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Article ; Online: Hooray for Chaplains! How Do We Prove Their Value?

Matlock, Daniel D

2017 Volume 20, Issue 5, Page(s) 442–443

Language	English
Publishing date	2017-04-07
Publishing country	United States
Document type	Editorial
ZDB-ID	1427361-5
ISSN	1557-7740 ; 1096-6218
ISSN (online)	1557-7740
ISSN	1096-6218
DOI	10.1089/jpm.2017.0116
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Article ; Online: Healthcare Trajectories and Outcomes in the First Year After Tracheostomy Based on Patient Characteristics.

Mehta, Anuj B / Matlock, Daniel D / Shorr, Andrew F / Douglas, Ivor S

Critical care medicine

2023 Volume 51, Issue 12, Page(s) 1727–1739

Abstract: Objectives: To define healthcare trajectories after tracheostomy to inform shared decision-making efforts for critically ill patients.: Design: Retrospective epidemiologic cohort study.: Setting: California Patient Discharge Database 2018-2019.: ...

Abstract	Objectives: To define healthcare trajectories after tracheostomy to inform shared decision-making efforts for critically ill patients. Design: Retrospective epidemiologic cohort study. Setting: California Patient Discharge Database 2018-2019. Patients: Patients who received a tracheostomy. Interventions: None. Measurements and main results: We tracked 1-year outcomes after tracheostomy, including survival and time alive in and out of a healthcare facility (HCF. Patients were stratified based on surgical status (did the patient require a major operating room procedure or not), age (65 yr old or older and less than 65 yr), pre-ICU comorbid states (frailty, chronic organ dysfunction, cancer, and robustness), and the need for dialysis during the tracheostomy admission. We identified 4,274 nonsurgical adults who received a tracheostomy during the study period with 50.9% being 65 years old or older. Among adults 65 years old or older, median survival after tracheostomy was less than 3 months for individuals with frailty, chronic organ dysfunction, cancer, or dialysis. Median survival was 3 months for adults younger than 65 years with cancer or dialysis. Most patients spent the majority of days alive after a tracheostomy in an HCF in the first 3 months. Older adults had very few days alive and out of an HCF in the first 3 months after tracheostomy. Most patients who ultimately died in the first year after tracheostomy spent almost all days alive in an HCF. Conclusions: Cumulative mortality and median survival after a tracheostomy were very poor across most ages and groups. Older adults and several subgroups of younger adults experienced high rates of prolonged hospitalization with few days alive and out of an HCF. This information may aid some patients, surrogates, and providers in decision-making.
MeSH term(s)	Humans ; Aged ; Cohort Studies ; Retrospective Studies ; Tracheostomy ; Frailty ; Multiple Organ Failure ; Renal Dialysis ; Delivery of Health Care ; Neoplasms
Language	English
Publishing date	2023-08-28
Publishing country	United States
Document type	Journal Article
ZDB-ID	197890-1
ISSN	1530-0293 ; 0090-3493
ISSN (online)	1530-0293
ISSN	0090-3493
DOI	10.1097/CCM.0000000000006029
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Article ; Online: Preferred Role in Health Care Decision Making Over Time in Patients With Heart Failure: My Decision or My Doctor's Decision?

Deng, Lubin R / Matlock, Daniel D / Bekelman, David B

Journal of cardiac failure

2022 Volume 28, Issue 8, Page(s) 1362–1366

Abstract: Background: Understanding patients' preferred role in decision making can improve patient-centered care. This study aimed to determine change and the predictors of change in preferred decision-making roles over time in patients with heart failure.: ... ...

