LIVIVO - The Search Portal for Life Sciences

zur deutschen Oberfläche wechseln
Advanced search

Search results

Result 1 - 10 of total 271

Search options

  1. Article ; Online: From Poetry to Policy: An Interview with Bartha Maria Knoppers.

    Davies, Kevin / Knoppers, Bartha Maria

    The CRISPR journal

    2019  Volume 2, Issue 5, Page(s) 249–252

    MeSH term(s) CRISPR-Cas Systems/genetics ; Genetic Engineering/ethics ; Genetics/ethics ; History, 20th Century ; History, 21st Century ; Human Genetics/ethics ; Humans
    Language English
    Publishing date 2019-10-10
    Publishing country United States
    Document type Biography ; Historical Article ; Interview
    ZDB-ID 3017891-5
    ISSN 2573-1602 ; 2573-1599
    ISSN (online) 2573-1602
    ISSN 2573-1599
    DOI 10.1089/crispr.2019.29071.bkn
    Database MEDical Literature Analysis and Retrieval System OnLINE

    Full text online

    More links

    Kategorien

    In stock of ZB MED Cologne/Königswinter

    Zs.A 7195: Show issues Location:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
    bis Jg. 2021: Bestellungen von Artikeln über das Online-Bestellformular
    ab Jg. 2022: Lesesaal (EG)
    Zs.MG 119: Show issues

    Order via subito

    This service is chargeable due to the Delivery terms set by subito. Orders including an article and supplementary material will be classified as separate orders. In these cases, fees will be demanded for each order.

  2. Book: Routledge handbook of medical law and ethics

    Joly, Yann / Knoppers, Bartha Maria

    (Routledge handbooks)

    2015  

    Abstract: Increasingly globalization has meant that decisions made regarding medical care and health in one country may influence health and disease outcomes in other parts of the world. Recognizing that medical law should not be confined to national silos this ... ...

    Title variant Handbook of medical law and ethics
    Author's details ed. by Yann Joly ; Bartha Maria Knoppers
    Series title Routledge handbooks
    Abstract "Increasingly globalization has meant that decisions made regarding medical care and health in one country may influence health and disease outcomes in other parts of the world. Recognizing that medical law should not be confined to national silos this handbook approaches medical law and ethics from a global perspective. Whilst respecting and analyzing national developments the chapters take a concerted international approach, looking comparatively at developments within each area. The book brings together leading scholars from both medical law and ethics backgrounds who have contributed specially commissioned pieces in order to present a critical overview and analysis of the current state of the field. The Handbook offers comprehensive coverage of longstanding and traditional topics in medical law and ethics, as well as providing dynamic insights into contemporary and emerging issues in this heavily debated field. Topics covered include:"Human-animal" medicine and medical researchPublic HealthAccess to resources and medicinesTraditional, complementary and alternative medicinesRegenerative MedicineThis advanced level reference work will prove invaluable to scholars, students and researchers in the disciplines of law, medicine, dentistry, nursing, ethics and theology. "--
    Keywords Medical laws and legislation ; Medical ethics
    Subject code 344.04/1
    Language English
    Size XI, 480 S.
    Publisher Routledge
    Publishing place London u.a.
    Publishing country Great Britain
    Document type Book
    Note Includes bibliographical references and index
    HBZ-ID HT018350013
    ISBN 978-0-415-62818-1 ; 9780203796184 ; 0-415-62818-0 ; 0203796187
    Database Catalogue ZB MED Medicine, Health

    More links

    Kategorien

    In stock of ZB MED Cologne/Königswinter

    Shelf markLoan statusLocation
    2014 A 3592 available for loan (reading room) Lesesaal EG

    Order via subito

    This service is chargeable due to the Delivery terms set by subito. Orders including an article and supplementary material will be classified as separate orders. In these cases, fees will be demanded for each order.

  3. Article ; Conference proceedings: Symposium: Return of Research Results: How Should Research Results be Handled?

    Knoppers, Bartha Maria

    The journal of law, medicine & ethics 39 ,4, S. 574 - 613

    [fall 2010 symposium at McGill University ... Montréal]

    2011  

    Event/congress Symposium Return of Research Results, How Should Research Results be Handled (2010, Montréal)
    Author's details guest ed. by Bartha Maria Knoppers
    Collection The journal of law, medicine & ethics
    Language English
    Publishing place Boston, MA
    Publishing country United States
    Document type Article ; Conference proceedings
    HBZ-ID HT017078860
    Database Catalogue ZB MED Medicine, Health

    Kategorien

    In stock of ZB MED Cologne/Königswinter

    Zs A 2075 -39-

    Order via subito

    This service is chargeable due to the Delivery terms set by subito. Orders including an article and supplementary material will be classified as separate orders. In these cases, fees will be demanded for each order.

