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  1. Article ; Online: Commentary on primary palliative care for heart failure provided within ambulatory cardiology: A randomized pilot trial.

    Feder, Shelli L

    Heart & lung : the journal of critical care

    2022  Volume 56, Page(s) 183–184

    MeSH term(s) Humans ; Palliative Care ; Pilot Projects ; Cardiology ; Heart Failure/therapy
    Language English
    Publishing date 2022-08-11
    Publishing country United States
    Document type Randomized Controlled Trial ; Letter ; Research Support, N.I.H., Extramural ; Comment
    ZDB-ID 193129-5
    ISSN 1527-3288 ; 0147-9563
    ISSN (online) 1527-3288
    ISSN 0147-9563
    DOI 10.1016/j.hrtlng.2022.08.001
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article ; Online: RE: Commentary on Developmental Outcomes in Duarte Galactosemia.

    Feder, Shelli L

    Pediatrics

    2019  Volume 143, Issue 5

    MeSH term(s) Alleles ; Galactosemias ; Humans
    Language English
    Publishing date 2019-04-27
    Publishing country United States
    Document type Letter ; Comment
    ZDB-ID 207677-9
    ISSN 1098-4275 ; 0031-4005
    ISSN (online) 1098-4275
    ISSN 0031-4005
    DOI 10.1542/peds.2019-0477
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article ; Online: Prognostic Communication Between Parents and Clinicians in Pediatric Oncology: An Integrative Review.

    Ouyang, Na / Feder, Shelli L / Baker, Justin N / Knobf, M Tish

    The American journal of hospice & palliative care

    2023  Volume 41, Issue 5, Page(s) 545–557

    Abstract: Background: ...

    Abstract Background:
    MeSH term(s) Child ; Humans ; Female ; Prognosis ; Parents ; Communication ; Medical Oncology ; Neoplasms
    Language English
    Publishing date 2023-06-13
    Publishing country United States
    Document type Review ; Journal Article
    ZDB-ID 1074344-3
    ISSN 1938-2715 ; 1049-9091
    ISSN (online) 1938-2715
    ISSN 1049-9091
    DOI 10.1177/10499091231183107
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  4. Article ; Online: Data Quality in Electronic Health Records Research: Quality Domains and Assessment Methods.

    Feder, Shelli L

    Western journal of nursing research

    2018  Volume 40, Issue 5, Page(s) 753–766

    Abstract: The proliferation of the electronic health record (EHR) has led to increasing interest and opportunities for nurse scientists to use EHR data in a variety of research designs. However, methodological problems pertaining to data quality may arise when EHR ...

    Abstract The proliferation of the electronic health record (EHR) has led to increasing interest and opportunities for nurse scientists to use EHR data in a variety of research designs. However, methodological problems pertaining to data quality may arise when EHR data are used for nonclinical purposes. Therefore, this article describes common domains of data quality and approaches for quality appraisal in EHR research. Common data quality domains include data accuracy, completeness, consistency, credibility, and timeliness. Approaches for quality appraisal include data validation with data rules, evaluation and verification of data abstraction methods with statistical measures, data comparisons with manual chart review, management of missing data using statistical methods, and data triangulation between multiple EHR databases. Quality data enhance the validity and reliability of research findings, form the basis for conclusions derived from the data, and are, thus, an integral component in EHR-based study design and implementation.
    MeSH term(s) Data Accuracy ; Electronic Health Records/standards ; Humans ; Program Evaluation/methods ; Quality of Health Care ; Stochastic Processes
    Language English
    Publishing date 2018
    Publishing country United States
    Document type Journal Article ; Research Support, Non-U.S. Gov't ; Research Support, U.S. Gov't, Non-P.H.S.
    ZDB-ID 632788-6
    ISSN 1552-8456 ; 0193-9459
    ISSN (online) 1552-8456
    ISSN 0193-9459
    DOI 10.1177/0193945916689084
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  5. Article ; Online: A middle range theory of self- and family management of chronic illness.

