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  1. Article: Engage, understand, listen and act: evaluation of Community Panels to privilege First Nations voices in pandemic planning and response in Australia.

    Crooks, Kristy / Taylor, Kylie / Law, Charlee / Campbell, Sandra / Miller, Adrian

    BMJ global health

    2022  Volume 7, Issue 8

    Abstract: Introduction: First Nations Peoples of Australia have not been included in the development nor prioritised in pre-2009 pandemic plans despite being a priority population in Australian health policy. Marginalised groups experience amplified barriers and ... ...

    Abstract Introduction: First Nations Peoples of Australia have not been included in the development nor prioritised in pre-2009 pandemic plans despite being a priority population in Australian health policy. Marginalised groups experience amplified barriers and systemic disadvantage in emergencies, however, their voices have not been heard in past pandemic responses. Through effective engagement with disadvantaged and oppressed groups, health authorities can gain a deeper understanding of how to design and implement pandemic control strategies. There have been limited studies with First Nations Peoples that has focused on pandemic planning and response strategies. Deliberative inclusive approaches such as citizens juries have been a way to uncover public perceptions.
    Methods: Qualitative thematic research methods were used to conduct the study. We convened five First Nations Community Panels in three locations in Australia between 2019 and 2020. We used an Indigenist research approach, community-based Participatory Action Research framework and 'yarning' to understand whether Community Panels were an acceptable and appropriate way of engaging First Nations Peoples. Forty First Nations participants were purposively recruited through local and cultural networks. Panels heard evidence supporting various pandemic response strategies, and cross-questioned public health experts.
    Results: All 40 participants from the 5 panels verbally indicated strong support of the Community Panels approach as an effective way of engaging First Nations Peoples in making decisions about pandemic planning and response strategies. The main theme of 'respect' centred on the overarching principle that First Nations Peoples are important in the context of continuation of culture and ongoing political resistance.
    Conclusion: First Nations Community Panels are a way of enabling active participation of First Nations peoples, increasing knowledge and understanding, and a way for government and policymakers to respectfully listen to First Nations opinions and values.
    MeSH term(s) Australia ; Community-Based Participatory Research/methods ; Health Policy ; Humans ; Pandemics ; Public Health
    Language English
    Publishing date 2022-08-08
    Publishing country England
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ISSN 2059-7908
    ISSN 2059-7908
    DOI 10.1136/bmjgh-2022-009114
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article ; Online: Engage, understand, listen and act

    Adrian Miller / Sandra Campbell / Kristy Crooks / Kylie Taylor / Charlee Law

    BMJ Global Health, Vol 7, Iss

    evaluation of Community Panels to privilege First Nations voices in pandemic planning and response in Australia

    2022  Volume 8

    Abstract: Introduction First Nations Peoples of Australia have not been included in the development nor prioritised in pre-2009 pandemic plans despite being a priority population in Australian health policy. Marginalised groups experience amplified barriers and ... ...

    Abstract Introduction First Nations Peoples of Australia have not been included in the development nor prioritised in pre-2009 pandemic plans despite being a priority population in Australian health policy. Marginalised groups experience amplified barriers and systemic disadvantage in emergencies, however, their voices have not been heard in past pandemic responses. Through effective engagement with disadvantaged and oppressed groups, health authorities can gain a deeper understanding of how to design and implement pandemic control strategies. There have been limited studies with First Nations Peoples that has focused on pandemic planning and response strategies. Deliberative inclusive approaches such as citizens juries have been a way to uncover public perceptions.Methods Qualitative thematic research methods were used to conduct the study. We convened five First Nations Community Panels in three locations in Australia between 2019 and 2020. We used an Indigenist research approach, community-based Participatory Action Research framework and ‘yarning’ to understand whether Community Panels were an acceptable and appropriate way of engaging First Nations Peoples. Forty First Nations participants were purposively recruited through local and cultural networks. Panels heard evidence supporting various pandemic response strategies, and cross-questioned public health experts.Results All 40 participants from the 5 panels verbally indicated strong support of the Community Panels approach as an effective way of engaging First Nations Peoples in making decisions about pandemic planning and response strategies. The main theme of ‘respect’ centred on the overarching principle that First Nations Peoples are important in the context of continuation of culture and ongoing political resistance.Conclusion First Nations Community Panels are a way of enabling active participation of First Nations peoples, increasing knowledge and understanding, and a way for government and policymakers to respectfully listen to First Nations opinions and ...
    Keywords Medicine (General) ; R5-920 ; Infectious and parasitic diseases ; RC109-216
    Subject code 306
    Language English
    Publishing date 2022-08-01T00:00:00Z
    Publisher BMJ Publishing Group
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  3. Article ; Online: First Nations peoples leading the way in COVID-19 pandemic planning, response and management.

