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  1. Book: Guidance for healthcare ethics committees

    Hester, D. Micah / Schonfeld, Toby

    2012  

    Author's details ed. by D. Micah Hester ; Toby Schonfeld
    Keywords Ethics Committees, Clinical ; Hospital Administration / ethics ; Ethics, Clinical ; Delivery of Health Care / ethics ; Practice Guidelines as Topic
    Language English
    Size XIII, 185 S.
    Publisher Cambridge Univ. Press
    Publishing place Cambridge
    Publishing country Great Britain
    Document type Book
    Note Includes bibliographical references and index ; Introduction to healthcare ethics committees / D. Micah Hester and Toby Schonfeld -- Brief introduction to ethics and ethical theory / D. Micah Hester and Toby Schonfeld -- Ethics committees and the law / Stephen Latham -- Cultural and religious issues in healthcare / Alissa Hurwitz Swota -- Mission, vision, goals : defining the parameters of ethics consultation / Martin L. Smith -- Ethics consultation process / Jeffrey Spike -- Informed consent, shared decision-making, and the ethics committee / Randall Horton and Howard Brody -- Decision-making capacity / Arthur R. Derse -- Family dynamics and surrogate decision-making / Lisa Soleymani Lehmann -- Confidentiality / Toby Schonfeld -- Advance care planning and end-of-life decision-making / Nancy M. P. King and John C. Moskop -- Medical futility / Taddeus Mason Pope -- Issues in reproduction / Anne Drapkin Lyerly -- Ethical issues in neonatology / John D. Lantos -- Ethical issues in pediatrics / D. Micah Hester -- Ethics committees and distributive justice / Nancy S. Jecker -- Developing effective ethics policy / Anne Lederman Flamm -- Implementing policy to the wider community / Mary Faith Marshall and Joan Liaschenko -- Ethics in and for the organization / Mary V. Rorty -- The healthcare ethics committee as educator / Kathy Kinlaw -- Education as prevention / Kayhan Parsi -- Understanding ethics pedagogy / Felicia Cohn
    HBZ-ID HT017352270
    ISBN 978-0-521-27987-1 ; 0-521-27987-9
    Database Catalogue ZB MED Medicine, Health

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  2. Article ; Online: Finding Common Ground and Advancing Engagement in Citizen Science.

    Schonfeld, Toby

    Narrative inquiry in bioethics

    2019  Volume 9, Issue 1, Page(s) 41–45

    Abstract: Citizen science, a diverse enterprise involving multiple processes, participants, and projects, challenges conventional approaches to thinking about science and the issues it raises. This commentary explores three key themes identified in the ... ...

    Abstract Citizen science, a diverse enterprise involving multiple processes, participants, and projects, challenges conventional approaches to thinking about science and the issues it raises. This commentary explores three key themes identified in the accompanying narratives. (1) Motivated volunteers may serve as novel resources for science, allowing projects to proceed in ways that are cheaper and more accessible than previously considered. (2) Traditional scientific approaches may be insufficient to even identify research questions, much less attempt to address issues. Citizen science may fill that gap. (3) Ethical concepts may have unique applications in this burgeoning field, both due to the emergence of novel ethical issues and to new categories of people, places, and things inherent in the conduct of citizen science. The commentary closes with suggestions for moving forward as citizen science becomes the norm rather than the exception.
    MeSH term(s) Citizen Science/ethics ; Ethics, Research ; Humans ; Motivation/ethics ; Research Design ; Research Personnel/ethics ; Volunteers
    Language English
    Publishing date 2019-04-26
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2632728-4
    ISSN 2157-1740 ; 2157-1732
    ISSN (online) 2157-1740
    ISSN 2157-1732
    DOI 10.1353/nib.2019.0016
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article ; Online: Researchers Experience Moral Distress Too!

    Schonfeld, Toby / Geppert, Cynthia M A

    The American journal of bioethics : AJOB

    2021  Volume 21, Issue 4, Page(s) 100–101

    MeSH term(s) Attitude of Health Personnel ; Humans ; Morals
    Language English
    Publishing date 2021-04-06
    Publishing country United States
    Document type Journal Article ; Comment
    ZDB-ID 2060433-6
    ISSN 1536-0075 ; 1526-5161
    ISSN (online) 1536-0075
    ISSN 1526-5161
    DOI 10.1080/15265161.2021.1891327
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  4. Article ; Online: Talking Can Be Harmful Depending on What You Say.

