Article ; Online: Big Mistake: Knowing and Doing Better in Patient Engagement.
2023 Volume 53, Issue 6, Page(s) 2
Abstract: ... to make missteps, especially in the age of social media. Holly Fernandez Lynch shares her experience ...
| Abstract | Pushing back on policies favored by dying patients is a challenging endeavor, requiring tact, engagement, openness to bidirectional learning, and willingness to offer alternative solutions. It's easy to make missteps, especially in the age of social media. Holly Fernandez Lynch shares her experience learning with and from the amyotrophic lateral sclerosis (ALS) community, first as a caricature of an ivory tower bioethicist and more recently as a trusted advisor, at least for some. Patient-engaged bioethics doesn't mean taking the view that patients are always right, but even when disagreement continues, progress is possible if academics and patients recognize the unique expertise each has to offer. |
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| MeSH term(s) | Humans ; Female ; Patient Participation ; Bioethics ; Ethicists ; Dissent and Disputes ; Amyotrophic Lateral Sclerosis/therapy |
| Language | English |
| Publishing date | 2023-12-22 |
| Publishing country | United States |
| Document type | Journal Article |
| ZDB-ID | 194940-8 |
| ISSN | 1552-146X ; 0093-0334 |
| ISSN (online) | 1552-146X |
| ISSN | 0093-0334 |
| DOI | 10.1002/hast.1537 |
| Database | MEDical Literature Analysis and Retrieval System OnLINE |
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