Abstract	Background: Understanding patients' preferred role in decision making can improve patient-centered care. This study aimed to determine change and the predictors of change in preferred decision-making roles over time in patients with heart failure. Methods and results: During the CASA (Collaborative Care to Alleviate Symptoms and Adjust to Illness) trial, patients' preferred roles in decision making were measured using the Control Preferences Scale (range 1-5; higher = less active; n = 312) at 4 timepoints over 1 year. The effect of the CASA intervention on preferred decision-making roles was tested using generalized linear mixed models. Whether preferences changed over time in the whole population was determined using linear regression. Demographic and health-related factors were examined as predictors of change using multiple linear regression. At baseline, most participants preferred active (score 1-2, 37.2%) or collaborative (score 3, 44.9%) roles. The CASA intervention did not influence preferred decision-making roles (P > 0.1). Preferences significantly changed over 1 year (P < 0.01), becoming more active (82.1%, 84.2%, 89.0%, 90.1% active/collaborative at each timepoint). Among all models and covariates, there were no significant predictors of change (P > 0.1). Conclusions: Patients' preferred roles in decision making change over time, but changes are not well predicted. Clinicians should frequently and directly communicate with patients about their preferred decision-making roles.
MeSH term(s)	Decision Making ; Heart Failure/diagnosis ; Heart Failure/therapy ; Humans ; Patient Participation ; Patient Preference
Language	English
Publishing date	2022-04-23
Publishing country	United States
Document type	Journal Article
ZDB-ID	1281194-4
ISSN	1532-8414 ; 1071-9164
ISSN (online)	1532-8414
ISSN	1071-9164
DOI	10.1016/j.cardfail.2022.03.357
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Article ; Online: Did You Forget to Assess Cognition in Your Patient With Heart Failure, and Does It Matter?

Fendler, Timothy J / Allen, Larry A / Matlock, Daniel D

Journal of cardiac failure

2021 Volume 27, Issue 3, Page(s) 295–296

MeSH term(s)	Cognition ; Heart Failure/complications ; Heart Failure/diagnosis ; Humans
Language	English
Publishing date	2021-02-25
Publishing country	United States
Document type	Editorial ; Comment
ZDB-ID	1281194-4
ISSN	1532-8414 ; 1071-9164
ISSN (online)	1532-8414
ISSN	1071-9164
DOI	10.1016/j.cardfail.2021.01.005
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Article ; Online: Stopping Dialysis, Good Deaths, and Social Justice.

Tate, Channing E / Matlock, Daniel D

JAMA network open

2019 Volume 2, Issue 10, Page(s) e1913110

MeSH term(s)	Death ; Hospices ; Humans ; Renal Dialysis ; Social Justice ; Terminal Care
Language	English
Publishing date	2019-10-02
Publishing country	United States
Document type	Journal Article ; Comment
ISSN	2574-3805
ISSN (online)	2574-3805
DOI	10.1001/jamanetworkopen.2019.13110
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Article ; Online: Culture and Sanity at the End of Life.

Matlock, Daniel D / Fischer, Stacy M

Journal of the American Geriatrics Society

2019 Volume 67, Issue 8, Page(s) 1557–1558

MeSH term(s)	Humans ; Mental Competency ; Terminal Care
Language	English
Publishing date	2019-07-09
Publishing country	United States
Document type	Editorial ; Comment
ZDB-ID	80363-7
ISSN	1532-5415 ; 0002-8614
ISSN (online)	1532-5415
ISSN	0002-8614
DOI	10.1111/jgs.16043
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Article ; Online: Linking Cardiac Psychology and Cardiovascular Medicine via Self-Determination Theory and Shared Decision-Making.

Shaffer, Jonathan A / Matlock, Daniel D / Boylan, Jennifer Morozink / Vagnini, Katilyn M / Rush, Christina L / Martin, Rebecca / Masters, Kevin S

Journal of clinical psychology in medical settings

2024

Abstract: ... interventions, and (c) how SDT and SDM may be merged using a dissemination and implementation (D&I) framework ... of patient autonomy, and how SDT can enhance D&I of SDM interventions through its focus on autonomy ...

Abstract	Despite considerable progress in recent years, research in cardiac psychology is not widely translated into routine practice by clinical cardiologists or clinical health psychologists. Self-determination theory (SDT), which addresses how basic psychological needs of autonomy, competence, and relatedness contribute to the internalization of motivation, may help bridge this research-practice gap through its application to shared decision-making (SDM). This narrative review discusses the following: (a) brief background information on SDT and SDM, (b) the application of SDT to health behavior change and cardiology interventions, and (c) how SDT and SDM may be merged using a dissemination and implementation (D&I) framework. We address barriers to implementing SDM in cardiology, how SDM and SDT address the need for respect of patient autonomy, and how SDT can enhance D&I of SDM interventions through its focus on autonomy, competence, and relatedness and its consideration of other constructs that facilitate the internalization of motivation.
Language	English
Publishing date	2024-04-27
Publishing country	United States
Document type	Journal Article
ZDB-ID	1235893-9
ISSN	1573-3572 ; 1068-9583
ISSN (online)	1573-3572
ISSN	1068-9583
DOI	10.1007/s10880-024-10014-8
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Zs.A 4286: Show issues

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Article ; Online: Examining the Impact of Layperson Rescuer Gender on the Receipt of Bystander CPR for Women in Cardiac Arrest.

