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Article: Monitoring physical impact and recovery of pancreatic cancer treatment using consumer wearable health data: A case report.

van der Schans, Cees P / van der Schans, Simon / van der Schans, Jurjen / Mylius, Caspar / Klaase, Joost

2023 Volume 9, Page(s) 20552076231177127

Abstract: Consumer wearables health data may reflect the impact of pancreatic cancer and its treatment on cardiorespiratory fitness and the subsequent recovery after treatment. The patient is a 65-year-old male treated for borderline resectable pancreatic cancer. ... ...

Abstract	Consumer wearables health data may reflect the impact of pancreatic cancer and its treatment on cardiorespiratory fitness and the subsequent recovery after treatment. The patient is a 65-year-old male treated for borderline resectable pancreatic cancer. Treatment consisted of four courses of FOLFIRINOX neoadjuvant chemotherapy, a Whipple procedure with a right hemicolectomy and venous segment resection, and eight courses of adjuvant FOLFIRINOX chemotherapy. Physical activity and moderate to vigorous physical activity declined after the onset of symptoms, increased in the weeks before surgery, declined after surgery and then gradually recovered during and after adjuvant chemotherapy. Estimated VO
Language	English
Publishing date	2023-05-22
Publishing country	United States
Document type	Journal Article
ZDB-ID	2819396-9
ISSN	2055-2076
ISSN	2055-2076
DOI	10.1177/20552076231177127
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Article ; Online: The roles of adult siblings of individuals with a profound intellectual disability.

Dorsman, Naomi I / Waninge, Aly / van der Schans, Cees P / Luijkx, Jorien / Van der Putten, Annette A J

Journal of applied research in intellectual disabilities : JARID

2023 Volume 36, Issue 6, Page(s) 1308–1318

Abstract: Background: Adult siblings are important in the lives of individuals with profound intellectual disabilities, especially as parents age. However, little is known about the roles they assume.: Method: We examined these roles among 58 participants from ...

Abstract	Background: Adult siblings are important in the lives of individuals with profound intellectual disabilities, especially as parents age. However, little is known about the roles they assume. Method: We examined these roles among 58 participants from the Netherlands, who completed an online questionnaire. Results: Most participants (89.7%) assumed multiple roles, and the majority were content with their roles. Between 7% and 58% indicated that they were the only individuals providing a certain role. Shared roles primarily involved healthcare professionals, other siblings, and parents. Almost half the participants (48.2%) assigned higher scores for the amount of support provided than for the experienced burden. Conclusions: Adult siblings often assume multiple roles. The shared roles emphasise the importance of collaboration.
MeSH term(s)	Child ; Adult ; Humans ; Siblings ; Intellectual Disability ; Developmental Disabilities ; Parents ; Caregivers
Language	English
Publishing date	2023-08-07
Publishing country	England
Document type	Journal Article
ZDB-ID	1326222-1
ISSN	1468-3148 ; 0952-9608 ; 1360-2322
ISSN (online)	1468-3148
ISSN	0952-9608 ; 1360-2322
DOI	10.1111/jar.13149
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Zs.A 4157: Show issues

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Article ; Online: Actual physical activity after major abdominal cancer surgery: Far from optimal.

Hogenbirk, Rianne N M / Wijma, Allard G / van der Plas, Willemijn Y / Hentzen, Judith E K R / de Bock, Geertruida H / van der Schans, Cees P / Kruijff, Schelto / Klaase, Joost M

European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology

2024 Volume 50, Issue 2, Page(s) 107949

Abstract: ... on the seventh postoperative day. An association between physical activity and age (OR 3.597, p = 0.013 ... preoperative weight loss ≥10 % (OR 4.984, p = 0.004), Eastern Cooperative Oncology Group performance status ≥2 ... OR 4.016, p = 0.001), midline laparotomy (OR 2.851, p = 0.025), and operation duration (OR 1.003, p ...

