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  1. Article ; Online: Adolescents' understanding of chemotherapy-related adverse events: a concept elicitation study.

    Silva-Rodrigues, Fernanda Machado / Hinds, Pamela S / Nascimento, Lucila Castanheira

    Revista latino-americana de enfermagem

    2022  Volume 30, Issue spe, Page(s) e3717

    Abstract: Objective: to document adolescents' understanding of chemotherapy-related core adverse events from the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events and thus begin the validation process of this tool's ...

    Abstract Objective: to document adolescents' understanding of chemotherapy-related core adverse events from the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events and thus begin the validation process of this tool's items with Brazilian adolescents.
    Method: this is a prospective, qualitative study of concept elicitation. The participants were 17 adolescents aged 13-18 years and undergoing chemotherapy in three hospitals in São Paulo - SP, Brazil. Cognitive interviews were conducted with questions based on chemotherapy-related adverse events. Data were analyzed for responsiveness and missingness.
    Results: adolescents could and were willing to provide descriptive information about their chemotherapy adverse events, including physical and emotional events. Some participants suggested alternative terms to name the adverse events and some used more complex terms, but most were satisfied with the primary terms used by the researchers.
    Conclusion: this study represents the first steps towards understanding how adolescent cancer patients identify, name, and describe these events by cognitive interviewing to help design future assessment instruments focused on this age group.
    Keypoints: (1) Adolescents' voice is a priority in reporting chemotherapy-related adverse events. (2) Adverse events (AEs) inquiry may best be initiated with open-ended questions. (3) Elicitation studies can include the voices of the target population. (4) Adolescents with cancer can self-report clinically relevant chemotherapy AEs.
    MeSH term(s) Adolescent ; Humans ; Child ; Prospective Studies ; Brazil ; Patient Reported Outcome Measures ; Self Report ; Neoplasms/drug therapy ; Neoplasms/psychology
    Language Spanish
    Publishing date 2022-11-07
    Publishing country Brazil
    Document type Journal Article
    ZDB-ID 2105698-5
    ISSN 1518-8345 ; 1518-8345
    ISSN (online) 1518-8345
    ISSN 1518-8345
    DOI 10.1590/1518-8345.6245.3717
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  2. Article ; Online: Coronavirus infection and nursing care for children and adolescents with cancer.

    Silva-Rodrigues, Fernanda Machado / Silva, Jennifer Kamila da / Felix, Adriana Maria da Silva

    Revista brasileira de enfermagem

    2021  Volume 74Suppl 1, Issue Suppl 1, Page(s) e20201049

    Abstract: Objective: Reflect on the implications of COVID-19 for the nursing care of pediatric oncology patients.: Methods: Theoretical and reflective essay, based on recent scientific publications and expert recommendations on the care of pediatric patients ... ...

    Abstract Objective: Reflect on the implications of COVID-19 for the nursing care of pediatric oncology patients.
    Methods: Theoretical and reflective essay, based on recent scientific publications and expert recommendations on the care of pediatric patients under cancer treatment in the context of the current pandemic.
    Results: Reflected on the involvement of the pediatric population in general by COVID-19, the vulnerability of pediatric oncology patients to the complications of the disease and the likely challenges for their care. The pandemic demanded a rapid adaptation of health services in terms of patient care flow, care protocols, infection prevention measures, and redefinition of cancer therapy, with repercussions for professionals, patients, and their families.
    Final considerations: It is not yet known how often or how severely children with cancer have been affected by COVID-19, but therapeutic and care adaptations for the maintenance of these patients' treatment in the pandemic context are noted.
    MeSH term(s) Adolescent ; COVID-19 ; Child ; Humans ; Neoplasms/complications ; Nursing Care ; Pandemics ; SARS-CoV-2
    Language Portuguese
    Publishing date 2021-07-12
    Publishing country Brazil
    Document type Journal Article
    ZDB-ID 731983-6
    ISSN 1984-0446 ; 0034-7167
    ISSN (online) 1984-0446
    ISSN 0034-7167
    DOI 10.1590/0034-7167-2020-1049
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  3. Article: The Sleep Patterns of Children and Adolescents with Chronic Conditions and Their Families: An Integrative Literature Review.

