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  1. Article ; Online: Pilot study showed that a paediatric palliative care scale identified the risk of approaching death.

    Lazzarin, Pierina / Marinetto, Anna / Carraro, Caterina / Baggetto, Carlotta / Schiavon, Barbara / Mirisola, Valentina / Giacomelli, Luca / Benini, Franca

    Acta paediatrica (Oslo, Norway : 1992)

    2024  

    Language English
    Publishing date 2024-04-27
    Publishing country Norway
    Document type Journal Article
    ZDB-ID 203487-6
    ISSN 1651-2227 ; 0365-1436 ; 0803-5253
    ISSN (online) 1651-2227
    ISSN 0365-1436 ; 0803-5253
    DOI 10.1111/apa.17252
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article ; Online: A Tool for the Evaluation of Clinical Needs and Eligibility to Pediatric Palliative Care: The Validation of the ACCAPED Scale.

    Lazzarin, Pierina / Giacomelli, Luca / Terrenato, Irene / Benini, Franca

    Journal of palliative medicine

    2020  Volume 24, Issue 2, Page(s) 205–210

    Abstract: Background: ...

    Abstract Background:
    MeSH term(s) Child ; Health Personnel ; Hospice and Palliative Care Nursing ; Humans ; Palliative Care ; Pediatricians ; Referral and Consultation
    Language English
    Publishing date 2020-07-08
    Publishing country United States
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 1427361-5
    ISSN 1557-7740 ; 1096-6218
    ISSN (online) 1557-7740
    ISSN 1096-6218
    DOI 10.1089/jpm.2020.0148
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article ; Online: Management strategies adopted by a paediatric palliative care network in northern Italy during the COVID-19 pandemic.

    Lazzarin, Pierina / Avagnina, Irene / Divisic, Antuan / Agosto, Caterina / Giacomelli, Luca / Benini, Franca

    Acta paediatrica (Oslo, Norway : 1992)

    2020  Volume 109, Issue 9, Page(s) 1897–1898

    MeSH term(s) COVID-19 ; Child ; Coronavirus Infections/epidemiology ; Humans ; Italy/epidemiology ; Palliative Care/organization & administration ; Pandemics ; Pediatrics/organization & administration ; Pneumonia, Viral/epidemiology
    Keywords covid19
    Language English
    Publishing date 2020-07-01
    Publishing country Norway
    Document type Journal Article
    ZDB-ID 203487-6
    ISSN 1651-2227 ; 0365-1436 ; 0803-5253
    ISSN (online) 1651-2227
    ISSN 0365-1436 ; 0803-5253
    DOI 10.1111/apa.15411
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  4. Article ; Online: COVID-19 in pediatric palliative care: what can we learn from the pandemic and possible future directions.

    Avagnina, Irene / Zanin, Anna / Lazzarin, Pierina / Grigolon, Enrica / Shahi, Aashni / Papa, Simonetta / Giacomelli, Luca / Benini, Franca

    Annali dell'Istituto superiore di sanita

    2022  Volume 57, Issue 4, Page(s) 286–290

    Abstract: Introduction: Patients in pediatric palliative care (PPC) live with multiple comorbidities which represent a risk factor for severe form of COVID-19.: Methods: This monocentric retrospective study was performed at the PPC Center of Padua (Italy). ... ...

    Abstract Introduction: Patients in pediatric palliative care (PPC) live with multiple comorbidities which represent a risk factor for severe form of COVID-19.
    Methods: This monocentric retrospective study was performed at the PPC Center of Padua (Italy). Testing methodology, prevention strategies and infection characteristics were documented and compared during the first and second peak of SARS-CoV-2 infection.
    Results: Between April-June 2020 a population swab screening was performed and a strong reduction of the habitual family support was observed. Between November 2020-January 2021 swab testing was limited to specific cases and the support network for families was partially restored. Incidence of COVID-19 was low, resulting in 0.04% of total pediatic cases in the Veneto Region. No severe forms were observed.
    Conclusion: The use of adequate preventive measures by families and support networks associated with testing in specific contests is safe, cost effective and has a minor impact on caregiver's care load.
    MeSH term(s) COVID-19 ; Child ; Humans ; Italy/epidemiology ; Palliative Care ; Pandemics ; Retrospective Studies ; SARS-CoV-2
    Language English
    Publishing date 2022-01-25
    Publishing country Italy
    Document type Journal Article
    ZDB-ID 950344-4
    ISSN 2384-8553 ; 0021-2571
    ISSN (online) 2384-8553
    ISSN 0021-2571
    DOI 10.4415/ANN_21_04_03
    Database MEDical Literature Analysis and Retrieval System OnLINE

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    Zs.A 231: Show issues Location:
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  5. Article: The Intervention Areas of the Psychologist in Pediatric Palliative Care: A Retrospective Analysis.