Abstract	Background: Enhanced recovery after surgery protocols emphasize the importance of early postoperative mobilization. However, literature quantifying actual physical activity after major abdominal cancer surgery is scarce and inconclusive. Material and methods: A single-center prospective cohort study was conducted at the University Medical Center Groningen from 2019 to 2021. Patients' postoperative physical activity was measured using an accelerometer, with the primary aim of assessing daily physical activity. Secondary aims were identifying patient-related factors associated with low physical activity and studying the consequences of low physical activity in terms of complication rate and length of hospital stay. Results: 143 patients included (48 % male; mean age 65 years), 38.5 %, 24.5 %, 19.6 %, and 14 % underwent pancreatic, hepatic, colorectal, or cytoreductive surgery with hyperthermic intraperitoneal chemotherapy, respectively. Median daily step count was low; from median 71 steps on the first to 918 steps on the seventh postoperative day. An association between physical activity and age (OR 3.597, p = 0.013), preoperative weight loss ≥10 % (OR 4.984, p = 0.004), Eastern Cooperative Oncology Group performance status ≥2 (OR 4.016, p = 0.001), midline laparotomy (OR 2.851, p = 0.025), and operation duration (OR 1.003, p = 0.044) was found. An association was observed between physical activity and the occurrence of complications (OR 3.197, p = 0.039) and prolonged hospital stay (β 4.068, p = 0.013). Conclusion: Postoperative physical activity is low in patients undergoing major abdominal cancer surgery and is linked to postoperative outcomes. Although physical activity should be encouraged in all patients, patient-specific risk factors were identified that can aid early recognition of patients at risk of low physical activity.
MeSH term(s)	Humans ; Male ; Aged ; Female ; Prospective Studies ; Exercise ; Abdominal Neoplasms/surgery ; Pancreas ; Risk Factors ; Postoperative Complications/epidemiology ; Length of Stay
Language	English
Publishing date	2024-01-06
Publishing country	England
Document type	Journal Article
ZDB-ID	632519-1
ISSN	1532-2157 ; 0748-7983
ISSN (online)	1532-2157
ISSN	0748-7983
DOI	10.1016/j.ejso.2024.107949
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Zs.A 1149: Show issues			Location: Je nach Verfügbarkeit (siehe Angabe bei Bestand) bis Jg. 1994: Bestellungen von Artikeln über das Online-Bestellformular Jg. 1995 - 2021: Lesesall (1.OG) ab Jg. 2022: Lesesaal (EG)
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Article: Filial Piety and Mental Health Among Older Chinese Immigrants in the Netherlands.

Cheung, Sie-Long / Krijnen, Wim P / Fu, Yuanyuan / van der Schans, Cees P / Hobbelen, Hans

Gerontology & geriatric medicine

2022 Volume 8, Page(s) 23337214221083470

Abstract: Filial piety is important to Chinese adults and is associated with mental health among older Chinese immigrants in the United States. However, it is unclear whether filial piety is linked to the mental health of Chinese immigrants in European countries. ... ...

Abstract	Filial piety is important to Chinese adults and is associated with mental health among older Chinese immigrants in the United States. However, it is unclear whether filial piety is linked to the mental health of Chinese immigrants in European countries. Therefore, this study aims to gain insights into the association between mental health and filial piety of first-generation Chinese immigrants in the Netherlands. A random sample of 143 participants took part in the study. A cross-sectional design was used. Data were collected through a postal survey conducted in the Chinese language between January 2021 and March 2021. The survey included a Mental Health Continuum-Short Form (MHC), and expected and perceived filial piety scale. The results indicated that in general, perceived filial piety exceeded expected filial piety ('filial piety sufficient'). Regression analysis revealed that 'filial piety sufficient' is associated with a higher emotional MHC (B =.498,
Language	English
Publishing date	2022-03-10
Publishing country	United States
Document type	Journal Article
ZDB-ID	2844974-5
ISSN	2333-7214 ; 2333-7214
ISSN (online)	2333-7214
ISSN	2333-7214
DOI	10.1177/23337214221083470
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Article ; Online: Changes in Self-Reported and Device-Measured Physical Activity Before Abdominal Resection Surgery: A Meta-Analysis.

Mylius, Caspar F / Mooiweer, Yvet / Krijnen, Wim P / Takken, Tim / van Munster, Barbara C / van der Schans, Cees P / Klaase, Joost M

Clinical rehabilitation

2023 Volume 38, Issue 2, Page(s) 216–233

Abstract: Objective: To determine the effect of interventions on physical activity levels of patients awaiting abdominal resection surgery using self-reported as well as device-measured outcome measures.: Data source: PubMed and EMBASE databases were searched ... ...