    Xavier, Welker da Silva / Abreu, Madalena Paulos / Nunes, Michelle Darezzo Rodrigues / Silva-Rodrigues, Fernanda Machado / da Silva, Liliane Faria / de Araújo, Barbara Bertolossi Marta / De Bortoli, Paula Saud / Neris, Rhyquelle Rhibna / Nascimento, Lucila Castanheira

    Children (Basel, Switzerland)

    2024  Volume 11, Issue 2

    Abstract: Sleep is of vital necessity for health, and it has a restorative and protective function for children and adolescents with chronic conditions and their families. The purpose of this study was to identify the scientific production on sleep patterns in ... ...

    Abstract Sleep is of vital necessity for health, and it has a restorative and protective function for children and adolescents with chronic conditions and their families. The purpose of this study was to identify the scientific production on sleep patterns in children and adolescents with chronic conditions and their families. This integrative review was conducted between March and June 2022 using the databases of MEDLINE, Web of Science, CINAHL and PsycINFO. The articles included were original papers published between January 2007 and mid-2022. Excluded were review studies that did not evaluate sleep and whose participants did not have chronic conditions or were not children, adolescents and/or their families. The searches returned 814 abstracts. After exclusions, 47 studies were selected to be read in full; of these, 29 were selected and were grouped empirically into four categories: major alterations in the sleep patterns of children and adolescents with chronic conditions; the relationship between sleep disorders and symptoms in children and adolescents with chronic conditions; the impaired sleep patterns of families of children and adolescents with chronic conditions; and sleep alterations and their relationship with other problems in families of children and adolescents with chronic conditions. All studies showed sleep pattern impairment in children and adolescents with chronic conditions as well as their families.
    Language English
    Publishing date 2024-02-06
    Publishing country Switzerland
    Document type Journal Article ; Review
    ZDB-ID 2732685-8
    ISSN 2227-9067
    ISSN 2227-9067
    DOI 10.3390/children11020207
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  4. Article ; Online: The Theory of Unpleasant Symptoms in Pediatric Oncology Nursing: A Conceptual and Empirical Fit?

    Silva-Rodrigues, Fernanda Machado / Hinds, Pamela S / Nascimento, Lucila Castanheira

    Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses

    2019  Volume 36, Issue 6, Page(s) 436–447

    Abstract: Symptom management knowledge is a priority for pediatric oncology nursing research. Theories and models can frame the studies of symptoms experienced during childhood cancer. This article describes and analyzes the middle-range theory, theory of ... ...

    Abstract Symptom management knowledge is a priority for pediatric oncology nursing research. Theories and models can frame the studies of symptoms experienced during childhood cancer. This article describes and analyzes the middle-range theory, theory of unpleasant symptoms (TOUS), for its conceptual and empirical fit with pediatric oncology nursing based on its current use in adult oncology research and its limited use to date in pediatric oncology. Searches in PubMed and CINAHL databases using the keywords
    MeSH term(s) Adult ; Child ; Female ; Humans ; Male ; Neoplasms/nursing ; Neoplasms/psychology ; Nursing Research ; Nursing Theory ; Oncology Nursing ; Palliative Care/psychology ; Pediatric Nursing ; Quality of Life/psychology
    Language English
    Publishing date 2019-04-26
    Publishing country United States
    Document type Journal Article ; Research Support, Non-U.S. Gov't ; Review
    ZDB-ID 1038107-7
    ISSN 1532-8457 ; 1043-4542
    ISSN (online) 1532-8457
    ISSN 1043-4542
    DOI 10.1177/1043454219844225
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  5. Article: Fathers' Experiences of Caring for a Child with a Chronic Illness: A Systematic Review.

    Spurr, Shelley / Danford, Cynthia A / Roberts, Karyn J / Sheppard-LeMoine, Debbie / Machado Silva-Rodrigues, Fernanda / Darezzo Rodrigues Nunes, Michelle / Darmofal, Leslie / Ersig, Anne L / Foster, Mandie / Giambra, Barbara / Lerret, Stacee / Polfuss, Michele / Smith, Lindsay / Somanadhan, Suja

    Children (Basel, Switzerland)

    2023  Volume 10, Issue 2

    Abstract: The prevalence of children living with chronic health conditions is increasing worldwide and can disrupt family roles, relationships, function, and parental involvement in family caregiving. The purpose of this systematic review was to explore fathers' ... ...