    Crooks, Kristy / Casey, Dawn / Ward, James S

    The Medical journal of Australia

    2020  Volume 213, Issue 4, Page(s) 151–152.e1

    MeSH term(s) Australia/epidemiology ; COVID-19/ethnology ; Health Planning/legislation & jurisprudence ; Health Planning/organization & administration ; Health Planning Councils ; Health Policy/legislation & jurisprudence ; Health Status Disparities ; Healthcare Disparities ; Humans ; Native Hawaiian or Other Pacific Islander/legislation & jurisprudence ; SARS-CoV-2
    Keywords covid19
    Language English
    Publishing date 2020-07-20
    Publishing country Australia
    Document type Journal Article
    ZDB-ID 186082-3
    ISSN 1326-5377 ; 0025-729X
    ISSN (online) 1326-5377
    ISSN 0025-729X
    DOI 10.5694/mja2.50704
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  4. Article: Embedding Aboriginal cultural governance, capacity, perspectives and leadership into a local Public Health Unit Incident Command System during COVID-19 in New South Wales, Australia.

    Crooks, Kristy / Law, Charlee / Taylor, Kylie / Brett, Katie / Murray, Peter / Kohlhagen, Julie / Hope, Kirsty / Durrheim, David N

    BMJ global health

    2023  Volume 8, Issue 7

    Abstract: This case study describes the development and implementation of a governance structure that prioritised First Nations peoples in a local public health Incident Command System activated for the COVID-19 pandemic response in New South Wales, Australia. ... ...

    Abstract This case study describes the development and implementation of a governance structure that prioritised First Nations peoples in a local public health Incident Command System activated for the COVID-19 pandemic response in New South Wales, Australia. Using lessons learnt from past pandemics and planning exercises, public health leaders embedded an approach whereby First Nations peoples determined and led community and culturally informed pandemic control strategies and actions.In March 2020, First Nations governance was embedded into the local public health emergency response to COVID-19 in the Hunter New England region of New South Wales, Australia, enabling First Nations staff and community members to actively participate in strategic and operational decision-making with the objective of minimising COVID-19-related risks to First Nations peoples and communities. The model provided cultural insight and oversight to the local COVID-19 response; strengthened and advanced First Nations leadership; increased the First Nations public health workforce; led the development of First Nations disease surveillance strategies; and supported working groups to appropriately respond to local needs and priorities. This model demonstrates the feasibility of reframing a standard Incident Command System to embed and value First Nations principles of self-determination and empowerment to appropriately plan and respond to public health emergencies.
    MeSH term(s) Humans ; Australia ; COVID-19/epidemiology ; Leadership ; New South Wales/epidemiology ; Pandemics ; Public Health ; Culturally Competent Care
    Language English
    Publishing date 2023-07-17
    Publishing country England
    Document type Journal Article
    ISSN 2059-7908
    ISSN 2059-7908
    DOI 10.1136/bmjgh-2023-012709
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  5. Article ; Online: Recommendations for Next-Generation Sequencing Germline Variant Confirmation: A Joint Report of the Association for Molecular Pathology and National Society of Genetic Counselors.