Shelton, Shelby K / Rice, John D / Knoepke, Christopher E / Matlock, Daniel D / Havranek, Edward P / Daugherty, Stacie L / Perman, Sarah M

Circulation. Cardiovascular quality and outcomes

2024 Volume 17, Issue 4, Page(s) e010249

Abstract: Background: Women who suffer a witnessed out-of-hospital cardiac arrest receive bystander cardiopulmonary resuscitation (CPR) less often than men. To understand this phenomenon, we queried whether there are differences in deterrents to providing CPR ... ...

Abstract	Background: Women who suffer a witnessed out-of-hospital cardiac arrest receive bystander cardiopulmonary resuscitation (CPR) less often than men. To understand this phenomenon, we queried whether there are differences in deterrents to providing CPR based on the rescuer's gender. Methods: Participants were surveyed using a national crowdsourcing platform. Participants ranked the following 5 previously identified themes as reasons: rescuers are afraid to injure or hurt women; rescuers might have a misconception that women do not suffer cardiac arrest; rescuers are afraid to be accused of sexual assault or sexual harassment; rescuers have a fear of touching women or that their touch might be inappropriate; and rescuers think that women are faking it or being overdramatic. Participants were adult US residents able to correctly define CPR. Participants ranked the themes if the rescuer was gender unidentified, a man, and a woman, in variable order. Results: In November 2018, 520 surveys were completed. The respondents identified as 42.3% women, 74.2% White, 10.4% Black, and 6.7% Hispanic. Approximately half (48.1%) of the cohort knew how to perform CPR, but only 7.9% had ever performed CPR. When the rescuer was identified as a man, survey participants ranked fear of sexual assault or sexual harassment and fear of touching women or that the touch might be inappropriate as the top reasons (36.2% and 34.0% of responses, respectively). Conversely, when the rescuer was identified as a woman, survey respondents reported fear of hurting or injuring as the top reason (41.2%). Conclusions: Public perceptions as to why women receive less bystander CPR than men were different based on the gender of the rescuer. Participants reported that men rescuers would potentially be hindered by fears of accusations of sexual assault/harassment or inappropriate touch, while women rescuers would be deterred due to fears of causing physical injury.
MeSH term(s)	Adult ; Male ; Humans ; Female ; Cardiopulmonary Resuscitation ; Out-of-Hospital Cardiac Arrest/diagnosis ; Out-of-Hospital Cardiac Arrest/therapy ; Surveys and Questionnaires ; Touch Perception ; Health Knowledge, Attitudes, Practice
Language	English
Publishing date	2024-03-27
Publishing country	United States
Document type	Journal Article
ZDB-ID	2483197-9
ISSN	1941-7705 ; 1941-7713
ISSN (online)	1941-7705
ISSN	1941-7713
DOI	10.1161/CIRCOUTCOMES.123.010249
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Article ; Online: Willingness toward psychosocial support during cancer treatment: a critical yet challenging construct in psychosocial care.

Parmet, Tamar / Yusufov, Miryam / Braun, Ilana M / Pirl, William F / Matlock, Daniel D / Sannes, Timothy S

Translational behavioral medicine

2023 Volume 13, Issue 7, Page(s) 511–517

Abstract: Psychosocial distress screening, mandated by the American College Surgeons' Commission on Cancer, continues to be implemented across cancer centers nationwide. Although measuring distress is critical to identifying patients who may benefit from ... ...