    Abstract The prevalence of children living with chronic health conditions is increasing worldwide and can disrupt family roles, relationships, function, and parental involvement in family caregiving. The purpose of this systematic review was to explore fathers' experiences and involvement in caring for a child with a chronic condition. Systematic searches using seven databases were conducted. Study criteria included (1) peer-reviewed original research in English, Spanish, French, or Portuguese, (2) children less than 19 years of age with a chronic condition, (3) fathers (biological or guardian) as direct informants, and (4) outcomes addressing fathers' experience, perceptions, and/or involvement in the child's care. Data were synthesized from ten articles reflecting eight separate studies that utilized quantitative designs. Three areas of focus were identified:
    Language English
    Publishing date 2023-01-20
    Publishing country Switzerland
    Document type Journal Article ; Review
    ZDB-ID 2732685-8
    ISSN 2227-9067
    ISSN 2227-9067
    DOI 10.3390/children10020197
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  6. Article ; Online: Management of chemotherapy-related symptoms in children and adolescents: family caregivers' perspectives.

    Silva-Rodrigues, Fernanda Machado / de Lucca, Milena / Leite, Ana Carolina Andrade Biaggi / Alvarenga, Willyane de Andrade / Nunes, Michele Darezzo Rodrigues / Nascimento, Lucila Castanheira

    Revista da Escola de Enfermagem da U S P

    2021  Volume 55, Page(s) e20200484

    Abstract: Objective: To describe the chemotherapy-associated symptoms and the strategies used for their management from the perspective of pediatric cancer patients' family caregivers.: Methods: This is a descriptive study with qualitative data analysis. Data ... ...

    Abstract Objective: To describe the chemotherapy-associated symptoms and the strategies used for their management from the perspective of pediatric cancer patients' family caregivers.
    Methods: This is a descriptive study with qualitative data analysis. Data collection took place in a pediatric hospital, from December 2017 to December 2018, with family caregivers of pediatric patients undergoing chemotherapy. Semi-structured interviews, subjected to inductive content analysis, were carried out. Concepts from the Symptom Management Theory were used to discuss the results.
    Results: Eighteen family caregivers participated. The participants mentioned: physical symptoms, especially weakness, alopecia, low immunity, pain, mucositis, constipation, nausea, and vomiting; emotional or psychosocial symptoms such as sadness and mood changes; and constitutional symptoms such as loss of appetite and fever. Pharmacological and non-pharmacological measures were mentioned in the management of symptoms and adverse effects.
    Conclusion: Participants demonstrated skills to identify and manage symptoms of chemotherapy. Knowing the experience of these families can help nurses in planning care and interventions to minimize these events.
    MeSH term(s) Adolescent ; Caregivers ; Child ; Humans ; Neoplasms/drug therapy ; Pain ; Palliative Care
    Language Portuguese
    Publishing date 2021-08-20
    Publishing country Brazil
    Document type Journal Article
    ZDB-ID 2411320-7
    ISSN 1980-220X ; 1980-220X
    ISSN (online) 1980-220X
    ISSN 1980-220X
    DOI 10.1590/1980-220X-REEUSP-2020-0484
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  7. Article ; Online: Pain Experience, Physical Function, Pain Coping, and Catastrophizing in Children With Sickle Cell Disease Who Had Normal and Abnormal Sensory Patterns.

    Hyacinth, Octavia / Machado Silva-Rodrigues, Fernanda / Darezzo Rodrigues Nunes, Michelle / Carlos Lopes, Luís / Fernandes, Ananda / Castanheira Nascimento, Lucila / Jacob, Eufemia

    Journal of pain and symptom management

    2020  Volume 60, Issue 6, Page(s) 1079–1091

    Abstract: Context: Sickle cell disease (SCD) is associated with recurrent pain that could lead to abnormal sensory patterns (ASPs).: Objectives: The purpose of this study is to compare children with SCD who had normal sensory patterns (NSPs) and ASPs in pain ... ...