    Geppert, Cynthia M A / Schonfeld, Toby

    The American journal of bioethics : AJOB

    2020  Volume 20, Issue 12, Page(s) 42–44

    MeSH term(s) Communication ; Humans
    Language English
    Publishing date 2020-11-16
    Publishing country United States
    Document type Journal Article ; Comment
    ZDB-ID 2060433-6
    ISSN 1536-0075 ; 1526-5161
    ISSN (online) 1536-0075
    ISSN 1526-5161
    DOI 10.1080/15265161.2020.1833100
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  5. Article ; Online: A Step in the Wrong Direction: Florida Lawmakers' Interference with Informed Consent for Pelvic Examinations.

    Alfandre, David / Geppert, Cynthia / Goedken, Jennifer / Schonfeld, Toby

    Women's health issues : official publication of the Jacobs Institute of Women's Health

    2021  Volume 31, Issue 4, Page(s) 314–316

    MeSH term(s) Florida ; Gynecological Examination ; Humans ; Informed Consent ; Politics
    Language English
    Publishing date 2021-03-11
    Publishing country United States
    Document type Journal Article
    ZDB-ID 1085396-0
    ISSN 1878-4321 ; 1049-3867
    ISSN (online) 1878-4321
    ISSN 1049-3867
    DOI 10.1016/j.whi.2021.02.001
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  6. Article ; Online: Partnering, Not Enduring: Citizen Science and Research Participation.

    Schonfeld, Toby / Rasmussen, Lisa M

    The American journal of bioethics : AJOB

    2019  Volume 19, Issue 9, Page(s) 44–45

    MeSH term(s) Community Participation ; Humans ; Research ; Salaries and Fringe Benefits
    Language English
    Publishing date 2019-08-27
    Publishing country United States
    Document type Journal Article ; Comment
    ZDB-ID 2060433-6
    ISSN 1536-0075 ; 1526-5161
    ISSN (online) 1536-0075
    ISSN 1526-5161
    DOI 10.1080/15265161.2019.1630504
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  7. Article: COVID-19 Ethics Debrief: Pearls and Pitfalls of a Hub and Spoke Model.

    Geppert, Cynthia Ma / Berkowitz, Kenneth A / Schonfeld, Toby / Tarzian, Anita J

    The Journal of clinical ethics

    2022  Volume 33, Issue 1, Page(s) 63–68

    Abstract: A hub and spoke model offers an effective and efficient approach to providing informed guidance to those who need it. The National Center for Ethics in Health Care (NCEHC) at the Veterans Health Administration, Department of Veterans Affairs, is the ... ...

    Abstract A hub and spoke model offers an effective and efficient approach to providing informed guidance to those who need it. The National Center for Ethics in Health Care (NCEHC) at the Veterans Health Administration, Department of Veterans Affairs, is the largest known hub and spoke healthcare ethics delivery model. In this article, we describe ways NCEHC's hub and spoke configuration succeeded during the COVID-19 pandemic, as well as limitations of the model and possible improvements to inform adoption at other healthcare systems.
    MeSH term(s) COVID-19 ; Delivery of Health Care ; Humans ; Pandemics
    Language English
    Publishing date 2022-03-18
    Publishing country United States
    Document type Journal Article
    ZDB-ID 1122655-9
    ISSN 1046-7890
    ISSN 1046-7890
    Database MEDical Literature Analysis and Retrieval System OnLINE

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    Zs.A 3456: Show issues Location:
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  8. Article ; Online: Where Have All the Theologians Gone and Should We Lament Their Passing?

    Geppert, Cynthia M A / Schonfeld, Toby

    The American journal of bioethics : AJOB

    2018  Volume 18, Issue 6, Page(s) 60–62

    MeSH term(s) Ethicists ; Ethics, Medical ; Humans
    Language English
    Publishing date 2018-05-31
    Publishing country United States
    Document type Journal Article ; Comment
    ZDB-ID 2060433-6
    ISSN 1536-0075 ; 1526-5161
    ISSN (online) 1536-0075
    ISSN 1526-5161
    DOI 10.1080/15265161.2018.1459939
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  9. Article ; Online: The perils of protection: vulnerability and women in clinical research.

