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Article ; Online: Aboriginal and Torres Strait Islander women's views of cervical screening by self-collection: a qualitative study.

Whop, Lisa J / Butler, Tamara L / Lee, Natasha / Cunningham, Joan / Garvey, Gail / Anderson, Kate / Condon, John R / Tong, Allison / Moore, Suzanne / Maher, Clare M / Mein, Jacqueline K / Warren, Eloise F / Brotherton, Julia M L

Australian and New Zealand journal of public health

2022 Volume 46, Issue 2, Page(s) 161–169

Abstract: Objective: This study aimed to describe Aboriginal and Torres Strait Islander women's views of self-collection introduced in the renewed National Cervical Screening Program.: Methods: A total of 79 Aboriginal and/or Torres Strait Islander women (50 ... ...

Abstract	Objective: This study aimed to describe Aboriginal and Torres Strait Islander women's views of self-collection introduced in the renewed National Cervical Screening Program. Methods: A total of 79 Aboriginal and/or Torres Strait Islander women (50 screened in previous five years, 29 under-screened) from five clinics across three Australian states/territories participated. Topics discussed were perceptions of self-collection, the instruction card and suggestions for implementing self-collection. We employed yarning (a qualitative method), which established relationships and trust between participants and researchers to facilitate culturally safe conversations. Transcripts were analysed thematically. Results: Most women were unaware of self-collection before the yarn but found it to be an acceptable way to participate in cervical screening. Women perceived self-collection would be convenient, provide a sense of control over the screening experience, and maintain privacy and comfort. The instructions were perceived to be simple and easy to follow. Women had concerns about collecting the sample correctly and the accuracy of the sample (compared to clinician-collected samples). Conclusions: Self-collection is acceptable to Aboriginal and Torres Strait Islander women. Implications for public health: Given the inequitable burden of cervical cancer experienced by Aboriginal and Torres Strait Islander women, self-collection is likely to significantly improve participation and ultimately improve cervical cancer outcomes.
MeSH term(s)	Australia ; Early Detection of Cancer ; Female ; Health Services, Indigenous ; Humans ; Native Hawaiian or Other Pacific Islander ; Qualitative Research ; Uterine Cervical Neoplasms/diagnosis
Language	English
Publishing date	2022-02-03
Publishing country	Australia
Document type	Journal Article
ZDB-ID	1323548-5
ISSN	1753-6405 ; 1326-0200
ISSN (online)	1753-6405
ISSN	1326-0200
DOI	10.1111/1753-6405.13201
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Article ; Online: Under-screened Aboriginal and Torres Strait Islander women's perspectives on cervical screening.

Butler, Tamara L / Lee, Natasha / Anderson, Kate / Brotherton, Julia M L / Cunningham, Joan / Condon, John R / Garvey, Gail / Tong, Allison / Moore, Suzanne P / Maher, Clare M / Mein, Jacqueline K / Warren, Eloise F / Whop, Lisa J

PloS one

2022 Volume 17, Issue 8, Page(s) e0271658

Abstract: Aboriginal and Torres Strait Islander women have lower participation in Australia's National Cervical Screening Program than other Australian women. Under-screened (including never screened) women's voices are rarely heard in research evidence, despite ... ...