Abstract	Objective: To determine the effect of interventions on physical activity levels of patients awaiting abdominal resection surgery using self-reported as well as device-measured outcome measures. Data source: PubMed and EMBASE databases were searched on the 18 Review methods: Studies were included if pre- and post-intervention physical activity was measured between diagnosis and abdominal surgery. Risk of bias was assessed by the Physiotherapy Evidence Database (PEDro) assessment tool for trials. Meta-analyses were performed to assess the effect of the pre-surgery activity promoting interventions on self-reported and device-measured physical activity. Results: Seventeen studies were included in the analysis with 452 subjects in the intervention groups. The random-effect meta-analysis showed a moderate improvement in intervention groups measures in pre-surgery physical activity levels compared to the baseline (SMD = 0.67, [CI = 0.30;1.03], Conclusion: Increasing physical activity in the preoperative phase is feasible. Self-reported physical activity outcome measures show larger effects compared to device-measured outcome measures. More high-quality research should be performed utilizing objective measures.
MeSH term(s)	Humans ; Self Report ; Exercise
Language	English
Publishing date	2023-09-21
Publishing country	England
Document type	Meta-Analysis ; Journal Article
ZDB-ID	639276-3
ISSN	1477-0873 ; 0269-2155
ISSN (online)	1477-0873
ISSN	0269-2155
DOI	10.1177/02692155231202215
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Article ; Online: Improvement of Limb Volumes After Bariatric Surgery in Nine End-Stage Primary, Secondary, and Obesity-Induced Lymphedema Patients: A Multiple Case Report.

Hendrickx, Ad A / Damstra, Robert J / Krijnen, Wim P / van der Schans, Cees P

Lymphatic research and biology

2021 Volume 20, Issue 1, Page(s) 64–70

Abstract: Background: ...

Abstract	Background:
MeSH term(s)	Bariatric Surgery ; Body Mass Index ; Humans ; Lymphedema/diagnosis ; Lymphedema/etiology ; Lymphedema/surgery ; Obesity, Morbid/complications ; Obesity, Morbid/surgery ; Retrospective Studies
Language	English
Publishing date	2021-03-29
Publishing country	United States
Document type	Case Reports ; Journal Article
ZDB-ID	2147953-7
ISSN	1557-8585 ; 1539-6851
ISSN (online)	1557-8585
ISSN	1539-6851
DOI	10.1089/lrb.2020.0055
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Zs.A 5921: Show issues

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Article ; Online: Transition to adulthood of adolescents with profound intellectual and multiple disabilities: Content validation of the SGU-PIMD to support families.

Luitwieler, Nicole / Luijkx, Jorien / van der Stege, Heleen A / Grootoonk, Anneke / van der Schans, Cees P / van der Putten, Annette A J / Waninge, Aly

Journal of applied research in intellectual disabilities : JARID

2023 Volume 37, Issue 1, Page(s) e13161

Abstract: Background: For families with adolescent children, the transition to adulthood is usually challenging. This period may be extra demanding for families with a child with profound intellectual and multiple disabilities due to the child's strong and ... ...

Abstract	Background: For families with adolescent children, the transition to adulthood is usually challenging. This period may be extra demanding for families with a child with profound intellectual and multiple disabilities due to the child's strong and persistent support needs. To support these families during this phase and to facilitate the transition process of these adolescents, we adapted the Canadian skills for growing up (SGU) into the skills for growing up-profound intellectual and multiple disabilities (SGU-PIMD). The aim of this study is to determine its content validity. Method: A Delphi study with family members and healthcare professionals was conducted. Results: Results showed good content validity. However, the Delphi panel suggested minor adjustments to improve relevance, comprehensibility and comprehensiveness. Conclusions: The current SGU-PIMD can be used in practice for supporting adolescents with profound intellectual and multiple disabilities. However, there are also recommendations for research into the feasibility and acceptability of the instrument.
MeSH term(s)	Child ; Humans ; Adolescent ; Intellectual Disability ; Canada ; Disabled Persons ; Family ; Severity of Illness Index
Language	English
Publishing date	2023-10-04
Publishing country	England
Document type	Journal Article
ZDB-ID	1326222-1
ISSN	1468-3148 ; 0952-9608 ; 1360-2322
ISSN (online)	1468-3148
ISSN	0952-9608 ; 1360-2322
DOI	10.1111/jar.13161
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ab Jg. 2022: Lesesaal (EG)

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Article ; Online: Development of a Dutch Training/Education Program for a Healthy Lifestyle of People With Intellectual Disability.

Overwijk, Annelies / Hilgenkamp, Thessa I M / van der Schans, Cees P / van der Putten, Annette A J / Waninge, Aly

Intellectual and developmental disabilities

2022 Volume 60, Issue 2, Page(s) 163–177

Abstract: Individuals with intellectual disability (ID) need support from direct support professionals (DSPs) to engage in a healthy lifestyle. However, literature shows DSPs feel insufficiently equipped to support a healthy lifestyle. Therefore, the aim of this ... ...