    Schonfeld, Toby

    Theoretical medicine and bioethics

    2013  Volume 34, Issue 3, Page(s) 189–206

    Abstract: Subpart B of 45 Code of Federal Regulations Part 46 (CFR) identifies the criteria according to which research involving pregnant women, human fetuses, and neonates can be conducted ethically in the United States. As such, pregnant women and fetuses fall ... ...

    Abstract Subpart B of 45 Code of Federal Regulations Part 46 (CFR) identifies the criteria according to which research involving pregnant women, human fetuses, and neonates can be conducted ethically in the United States. As such, pregnant women and fetuses fall into a category requiring "additional protections," often referred to as "vulnerable populations." The CFR does not define vulnerability, but merely gives examples of vulnerable groups by pointing to different categories of potential research subjects needing additional protections. In this paper, I assess critically the role of this categorization of pregnant women involved in research as "vulnerable," both as separate entities and in combination with the fetuses they carry. In particular, I do three things: (1) demonstrate that pregnant women qua pregnancy are either not "vulnerable" according to any meaningful definition of that term or that such vulnerability is irrelevant to her status as a research participant; (2) argue that while a fetus may be vulnerable in terms of dependency, this categorization does not equate to the vulnerability of the pregnant woman; and (3) suggest that any vulnerability that appends to women is precisely the result of federal regulations and dubious public perceptions about pregnant women. I conclude by demonstrating how this erroneous characterization of pregnant women as "vulnerable" and its associated protections have not only impeded vital research for pregnant women and their fetuses, but have also negatively affected the inclusion of all women in clinical research.
    MeSH term(s) Clinical Trials as Topic/ethics ; Clinical Trials as Topic/legislation & jurisprudence ; Cognition ; Cognition Disorders ; Concept Formation ; Cooperative Behavior ; Female ; Human Experimentation/ethics ; Human Experimentation/legislation & jurisprudence ; Humans ; Minors ; Patient Selection/ethics ; Pregnancy ; Pregnant Women ; Prisoners ; Research Subjects/legislation & jurisprudence ; Social Behavior ; Social Justice ; United States ; Vulnerable Populations/legislation & jurisprudence ; Women
    Language English
    Publishing date 2013-05-20
    Publishing country Netherlands
    Document type Journal Article
    ZDB-ID 1418481-3
    ISSN 1573-0980 ; 1573-1200 ; 1386-7415
    ISSN (online) 1573-0980 ; 1573-1200
    ISSN 1386-7415
    DOI 10.1007/s11017-013-9258-0
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  10. Article ; Online: How Should Clinicians Respond to International Public Health Emergencies?

    Lowe, Abbey / Hewlett, Angela / Schonfeld, Toby

    AMA journal of ethics

    2020  Volume 22, Issue 1, Page(s) E16–21

    Abstract: This case analysis examines obligations health care workers have to support relief efforts when an infectious disease outbreak could impact us all. How clinicians, institutions, and local communities ought to balance increased need for global solidarity ... ...

    Abstract This case analysis examines obligations health care workers have to support relief efforts when an infectious disease outbreak could impact us all. How clinicians, institutions, and local communities ought to balance increased need for global solidarity in response to global disease outbreaks with concerns of local stakeholders is one specific tension this article investigates. We explore how emphasizing global health solidarity in the face of highly hazardous communicable diseases can help mitigate global risk.
    MeSH term(s) Communicable Disease Control ; Delivery of Health Care/ethics ; Disease Outbreaks/ethics ; Emergencies ; Global Health/ethics ; Health Facilities/ethics ; Health Personnel/ethics ; Hemorrhagic Fever, Ebola/epidemiology ; Hemorrhagic Fever, Ebola/therapy ; Hemorrhagic Fever, Ebola/transmission ; Humans ; International Cooperation ; Moral Obligations ; Public Health/ethics ; Risk Management
    Language English
    Publishing date 2020-01-01
    Publishing country United States
    Document type Journal Article
    ISSN 2376-6980
    ISSN (online) 2376-6980
    DOI 10.1001/amajethics.2020.16
    Database MEDical Literature Analysis and Retrieval System OnLINE

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