    Santini, Anna / Avagnina, Irene / Marinetto, Anna / De Tommasi, Valentina / Lazzarin, Pierina / Perilongo, Giorgio / Benini, Franca

    Frontiers in psychology

    2022  Volume 13, Page(s) 858812

    Abstract: Infants, children and adolescents with life-limiting and life-threatening disease need long-term care that may change according to disease's natural history. With the primary goal of quality of life, the psychologist of pediatric palliative care (PPC) ... ...

    Abstract Infants, children and adolescents with life-limiting and life-threatening disease need long-term care that may change according to disease's natural history. With the primary goal of quality of life, the psychologist of pediatric palliative care (PPC) network deals with a large variety of issues. Little consideration has been given to the variety of intervention areas of psychology in PPC that concern the whole life span of the patient and family. The PPC network is composed by a multidisciplinary team of palliative care specialists that intervenes at home, in the hospital and in every place where the patient is living. The network coordinates different public health services to respond to clinical, psychosocial and spiritual needs. In these scenarios, the psychological need is not a single event but a moment inserted in the complexity of the child's needs. This retrospective monocentric project consists of an analysis of characteristics of psychological interventions in our PPC service. The time frame taken into consideration is 2019-2020, analyzing the clinical records of 186 patients of Pediatric Palliative Care and Pain Service of Veneto Region (Italy). The areas that emerged in the analysis show how the intervention of the psychologist in PPC does not concern only end-of-life, but a series of topics that are significant for the family to guarantee psycho-social wellbeing oriented toward the best quality of life. In conclusion, these different topics highlight the complexity of the child and family experience. This variety must be taken into consideration, the psychologist must increase holistic support with a dedicated skills curriculum.
    Language English
    Publishing date 2022-03-22
    Publishing country Switzerland
    Document type Journal Article
    ZDB-ID 2563826-9
    ISSN 1664-1078
    ISSN 1664-1078
    DOI 10.3389/fpsyg.2022.858812
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  6. Article ; Online: Turn off pain: What has changed 4 years later?

    Benini, Franca / Terrenato, Irene / Lazzarin, Pierina / Borrometi, Fabio / Jankovic, Momcilo / Torri, Valter / Giacomelli, Luca / Gentili, Marta

    Acta paediatrica (Oslo, Norway : 1992)

    2020  Volume 109, Issue 11, Page(s) 2428–2429

    MeSH term(s) Humans ; Pain/etiology
    Language English
    Publishing date 2020-02-14
    Publishing country Norway
    Document type Journal Article
    ZDB-ID 203487-6
    ISSN 1651-2227 ; 0365-1436 ; 0803-5253
    ISSN (online) 1651-2227
    ISSN 0365-1436 ; 0803-5253
    DOI 10.1111/apa.15199
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  7. Article ; Online: An estimation of the number of children requiring pediatric palliative care in Italy.

    Benini, Franca / Bellentani, Mariadonata / Reali, Laura / Lazzarin, Pierina / De Zen, Lucia / Pellegatta, Federico / Aprile, Pierangelo Lora / Scaccabarozzi, Gianlorenzo

    Italian journal of pediatrics

    2021  Volume 47, Issue 1, Page(s) 4

    Abstract: Background: Pediatric palliative care (PPC) addresses the physical and psychological needs of children suffering from life-limiting diseases. To define prevention and educational plans and to properly allocate resources, a precise estimation of the PPC ... ...