Abstract	Individuals with intellectual disability (ID) need support from direct support professionals (DSPs) to engage in a healthy lifestyle. However, literature shows DSPs feel insufficiently equipped to support a healthy lifestyle. Therefore, the aim of this study is to develop a theory-based program for DSPs to support physical activity and healthy nutrition for people with moderate to profound levels of ID, and to design its evaluation. The Intervention Mapping Protocol (IM) was followed to develop a theory-based program for DSPs. The program evaluation consists of process and feasibility evaluations. This study provided a theory-based program consisting of a training and education section with online and face-to-face components to support DSPs in promoting health for people with ID.
MeSH term(s)	Exercise ; Health Promotion ; Healthy Lifestyle ; Humans ; Intellectual Disability ; Program Evaluation
Language	English
Publishing date	2022-03-17
Publishing country	United States
Document type	Journal Article ; Research Support, Non-U.S. Gov't
ZDB-ID	2267983-2
ISSN	1934-9556 ; 1934-9491
ISSN (online)	1934-9556
ISSN	1934-9491
DOI	10.1352/1934-9556-60.2.163
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Article: Definitions, signs, and symptoms of constipation in people with severe or profound intellectual disabilities: A systematic review.

Wagenaar, Marjolijn C / van der Putten, Annette A J / Douma, Johanna G / van der Schans, Cees P / Waninge, Aly

Heliyon

2022 Volume 8, Issue 5, Page(s) e09479

Abstract: Background: It is difficult to diagnose constipation for people with severe or profound intellectual disabilities. Definitions for this are ambiguous, and the symptoms and signs are often unnoticed. The aim of this study is to identify clear definitions ...

Abstract	Background: It is difficult to diagnose constipation for people with severe or profound intellectual disabilities. Definitions for this are ambiguous, and the symptoms and signs are often unnoticed. The aim of this study is to identify clear definitions of constipation for people with different levels of intellectual disabilities and to identify signs and symptoms. Method: Guided by the PRISMA statement, a systematic review of the literature was conducted within electronic databases MEDLINE, Embase, CINAHL, Cochrane, and PsycINFO. Definitions, signs, and symptoms were extracted and the quality of definitions was assessed. Results: In total, 24 studies were included. Quality of definitions ranged from poor to good quality. Standard and referenced definitions were used in ten studies, a self-composed definition was employed in eleven studies; and three studies did not refer to a source of the definition. The self-composed definitions had not been evaluated after being used for the target group, and no scientific substantiation was available. A broad range of signs and symptoms were described. Conclusions: No substantiated definition has been ascertained for constipation for people with severe or profound intellectual disabilities. Further research will be necessary to identify which signs and symptoms are important for defining constipation in this target group.
Language	English
Publishing date	2022-05-20
Publishing country	England
Document type	Journal Article
ZDB-ID	2835763-2
ISSN	2405-8440
ISSN	2405-8440
DOI	10.1016/j.heliyon.2022.e09479
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Article: Early Referral for Breast-Cancer-Related Lymphedema: Do We Follow the Evidence? A Two-Year Prospective Multicenter Cohort Study.

Hendrickx, Ad A / Küthe, Saskia W / van der Schans, Cees P / Krijnen, Wim P / Mouës-Vink, Chantal M / Damstra, Robert J

Cancers

2022 Volume 14, Issue 23

Abstract: The early detection of breast-cancer-related lymphedema and referral for therapy has the potential to reduce lymphedema-related morbidity. Although research shows the benefits, a gap is observed between evidence and daily practice. We aimed to determine ... ...

Abstract	The early detection of breast-cancer-related lymphedema and referral for therapy has the potential to reduce lymphedema-related morbidity. Although research shows the benefits, a gap is observed between evidence and daily practice. We aimed to determine whether the early detection of lymphedema and referral for treatment is adequate following the current guidelines. Women with primary breast cancer treated with breast-conserving therapy or ablative treatment were included. Demographic-, general health-, tumor-, and treatment-related data were recorded. Bilateral arm volume measurements were performed preoperatively and 3, 6, 12, and 24 months post-surgery. A 5% or greater Relative Volume Change was considered the cutoff point for lymphedema and as an indication for therapy referral. After 24 months post-surgery, the main outcomes show that among the patients with early signs of lymphedema, based on a Relative Volume Change ≥5%, a nonreferral for therapy was noted in 83%. Additionally, we observed a significant improvement of the mean Relative Volume Change at 24 months within this group, which might implicate that nonreferral was an adequate choice and that watchful waiting is appropriate when lymphedema is detected within the first year post-surgery.
Language	English
Publishing date	2022-12-06
Publishing country	Switzerland
Document type	Journal Article
ZDB-ID	2527080-1
ISSN	2072-6694
ISSN	2072-6694
DOI	10.3390/cancers14236016
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