Abstract	Aboriginal and Torres Strait Islander women have lower participation in Australia's National Cervical Screening Program than other Australian women. Under-screened (including never screened) women's voices are rarely heard in research evidence, despite being a priority group for interventions to increase cervical screening participation. This study aimed to describe under-screened Aboriginal and Torres Strait Islander women's perspectives on cervical screening. Participants were 29 under-screened (women who had either never screened, had not screened in the previous five years or had recently screened in the past three months after more than five years) Aboriginal and Torres Strait Islander women from five communities across three states/territories. Female Aboriginal and Torres Strait Islander researchers Yarned with women about why they did not participate in screening and how to improve screening. Yarning is an Indigenous qualitative research method in which relationships and trust facilitate culturally safe conversation. Transcripts were analysed thematically. The proportion of eligible women who screened within 30 days after the Yarn was calculated. We identified four themes describing how the harms outweighed the benefits of cervical screening for under-screened women. These were: 1) distress, discomfort, and trauma; 2) lack of privacy and control; 3) complicated relationships with health care providers (HCPs); and 4) pressured, insensitive, and/or culturally unsafe communication from HCPs. Under-screened women who had recently screened had maintained privacy and control through self-collection and had experienced trauma-informed and empathetic care from their HCPs. While we cannot unequivocally attribute women's subsequent participation in screening to their involvement in this study, it is notable that one third of eligible under-screened women were screened within 30 days after the Yarn. Enhancing privacy, implementing trauma-informed approaches to care and sensitivity to the clinician-client relationship dynamics could enhance women's sense of comfort in, and control over, the screening procedure. The opportunity to Yarn about cervical screening and self-collection may address these issues and support progress toward cervical cancer elimination in Australia.
MeSH term(s)	Australia/epidemiology ; Early Detection of Cancer ; Female ; Health Services, Indigenous ; Humans ; Native Hawaiian or Other Pacific Islander ; Uterine Cervical Neoplasms/diagnosis
Language	English
Publishing date	2022-08-31
Publishing country	United States
Document type	Journal Article ; Research Support, Non-U.S. Gov't
ZDB-ID	2267670-3
ISSN	1932-6203 ; 1932-6203
ISSN (online)	1932-6203
ISSN	1932-6203
DOI	10.1371/journal.pone.0271658
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Article ; Online: Aboriginal and Torres Strait Islander women's views of cervical screening by self‐collection

Lisa J. Whop / Tamara L. Butler / Natasha Lee / Joan Cunningham / Gail Garvey / Kate Anderson / John R. Condon / Allison Tong / Suzanne Moore / Clare M. Maher / Jacqueline K. Mein / Eloise F. Warren / Julia M.L. Brotherton

Australian and New Zealand Journal of Public Health, Vol 46, Iss 2, Pp 161-

a qualitative study

2022 Volume 169

Abstract: Abstract Objective: This study aimed to describe Aboriginal and Torres Strait Islander women's views of self‐collection introduced in the renewed National Cervical Screening Program. Methods: A total of 79 Aboriginal and/or Torres Strait Islander women ( ... ...

Abstract	Abstract Objective: This study aimed to describe Aboriginal and Torres Strait Islander women's views of self‐collection introduced in the renewed National Cervical Screening Program. Methods: A total of 79 Aboriginal and/or Torres Strait Islander women (50 screened in previous five years, 29 under‐screened) from five clinics across three Australian states/territories participated. Topics discussed were perceptions of self‐collection, the instruction card and suggestions for implementing self‐collection. We employed yarning (a qualitative method), which established relationships and trust between participants and researchers to facilitate culturally safe conversations. Transcripts were analysed thematically. Results: Most women were unaware of self‐collection before the yarn but found it to be an acceptable way to participate in cervical screening. Women perceived self‐collection would be convenient, provide a sense of control over the screening experience, and maintain privacy and comfort. The instructions were perceived to be simple and easy to follow. Women had concerns about collecting the sample correctly and the accuracy of the sample (compared to clinician‐collected samples). Conclusions: Self‐collection is acceptable to Aboriginal and Torres Strait Islander women. Implications for public health: Given the inequitable burden of cervical cancer experienced by Aboriginal and Torres Strait Islander women, self‐collection is likely to significantly improve participation and ultimately improve cervical cancer outcomes.
Keywords	cervical cancer ; cervical screening ; self‐collection ; Aboriginal and Torres Strait Islander women ; Aboriginal and Torres Strait Islander health ; Public aspects of medicine ; RA1-1270
Subject code	360
Language	English
Publishing date	2022-04-01T00:00:00Z
Publisher	Elsevier
Document type	Article ; Online
Database	BASE - Bielefeld Academic Search Engine (life sciences selection)

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Article ; Online: Under-screened Aboriginal and Torres Strait Islander women's perspectives on cervical screening.

