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  1. Article ; Online: Parent, child, and adolescent lived experience using the insulin-only iLet Bionic Pancreas.

    Howard, Kelsey R / Garza, Kimberly P / Feldman, Marissa / Weissberg-Benchell, Jill

    Journal of pediatric psychology

    2024  

    Abstract: Objective: Automated insulin delivery (AID) systems show great promise for improving glycemic outcomes and reducing disease burden for youth with type 1 diabetes (T1D). The current study examined youth and parent perspectives after using the insulin- ... ...

    Abstract Objective: Automated insulin delivery (AID) systems show great promise for improving glycemic outcomes and reducing disease burden for youth with type 1 diabetes (T1D). The current study examined youth and parent perspectives after using the insulin-only iLet Bionic Pancreas (BP) during the 13-week pivotal trial.
    Methods: Parents and youth participated in focus group interviews, with questions assessing participants' experiences in a variety of settings and were grounded in the Unified Theory of Acceptance and Use of Technology. Qualitative analysis was completed by 3 authors using a hybrid thematic analysis approach.
    Results: Qualitative analysis of focus groups revealed a total of 19 sub-themes falling into 5 major themes (Diabetes Burden, Freedom and Flexibility, Daily Routine, Managing Glucose Levels, and User Experience). Participants' overall experience was positive, with decreased burden and improved freedom and flexibility. Some participants reported challenges in learning to trust the system, adjusting to the user interface, and the system learning their body.
    Conclusion: This study adds to the growing literature on patient perspectives on using AID systems and was among the first to assess caregiver and youth experiences with the BP system over an extended period (13 weeks). Patient feedback on physical experiences with the device and experiences trusting the device to manage glucose should inform future development of technologies as well as approaches to education for patients and their families.
    Language English
    Publishing date 2024-04-09
    Publishing country United States
    Document type Journal Article
    ZDB-ID 625329-5
    ISSN 1465-735X ; 0146-8693
    ISSN (online) 1465-735X
    ISSN 0146-8693
    DOI 10.1093/jpepsy/jsae022
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  2. Article ; Online: Transition Medicine-From Pediatric to Adult Care: Part 1.

    Nicolarsen, Jeremy / Weissberg-Benchell, Jill

    Pediatric annals

    2017  Volume 46, Issue 5, Page(s) e180–e181

    Language English
    Publishing date 2017-05-01
    Publishing country United States
    Document type Editorial
    ZDB-ID 195430-1
    ISSN 1938-2359 ; 0090-4481
    ISSN (online) 1938-2359
    ISSN 0090-4481
    DOI 10.3928/19382359-20170419-01
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    Zs.A 1347: Show issues Location:
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  3. Article ; Online: Psychosocial Care for Youth with Type 1 Diabetes: Summary of Reviews to Inform Clinical Practice.

    Shapiro, Jenna B / Garza, Kimberly P / Feldman, Marissa A / Suhs, Madeleine C / Ellis, Julia / Terry, Amanda / Howard, Kelsey R / Weissberg-Benchell, Jill

    Endocrinology and metabolism clinics of North America

    2023  Volume 53, Issue 1, Page(s) 107–122

    Abstract: The intensive demands of diabetes care can be difficult for youth with type 1 diabetes and their families to integrate into daily life. Standards of care in pediatric diabetes highlight the importance of evidence-based psychosocial interventions to ... ...

    Abstract The intensive demands of diabetes care can be difficult for youth with type 1 diabetes and their families to integrate into daily life. Standards of care in pediatric diabetes highlight the importance of evidence-based psychosocial interventions to optimize self-management behaviors and psychological well-being. The current review summarizes select systematic reviews and meta-analyses on evidence-based behavioral health interventions in pediatric diabetes. Interventions include strategies to strengthen youth psychosocial skills, improve family dynamics and caregiver mental health, enhance health and mental health equity, and address psychosocial factors related to diabetes technology use.
    MeSH term(s) Humans ; Child ; Adolescent ; Diabetes Mellitus, Type 1/therapy ; Diabetes Mellitus, Type 1/psychology ; Psychiatric Rehabilitation ; Behavior Therapy ; Self-Management
    Language English
    Publishing date 2023-10-30
    Publishing country United States
    Document type Journal Article ; Review
    ZDB-ID 92116-6
    ISSN 1558-4410 ; 0889-8529
    ISSN (online) 1558-4410
    ISSN 0889-8529
    DOI 10.1016/j.ecl.2023.10.002
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  4. Article ; Online: Transition Medicine-From Pediatric to Adult Care: Part 2.