    Abstract Background: Pediatric palliative care (PPC) addresses the physical and psychological needs of children suffering from life-limiting diseases. To define prevention and educational plans and to properly allocate resources, a precise estimation of the PPC burden is required.
    Objectives: To estimate the current number of children requiring PPC in Italy, useful to assist policy-makers and healthcare bodies in the organization and allocation of PPC resources.
    Methods: Literature data, The Global Atlas of Palliative Care at the End of Life and Italian national databases have been consulted.
    Results: According to our estimation, at present, a total of 20,540-32,864 children in Italy require PPC (34-54 children/100,000 inhabitants) of whom 18 children/100,000 inhabitants require specialized PPC.
    Conclusions: The present work is a fundamental tool to be used by the institutions, the local networks of PPC and the health programmers when formulating organizational models and care plans consistent with the actual need for PPC.
    MeSH term(s) Adolescent ; Child ; Child Health Services ; Child, Preschool ; Female ; Health Services Needs and Demand ; Humans ; Infant ; Infant, Newborn ; Italy ; Male ; Palliative Care
    Language English
    Publishing date 2021-01-07
    Publishing country England
    Document type Letter
    ZDB-ID 2088556-8
    ISSN 1824-7288 ; 1720-8424
    ISSN (online) 1824-7288
    ISSN 1720-8424
    DOI 10.1186/s13052-020-00952-y
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  8. Article ; Online: Management strategies adopted by a paediatric palliative care network in northern Italy during the COVID‐19 pandemic

    Lazzarin, Pierina / Avagnina, Irene / Divisic, Antuan / Agosto, Caterina / Giacomelli, Luca / Benini, Franca

    Acta Paediatrica

    2020  Volume 109, Issue 9, Page(s) 1897–1898

    Keywords Pediatrics, Perinatology, and Child Health ; General Medicine ; covid19
    Language English
    Publisher Wiley
    Publishing country us
    Document type Article ; Online
    ISSN 0803-5253
    DOI 10.1111/apa.15411
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  9. Article: Management strategies adopted by a paediatric palliative care network in northern Italy during the COVID-19 pandemic

    Lazzarin, Pierina / Avagnina, Irene / Divisic, Antuan / Agosto, Caterina / Giacomelli, Luca / Benini, Franca

    Acta Paediatr

    Keywords covid19
    Publisher WHO
    Document type Article
    Note WHO #Covidence: #643301
    Database COVID19

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  10. Article ; Online: Rights of the Dying Child: The Nurses' Perception.

    Lazzarin, Pierina / Marinelli, Elena / Orzalesi, Marcello / Brugnaro, Luca / Benini, Franca

    Journal of palliative medicine

    2018  

    Abstract: Aim: The Charter of the Rights of the Dying Child was formulated as a professional guide for caring the child in the final stages. The study examines the nurses' degree of agreement with the Charter's principles and their perception of the ... ...

    Abstract Aim: The Charter of the Rights of the Dying Child was formulated as a professional guide for caring the child in the final stages. The study examines the nurses' degree of agreement with the Charter's principles and their perception of the implementation of those principles in hospital.
    Materials and methods: A multicenter, cross-sectional study to observe the nurses' positions about the 10 rights outlined in the Charter, using an online questionnaire in 5 pediatric hospitals in northern Italy.
    Results: A total of 119 nurses (44.9%) completed the questionnaire. The majority (range: 86.6-100%) expressed their agreement with the Charter's principles (Likert ≥4). Lower ratings were reported in Charter's principles implementation items (range: 42.9-89.1%). Being older and working in a smaller hospital lead the nurses to overlook the child's right to be informed and to be given the opportunity to make decisions about his/her own life and death (p = 0.02, p < 0.01). Postgraduate training induced greater awareness of the dying child (p = 0.01).
    Conclusions: This study highlights the value of the Charter of the Rights of the Dying Child as a reference guideline for nurses working in pediatric hospitals. Better training is important to improve the nurse's communication skills and the pediatric palliative care should be offered to all families that have a child with incurable disease mostly in the end of life.
    Language English
    Publishing date 2018-09-25
    Publishing country United States
    Document type Journal Article
    ZDB-ID 1427361-5
    ISSN 1557-7740 ; 1096-6218
    ISSN (online) 1557-7740
    ISSN 1096-6218
    DOI 10.1089/jpm.2017.0660
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