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Article: Inpatient vs. Outpatient: A Systematic Review of Information Needs throughout the Heart Failure Patient Journey.

Cotie, Lisa M / Pakosh, Maureen / Ghisi, Gabriela Lima de Melo

2024 Volume 13, Issue 4

Abstract: The objective of this systematic review was to identify and describe information needs for individuals with heart failure (HF) throughout their patient journey. Six databases were searched (APA PsycINFO, CINAHL Ultimate, Embase, Emcare Nursing, Medline ... ...

Abstract	The objective of this systematic review was to identify and describe information needs for individuals with heart failure (HF) throughout their patient journey. Six databases were searched (APA PsycINFO, CINAHL Ultimate, Embase, Emcare Nursing, Medline ALL, and Web of Science Core Collection) from inception to February 2023. Search strategies were developed utilizing the PICO framework. Potential studies of any methodological design were considered for inclusion through a snowball hand search. Data from the included articles were extracted by a reviewer, and the extraction accuracy was independently cross-checked by another author. Quality appraisal was assessed using the Mixed-Methods Appraisal Tool. A narrative synthesis was used to analyze all the outcomes according to the Synthesis Without Meta-analysis reporting guidelines. Twenty-five studies (15 quantitative and 10 qualitative) were included. Socioeconomic, cultural, and demographic factors influencing information needs were considered. The top three information needs for outpatients included general HF information, signs and symptoms and disease management strategies. For inpatients, medications, risk factors, and general HF were reported as the top needs. These divergent needs emphasize the importance of tailored education at different stages. Additionally, the review identified gaps in global representation, with limited studies from Africa and South America, underscoring the need for inclusive research. The findings caution against overgeneralization due to varied reporting methods. Practical implications call for culturally sensitive interventions to address nuanced HF patients' needs, while future research must prioritize standardized reporting, consider diverse patient journey timepoints, and minimize biases for enhanced reliability and applicability.
Language	English
Publishing date	2024-02-14
Publishing country	Switzerland
Document type	Journal Article ; Review
ZDB-ID	2662592-1
ISSN	2077-0383
ISSN	2077-0383
DOI	10.3390/jcm13041085
Database	MEDical Literature Analysis and Retrieval System OnLINE

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Article ; Online: Factors Hindering Cardiac Rehabilitation in Low- and Middle-Income Countries, by Level and Setting.

Ghisi, Gabriela Lima de Melo / Taylor, Rod S / Seron, Pamela / Grace, Sherry L

Journal of cardiopulmonary rehabilitation and prevention

2023 Volume 43, Issue 2, Page(s) 143–144

MeSH term(s)	Humans ; Cardiac Rehabilitation ; Developing Countries ; Health Services Accessibility
Language	English
Publishing date	2023-01-24
Publishing country	United States
Document type	Journal Article
ZDB-ID	2272063-7
ISSN	1932-751X ; 1932-7501
ISSN (online)	1932-751X
ISSN	1932-7501
DOI	10.1097/HCR.0000000000000774
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Zs.A 1998: Show issues

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Article ; Online: Availability, Density, and Unmet Need for Cardiac Rehabilitation Around the World.

Turk-Adawi, Karam / Ghisi, Gabriela Lima de Melo / Grace, Sherry L

Journal of cardiopulmonary rehabilitation and prevention

2022 Volume 42, Issue 4, Page(s) E48–E49

MeSH term(s)	Cardiac Rehabilitation ; Health Services Accessibility ; Health Services Needs and Demand ; Humans
Language	English
Publishing date	2022-06-07
Publishing country	United States
Document type	Journal Article
ZDB-ID	2272063-7
ISSN	1932-751X ; 1932-7501
ISSN (online)	1932-751X
ISSN	1932-7501
DOI	10.1097/HCR.0000000000000715
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Zs.A 1998: Show issues

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Article ; Online: Translation, cultural adaptation and psychometric validation of the Arabic short version of the coronary artery disease education questionnaire (CADE-Q SV) in Saudi Arabia.

Aljehani, Raghdah / Aljehani, Ghaidaa / Alharazi, Hanaa / Ghisi, Gabriela Lima de Melo

PEC innovation

2023 Volume 3, Page(s) 100205

Abstract: Objective: To translate, culturally adapt, and psychometrically validate the Arabic Coronary Artery Disease Education Questionnaire Short Version (CADE-Q SV).: Methods: The CADE-Q SV was translated to Arabic by two independent translators, followed ... ...