    Weissberg-Benchell, Jill / Nicolarsen, Jeremy

    Pediatric annals

    2017  Volume 46, Issue 6, Page(s) e217–e218

    MeSH term(s) Adolescent ; Allergy and Immunology/organization & administration ; Autism Spectrum Disorder/therapy ; Cardiology/organization & administration ; Chronic Disease ; Heart Diseases/therapy ; Humans ; Hypersensitivity/therapy ; Pediatrics/organization & administration ; Transition to Adult Care/organization & administration ; Young Adult
    Language English
    Publishing date 2017--01
    Publishing country United States
    Document type Editorial ; Introductory Journal Article
    ZDB-ID 195430-1
    ISSN 1938-2359 ; 0090-4481
    ISSN (online) 1938-2359
    ISSN 0090-4481
    DOI 10.3928/19382359-20170517-03
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  5. Article ; Online: Diabetes camp matters: Assessing families' views of their diabetes camp experience.

    Weissberg-Benchell, Jill / Rychlik, Karen

    Pediatric diabetes

    2017  Volume 18, Issue 8, Page(s) 853–860

    Abstract: Background: Camp offers a safe and fun environment for learning new information about diabetes care and for trying new self-care skills. It is a place where children and teens are able to meet with others who also have diabetes and who share their ... ...

    Abstract Background: Camp offers a safe and fun environment for learning new information about diabetes care and for trying new self-care skills. It is a place where children and teens are able to meet with others who also have diabetes and who share their experiences.
    Materials and methods: This study assessed self-reports before and after attending diabetes camp on diabetes-specific emotional distress, diabetes-specific quality of life, and self-care behaviors by surveying campers and their parents from over 42 diabetes-specific summer camps across the United States. Parents (N = 413), Teenagers (N = 154), and Children (N = 116) completed both pre- and post-camp surveys.
    Results: Parents reported higher levels of diabetes-specific emotional distress than their campers did. Both parents and children reported significant improvements in their own distress after camp. Teens reported improvements in distress but they were not statistically significant. Youth report higher levels of self-care skills than parents believe their children possess. Parents, Teens, and Children all reported significant improvements in the camper's self-care skills after camp. First time campers' and their parents' perspectives regarding self-care skills are consistent with veteran campers after attending camp. Self-reports post-camp reveals that campers and their parents see camp as a place where youth feel they are with others who really understand what it is like to live with diabetes. Respondents also report that camp is a place where youth are exposed to new technologies and where campers can try new self-care tasks.
    MeSH term(s) Adolescent ; Camping ; Child ; Diabetes Mellitus/psychology ; Diabetes Mellitus/therapy ; Female ; Health Knowledge, Attitudes, Practice ; Humans ; Male ; Quality of Life ; Residential Treatment ; Self Care ; Surveys and Questionnaires
    Language English
    Publishing date 2017-12
    Publishing country Denmark
    Document type Journal Article
    ZDB-ID 1502504-4
    ISSN 1399-5448 ; 1745-1426 ; 1399-543X
    ISSN (online) 1399-5448
    ISSN 1745-1426 ; 1399-543X
    DOI 10.1111/pedi.12499
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    Zs.A 5422: Show issues Location:
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  6. Article ; Online: Moderating Effect of Depression on Glycemic Control in an eHealth Intervention Among Black Youth With Type 1 Diabetes: Findings From a Multicenter Randomized Controlled Trial.

    Ellis, Deborah / Carcone, April Idalski / Templin, Thomas / Evans, Meredyth / Weissberg-Benchell, Jill / Buggs-Saxton, Colleen / Boucher-Berry, Claudia / Miller, Jennifer L / Drossos, Tina / Dekelbab, M Bassem

    JMIR diabetes

    2024  Volume 9, Page(s) e55165

    Abstract: Background: Black adolescents with type 1 diabetes (T1D) are at increased risk for suboptimal diabetes health outcomes; however, evidence-based interventions for this population are lacking. Depression affects a high percentage of youth with T1D and ... ...

    Abstract Background: Black adolescents with type 1 diabetes (T1D) are at increased risk for suboptimal diabetes health outcomes; however, evidence-based interventions for this population are lacking. Depression affects a high percentage of youth with T1D and increases the likelihood of health problems associated with diabetes.
    Objective: Our aim was to test whether baseline levels of depression moderate the effects of a brief eHealth parenting intervention delivered to caregivers of young Black adolescents with T1D on youths' glycemic control.
    Methods: We conducted a multicenter randomized controlled trial at 7 pediatric diabetes clinics located in 2 large US cities. Participants (N=149) were allocated to either the intervention group or a standard medical care control group. Up to 3 intervention sessions were delivered on a tablet computer during diabetes clinic visits over a 12-month period.
    Results: In a linear mixed effects regression model, planned contrasts did not show significant reductions in hemoglobin A
    Conclusions: A brief, culturally tailored eHealth parenting intervention improved health outcomes among Black adolescents with T1D and depressive symptoms.
    Trial registration: ClinicalTrials.gov NCT03168867; https://clinicaltrials.gov/study/NCT03168867.
    Language English
    Publishing date 2024-04-09
    Publishing country Canada
    Document type Journal Article
    ISSN 2371-4379
    ISSN (online) 2371-4379
    DOI 10.2196/55165
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  7. Article ; Online: Diabetes distress in urban Black youth with type 1 diabetes and their caregivers: associations with glycemic control, depression, and health behaviors.