  4. Article ; Online: Author Correction: Computational tools for genomic data de-identification: facilitating data protection law compliance.

    Bernier, Alexander / Liu, Hanshi / Knoppers, Bartha Maria

    Nature communications

    2022  Volume 13, Issue 1, Page(s) 391

    Language English
    Publishing date 2022-01-13
    Publishing country England
    Document type Published Erratum
    ZDB-ID 2553671-0
    ISSN 2041-1723 ; 2041-1723
    ISSN (online) 2041-1723
    ISSN 2041-1723
    DOI 10.1038/s41467-021-27890-5
    Database MEDical Literature Analysis and Retrieval System OnLINE

    More links

    Kategorien

    Order via subito

    This service is chargeable due to the Delivery terms set by subito. Orders including an article and supplementary material will be classified as separate orders. In these cases, fees will be demanded for each order.

  5. Article ; Online: Longitudinal Health Studies: Secondary Uses Serving the Future.

    Bernier, Alexander / Knoppers, Bartha Maria

    Biopreservation and biobanking

    2021  Volume 19, Issue 5, Page(s) 404–413

    Abstract: Our research compares the ethical and institutional conditions that govern the sharing and secondary use of longitudinal population health data from multiple cohorts. The data use and data sharing conditions applicable to 27 population health cohorts ... ...

    Abstract Our research compares the ethical and institutional conditions that govern the sharing and secondary use of longitudinal population health data from multiple cohorts. The data use and data sharing conditions applicable to 27 population health cohorts were assessed. This assessment was performed in consulting the informed consent materials and institutional policies applicable to the use of data. Descriptions drawn from the research ethics consent materials were refined through dialog with the institutional staff responsible for overseeing access to data, where possible. Our results demonstrate that data of longitudinal population health cohorts assessed can generally be shared and used for secondary purposes. However, the purposes of secondary use and the preconditions applicable thereto are highly variable. Heterogeneous use conditions can also impede the storage of legacy research data and the pooling thereof for the purpose of common reuse.
    MeSH term(s) Biomedical Research ; Humans ; Information Dissemination ; Informed Consent
    Language English
    Publishing date 2021-06-25
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2593993-2
    ISSN 1947-5543 ; 1947-5535
    ISSN (online) 1947-5543
    ISSN 1947-5535
    DOI 10.1089/bio.2020.0171
    Database MEDical Literature Analysis and Retrieval System OnLINE

    More links

    Kategorien

    Order via subito

    This service is chargeable due to the Delivery terms set by subito. Orders including an article and supplementary material will be classified as separate orders. In these cases, fees will be demanded for each order.

  6. Article ; Online: Author Correction

    Alexander Bernier / Hanshi Liu / Bartha Maria Knoppers

    Nature Communications, Vol 13, Iss 1, Pp 1-

    Computational tools for genomic data de-identification: facilitating data protection law compliance

    2022  Volume 1

    Keywords Science ; Q
    Language English
    Publishing date 2022-01-01T00:00:00Z
    Publisher Nature Portfolio
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

    Full text online

    More links

    Kategorien

    Inter-library loan at ZB MED

    Your chosen title can be delivered directly to ZB MED Cologne location if you are registered as a user at ZB MED Cologne.

  7. Article ; Online: Open Data in the Era of the GDPR: Lessons from the Human Cell Atlas.

    Knoppers, Bartha Maria / Bernier, Alexander / Bowers, Sarion / Kirby, Emily

    Annual review of genomics and human genetics

    2023  Volume 24, Page(s) 369–391

    Abstract: The Human Cell Atlas (HCA) is striving to build an open community that is inclusive of all researchers adhering to its principles and as open as possible with respect to data access and use. However, open data sharing can pose certain challenges. For ... ...