Abstract	Objective: To translate, culturally adapt, and psychometrically validate the Arabic Coronary Artery Disease Education Questionnaire Short Version (CADE-Q SV). Methods: The CADE-Q SV was translated to Arabic by two independent translators, followed by back-translation. Then, an expert panel of 10 healthcare providers and 10 patients reviewed the survey and provided input for content validity (CV) and clarity of items. For the psychometric analysis, 202 cardiac patients from Saudi Arabia completed the questionnaire, of which factor structure, internal consistency, construct, and criterion validity were assessed. Results: Items were translated, and CV was confirmed. Items were rated based on relevance and understandability. The scale was finalized after changes in 5 items. Confirmatory factor analysis revealed 5 factors, all internally consistent: medical condition, risk factors, exercise, nutrition, and psychosocial health. Overall alpha was 0.84. Construct validity was established by significant associations between scores and occupation, educational level, family income, having a diagnosis of acute coronary syndrome or valve disorders and with a history of valve repair or replacement a coronary artery bypass graft procedure. Scores were significantly higher for those that participated in cardiac rehabilitation, confirming criterion validity. Conclusions: Results from this study confirm the validity and reliability of the CADE-Q SV in Arabic-speaking patients. Innovation: The CADE-Q SV can be used as a knowledge measurement to support clinical work and development of education intervention for Arabic patients.
Language	English
Publishing date	2023-08-30
Publishing country	Netherlands
Document type	Journal Article
ISSN	2772-6282
ISSN (online)	2772-6282
DOI	10.1016/j.pecinn.2023.100205
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Article ; Online: Learning About Patient Satisfaction and Preferences for Onsite Visits During Cardiac Rehabilitation Programs.

Ghisi, Gabriela Lima de Melo / Aultman, Crystal / Konidis, Renee / Sandison, Nicole / Oh, Paul

Journal of cardiopulmonary rehabilitation and prevention

2023 Volume 43, Issue 3, Page(s) 220–221

MeSH term(s)	Humans ; Cardiac Rehabilitation ; Patient Satisfaction ; Myocardial Infarction/rehabilitation ; Time Factors
Language	English
Publishing date	2023-01-12
Publishing country	United States
Document type	Letter
ZDB-ID	2272063-7
ISSN	1932-751X ; 1932-7501
ISSN (online)	1932-751X
ISSN	1932-7501
DOI	10.1097/HCR.0000000000000769
Database	MEDical Literature Analysis and Retrieval System OnLINE

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Zs.A 1998: Show issues

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Article ; Online: Brazilian Cardiovascular Rehabilitation Guideline: Values and LimitationsReply.

Karsten, Marlus / Vieira, Ariany Marques / Ghisi, Gabriela Lima de Melo

Arquivos brasileiros de cardiologia

2021 Volume 115, Issue 6, Page(s) 1208–1209

Title translation	Diretriz Brasileira de Reabilitação Cardiovascular: Valores e Limitações.
MeSH term(s)	Brazil ; Cardiac Rehabilitation ; Cardiovascular Diseases ; Humans
Language	Portuguese
Publishing date	2021-01-20
Publishing country	Brazil
Document type	Letter ; Comment
ZDB-ID	730261-7
ISSN	1678-4170 ; 0066-782X
ISSN (online)	1678-4170
ISSN	0066-782X
DOI	10.36660/abc.20200995
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Zs.A 548: Show issues

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Article: Impact of omicron wave and associated control measures in Shanghai on health management and psychosocial well-being of patients with chronic conditions.

Xu, Zhimin / de Melo Ghisi, Gabriela Lima / Liu, Xia / Cui, Lixian / Grace, Sherry L

Open medicine (Warsaw, Poland)

2023 Volume 18, Issue 1, Page(s) 20230674

Abstract: The objective of this cross-sectional study was to investigate health management, well-being, and pandemic-related perspectives of chronic disease patients in the context of stringent measures, and associated correlates. A self-report survey was ... ...