Tamara L Butler / Natasha Lee / Kate Anderson / Julia M L Brotherton / Joan Cunningham / John R Condon / Gail Garvey / Allison Tong / Suzanne P Moore / Clare M Maher / Jacqueline K Mein / Eloise F Warren / Lisa J Whop

PLoS ONE, Vol 17, Iss 8, p e

2022 Volume 0271658

Abstract	Aboriginal and Torres Strait Islander women have lower participation in Australia's National Cervical Screening Program than other Australian women. Under-screened (including never screened) women's voices are rarely heard in research evidence, despite being a priority group for interventions to increase cervical screening participation. This study aimed to describe under-screened Aboriginal and Torres Strait Islander women's perspectives on cervical screening. Participants were 29 under-screened (women who had either never screened, had not screened in the previous five years or had recently screened in the past three months after more than five years) Aboriginal and Torres Strait Islander women from five communities across three states/territories. Female Aboriginal and Torres Strait Islander researchers Yarned with women about why they did not participate in screening and how to improve screening. Yarning is an Indigenous qualitative research method in which relationships and trust facilitate culturally safe conversation. Transcripts were analysed thematically. The proportion of eligible women who screened within 30 days after the Yarn was calculated. We identified four themes describing how the harms outweighed the benefits of cervical screening for under-screened women. These were: 1) distress, discomfort, and trauma; 2) lack of privacy and control; 3) complicated relationships with health care providers (HCPs); and 4) pressured, insensitive, and/or culturally unsafe communication from HCPs. Under-screened women who had recently screened had maintained privacy and control through self-collection and had experienced trauma-informed and empathetic care from their HCPs. While we cannot unequivocally attribute women's subsequent participation in screening to their involvement in this study, it is notable that one third of eligible under-screened women were screened within 30 days after the Yarn. Enhancing privacy, implementing trauma-informed approaches to care and sensitivity to the clinician-client ...
Keywords	Medicine ; R ; Science ; Q
Subject code	360
Language	English
Publishing date	2022-01-01T00:00:00Z
Publisher	Public Library of Science (PLoS)
Document type	Article ; Online
Database	BASE - Bielefeld Academic Search Engine (life sciences selection)

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Article ; Online: Indigenous Australian women's experiences of participation in cervical screening.

Butler, Tamara L / Anderson, Kate / Condon, John R / Garvey, Gail / Brotherton, Julia M L / Cunningham, Joan / Tong, Allison / Moore, Suzanne P / Maher, Clare M / Mein, Jacqueline K / Warren, Eloise F / Whop, Lisa J

PloS one

2020 Volume 15, Issue 6, Page(s) e0234536

Abstract: Aboriginal and Torres Strait Islander (collectively, Indigenous Australian) women experience a higher burden of cervical cancer than other women. The National Cervical Screening Program (NCSP) is failing to meet the needs of Indigenous Australian women, ... ...

Abstract	Aboriginal and Torres Strait Islander (collectively, Indigenous Australian) women experience a higher burden of cervical cancer than other women. The National Cervical Screening Program (NCSP) is failing to meet the needs of Indigenous Australian women, resulting in many women not regularly participating in cervical screening. However, one third of Indigenous Australian women do participate in cervical screening. The reasons that some women in this population commence and continue to screen remain unheard but could provide insights to support women who currently do not participate. We aimed to describe Indigenous Australian women's experiences and views of participation in cervical screening by yarning (a culturally-appropriate interview technique) with 50 Indigenous Australian women aged 25-70 years who had completed cervical screening in the past five years, recruited via Primary Health Care Centres (PHCCs) from three jurisdictions. Aboriginal or Torres Strait Islander women researchers conducted the interviews. Thematic analysis identified six themes: screening as a means of staying strong and in control; overcoming fears, shame, and negative experiences of screening; needing to talk openly about screening; the value of trusting relationships with screening providers; logistical barriers; and overcoming privacy concerns for women employed at PHCCs. Despite describing screening as shameful, invasive, and uncomfortable, women perceived it as a way of staying healthy and exerting control over their health. This ultimately supported their participation and a sense of empowerment. Women valued open discussion about screening and strong relationships with health providers. We identified logistical barriers and specific barriers faced by women employed at PHCCs. This study is strengthened by a research approach that centred Indigenous Australian women's voices. Understanding the experiences of Indigenous Australian women who participate in screening will help screening providers support women to start and continue to screen regularly. Recommendations for practice are provided.
MeSH term(s)	Adult ; Aged ; Australia/epidemiology ; Early Detection of Cancer ; Female ; Health Services Accessibility ; Health Services, Indigenous ; Humans ; Maternal Health Services ; Middle Aged ; Oceanic Ancestry Group ; Pregnancy ; Primary Health Care ; Uterine Cervical Neoplasms/diagnosis ; Uterine Cervical Neoplasms/epidemiology ; Uterine Cervical Neoplasms/pathology
Language	English
Publishing date	2020-06-15
Publishing country	United States
Document type	Journal Article ; Research Support, Non-U.S. Gov't
ISSN	1932-6203
ISSN (online)	1932-6203
DOI	10.1371/journal.pone.0234536
Database	MEDical Literature Analysis and Retrieval System OnLINE