    Schulman-Green, Dena / Feder, Shelli L / David, Daniel / Rada, Lynda / Tesfai, Danait / Grey, Margaret

    Nursing outlook

    2023  Volume 71, Issue 3, Page(s) 101985

    Abstract: Background: The Self- and Family Management Framework was created in 2006 to help structure self- and family management science. Based on a series of reviews and syntheses of emerging research and critical evaluation, we developed the Framework into a ... ...

    Abstract Background: The Self- and Family Management Framework was created in 2006 to help structure self- and family management science. Based on a series of reviews and syntheses of emerging research and critical evaluation, we developed the Framework into a robust nursing theory.
    Purpose: In this article, we reintroduce the Self- and Family Management Framework as the Middle Range Theory of Self- and Family Management of Chronic Illness.
    Methods: We review steps in the development and updating of the Framework, share rationale for advancement to a middle range theory, explicate components of the newly designed model, and propose future directions.
    Discussion and conclusion: It is our hope that this middle range theory will guide researchers and clinicians more comprehensively in supporting patients and families managing chronic illness, which will in turn inform continued theory development.
    MeSH term(s) Humans ; Chronic Disease ; Nursing Theory ; Family
    Language English
    Publishing date 2023-05-06
    Publishing country United States
    Document type Review ; Journal Article
    ZDB-ID 300568-9
    ISSN 1528-3968 ; 0029-6554
    ISSN (online) 1528-3968
    ISSN 0029-6554
    DOI 10.1016/j.outlook.2023.101985
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  6. Article ; Online: Variation in Specialist Palliative Care Reach and Associated Factors Among People With Advanced Heart Failure in the Department of Veterans Affairs.

    Feder, Shelli L / Han, Ling / Zhan, Yan / Abel, Erica A / Akgün, Kathleen M / Fried, Terri / Ersek, Mary / Redeker, Nancy S

    Journal of pain and symptom management

    2024  

    Abstract: Context: Clinical practice guidelines recommend palliative care for people with advanced heart failure (aHF), yet it remains underutilized.: Objectives: We examined medical center variation in specialist palliative care (SPC) and identified factors ... ...

    Abstract Context: Clinical practice guidelines recommend palliative care for people with advanced heart failure (aHF), yet it remains underutilized.
    Objectives: We examined medical center variation in specialist palliative care (SPC) and identified factors associated with variation among people with aHF.
    Methods: We conducted a retrospective cohort study of 21,654 people with aHF who received healthcare in 83 Veterans Affairs Medical Centers (VAMCs) from 2018-2020. We defined aHF with ICD-9/10 codes and hospitalizations. We used random intercept multilevel logistic regression to derive SPC reach (i.e., predicted probability) for each VAMC adjusting for demographic and clinical characteristics. We then examined VAMC-level SPC delivery characteristics associated with predicted SPC reach including the availability of outpatient SPC (proportion of outpatient consultations), cardiology involvement (number of outpatient cardiology-initiated referrals), and earlier SPC (days from aHF identification to consultation).
    Results: Of the sample the mean age = 72.9+/-10.9 years, 97.9% were male, 61.6% were White, and 32.2% were Black. The predicted SPC reach varied substantially across VAMCs from 9% to 57% (mean: 28% [95% Confidence Interval: 25%-30%]). Only the availability of outpatient SPC was independently associated with higher SPC reach. VAMCs, in which outpatient delivery made up the greatest share of SPC consultations (9% or higher) had 11% higher rates of SPC reach relative to VAMCs with a lower proportion of outpatient SPC.
    Conclusion: SPC reach varies widely across VAMCs for people with aHF. Outpatient palliative is common among high-reach VAMCs but its role in reach warrants further investigation. Strategies used by high-reach VAMCs may be potential targets to test for implementation and dissemination.
    Language English
    Publishing date 2024-03-30
    Publishing country United States
    Document type Journal Article
    ZDB-ID 639142-4
    ISSN 1873-6513 ; 0885-3924
    ISSN (online) 1873-6513
    ISSN 0885-3924
    DOI 10.1016/j.jpainsymman.2024.03.022
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  7. Article ; Online: Changes in Restricting Symptoms after Critical Illness among Community-Living Older Adults.