Abstract	The objective of this cross-sectional study was to investigate health management, well-being, and pandemic-related perspectives of chronic disease patients in the context of stringent measures, and associated correlates. A self-report survey was administered during the Omicron wave lockdown in Shanghai, China. Items from the Somatic Symptom Scale (SSS) and Symptom Checklist-90 were administered, as well as pandemic-related items. Overall, 1,775 patients (mostly married females with hypertension) were recruited through a community family physician group. Mean SSS scores were 36.1 ± 10.5/80, with 41.5% scoring in the elevated range (i.e., >36). In an adjusted model, being female, diagnosis of coronary artery disease and arrhythmia, perceived impact of pandemic on life, health condition, change to exercise routine, tolerance of control measures, as well as perception of future and control measures were significantly associated with greater distress. One-quarter perceived the pandemic had a permanent impact on their life, and 44.1% perceived at least a minor impact. One-third discontinued exercise due to the pandemic. While 47.6% stocked up on their medications before the lockdown, their supply was only enough for two weeks; 17.5% of participants discontinued use. Chief among their fears were inability to access healthcare (83.2%), and what they stated they most needed to manage their condition was medication access (65.6%). Since 2020 when we assessed a similar cohort, distress and perceived impact of the pandemic have worsened. Greater access to cardiac rehabilitation in China could address these issues.
Language	English
Publishing date	2023-03-28
Publishing country	Poland
Document type	Journal Article
ZDB-ID	2829380-0
ISSN	2391-5463
ISSN	2391-5463
DOI	10.1515/med-2023-0674
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Article ; Online: Barriers and facilitators to nutritional recommendations identified by participants of a cardiovascular rehabilitation program in a low resource context in Brazil.

Duarte, Camila Kümmel / Silva, Luciana de Abreu / Andrade, Paula Moraes Berti de / Martins, Tábata Monaliza Marcelino / Ghisi, Gabriela Lima de Melo

Nutrition (Burbank, Los Angeles County, Calif.)

2024 Volume 124, Page(s) 112451

Abstract: Objectives: Nutritional recommendations, a core component of cardiovascular rehabilitation, play a vital role in managing cardiovascular diseases. However, adherence to these recommendations is complex, particularly in low-resource settings. This study ... ...

Abstract	Objectives: Nutritional recommendations, a core component of cardiovascular rehabilitation, play a vital role in managing cardiovascular diseases. However, adherence to these recommendations is complex, particularly in low-resource settings. This study explored the barriers and facilitators influencing adherence to nutritional recommendations among participants in a low-resource cardiovascular rehabilitation program in Brazil. Methods: A mixed-methods approach was employed. Sociodemographic data, the Mediterranean diet score, scale for assessing nutrition, and open-ended questions on adherence were collected. Those who completed the questionnaires (phase 1) were invited to participate in one focus group session (phase 2). The participants were characterized according to the responses provided in phase 1 (Mediterranean diet score and scale for assessing nutrition) in low adherence or high adherence to dietary practice. Descriptive statistics and thematic content analysis within the context of the theory of planned behavior were employed. Results: Seventy-four participants completed phase 1, with 41.9% classified into low adherence and 27.0% in high adherence; of those, 17 participated in phase 2. Focus group findings revealed 9 themes/29 subthemes. Barriers included food prices, income, knowledge, routine, food access, family patterns, disease, work, anxiety, eating habits, and food planning. Facilitators included affordable food, health considerations, taste preferences, knowledge, family/professional support, government assistance, personal willpower, income stability, easy food access, media influence, and a quiet eating place. Conclusions: The study findings underscore the need for targeted interventions, including individualized meal planning, community engagement, and enhanced access to healthcare professionals, to optimize dietary adherence and improve cardiovascular outcomes.
Language	English
Publishing date	2024-04-03
Publishing country	United States
Document type	Journal Article
ZDB-ID	639259-3
ISSN	1873-1244 ; 0899-9007
ISSN (online)	1873-1244
ISSN	0899-9007
DOI	10.1016/j.nut.2024.112451
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Zs.A 2290: Show issues

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Jg. 1995 - 2021: Lesesall (2.OG)
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Article ; Online: Patients' Perceptions of Hybrid and Virtual-Only Care Models During the Cardiac Rehabilitation Patient Journey: A Qualitative Study.

Vanzella, Lais Manata / Cotie, Lisa M / Flores-Hukom, Madeleine / Marzolini, Susan / Konidis, Renee / Ghisi, Gabriela Lima de Melo

The Journal of cardiovascular nursing

2024 , Page(s) i

Abstract: Background: The COVID-19 pandemic initially led to discontinuation of the "traditional" center-based cardiac rehabilitation (CR) model. Virtual models emerged as an opportunity to deliver care, with many programs continuing to offer these models.: ... ...