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Article ; Online: Outreach for chlamydia and gonorrhoea screening: a systematic review of strategies and outcomes.

Hengel, Belinda / Jamil, Muhammad S / Mein, Jacqueline K / Maher, Lisa / Kaldor, John M / Guy, Rebecca J

BMC public health

2013 Volume 13, Page(s) 1040

Abstract: Background: High Chlamydia trachomatis (CT) and Neisseria gonorrhoeae (NG) prevalence have been reported in populations that do not regularly access health centres for sexually transmissible infections (STI) testing. We reviewed current outreach ... ...

Abstract	Background: High Chlamydia trachomatis (CT) and Neisseria gonorrhoeae (NG) prevalence have been reported in populations that do not regularly access health centres for sexually transmissible infections (STI) testing. We reviewed current outreach strategies used to increase access to STI testing and their outcomes. Methods: We systematically reviewed the literature for English language studies published between 1 January 2005 and 28 January 2011 describing CT and/or NG screening programs in non-clinical outreach settings. Results: We identified 25 programs, with the majority occurring in either Australia (32%) or the United States (32%). The most common target groups were young people aged 15-29 years (52%), men who have sex with men (24%) and sex workers (8%). The median CT positivity was 7.7% (Inter Quartile Range [IQR]: 3.0%-11.1%, n=19 programs), and median NG positivity was 2.6% (IQR: 0.0%-8.0%, n=10). The median participation rate was 53% (IQR: 23.9%-81.3%), and a median of 79.6% (IQR: 55.1%-89.4%) of participants were tested, with a median of 100 tests conducted per program (IQR: 65-331, range: 11-1808). Across all settings the participation rate was highest among target groups gathering in community service venues (community centres, parenting centres, homeless shelters) (median=81.4%, n=4), and social venues (sporting venues or bars) (80.4%, n=1). Lower participation rates were found in street/public community areas (median=23.9%, n=3) and sex on premises venues (10.4% and 24.3%, n=2). Conclusions: The review indicated that although CT and NG outreach programs reached a relatively small number of people the yield of infections is high. Settings which appear to be more effective at encouraging participation appear to be those within an existing venue, rather than in public areas.
MeSH term(s)	Adolescent ; Adult ; Chlamydia Infections/diagnosis ; Community-Institutional Relations ; Female ; Gonorrhea/diagnosis ; Homeless Persons/statistics & numerical data ; Homosexuality, Male/statistics & numerical data ; Humans ; Male ; Mass Screening/methods ; Program Evaluation ; Sex Workers/statistics & numerical data ; Young Adult
Language	English
Publishing date	2013-11-04
Publishing country	England
Document type	Journal Article ; Review ; Systematic Review
ISSN	1471-2458
ISSN (online)	1471-2458
DOI	10.1186/1471-2458-13-1040
Database	MEDical Literature Analysis and Retrieval System OnLINE

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Article ; Online: Indigenous Australian women's experiences of participation in cervical screening.

