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  1. Article ; Online: Tax the Rich! Tax the Research Participants?

    Largent, Emily A

    The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics

    2023  Volume 51, Issue 2, Page(s) 426–428

    Language English
    Publishing date 2023-09-01
    Publishing country England
    Document type Journal Article ; Review
    ZDB-ID 1168812-9
    ISSN 1748-720X ; 1073-1105 ; 0277-8459
    ISSN (online) 1748-720X
    ISSN 1073-1105 ; 0277-8459
    DOI 10.1017/jme.2023.79
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  2. Article ; Online: Diagnosing Preclinical and Prodromal Neurodegenerative Diseases-The Clinical Is Political.

    Erickson, Claire M / Largent, Emily A

    JAMA neurology

    2024  

    Language English
    Publishing date 2024-02-19
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2702023-X
    ISSN 2168-6157 ; 2168-6149
    ISSN (online) 2168-6157
    ISSN 2168-6149
    DOI 10.1001/jamaneurol.2023.5684
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  3. Article ; Online: What Makes a Better Life for People Facing Dementia? Toward Dementia-Friendly Health and Social Policy, Medical Care, and Community Support in the United States.

    Gaster, Barak / Largent, Emily A

    The Hastings Center report

    2024  Volume 54 Suppl 1, Page(s) S40–S47

    Abstract: Taking steps to build a more dementia-friendly society is essential for addressing the needs of people experiencing dementia. Initiatives that improve the quality of life for those living with dementia are needed to lessen controllable factors that can ... ...

    Abstract Taking steps to build a more dementia-friendly society is essential for addressing the needs of people experiencing dementia. Initiatives that improve the quality of life for those living with dementia are needed to lessen controllable factors that can negatively influence how people envision a future trajectory of dementia for themselves. Programs that provide better funding and better coordination for care support would lessen caregiver burden and make it more possible to imagine more people being able to live what they might consider a "good life" with dementia. Specific proposals, such as payment for dementia care managers and new systems to support high-quality, symptom-based palliative care beyond the hospice benefit of only six months, would improve and reframe how many people in the United States experience a dementia illness. Such changes should be incorporated into discussions about improving and respecting preferences in the later stages of dementia.
    MeSH term(s) Humans ; United States ; Community Support ; Quality of Life ; Palliative Care ; Dementia/therapy ; Public Policy
    Language English
    Publishing date 2024-02-21
    Publishing country United States
    Document type Journal Article
    ZDB-ID 194940-8
    ISSN 1552-146X ; 0093-0334
    ISSN (online) 1552-146X
    ISSN 0093-0334
    DOI 10.1002/hast.1554
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  4. Article ; Online: Ethical considerations for researchers developing and testing minimal-risk devices.

    Wexler, Anna / Largent, Emily

    Nature communications

    2023  Volume 14, Issue 1, Page(s) 2325

    MeSH term(s) Humans ; Confidentiality ; Risk ; Research Personnel
    Language English
    Publishing date 2023-04-22
    Publishing country England
    Document type Journal Article ; Research Support, N.I.H., Extramural ; Research Support, Non-U.S. Gov't
    ZDB-ID 2553671-0
    ISSN 2041-1723 ; 2041-1723
    ISSN (online) 2041-1723
    ISSN 2041-1723
    DOI 10.1038/s41467-023-38068-6
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  5. Article ; Online: Considering tomorrow's patients in today's drug approvals.

    Lynch, Holly Fernandez / Largent, Emily A

    BMJ (Clinical research ed.)

    2023  Volume 381, Page(s) e075000

    MeSH term(s) Humans ; Drug Approval
    Language English
    Publishing date 2023-06-08
    Publishing country England
    Document type Journal Article
    ZDB-ID 1362901-3
    ISSN 1756-1833 ; 0959-8154 ; 0959-8146 ; 0959-8138 ; 0959-535X ; 1759-2151
    ISSN (online) 1756-1833
    ISSN 0959-8154 ; 0959-8146 ; 0959-8138 ; 0959-535X ; 1759-2151
    DOI 10.1136/bmj-2023-075000
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  6. Article ; Online: Response to Open Peer Commentaries on "Think Pragmatically: Investigators' Obligations to Patient-Subjects When Research is Embedded into Care".

