomic stratum. 82.9% reported mobility limitations and 99% reported barriers to access non-formal learning activities, 98.6% to access public activities, and 97.5% to access productive activities. Individuals with that a lower limitation in exercising the power of reason, particularly thinking, can increase participation in activities with family and friends (OR, 0.8; 95% CI, 0.6-0.9), with the community (OR, 0.7; 95% CI, 0.6-0.9), religious or spiritual activities (OR, 0.8; 95% CI, 0.7-0.9).
    Conclusions: There is a directly proportional relationship between structural impairment with the development of dependency and limited family, social, and work participation in the persons with disabilities.
    MeSH term(s) Male ; Humans ; Aged, 80 and over ; Female ; Cross-Sectional Studies ; Disabled Persons ; Community Participation ; Exercise ; Friends
    Language English
    Publishing date 2023-01-18
    Publishing country Colombia
    Document type Journal Article
    ZDB-ID 2060572-9
    ISSN 0124-0064
    ISSN 0124-0064
    DOI 10.15446/rsap.V22n1.80515
    Database MEDical Literature Analysis and Retrieval System OnLINE

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