Tamara L Butler / Kate Anderson / John R Condon / Gail Garvey / Julia M L Brotherton / Joan Cunningham / Allison Tong / Suzanne P Moore / Clare M Maher / Jacqueline K Mein / Eloise F Warren / Lisa J Whop

PLoS ONE, Vol 15, Iss 6, p e

2020 Volume 0234536

Abstract	Aboriginal and Torres Strait Islander (collectively, Indigenous Australian) women experience a higher burden of cervical cancer than other women. The National Cervical Screening Program (NCSP) is failing to meet the needs of Indigenous Australian women, resulting in many women not regularly participating in cervical screening. However, one third of Indigenous Australian women do participate in cervical screening. The reasons that some women in this population commence and continue to screen remain unheard but could provide insights to support women who currently do not participate. We aimed to describe Indigenous Australian women's experiences and views of participation in cervical screening by yarning (a culturally-appropriate interview technique) with 50 Indigenous Australian women aged 25-70 years who had completed cervical screening in the past five years, recruited via Primary Health Care Centres (PHCCs) from three jurisdictions. Aboriginal or Torres Strait Islander women researchers conducted the interviews. Thematic analysis identified six themes: screening as a means of staying strong and in control; overcoming fears, shame, and negative experiences of screening; needing to talk openly about screening; the value of trusting relationships with screening providers; logistical barriers; and overcoming privacy concerns for women employed at PHCCs. Despite describing screening as shameful, invasive, and uncomfortable, women perceived it as a way of staying healthy and exerting control over their health. This ultimately supported their participation and a sense of empowerment. Women valued open discussion about screening and strong relationships with health providers. We identified logistical barriers and specific barriers faced by women employed at PHCCs. This study is strengthened by a research approach that centred Indigenous Australian women's voices. Understanding the experiences of Indigenous Australian women who participate in screening will help screening providers support women to start and continue ...
Keywords	Medicine ; R ; Science ; Q
Language	English
Publishing date	2020-01-01T00:00:00Z
Publisher	Public Library of Science (PLoS)
Document type	Article ; Online
Database	BASE - Bielefeld Academic Search Engine (life sciences selection)

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Article ; Online: Strategies to improve control of sexually transmissible infections in remote Australian Aboriginal communities: a stepped-wedge, cluster-randomised trial.

The Lancet. Global health

2019 Volume 7, Issue 11, Page(s) e1553–e1563

Abstract: Background: Remote Australian Aboriginal communities have among the highest diagnosed rates of sexually transmissible infections (STIs) in the world. We did a trial to assess whether continuous improvement strategies related to sexual health could ... ...

Abstract	Background: Remote Australian Aboriginal communities have among the highest diagnosed rates of sexually transmissible infections (STIs) in the world. We did a trial to assess whether continuous improvement strategies related to sexual health could reduce infection rates. Methods: In this stepped-wedge, cluster-randomised trial (STIs in remote communities: improved and enhanced primary health care [STRIVE]), we recruited primary health-care centres serving Aboriginal communities in remote areas of Australia. Communities were eligible to participate if they were classified as very remote, had a population predominantly of Aboriginal people, and only had one primary health-care centre serving the population. The health-care centres were grouped into clusters on the basis of geographical proximity to each other, population size, and Aboriginal cultural ties including language connections. Clusters were randomly assigned into three blocks (year 1, year 2, and year 3 clusters) using a computer-generated randomisation algorithm, with minimisation to balance geographical region, population size, and baseline STI testing level. Each year for 3 years, one block of clusters was transitioned into the intervention phase, while those not transitioned continued usual care (control clusters). The intervention phase comprised cycles of reviewing clinical data and modifying systems to support improved STI clinical practice. All investigators and participants were unmasked to the intervention. Primary endpoints were community prevalence and testing coverage in residents aged 16-34 years for Chlamydia trachomatis, Neisseria gonorrhoeae, and Trichomonas vaginalis. We used Poisson regression analyses on the final dataset and compared STI prevalences and testing coverage between control and intervention clusters. All analyses were by intention to treat and models were adjusted for time as an independent covariate in overall analyses. This study was registered with the Australia and New Zealand Clinical Trials Registry, ACTRN12610000358044. Findings: Between April, 2010, and April, 2011, we recruited 68 primary care centres and grouped them into 24 clusters, which were randomly assigned into year 1 clusters (estimated population aged 16-34 years, n=11 286), year 2 clusters (n=10 288), or year 3 clusters (n=13 304). One primary health-care centre withdrew from the study due to restricted capacity to participate. We detected no difference in the relative prevalence of STIs between intervention and control clusters (adjusted relative risk [RR] 0·97, 95% CI 0·84-1·12; p=0·66). However, testing coverage was substantially higher in intervention clusters (22%) than in control clusters (16%; RR 1·38; 95% CI 1·15-1·65; p=0·0006). Interpretation: Our intervention increased STI testing coverage but did not have an effect on prevalence. Additional interventions that will provide increased access to both testing and treatment are required to reduce persistently high prevalences of STIs in remote communities. Funding: Australian National Health and Medical Research Council.
MeSH term(s)	Adolescent ; Adult ; Australia ; Chlamydia Infections/prevention & control ; Female ; Health Services, Indigenous/organization & administration ; Humans ; Male ; Middle Aged ; Oceanic Ancestry Group/statistics & numerical data ; Prevalence ; Primary Health Care/organization & administration ; Rural Population/statistics & numerical data ; Sexually Transmitted Diseases/prevention & control ; Trichomonas Infections/prevention & control ; Young Adult
Language	English
Publishing date	2019-10-13
Publishing country	England
Document type	Journal Article ; Randomized Controlled Trial ; Research Support, Non-U.S. Gov't
ZDB-ID	2723488-5
ISSN	2214-109X ; 2214-109X
ISSN (online)	2214-109X
ISSN	2214-109X
DOI	10.1016/S2214-109X(19)30411-5
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Article: Congenital Epulis: a clinical case presentation.