    Evans, Meredyth / Ellis, Deborah A / Vesco, Anthony T / Feldman, Marissa A / Weissberg-Benchell, Jill / Carcone, April Idalski / Miller, Jennifer / Boucher-Berry, Claudia / Buggs-Saxton, Colleen / Degnan, Bernard / Dekelbab, Bassem / Drossos, Tina

    Journal of pediatric psychology

    2024  

    Abstract: Objectives: Adolescents with type 1 diabetes (T1D) and their caregivers endorse high diabetes distress (DD). Limited studies have documented the impact of DD on Black youth. The aims of the present study were to (1) describe DD among a sample of Black ... ...

    Abstract Objectives: Adolescents with type 1 diabetes (T1D) and their caregivers endorse high diabetes distress (DD). Limited studies have documented the impact of DD on Black youth. The aims of the present study were to (1) describe DD among a sample of Black adolescents with T1D and their caregivers, (2) compare their DD levels with published normative samples, and (3) determine how DD relates to glycemic outcomes, diabetes self-management, parental monitoring of diabetes, and youth depressive symptoms.
    Methods: Baseline data from a multicenter clinical trial were used. Participants (N = 155) were recruited from 7 Midwestern pediatric diabetes clinics. Hemoglobin A1c (HbA1c) and measures of DD, parental monitoring of diabetes care, youth depression and diabetes management behaviors were obtained. The sample was split into (1) adolescents (ages 13-14; N = 95) and (2) preadolescents (ages 10-12; N = 60). Analyses utilized Cohen's d effect sizes, Pearson correlations, t-tests, and multiple regression.
    Results: DD levels in youth and caregivers were high, with 45%-58% exceeding either clinical cutoff scores or validation study sample means. Higher DD in youth and caregivers was associated with higher HbA1c, lower diabetes self-management, and elevated depressive symptoms, but not with parental monitoring of diabetes management.
    Conclusions: Screening for DD in Black youth with T1D and caregivers is recommended, as are culturally informed interventions that can reduce distress levels and lead to improved health outcomes. More research is needed on how systemic inequities contribute to higher DD in Black youth and the strategies/policy changes needed to reduce these inequities.
    Language English
    Publishing date 2024-01-12
    Publishing country United States
    Document type Journal Article
    ZDB-ID 625329-5
    ISSN 1465-735X ; 0146-8693
    ISSN (online) 1465-735X
    ISSN 0146-8693
    DOI 10.1093/jpepsy/jsad096
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  8. Article ; Online: Diabetes camp still matters: Relationships with diabetes-specific distress, strengths, and self-care skills.

    Weissberg-Benchell, Jill / Vesco, Anthony T / Rychlik, Karen

    Pediatric diabetes

    2019  Volume 20, Issue 3, Page(s) 353–360

    Abstract: Objective: Prior studies suggest diabetes camps improve psychosocial well-being in youth with type 1 diabetes but these studies suffer from variable levels of rigor. The present study assessed associations between camp participation and diabetes ... ...