    Abstract Context: Sickle cell disease (SCD) is associated with recurrent pain that could lead to abnormal sensory patterns (ASPs).
    Objectives: The purpose of this study is to compare children with SCD who had normal sensory patterns (NSPs) and ASPs in pain experience, physical function, pain coping, and pain catastrophizing.
    Methods: Children with quantitative sensory testing data were selected from a larger study that examined pain and symptoms in children with SCD. Comparisons were made between children with NSP (n = 35; 13.9 ± 1.9 years) and ASP (n = 13; 12.8 ± 1.9 years). Children completed the Adolescent Pediatric Pain Tool, Functional Disability Inventory, Pain Coping Questionnaire, and Pain Catastrophizing Scale.
    Results: No significant differences were found in pain intensity (2.9 ± 3.0 vs. 2.6 ± 2.8 on 0-10 Visual Analogue Scale) between the NSP and ASP, respectively. The most common marked pain sites for both groups were lower extremities (22.9%), head and neck (20.8%), and upper extremities (20.8%). Functional Disability Inventory scores were significantly worse in ASP (38.5%) compared with NSP (11.4%). The ASP group had significantly worse scores in emotion-focused pain coping subscales.
    Conclusion: Children with SCD with ASP had worse functional disability, were expressing more affective pain quality, and had emotion-focused pain coping compared with NSP. Future studies are needed to examine the effectiveness of physical activities on the physical function as well as psychosocial interventions such as peer support and creative arts expression to minimize development of ASP in children with SCD.
    MeSH term(s) Adaptation, Psychological ; Adolescent ; Anemia, Sickle Cell/complications ; Catastrophization ; Child ; Humans ; Pain ; Pain Measurement
    Language English
    Publishing date 2020-08-07
    Publishing country United States
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 639142-4
    ISSN 1873-6513 ; 0885-3924
    ISSN (online) 1873-6513
    ISSN 0885-3924
    DOI 10.1016/j.jpainsymman.2020.07.006
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    Zs.A 2252: Show issues Location:
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  8. Article ; Online: School reintegration of children and adolescents with chronic illness from the mothers' perspective: A qualitative study.

    Leite, Ana Carolina Andrade Biaggi / Rodrigues, Ana Laura / Alvarenga, Willyane de Andrade / Polita, Naiara Barros / Silva-Rodrigues, Fernanda Machado / Bolis, Letícia Onelli / Meherali, Salima / Nascimento, Lucila Castanheira

    Child: care, health and development

    2022  Volume 49, Issue 1, Page(s) 181–188

    Abstract: Introduction: The diagnosis of chronic illness in childhood implies frequent hospitalizations and, consequently, the interruption of school attendance. This study aimed to understand the process of school reintegration of children and adolescents with ... ...

    Abstract Introduction: The diagnosis of chronic illness in childhood implies frequent hospitalizations and, consequently, the interruption of school attendance. This study aimed to understand the process of school reintegration of children and adolescents with chronic illness from the mothers' perspective.
    Method: A qualitative descriptive-exploratory study was conducted with mothers who experienced the process of school reintegration of their child or adolescent, aged between 8 and 17 years old, and diagnosed with chronic illness. The participants were recruited by convenience and interviewed at the paediatric unit of a children's hospital. Data collection was interrupted when the data set was sufficient to answer the research question. The interviews were analysed using inductive thematic analysis. The study was approved by the research ethics committee.
    Results: Eleven interviews were conducted, 10 with mothers and one with a grandmother, who played the maternal role. Participants' age ranged between 33 and 58 years old. A theme was developed-"School reintegration under the maternal vigilance"-which encompasses four subthemes: (1) What matters? My child's health comes first; (2) How to keep in touch with the school? (3) Back to the school: Are we ready? (4) Sharing vigilance: reality and expectations. The themes highlighted a cyclical, dynamic, and subjective school reintegration process, constantly permeated by maternal vigilance.
    Conclusion: A new understanding about school reintegration was evidenced, from the perspective of mothers of children and adolescents with different chronic illnesses. Mothers and children experience a nonlinear and recurrent process of leaving and returning to school, surrounded by a lack of communication and continuity in school activities. The results of this study may assist health professionals in planning care focused on the needs of the school reintegration of this population.
    MeSH term(s) Female ; Child ; Adolescent ; Humans ; Adult ; Middle Aged ; Mothers ; Schools ; Qualitative Research ; Chronic Disease ; Communication
    Language English
    Publishing date 2022-07-12
    Publishing country England
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 223039-2
    ISSN 1365-2214 ; 0305-1862
    ISSN (online) 1365-2214
    ISSN 0305-1862
    DOI 10.1111/cch.13031
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    In stock of ZB MED Cologne/Königswinter

    Zs.A 1307: Show issues Location:
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  9. Article ; Online: Parental psychosocial needs in Brazilian paediatric intensive care units.

    Andrade, Rosyan Carvalho / Leite, Ana Carolina Andrade Biaggi / Alvarenga, Willyane de Andrade / Neris, Rhyquelle Rhibna / Araújo, Jeferson Santos / Polita, Naiara Barros / Silva-Rodrigues, Fernanda Machado / De Bortoli, Paula Saud / Jacob, Eufemia / Nascimento, Lucila Castanheira

    Intensive & critical care nursing

    2022  Volume 72, Page(s) 103277

    Abstract: Background: Having children admitted in the intensive care unit is a demanding experience for parents. They encounter several difficulties during this process, and it is important to properly identify their psychosocial needs for the health team to ... ...