    Jain, Snigdha / Han, Ling / Gahbauer, Evelyne A / Leo-Summers, Linda / Feder, Shelli L / Ferrante, Lauren E / Gill, Thomas M

    American journal of respiratory and critical care medicine

    2023  Volume 208, Issue 11, Page(s) 1206–1215

    Abstract: Rationale: ...

    Abstract Rationale:
    MeSH term(s) Humans ; Aged ; Quality of Life ; Longitudinal Studies ; Intensive Care Units ; Critical Illness/epidemiology ; Prospective Studies
    Language English
    Publishing date 2023-09-28
    Publishing country United States
    Document type Journal Article ; Research Support, N.I.H., Extramural
    ZDB-ID 1180953-x
    ISSN 1535-4970 ; 0003-0805 ; 1073-449X
    ISSN (online) 1535-4970
    ISSN 0003-0805 ; 1073-449X
    DOI 10.1164/rccm.202304-0693OC
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  8. Article ; Online: Care transition outcome measures of importance after emergency care: Do emergency clinicians and older adults agree?

    Gettel, Cameron J / Hwang, Ula / Rising, Kristin L / Goldberg, Elizabeth M / Feder, Shelli L / Uzamere, Ivie / Venkatesh, Arjun K

    Academic emergency medicine : official journal of the Society for Academic Emergency Medicine

    2023  Volume 30, Issue 10, Page(s) 1061–1064

    MeSH term(s) Humans ; Aged ; Patient Transfer ; Emergency Medical Services ; Emergency Service, Hospital ; Outcome Assessment, Health Care ; Emergency Treatment
    Language English
    Publishing date 2023-04-21
    Publishing country United States
    Document type Journal Article ; Research Support, N.I.H., Extramural
    ZDB-ID 1329813-6
    ISSN 1553-2712 ; 1069-6563
    ISSN (online) 1553-2712
    ISSN 1069-6563
    DOI 10.1111/acem.14732
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  9. Article ; Online: Development of the Palliative Care Law and Policy GPS to Assess National Policies in Palliative Care.

    Feder, Shelli L / Schulman-Green, Dena / Huer, Jennifer / Hoffman, Laura / Martins, Lynette B / Sinclair, Stacie / Gluck, Abbe R / Rusyn, Eugene

    Journal of palliative medicine

    2023  Volume 26, Issue 12, Page(s) 1698–1701

    Abstract: Background: ...

    Abstract Background:
    MeSH term(s) Humans ; Child ; Palliative Care ; Clinical Competence ; Workforce ; Telemedicine ; Policy ; Health Policy
    Language English
    Publishing date 2023-08-16
    Publishing country United States
    Document type Journal Article ; Research Support, N.I.H., Extramural
    ZDB-ID 1427361-5
    ISSN 1557-7740 ; 1096-6218
    ISSN (online) 1557-7740
    ISSN 1096-6218
    DOI 10.1089/jpm.2023.0200
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  10. Article ; Online: Palliative care strategies offer guidance to clinicians and comfort for COVID-19 patient and families.

    Feder, Shelli L / Akgün, Kathleen M / Schulman-Green, Dena

    Heart & lung : the journal of critical care

    2020  Volume 49, Issue 3, Page(s) 227–228

    Keywords covid19
    Language English
    Publishing date 2020-04-04
    Publishing country United States
    Document type Editorial
    ZDB-ID 193129-5
    ISSN 1527-3288 ; 0147-9563
    ISSN (online) 1527-3288
    ISSN 0147-9563
    DOI 10.1016/j.hrtlng.2020.04.001
    Database MEDical Literature Analysis and Retrieval System OnLINE

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