    Abstract Objective: Prior studies suggest diabetes camps improve psychosocial well-being in youth with type 1 diabetes but these studies suffer from variable levels of rigor. The present study assessed associations between camp participation and diabetes distress, perceived independence in diabetes self-care, and diabetes strengths in a large sample of children, adolescents, and their parents across 44 camps in the United States. Analyses compared viewpoints of study participants, identified moderators of change, and assessed perceived benefits of camp participation.
    Methods: There were 2488 youth and 2563 parents consented for participation in the online survey. Participants reported diabetes distress and perceived independence in youth care, their new experiences and best parts of camp, and changes in behavior following camp. T-tests, regressions, Cohen's d, and relative frequencies were used as appropriate to assess baseline differences between reporters, pre-post outcome differences, and moderators of change.
    Results: Parents as compared to youth reported higher pre-camp distress and lower perception of youth independence in self-care. Youth experienced a statistically significant decrease in distress and increase in independence in self-care. Diabetes strengths did not change. Higher A1c prior to camp was associated with higher levels of distress across camp participation. Campers and their parents endorsed a high frequency of positive firsts, bests, and benefits of camp.
    Conclusions: Data from a large sample youth with type 1 diabetes across multiple camps showed broad-based psychosocial benefits of camp participation.
    MeSH term(s) Adaptation, Psychological/physiology ; Adolescent ; Attitude to Health ; Camping ; Child ; Diabetes Mellitus, Type 1/epidemiology ; Diabetes Mellitus, Type 1/psychology ; Diabetes Mellitus, Type 1/therapy ; Disease Progression ; Female ; Humans ; Male ; Peer Group ; Perception/physiology ; Self Care/psychology ; Self Care/statistics & numerical data ; Self Efficacy ; Stress, Psychological/epidemiology ; Stress, Psychological/psychology ; Surveys and Questionnaires ; United States/epidemiology
    Language English
    Publishing date 2019-03-24
    Publishing country Denmark
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 1502504-4
    ISSN 1399-5448 ; 1745-1426 ; 1399-543X
    ISSN (online) 1399-5448
    ISSN 1745-1426 ; 1399-543X
    DOI 10.1111/pedi.12836
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    Zs.A 5422: Show issues Location:
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  9. Book: Transitions in care

    Wolpert, Howard A. / Anderson, Barbara J. / Weissberg-Benchell, Jill

    meeting the challenges of type1 diabetes in young adults

    2009  

    Author's details Howard A. Wolpert ; Barbara J. Anderson ; Jill Weissberg-Benchell
    Keywords Young Adult ; Diabetes Mellitus, Type 1 ; Adolescent
    Language English
    Size V, 118 S. : graph. Darst.
    Publisher American Diabetes Assoc
    Publishing place Alexandria, Va
    Publishing country United States
    Document type Book
    HBZ-ID HT016219498
    ISBN 978-1-58040-324-5 ; 1-58040-324-7
    Database Catalogue ZB MED Medicine, Health

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    Shelf markLoan statusLocation
    2010 A 1207 order for loan Magazin

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  10. Article ; Online: Profiles of Depressive Symptoms and Diabetes Distress in Preadolescents With Type 1 Diabetes.

    Wasserman, Rachel M / Eshtehardi, Sahar S / Anderson, Barbara J / Weissberg-Benchell, Jill A / Hilliard, Marisa E

    Canadian journal of diabetes

    2021  Volume 45, Issue 5, Page(s) 436–443

    Abstract: Objectives: Diabetes distress and depressive symptoms are common psychosocial concerns for people with diabetes. These are related, yet distinct, mood states, which have each been related to diabetes management and glycated hemoglobin (A1C) among ... ...

    Abstract Objectives: Diabetes distress and depressive symptoms are common psychosocial concerns for people with diabetes. These are related, yet distinct, mood states, which have each been related to diabetes management and glycated hemoglobin (A1C) among adolescents and adults with diabetes. However, they have not been examined concurrently in preadolescents with type 1 diabetes. Understanding the overlaps and distinctions between diabetes distress and depressive symptoms in youth would help guide decisions about psychosocial screening in diabetes clinical practice. In this study, we aimed to categorize preadolescents based on clinical cutoffs of concurrently administered measures of depressive symptoms and diabetes distress, and identify clinical and demographic characteristics of each group.
    Methods: One hundred eighty youth (age range, 9 to 13 years; age [mean ± standard deviation], 11.3±1.3 years; 55% female; 56% Caucasian; mean A1C, 8.4±1.6% [68 mmol/mol]) completed measures of diabetes distress, depressive symptoms and quality of life. Daily blood glucose monitoring frequency was calculated from meter download. A1C values were obtained from electronic medical records.
    Results: Depressive symptoms and diabetes distress each significantly correlated with A1C and quality of life. Although most (69%) participants had no clinically significant elevations in either diabetes distress or depressive symptoms, 14% had elevated depressive symptoms only and 17% had elevated distress without concurrent elevated depressive symptoms. Groups differed based on A1C, quality of life and insurance status.
    Conclusions: Routine assessment of both depressive symptoms and diabetes distress may help to identify preadolescents with type 1 diabetes who require psychosocial support.
    MeSH term(s) Adolescent ; Blood Glucose Self-Monitoring ; Child ; Depression/epidemiology ; Diabetes Mellitus, Type 1/psychology ; Female ; Glycated Hemoglobin A/analysis ; Humans ; Male ; Quality of Life
    Chemical Substances Glycated Hemoglobin A
    Language English
    Publishing date 2021-02-02
    Publishing country Canada
    Document type Journal Article
    ISSN 2352-3840
    ISSN (online) 2352-3840
    DOI 10.1016/j.jcjd.2021.01.012
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