    Crooks, Kristy R / Farwell Hagman, Kelly D / Mandelker, Diana / Santani, Avni / Schmidt, Ryan J / Temple-Smolkin, Robyn L / Lincoln, Stephen E

    The Journal of molecular diagnostics : JMD

    2023  Volume 25, Issue 7, Page(s) 411–427

    Abstract: Clinical laboratory implementation of next-generation sequencing (NGS)-based constitutional genetic testing has been rapid and widespread. In the absence of widely adopted comprehensive guidance, there remains substantial variability among laboratories ... ...

    Abstract Clinical laboratory implementation of next-generation sequencing (NGS)-based constitutional genetic testing has been rapid and widespread. In the absence of widely adopted comprehensive guidance, there remains substantial variability among laboratories in the practice of NGS. One issue of sustained discussion in the field is whether and to what extent orthogonal confirmation of genetic variants identified by NGS is necessary or helpful. The Association for Molecular Pathology Clinical Practice Committee convened the NGS Germline Variant Confirmation Working Group to assess current evidence regarding orthogonal confirmation and to establish recommendations for standardizing orthogonal confirmation practices to support quality patient care. On the basis of the results of a survey of the literature, a survey of laboratory practices, and subject expert matter consensus, eight recommendations are presented, providing a common framework for clinical laboratory professionals to develop or refine individualized laboratory policies and procedures regarding orthogonal confirmation of germline variants detected by NGS.
    MeSH term(s) Humans ; Pathology, Molecular ; Counselors ; Genetic Testing/methods ; High-Throughput Nucleotide Sequencing/methods ; Germ Cells
    Language English
    Publishing date 2023-05-17
    Publishing country United States
    Document type Journal Article ; Review
    ZDB-ID 2000060-1
    ISSN 1943-7811 ; 1525-1578
    ISSN (online) 1943-7811
    ISSN 1525-1578
    DOI 10.1016/j.jmoldx.2023.03.012
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  6. Article ; Online: Implementation of clopidogrel pharmacogenetic clinical decision support for a preemptive return of results program.

    Aquilante, Christina L / Trinkley, Katy E / Lee, Yee Ming / Crooks, Kristy R / Hearst, Emily C / Heckman, Simeon M / Hess, Kaitlyn W / Kudron, Elizabeth L / Martin, James L / Swartz, Carolyn T / Kao, David P

    American journal of health-system pharmacy : AJHP : official journal of the American Society of Health-System Pharmacists

    2024  

    Abstract: Disclaimer: In an effort to expedite the publication of articles, AJHP is posting manuscripts online as soon as possible after acceptance. Accepted manuscripts have been peer-reviewed and copyedited, but are posted online before technical formatting and ...

    Abstract Disclaimer: In an effort to expedite the publication of articles, AJHP is posting manuscripts online as soon as possible after acceptance. Accepted manuscripts have been peer-reviewed and copyedited, but are posted online before technical formatting and author proofing. These manuscripts are not the final version of record and will be replaced with the final article (formatted per AJHP style and proofed by the authors) at a later time.
    Purpose: To describe our experiences implementing and iterating CYP2C19 genotype-guided clopidogrel pharmacogenetic clinical decision support (CDS) tools over time in the setting of a large health system-wide, preemptive pharmacogenomics program.
    Summary: Clopidogrel-treated patients who are genetically predicted cytochrome P450 isozyme 2C19 intermediate or poor metabolizers have an increased risk of atherothrombotic events, some of which can be life-threatening. The Clinical Pharmacogenetics Implementation Consortium provides guidance for the use of clopidogrel based on CYP2C19 genotype in patients with cardiovascular and cerebrovascular diseases. Our multidisciplinary team implemented an automated, interruptive alert that fires when clopidogrel is ordered or refilled for biobank participants with structured CYP2C19 intermediate or poor metabolizer genomic indicators in the electronic health record. The implementation began with a narrow cardiovascular indication and setting and was then scaled in 4 primary dimensions: (1) clinical indication; (2) availability across health-system locations; (3) care venue (e.g., inpatient vs outpatient); and (4) provider groups (eg, cardiology and neurology). We iterated our approach over time based on evolving clinical evidence and proactive strategies to optimize CDS maintenance and sustainability. A key facilitator of expansion was socialization of the broader pharmacogenomics initiative among our academic medical center community, accompanied by clinician acceptance of pharmacogenetic alerts in practice.
    Conclusion: A multidisciplinary collaboration is recommended to facilitate the use of CYP2C19 genotype-guided antiplatelet therapy in patients with cardiovascular and cerebrovascular diseases. Evolving clopidogrel pharmacogenetic evidence necessitates thoughtful iteration of implementation efforts and strategies to optimize long-term maintenance and sustainability.
    Language English
    Publishing date 2024-01-22
    Publishing country England
    Document type Journal Article
    ZDB-ID 1224627-x
    ISSN 1535-2900 ; 1079-2082
    ISSN (online) 1535-2900
    ISSN 1079-2082
    DOI 10.1093/ajhp/zxae008
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  7. Article ; Online: The ongoing value of first few X studies for COVID-19 in the Western Pacific Region.

