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  1. Article ; Online: Ophthalmic Research's Unique Challenges: Not All First-in-Human Surgeries Are the Same.

    Barnbaum, Deborah R

    The American journal of bioethics : AJOB

    2024  Volume 24, Issue 5, Page(s) 90–92

    MeSH term(s) Humans ; Face
    Language English
    Publishing date 2024-04-18
    Publishing country United States
    Document type Journal Article ; Comment
    ZDB-ID 2060433-6
    ISSN 1536-0075 ; 1526-5161
    ISSN (online) 1536-0075
    ISSN 1526-5161
    DOI 10.1080/15265161.2024.2328279
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Book: The ethics of autism

    Barnbaum, Deborah R.

    among them, but not of them

    (Bioethics and the humanities)

    2008  

    Author's details Deborah R. Barnbaum
    Series title Bioethics and the humanities
    Keywords Autistic Disorder / psychology ; Biomedical Research / ethics ; Mental Health Services / ethics ; Patient Care / ethics ; Philosophy, Medical ; Psychological Theory ; Autism/Philosophy ; Autism/Moral and ethical aspects
    Subject code 616.89
    Language English
    Size XII, 233 S.
    Publisher Indiana Univ. Press
    Publishing place Bloomington, Ind
    Publishing country United States
    Document type Book
    Note Includes bibliographical reference and index
    HBZ-ID HT015730726
    ISBN 978-0-253-22013-4 ; 0-253-35213-4 ; 0-253-22013-0 ; 978-0-253-35213-2
    Database Catalogue ZB MED Medicine, Health

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  3. Article ; Online: Data Safety Monitoring during Covid-19: Keep On Keeping On.

    Barnbaum, Deborah R

    Ethics & human research

    2020  Volume 42, Issue 3, Page(s) 43–44

    MeSH term(s) Betacoronavirus ; COVID-19 ; Clinical Trials Data Monitoring Committees ; Clinical Trials as Topic/ethics ; Clinical Trials as Topic/statistics & numerical data ; Computer Security ; Coronavirus Infections/epidemiology ; Humans ; Informed Consent ; Pandemics ; Pneumonia, Viral/epidemiology ; Research Subjects ; SARS-CoV-2
    Keywords covid19
    Language English
    Publishing date 2020-06-23
    Publishing country United States
    Document type Journal Article
    ISSN 2578-2363
    ISSN (online) 2578-2363
    DOI 10.1002/eahr.500053
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  4. Article ; Online: Randomization Among: The Other Randomization.

    Barnbaum, Deborah R

    Ethics & human research

    2019  Volume 41, Issue 5, Page(s) 35–40

    Abstract: A valid informed consent process for a randomized controlled trial requires the disclosure to potential participants that they will be randomized to receive the study intervention or a control intervention. This is a case of randomization within a trial, ...

    Abstract A valid informed consent process for a randomized controlled trial requires the disclosure to potential participants that they will be randomized to receive the study intervention or a control intervention. This is a case of randomization within a trial, a type of randomization that has received significant attention in research ethics. When institutions recruit large numbers of research participants for multisite clinical trials, a different, hidden form of randomization may occur: randomization among clinical trials. If it is essential to disclose to potential participants randomization within a clinical trial, then it may be the case that randomization among clinical trials recruiting individuals from the same cohort of eligible participants should also be disclosed. This article examines how randomization among clinical trials might take place and the ethical issues such randomization raises about informed consent to research participation.
    MeSH term(s) Bias ; Cohort Studies ; Disclosure ; Humans ; Informed Consent/ethics ; Randomized Controlled Trials as Topic ; Research Subjects
    Language English
    Publishing date 2019-09-20
    Publishing country United States
    Document type Journal Article
    ISSN 2578-2363
    ISSN (online) 2578-2363
    DOI 10.1002/eahr.500031
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  5. Article ; Online: Data Safety Monitoring during Covid‐19

    Barnbaum, Deborah R.

    Ethics & Human Research

    Keep On Keeping On

    2020  Volume 42, Issue 3, Page(s) 43–44

    Keywords covid19
    Language English
    Publisher Wiley
    Publishing country us
    Document type Article ; Online
    ISSN 2578-2355
    DOI 10.1002/eahr.500053
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  6. Article: Supererogation in clinical research.

    Barnbaum, Deborah R

    Medicine, health care, and philosophy

    2008  Volume 11, Issue 3, Page(s) 343–349

    Abstract: Supererogation' is the notion of going beyond the call of duty. The concept of supererogation has received scrutiny in ethical theory, as well as clinical bioethics. Yet, there has been little attention paid to supererogation in research ethics. ... ...

    Abstract 'Supererogation' is the notion of going beyond the call of duty. The concept of supererogation has received scrutiny in ethical theory, as well as clinical bioethics. Yet, there has been little attention paid to supererogation in research ethics. Supererogation is examined in this paper from three perspectives: (1) a summary of two analyses of 'supererogation' in moral theory, as well as an examination as to whether acts of supererogation exist; (2) a discussion of supererogation in clinical practice, including arguments that both physicians and patients can practice acts of supererogation; (3) a discussion as to why researchers, qua researchers, are not routinely recognized to perform acts of supererogation, while at the same time the very nature of research subject participation involves supererogation. The article concludes by considering three examples of supererogation on the part of researchers, with a plea that researchers' supererogatory actions be recognized as such.
    MeSH term(s) Altruism ; Ethics, Clinical ; Ethics, Research ; Health Personnel/ethics ; Humans ; Moral Obligations ; Morals ; Patients ; Research Personnel/ethics ; Research Subjects
    Language English
    Publishing date 2008-02-22
    Publishing country Netherlands
    Document type Journal Article
    ZDB-ID 1440052-2
    ISSN 1386-7423
    ISSN 1386-7423
    DOI 10.1007/s11019-008-9124-4
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  7. Article: Ex post facto IRB review: two practical hurdles, one conceptual mistake.

    Barnbaum, Deborah R

    Newsletter on philosophy and medicine

    2003  Volume 3, Issue 1, Page(s) 164–167

    MeSH term(s) Ethical Review/standards ; Ethics Committees, Research/standards ; Human Experimentation/ethics ; Humans ; Informed Consent/ethics ; Risk Assessment ; Time Factors
    Language English
    Publishing date 2003
    Publishing country United States
    Document type Journal Article
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  8. Book: The ethics of autism

    Barnbaum, Deborah R

    among them, but not of them

    (Bioethics and the humanities)

    2008  

    Author's details Deborah R. Barnbaum
    Series title Bioethics and the humanities
    MeSH term(s) Autistic Disorder/psychology ; Biomedical Research/ethics ; Mental Health Services/ethics ; Patient Care/ethics ; Philosophy, Medical ; Psychological Theory
    Language English
    Size xii, 233 p. :, ill.
    Publisher Indiana University Press
    Publishing place Bloomington
    Document type Book
    ISBN 9780253352132 ; 9780253220134 ; 0253352134 ; 0253220130
    Database Catalogue of the US National Library of Medicine (NLM)

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