Abstract	Psychosocial distress screening, mandated by the American College Surgeons' Commission on Cancer, continues to be implemented across cancer centers nationwide. Although measuring distress is critical to identifying patients who may benefit from additional support, several studies suggest that distress screening may not actually increase patients' utilization of psychosocial services. While various investigators have identified barriers that may impede effective implementation of distress screening, we posit that patients' intrinsic motivation, which we term patients' willingness, may be the biggest predictor for whether cancer patients choose to engage with psychosocial services. In this commentary, we define patient willingness towards psychosocial services as a novel construct, distinct from the intention toward a certain behavior described across pre-existing models of health behavior change. Further, we offer a critical perspective of models of intervention design that focus on acceptability and feasibility as preliminary outcomes thought to encompass the willingness construct described herein. Finally, we summarize several health service models that successfully integrate psychosocial services alongside routine oncology care. Overall, we present an innovative model that acknowledges barriers and facilitators and underscores the critical role of willingness in health behavior change. Consideration of patients' willingness toward psychosocial care will move the field of psychosocial oncology forward in clinical practice, policy initiatives, and study design.
MeSH term(s)	Humans ; United States ; Psychosocial Support Systems ; Psychiatric Rehabilitation ; Neoplasms/psychology ; Medical Oncology ; Health Behavior
Language	English
Publishing date	2023-01-19
Publishing country	England
Document type	Journal Article
ZDB-ID	2586893-7
ISSN	1613-9860 ; 1869-6716
ISSN (online)	1613-9860
ISSN	1869-6716
DOI	10.1093/tbm/ibac121
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Article: Drivers of Decision-Making for Adult Tracheostomy for Prolonged Mechanical Ventilation: A Qualitative Study.

Mehta, Anuj B / Lockhart, Steven / Lange, Allison V / Matlock, Daniel D / Douglas, Ivor S / Morris, Megan A

medRxiv : the preprint server for health sciences

2024

Abstract: Background: Decision-making about tracheostomy and prolonged mechanical ventilation (PMV) is emotionally complex. Expectations of surrogate decision-makers and physicians rarely align. Little is known about what surrogates need to make goal-concordant ... ...

Abstract	Background: Decision-making about tracheostomy and prolonged mechanical ventilation (PMV) is emotionally complex. Expectations of surrogate decision-makers and physicians rarely align. Little is known about what surrogates need to make goal-concordant decisions. We sought to identify drivers of tracheostomy and PMV decision-making. Methods: Using Grounded Theory, we performed a qualitative study with semi-structured interviews with surrogates of patients receiving mechanical ventilation (MV) being considered for tracheostomy and physicians routinely caring for patients receiving MV. Recruitment was stopped when thematic saturation was reached. Separate codebooks were created for surrogate and physician interviews. Themes and factors affecting decision-making were identified and a theoretical model tracheostomy decision-making was developed. Results: 43 participants (23 surrogates and 20 physicians) completed interviews. A theoretical model of themes and factors driving decision-making emerged for the data. Hope, Lack of Knowledge & Data, and Uncertainty emerged as the three main themes all which were interconnected with one another and, at times, opposed each other. Patient Wishes, Past Activity/Medical History, Short and Long-Term Outcomes, and Meaningful Recovery were key factors upon which surrogates and physicians based decision-making. The themes were the lens through which the factors were viewed and decision-making existed as a balance between surrogate emotions and understanding and physician recommendations. Conclusions: Tracheostomy and prolonged MV decision-making is complex. Hope and Uncertainty were conceptual themes that often battled with one another. Lack of Knowledge & Data plagued both surrogates and physicians. Multiple tangible factors were identified that affected surrogate decision-making and physician recommendations. Implications: Understanding this complex decision-making process has the potential to improve the information provided to surrogates and, potentially, increase the goal concordant care and alignment of surrogate and physician expectations. Highlights: Decision-making for tracheostomy and prolonged mechanical ventilation is a complex interactive process between surrogate decision-makers and providers.Using a Grounded Theory framework, a theoretical model emerged from the data with core themes of Hope, Uncertainty, and Lack of Knowledge & Data that was shared by both providers and surrogates.The core themes were the lenses through which the key decision-making factors of Patient Wishes, Past Activity/Medical History, Short and Long-Term Outcomes, and Meaningful Recovery were viewed.The theoretical model provides a roadmap to design a shared decision-making intervention to improve tracheostomy and prolonged mechanical ventilation decision-making.
Language	English
Publishing date	2024-01-21
Publishing country	United States
Document type	Preprint
DOI	10.1101/2024.01.20.24301492
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