    Morain, Stephanie R / Largent, Emily A

    The American journal of bioethics : AJOB

    2023  Volume 23, Issue 8, Page(s) W1–W3

    MeSH term(s) Humans ; Moral Obligations ; Patients ; Research Personnel
    Language English
    Publishing date 2023-07-14
    Publishing country United States
    Document type Journal Article ; Comment
    ZDB-ID 2060433-6
    ISSN 1536-0075 ; 1526-5161
    ISSN (online) 1536-0075
    ISSN 1526-5161
    DOI 10.1080/15265161.2023.2224269
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  7. Article ; Online: Consent to Trainee Involvement in Pediatric Care.

    Largent, Emily A

    The New England journal of medicine

    2020  Volume 383, Issue 12, Page(s) 1097–1099

    MeSH term(s) Child ; Health Literacy ; Humans ; Informed Consent By Minors/ethics ; Internship and Residency ; Parental Consent/ethics ; Patient Participation ; Pediatrics/education ; Pediatrics/ethics ; Physician-Patient Relations ; Students, Medical
    Language English
    Publishing date 2020-09-16
    Publishing country United States
    Document type Journal Article
    ZDB-ID 207154-x
    ISSN 1533-4406 ; 0028-4793
    ISSN (online) 1533-4406
    ISSN 0028-4793
    DOI 10.1056/NEJMp2004237
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  8. Article ; Online: COVID-19 Vaccine Refusal and Fair Allocation of Scarce Medical Resources.

    Persad, Govind / Largent, Emily A

    JAMA health forum

    2022  Volume 3, Issue 4, Page(s) e220356

    MeSH term(s) COVID-19/prevention & control ; COVID-19 Vaccines/therapeutic use ; Health Care Rationing ; Humans ; SARS-CoV-2 ; Vaccination Refusal
    Chemical Substances COVID-19 Vaccines
    Language English
    Publishing date 2022-04-01
    Publishing country United States
    Document type Journal Article
    ISSN 2689-0186
    ISSN (online) 2689-0186
    DOI 10.1001/jamahealthforum.2022.0356
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  9. Article ; Online: Precision Medicine Research: An Exception or An Exemplar?

    Largent, Emily A

    The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics

    2019  Volume 47, Issue 1, Page(s) 149–151

    MeSH term(s) Humans ; Precision Medicine
    Language English
    Publishing date 2019-05-16
    Publishing country United States
    Document type Journal Article ; Comment
    ZDB-ID 1168812-9
    ISSN 1748-720X ; 1073-1105 ; 0277-8459
    ISSN (online) 1748-720X
    ISSN 1073-1105 ; 0277-8459
    DOI 10.1177/1073110519840494
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  10. Article ; Online: Choice in the Context of Dementia: Emerging Issues for Health Care Practice in Aging Societies.

    Berlinger, Nancy / Largent, Emily A / Buchbinder, Mara / Solomon, Mildred Z

    The Hastings Center report

    2024  Volume 54 Suppl 1, Page(s) S2–S10

    Abstract: This introduction to the special report "Facing Dementia: Clarifying End-of-Life Choices, Supporting Better Lives" explains why focused attention to dementia is needed in bioethics and in health care practice in a range of settings. It explains how this ... ...

    Abstract This introduction to the special report "Facing Dementia: Clarifying End-of-Life Choices, Supporting Better Lives" explains why focused attention to dementia is needed in bioethics and in health care practice in a range of settings. It explains how this strongly age-associated condition shapes individual lives over years, revealing inequities in how dementia care is financed. The introduction explains the structure of the report, which consists of five essays, a consolidated set of recommendations from these essays, bibliographies, and other resources. The first essay is a landscape review written for health care professionals to support discussion, debate, and deliberation within professional societies and networks concerning a patient's voluntary choice to hasten their own death in the context of a dementia diagnosis. The landscape review is followed by three essays that suggest how several familiar concepts within care for persons with serious illness should be rethought to better support advance care planning, physician-patient conversations, and access to community-based palliative care and hospice when a person is facing dementia. The final essay presents a bold, practical argument for supporting better lives for people facing dementia, and for dementia caregivers, through primary care, the usual source of care for people with dementia.
    MeSH term(s) Humans ; Palliative Care ; Advance Care Planning ; Caregivers ; Dementia/therapy ; Delivery of Health Care ; Aging ; Terminal Care
    Language English
    Publishing date 2024-02-21
    Publishing country United States
    Document type Journal Article
    ZDB-ID 194940-8
    ISSN 1552-146X ; 0093-0334
    ISSN (online) 1552-146X
    ISSN 0093-0334
    DOI 10.1002/hast.1549
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