    Marcato, Adrian J / Fielding, James E / Crooks, Kristy / Massey, Peter D / Le, Linh-Vi / Bergeri, Isabel / McVernon, Jodie

    Western Pacific surveillance and response journal : WPSAR

    2022  Volume 13, Issue 1, Page(s) 1–3

    MeSH term(s) COVID-19/epidemiology ; Humans ; Longitudinal Studies ; SARS-CoV-2
    Language English
    Publishing date 2022-03-24
    Publishing country Philippines
    Document type Journal Article
    ZDB-ID 2592503-9
    ISSN 2094-7313 ; 2094-7313
    ISSN (online) 2094-7313
    ISSN 2094-7313
    DOI 10.5365/wpsar.2022.13.1.873
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  8. Article ; Online: Defining, controlling and analysing Indigenous data: commitment to historical consistency or commitment to Australian Aboriginal and Torres Strait Islander peoples?

    Crooks, Kristy / Carlson, Sandra / Dalton, Craig

    Public health research & practice

    2019  Volume 29, Issue 4

    Abstract: The Australian Bureau of Statistics (ABS) Standard Indigenous Question (SIQ) uses a question about 'origin' to collect data on Aboriginal and Torres Strait Islander people. A 2014 review found strong support among Aboriginal and Torres Strait Islander ... ...

    Abstract The Australian Bureau of Statistics (ABS) Standard Indigenous Question (SIQ) uses a question about 'origin' to collect data on Aboriginal and Torres Strait Islander people. A 2014 review found strong support among Aboriginal and Torres Strait Islander stakeholders for a question focusing on cultural identity, rather than origin. However the ABS retained the origin question to preserve data continuity. In contrast, an Australian influenza-like illness surveillance system, FluTracking, has included the question: "Do you identify as Aboriginal or Torres Strait Islander?" for the past 8 years. Brief consultations found that Aboriginal health professionals and academics preferred the 'identify' question as a more accurate descriptor of social realities of Aboriginal and Torres Strait communities. Statistical collections could adapt to improve the quality of Aboriginal and Torres Strait Islander data, and seek to reflect reality, not define it.
    MeSH term(s) Australia ; Data Analysis ; Delivery of Health Care/statistics & numerical data ; Guidelines as Topic ; Health Services, Indigenous/statistics & numerical data ; Humans ; Oceanic Ancestry Group/statistics & numerical data ; Reproducibility of Results
    Language English
    Publishing date 2019-12-04
    Publishing country Australia
    Document type Journal Article
    ISSN 2204-2091
    ISSN (online) 2204-2091
    DOI 10.17061/phrp2941926
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  9. Article ; Online: First Nations peoples leading the way in COVID ‐19 pandemic planning, response and management

    Crooks, Kristy / Casey, Dawn / Ward, James S

    Medical Journal of Australia

    2020  Volume 213, Issue 4, Page(s) 151

    Keywords General Medicine ; covid19
    Language English
    Publisher AMPCo
    Publishing country au
    Document type Article ; Online
    ZDB-ID 186082-3
    ISSN 1326-5377 ; 0025-729X
    ISSN (online) 1326-5377
    ISSN 0025-729X
    DOI 10.5694/mja2.50704
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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