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  1. Article ; Online: Cardiopulmonary Exercise Testing for Prognostication in Advanced Cystic Fibrosis Lung Disease and Beyond.

    Milinic, Tijana / Ramos, Kathleen J

    Annals of the American Thoracic Society

    2024  Volume 21, Issue 3, Page(s) 380–381

    MeSH term(s) Humans ; Cystic Fibrosis/diagnosis ; Exercise Test ; Prognosis ; Forced Expiratory Volume ; Exercise
    Language English
    Publishing date 2024-02-13
    Publishing country United States
    Document type Editorial ; Comment
    ZDB-ID 2717461-X
    ISSN 2325-6621 ; 1943-5665 ; 2325-6621
    ISSN (online) 2325-6621 ; 1943-5665
    ISSN 2325-6621
    DOI 10.1513/AnnalsATS.202311-944ED
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article ; Online: Cardiopulmonary Exercise Testing: Another Tool in the Prognostication Tool Kit for Cystic Fibrosis.

    Ramos, Kathleen J

    American journal of respiratory and critical care medicine

    2018  Volume 199, Issue 8, Page(s) 938–940

    MeSH term(s) Cystic Fibrosis ; Exercise ; Exercise Test ; Humans ; Prognosis
    Language English
    Publishing date 2018-11-25
    Publishing country United States
    Document type Journal Article ; Comment
    ZDB-ID 1180953-x
    ISSN 1535-4970 ; 0003-0805 ; 1073-449X
    ISSN (online) 1535-4970
    ISSN 0003-0805 ; 1073-449X
    DOI 10.1164/rccm.201810-2053ED
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article ; Online: Improving lung transplant outcomes in France: the high emergency lung transplantation programme.

    Bayomy, Omar F / Ramos, Kathleen J / Goss, Christopher H

    The European respiratory journal

    2022  Volume 59, Issue 1

    MeSH term(s) France ; Humans ; Lung Transplantation
    Language English
    Publishing date 2022-01-27
    Publishing country England
    Document type Editorial ; Research Support, N.I.H., Extramural ; Research Support, Non-U.S. Gov't ; Research Support, U.S. Gov't, P.H.S. ; Comment
    ZDB-ID 639359-7
    ISSN 1399-3003 ; 0903-1936
    ISSN (online) 1399-3003
    ISSN 0903-1936
    DOI 10.1183/13993003.02209-2021
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  4. Article ; Online: Erratum to Survival difference between high-risk and low-risk CFTR genotypes after lung transplant. J Heart Lung Transpl 2022;41(10):1511-19. https://doi.org/10.1016/j.healun.2022.04.009.

    Clausen, Emily S / Weber, Jeremy M / Neely, Megan L / Ramos, Kathleen J / Snyder, Laurie D

    The Journal of heart and lung transplantation : the official publication of the International Society for Heart Transplantation

    2023  Volume 42, Issue 5, Page(s) 688

    Language English
    Publishing date 2023-02-14
    Publishing country United States
    Document type Published Erratum
    ZDB-ID 1062522-7
    ISSN 1557-3117 ; 1053-2498
    ISSN (online) 1557-3117
    ISSN 1053-2498
    DOI 10.1016/j.healun.2023.01.007
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  5. Article ; Online: Response to selection of lung transplant candidates: A pediatric perspective on the ISHLT consensus document.

    Solomon, Melinda / Willemse, Brigitte W M / Ramos, Kathleen J / Leard, Lorriana E

    The Journal of heart and lung transplantation : the official publication of the International Society for Heart Transplantation

    2022  Volume 41, Issue 7, Page(s) 1000–1001

    MeSH term(s) Child ; Consensus ; Heart Transplantation ; Humans ; Lung Transplantation
    Language English
    Publishing date 2022-04-06
    Publishing country United States
    Document type Letter ; Comment
    ZDB-ID 1062522-7
    ISSN 1557-3117 ; 1053-2498
    ISSN (online) 1557-3117
    ISSN 1053-2498
    DOI 10.1016/j.healun.2022.03.025
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  6. Article ; Online: Palliative Care Consultation and Family-Centered Outcomes in Patients With Unplanned Intensive Care Unit Admissions.

    Nomitch, Jamie T / Downey, Lois / Pollack, Lauren R / Bayomy, Omar F / Ramos, Kathleen J / Kross, Erin K / Jennerich, Ann L

    Journal of palliative medicine

    2023  

    Abstract: Context: ...

    Abstract Context:
    Language English
    Publishing date 2023-12-26
    Publishing country United States
    Document type Journal Article
    ZDB-ID 1427361-5
    ISSN 1557-7740 ; 1096-6218
    ISSN (online) 1557-7740
    ISSN 1096-6218
    DOI 10.1089/jpm.2023.0436
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  7. Article ; Online: Periodontitis Risk Factors in Adults with Cystic Fibrosis: A pilot study.

    Alkhateeb, Alaa A / Mancl, Lloyd A / Ramos, Kathleen J / Rothen, Marilynn L / Kotsakis, Georgios A / Trence, Dace L / Chi, Donald L

    Journal of dental hygiene : JDH

    2023  Volume 97, Issue 2, Page(s) 7–21

    Abstract: ... ...