    Abstract Background: Having children admitted in the intensive care unit is a demanding experience for parents. They encounter several difficulties during this process, and it is important to properly identify their psychosocial needs for the health team to address appropriately.
    Objective: The aim of the study is to identify the psychosocial needs encountered by parents of children in pediatric intensive care units in Brazil.
    Methods: A descriptive study with a qualitative approach was used to increase understanding of psychosocial experiences of parents. Individual semi-structured interviews were conducted with 11 parents of hospitalized children in pediatric intensive care units in Brazil. Thematic analysis was used to analyze the data. The university ethics review committee approved the research protocol. All parents were informed on study details and provided written consent prior to the interview.
    Results: Four themes were constructed: 1) Support from family and peers; 2) Support from the healthcare team; 3) Parental role; and 4) Emotional recovery. Parents expressed diverse psychosocial needs based on family and peer social support, child's clinical condition, as well as the structure, norms, and routines of health care teams during hospitalization.
    Conclusions: The findings highlight the importance of nursing assessment of psychosocial experiences encountered by parents of children in pediatric intensive care units, which will guide planning of individualized interventions and to increase family-centered care in pediatric intensive care units.
    MeSH term(s) Brazil ; Child ; Child, Hospitalized/psychology ; Humans ; Intensive Care Units, Pediatric ; Parents/psychology ; Qualitative Research ; Social Support
    Language English
    Publishing date 2022-06-04
    Publishing country Netherlands
    Document type Journal Article
    ZDB-ID 1105892-4
    ISSN 1532-4036 ; 0964-3397
    ISSN (online) 1532-4036
    ISSN 0964-3397
    DOI 10.1016/j.iccn.2022.103277
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  10. Article ; Online: Depressive symptoms and oral mucositis in children with oncological diseases: a cross-sectional study.

    Lemos, Felipe Barreto / Silva, Andressa Chang Fernandes Rodrigues da / Lima, Fernanda Pereira / Machado, Fernanda Conceição / Pereira, Luanderson Lopes / Caldas, Arnaldo França / Santos, Bruna Bustani Dos / Figueiredo, Andréia Cristina Leal

    Brazilian oral research

    2024  Volume 38, Page(s) e033

    Abstract: The aim of this study was to investigate the correlation between depressive symptoms and the occurrence of oral mucositis in children with oncological diseases treated at a reference hospital. This was a cross-sectional study conducted with individuals ... ...

    Abstract The aim of this study was to investigate the correlation between depressive symptoms and the occurrence of oral mucositis in children with oncological diseases treated at a reference hospital. This was a cross-sectional study conducted with individuals aged 4 to 18 years, diagnosed with primary neoplasms. Data was collected by using a questionnaire that assessed the degree of oral mucositis according to the World Health Organization index, the risk of oral mucositis according to the Child's International Mucositis Evaluation Scale, and depressive symptoms using the Children's Depression Inventory. The data were analyzed and subjected to Spearman's correlation, chi-square test, and Fisher's exact test, considering p<0.05. A statistically significant correlation was observed between depressive symptoms and the degree of oral mucositis (p = 0.044), and also between the "pain" variable within the risk of oral mucositis and depressive symptoms (p = 0.021). Based on the findings, it can be inferred that oral mucositis may be associated with the development of depressive symptoms and may be influenced by the individual's hospitalization, thereby affecting the quality of life of pediatric patients.
    MeSH term(s) Humans ; Stomatitis/psychology ; Stomatitis/etiology ; Child ; Cross-Sectional Studies ; Male ; Female ; Adolescent ; Child, Preschool ; Depression/psychology ; Neoplasms/complications ; Neoplasms/psychology ; Quality of Life ; Severity of Illness Index ; Surveys and Questionnaires ; Statistics, Nonparametric ; Risk Factors
    Language English
    Publishing date 2024-05-13
    Publishing country Brazil
    Document type Journal Article
    ZDB-ID 2179332-3
    ISSN 1807-3107 ; 1806-8324 ; 1517-7491
    ISSN (online) 1807-3107
    ISSN 1806-8324 ; 1517-7491
    DOI 10.1590/1807-3107bor-2024.vol38.0033
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