Abstract	Background: The COVID-19 pandemic initially led to discontinuation of the "traditional" center-based cardiac rehabilitation (CR) model. Virtual models emerged as an opportunity to deliver care, with many programs continuing to offer these models. Objective: The aim of this study was to explore patients' perceptions of virtual models of either hybrid (combining center-based and virtual) or virtual-only CR since the pandemic. Methods: Men and women who chose to participate in hybrid or virtual CR models between January 2022 and January 2023 were invited to attend 1 of 8 focus group sessions. Focus groups were conducted online until thematic saturation was reached. Transcripts were analyzed using thematic analysis. Results: Twenty-three patients (48% female; 83% attending hybrid CR) participated in the study. Analysis revealed 12 overarching themes associated with the CR patient journey: pre-CR, namely, (1) importance of endorsement from healthcare providers and (2) need for education/communication while waiting for program initiation; during CR, namely, (3) preference for class composition/structure, (4) need to enhance peer support in the virtual environment, (5) convenience and concerns with virtual sessions, (6) necessity of on-site sessions, (7) safety of the exercise prescription, (8) requirement/obligation for allied health offerings, (9) satisfaction with virtual education, and (10) use of technology to facilitate CR participation; and post-CR, namely, (11) acknowledgment of program completion and (12) need for support/education after program graduation. Conclusions: Patients require ongoing support from time of referral to beyond CR program completion. Physical, psychosocial, nutritional, and educational supports are needed. Perceptions expressed by patients related to the program model are modifiable, and strategies to address these perceptions should be explored.
Language	English
Publishing date	2024-01-05
Publishing country	United States
Document type	Journal Article
ZDB-ID	639335-4
ISSN	1550-5049 ; 0889-4655
ISSN (online)	1550-5049
ISSN	0889-4655
DOI	10.1097/JCN.0000000000001076
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Zs.A 2315: Show issues

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Article: Translation, Cross-Cultural Adaptation and Psychometric Validation of the Arabic Version of the Cardiac Rehabilitation Barriers Scale (CRBS-A) with Strategies to Mitigate Barriers.

Aljehani, Raghdah / Grace, Sherry L / Aburub, Aseel / Turk-Adawi, Karam / Ghisi, Gabriela Lima de Melo

Healthcare (Basel, Switzerland)

2023 Volume 11, Issue 8

Abstract: Cardiac rehabilitation (CR) utilization is low, particularly in Arabic-speaking countries. This study aimed to translate and psychometrically validate the CR Barriers Scale in Arabic (CRBS-A), as well as strategies to mitigate them. The CRBS was ... ...

Abstract	Cardiac rehabilitation (CR) utilization is low, particularly in Arabic-speaking countries. This study aimed to translate and psychometrically validate the CR Barriers Scale in Arabic (CRBS-A), as well as strategies to mitigate them. The CRBS was translated by two bilingual health professionals independently, followed by back-translation. Next, 19 healthcare providers, followed by 19 patients rated the face and content validity (CV) of the pre-final versions, providing input to improve cross-cultural applicability. Then, 207 patients from Saudi Arabia and Jordan completed the CRBS-A, and factor structure, internal consistency, construct, and criterion validity were assessed. Helpfulness of mitigation strategies was also assessed. For experts, item and scale CV indices were 0.8-1.0 and 0.9, respectively. For patients, item clarity and mitigation helpfulness scores were 4.5 ± 0.1 and 4.3 ± 0.1/5, respectively. Minor edits were made. For the test of structural validity, four factors were extracted: time conflicts/lack of perceived need and excuses; preference to self-manage; logistical problems; and health system issues and comorbidities. Total CRBS-A α was 0.90. Construct validity was supported by a trend for an association of total CRBS with financial insecurity regarding healthcare. Total CRBS-A scores were significantly lower in patients who were referred to CR (2.8 ± 0.6) vs. those who were not (3.6 ± 0.8), confirming criterion validity (
Language	English
Publishing date	2023-04-21
Publishing country	Switzerland
Document type	Journal Article
ZDB-ID	2721009-1
ISSN	2227-9032
ISSN	2227-9032
DOI	10.3390/healthcare11081196
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