    Abstract The Human Cell Atlas (HCA) is striving to build an open community that is inclusive of all researchers adhering to its principles and as open as possible with respect to data access and use. However, open data sharing can pose certain challenges. For instance, being a global initiative, the HCA must contend with a patchwork of local and regional privacy rules. A notable example is the implementation of the European Union General Data Protection Regulation (GDPR), which caused some concern in the biomedical and genomic data-sharing community. We examine how the HCA's large, international group of researchers is investing tremendous efforts into ensuring appropriate sharing of data. We describe the HCA's objectives and governance, how it defines open data sharing, and ethico-legal challenges encountered early in its development; in particular, we describe the challenges prompted by the GDPR. Finally, we broaden the discussion to address tools and strategies that can be used to address ethical data governance.
    MeSH term(s) Humans ; Amines ; Ascomycota ; Drive ; European Union ; Computer Security
    Chemical Substances Amines
    Language English
    Publishing date 2023-02-15
    Publishing country United States
    Document type Journal Article ; Review ; Research Support, Non-U.S. Gov't
    ZDB-ID 2037670-4
    ISSN 1545-293X ; 1527-8204
    ISSN (online) 1545-293X
    ISSN 1527-8204
    DOI 10.1146/annurev-genom-101322-113255
    Database MEDical Literature Analysis and Retrieval System OnLINE

    Full text online

    More links

    Kategorien

    In stock of ZB MED Cologne/Königswinter

    Se 2016: Show issues Location:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
    bis Jg. 2021: Bestellungen von Artikeln über das Online-Bestellformular
    ab Jg. 2022: Lesesaal (EG)

    Order via subito

    This service is chargeable due to the Delivery terms set by subito. Orders including an article and supplementary material will be classified as separate orders. In these cases, fees will be demanded for each order.

  8. Article ; Online: Correction to: Pandemics, privacy, and public health research.

    Bernier, Alexander / Knoppers, Bartha Maria

    Canadian journal of public health = Revue canadienne de sante publique

    2020  Volume 111, Issue 4, Page(s) 458

    Abstract: In the section entitled "Responsive and responsible data sharing,". ...

    Abstract In the section entitled "Responsive and responsible data sharing,".
    Language English
    Publishing date 2020-07-13
    Publishing country Switzerland
    Document type Published Erratum
    ZDB-ID 417262-0
    ISSN 1920-7476 ; 0008-4263
    ISSN (online) 1920-7476
    ISSN 0008-4263
    DOI 10.17269/s41997-020-00383-6
    Database MEDical Literature Analysis and Retrieval System OnLINE

    Full text online

    More links

    Kategorien

    In stock of ZB MED Cologne/Königswinter

    Zs.B 81: Show issues Location:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
    bis Jg. 2021: Bestellungen von Artikeln über das Online-Bestellformular
    ab Jg. 2022: Lesesaal (EG)

    Order via subito

    This service is chargeable due to the Delivery terms set by subito. Orders including an article and supplementary material will be classified as separate orders. In these cases, fees will be demanded for each order.

  9. Article ; Online: Responsible Processing and Sharing of Genomic Data: Bringing Health Technologies Industries to the Table.

    Knoppers, Bartha Maria / Chase, Shane / Joly, Yann / Zawati, Ma'n / Thorogood, Adrian

    The American journal of bioethics : AJOB

    2023  Volume 23, Issue 11, Page(s) 33–35

    MeSH term(s) Humans ; Genomics ; Computer Security
    Language English
    Publishing date 2023-10-25
    Publishing country United States
    Document type Journal Article ; Comment
    ZDB-ID 2060433-6
    ISSN 1536-0075 ; 1526-5161
    ISSN (online) 1536-0075
    ISSN 1526-5161
    DOI 10.1080/15265161.2023.2256254
    Database MEDical Literature Analysis and Retrieval System OnLINE

    More links

    Kategorien

    In stock of ZB MED Cologne/Königswinter

    Zs.A 6814: Show issues Location:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
    bis Jg. 2021: Bestellungen von Artikeln über das Online-Bestellformular
    ab Jg. 2022: Lesesaal (EG)

    Order via subito

    This service is chargeable due to the Delivery terms set by subito. Orders including an article and supplementary material will be classified as separate orders. In these cases, fees will be demanded for each order.

  10. Article: Precision medicine: a matter of regulation or collaboration?

    Knoppers, Bartha Maria

    Journal of law and the biosciences

    2016  Volume 3, Issue 3, Page(s) 687–690

    Language English
    Publishing date 2016-10-22
    Publishing country England
    Document type Journal Article
    ZDB-ID 2756090-9
    ISSN 2053-9711
    ISSN 2053-9711
    DOI 10.1093/jlb/lsw049
    Database MEDical Literature Analysis and Retrieval System OnLINE

    More links

    Kategorien

    Order via subito

    This service is chargeable due to the Delivery terms set by subito. Orders including an article and supplementary material will be classified as separate orders. In these cases, fees will be demanded for each order.

To top