    Abstract Purpose
    MeSH term(s) Adult ; Humans ; Cystic Fibrosis/complications ; Cystic Fibrosis/epidemiology ; Pilot Projects ; Cross-Sectional Studies ; Risk Factors ; Periodontitis/complications ; Periodontitis/epidemiology
    Language English
    Publishing date 2023-04-18
    Publishing country United States
    Document type Journal Article
    ZDB-ID 1035719-1
    ISSN 1553-0205 ; 1043-254X
    ISSN (online) 1553-0205
    ISSN 1043-254X
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  8. Article ; Online: Lung Allocation Score Exceptions in Persons with Cystic Fibrosis Undergoing Lung Transplant.

    Bayomy, Omar F / Bradford, Miranda C / Milinic, Tijana / Kapnadak, Siddhartha G / Morrell, Eric D / Lease, Erika D / Goss, Christopher H / Ramos, Kathleen J

    Annals of the American Thoracic Society

    2023  Volume 21, Issue 2, Page(s) 271–278

    Abstract: Rationale: ...

    Abstract Rationale:
    MeSH term(s) Humans ; United States/epidemiology ; Cystic Fibrosis/complications ; Cystic Fibrosis/surgery ; Hemoptysis ; Lung Transplantation/methods ; Proportional Hazards Models ; Waiting Lists ; Lung ; Retrospective Studies
    Language English
    Publishing date 2023-10-25
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2717461-X
    ISSN 2325-6621 ; 1943-5665 ; 2325-6621
    ISSN (online) 2325-6621 ; 1943-5665
    ISSN 2325-6621
    DOI 10.1513/AnnalsATS.202306-509OC
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  9. Article ; Online: Enhancing care for individuals with advanced cystic fibrosis lung disease.

    Kapnadak, Siddhartha G / Ramos, Kathleen J / Dellon, Elisabeth P

    Pediatric pulmonology

    2020  Volume 56 Suppl 1, Page(s) S69–S78

    Abstract: While remarkable advances in cystic fibrosis (CF) care have led to improvements in survival and quality of life, many individuals with CF are living with advanced cystic fibrosis lung disease (ACFLD) and others will face continued disease progression and ...

    Abstract While remarkable advances in cystic fibrosis (CF) care have led to improvements in survival and quality of life, many individuals with CF are living with advanced cystic fibrosis lung disease (ACFLD) and others will face continued disease progression and its associated complex treatments and choices. This review will provide a summary of recently published guidelines for ACFLD care and lung transplant referral and highlight ongoing work to enhance the care of those with ACFLD through improvements in medical and psychosocial care, palliative care, and care around lung transplantation.
    MeSH term(s) Adolescent ; Adult ; Child ; Cystic Fibrosis/complications ; Cystic Fibrosis/physiopathology ; Cystic Fibrosis/psychology ; Cystic Fibrosis/therapy ; Disease Progression ; Forced Expiratory Flow Rates ; Humans ; Lung Transplantation ; Mental Health Services/organization & administration ; Palliative Care ; Quality of Life ; Referral and Consultation ; Survival Rate ; Transition to Adult Care
    Language English
    Publishing date 2020-07-01
    Publishing country United States
    Document type Journal Article ; Review
    ZDB-ID 632784-9
    ISSN 1099-0496 ; 8755-6863
    ISSN (online) 1099-0496
    ISSN 8755-6863
    DOI 10.1002/ppul.24937
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  10. Article ; Online: Challenges in the use of highly effective modulator treatment for cystic fibrosis.

    Ramos, Kathleen J / Pilewski, Joseph M / Taylor-Cousar, Jennifer L

    Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society

    2021  Volume 20, Issue 3, Page(s) 381–387

    Abstract: The last decade has seen development of oral, small molecule therapies that address the basic cystic fibrosis transmembrane conductance regulator (CFTR) protein defect. Highly effective modulator treatment (HEMT) that is efficacious for a large majority ... ...

    Abstract The last decade has seen development of oral, small molecule therapies that address the basic cystic fibrosis transmembrane conductance regulator (CFTR) protein defect. Highly effective modulator treatment (HEMT) that is efficacious for a large majority of people living with cystic fibrosis (CF) promises to change the landscape of this chronic life-limiting disease. Some people living with CF have a CFTR genotype that renders them eligible for HEMT, but also have comorbidities that excluded them from the original Phase III clinical trials that led to US Food and Drug Administration approval. The purpose of this review is to address the use of HEMT in challenging situations, including initiation for those with advanced CF lung disease, and use after solid organ transplant, during pregnancy, and for individuals with CFTR-related disorders without a definitive diagnosis of CF.
    MeSH term(s) Chloride Channel Agonists/therapeutic use ; Cystic Fibrosis/drug therapy ; Cystic Fibrosis Transmembrane Conductance Regulator/drug effects ; Humans ; Precision Medicine
    Chemical Substances Chloride Channel Agonists ; Cystic Fibrosis Transmembrane Conductance Regulator (126880-72-6)
    Language English
    Publishing date 2021-01-30
    Publishing country Netherlands
    Document type Journal Article ; Research Support, N.I.H., Extramural ; Research Support, Non-U.S. Gov't ; Review
    ZDB-ID 2084724-5
    ISSN 1873-5010 ; 1569-1993
    ISSN (online) 1873-5010
    ISSN 1569-1993
    DOI 10.1016/j.jcf.2021.01.007
    Database MEDical Literature Analysis and Retrieval System OnLINE

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    Zs.MO 459: Show issues

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