Sweeney, Kristie / Spurway, Jacqueline / Mein, Brendan / Magotti, Robert / Benzie, Ron / Challis, Daniel / Henry, Guy

Australasian journal of ultrasound in medicine

2015 Volume 17, Issue 2, Page(s) 85–88

Abstract: Congenital Epulis (CE) is a rare, benign tumour of the mucosa of the mouth in a neonate. It presents as an intraoral tumour and is rarely diagnosed prenatally. Complications include neonatal airway compromise, difficulty feeding and aesthetic ... ...

Abstract	Congenital Epulis (CE) is a rare, benign tumour of the mucosa of the mouth in a neonate. It presents as an intraoral tumour and is rarely diagnosed prenatally. Complications include neonatal airway compromise, difficulty feeding and aesthetic considerations. Ultrasound is useful in aiding decisions regarding site, age, method of delivery and preparing parents and staff for the appearances of the tumour at birth. We present a case where CE was identified at 35 weeks gestational age during a routine third trimester prenatal ultrasound. The patient was scanned at a rural centre, referred to a tertiary institution for follow up and delivered at a specialist perinatal surgical centre, in preparation for neonatal surgery. The outcome was excellent and this case is a good example of multi-centre cooperation.
Language	English
Publishing date	2015-12-31
Publishing country	Australia
Document type	Case Reports
ZDB-ID	2843953-3
ISSN	2205-0140 ; 1836-6864
ISSN (online)	2205-0140
ISSN	1836-6864
DOI	10.1002/j.2205-0140.2014.tb00112.x
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Article: Control of genital chlamydial infection in the Kimberley region of Western Australia.

Mak, Donna B / Johnson, Graeme H / Marshall, Lewis J / Mein, Jacqueline K

The Medical journal of Australia

2004 Volume 180, Issue 1, Page(s) 45

MeSH term(s)	Azithromycin/therapeutic use ; Chlamydia Infections/drug therapy ; Chlamydia Infections/epidemiology ; Chlamydia Infections/prevention & control ; Communicable Disease Control/methods ; Communicable Disease Control/organization & administration ; Female ; Humans ; Male ; Population Surveillance/methods ; Prevalence ; Sex Distribution ; Western Australia/epidemiology
Chemical Substances	Azithromycin (83905-01-5)
Language	English
Publishing date	2004-01-05
Publishing country	Australia
Document type	Comment ; Letter
ZDB-ID	186082-3
ISSN	1326-5377 ; 0025-729X
ISSN (online)	1326-5377
ISSN	0025-729X
DOI	10.5694/j.1326-5377.2004.tb05779.x
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