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  1. Article ; Online: The IRB as Research Subject : Robert L. Klitzman: The Ethics Police? The Struggle to Make Human Research Safe. New York: Oxford University Press, 2015.

    Modell, Stephen M

    Journal of religion and health

    2017  Volume 56, Issue 1, Page(s) 21–27

    MeSH term(s) Ethics Committees, Research ; Humans ; New York ; Research Subjects
    Language English
    Publishing date 2017-02
    Publishing country United States
    Document type Journal Article ; Review
    ZDB-ID 2017250-3
    ISSN 1573-6571 ; 0022-4197
    ISSN (online) 1573-6571
    ISSN 0022-4197
    DOI 10.1007/s10943-016-0314-8
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  2. Article: Medicaid Expansions: Probing Medicaid's Filling of the Cancer Genetic Testing and Screening Space.

    Modell, Stephen M / Schlager, Lisa / Allen, Caitlin G / Marcus, Gail

    Healthcare (Basel, Switzerland)

    2022  Volume 10, Issue 6

    Abstract: Cancer is the third largest source of spending for Medicaid in the United States. A working group of the American Public Health Association Genomics Forum Policy Committee reviewed 133/149 pieces of literature addressing the impact of Medicaid expansion ... ...

    Abstract Cancer is the third largest source of spending for Medicaid in the United States. A working group of the American Public Health Association Genomics Forum Policy Committee reviewed 133/149 pieces of literature addressing the impact of Medicaid expansion on cancer screening and genetic testing in underserved groups and the general population. Breast and colorectal cancer screening rates improved during very early Medicaid expansion but displayed mixed improvement thereafter. Breast cancer screening rates have remained steady for Latina Medicaid enrollees; colorectal cancer screening rates have improved for African Americans. Urban areas have benefited more than rural. State programs increasingly cover
    Language English
    Publishing date 2022-06-08
    Publishing country Switzerland
    Document type Journal Article ; Review
    ZDB-ID 2721009-1
    ISSN 2227-9032
    ISSN 2227-9032
    DOI 10.3390/healthcare10061066
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article ; Online: Public Health Genetics: Surveying Preparedness for the Next Generation of Public Health Professionals.

    Jacko, Anastasia M / Durst, Andrea L / Niemchick, Karen L / Modell, Stephen M / Ponte, Amy H

    Genes

    2023  Volume 14, Issue 2

    Abstract: Since the Human Genome Project's completion in 2003, the need for increased population genetic literacy has grown exponentially. To address this need, public health professionals must be educated appropriately to serve the public best. This study ... ...

    Abstract Since the Human Genome Project's completion in 2003, the need for increased population genetic literacy has grown exponentially. To address this need, public health professionals must be educated appropriately to serve the public best. This study examines the current state of public health genetics education within existing master of public health (MPH) programs. A total of 171 MPH Council on Education for Public Health Accreditation (CEPH)-accredited programs across the nation were identified via a preliminary internet search. The American Public Health Association (APHA) Genomics Forum Policy Committee created 14 survey questions to assess the current status of incorporating genetics/genomics education within MPH programs. Using the Qualtrics survey system through the University of Pittsburgh, a link to the anonymous survey was sent to each director's email address obtained from their program's website. There were 41 survey responses, with 37 finished to completion, for a response rate of 21.6% (37/171). A total of 75.7% (28/37) of respondents reported having courses containing genetics/genomics information in their programs' coursework. Only 12.6% reported such coursework to be required for program completion. Commonly listed barriers to incorporating genetics/genomics include limited faculty knowledge and lack of space in existing courses and programs. Survey results revealed the incongruous and limited incorporation of genetics/genomics within the context of graduate-level public health education. While most recorded programs report offering public health genetics coursework, the extent and requirement of such instruction are not considered necessary for program completion, thereby potentially limiting the genetic literacy of the current pool of public health professionals.
    MeSH term(s) Humans ; Public Health/education ; Surveys and Questionnaires ; Educational Status ; Accreditation
    Language English
    Publishing date 2023-01-26
    Publishing country Switzerland
    Document type Journal Article
    ZDB-ID 2527218-4
    ISSN 2073-4425 ; 2073-4425
    ISSN (online) 2073-4425
    ISSN 2073-4425
    DOI 10.3390/genes14020317
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  4. Article ; Online: Breast Cancer Prevention Misinformation on Pinterest: One Side of a Thick Coin.

    Modell, Stephen M / Ponte, Amy H / Director, Haley R / Pettersen, Samantha K / Kardia, Sharon L R / Goltz, Heather Honoré

    American journal of public health

    2023  Volume 113, Issue 3, Page(s) e1–e2

    MeSH term(s) Humans ; Female ; Breast Neoplasms/prevention & control ; Communication ; Social Media
    Language English
    Publishing date 2023-02-13
    Publishing country United States
    Document type Letter
    ZDB-ID 121100-6
    ISSN 1541-0048 ; 0090-0036 ; 0002-9572
    ISSN (online) 1541-0048
    ISSN 0090-0036 ; 0002-9572
    DOI 10.2105/AJPH.2022.307203
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    bis Jg. 2021: Bestellungen von Artikeln über das Online-Bestellformular
    ab Jg. 2022: Lesesaal (EG)

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  5. Article ; Online: Religion as a Health Promoter During the 2019/2020 COVID Outbreak: View from Detroit.

    Modell, Stephen M / Kardia, Sharon L R

    Journal of religion and health

    2020  Volume 59, Issue 5, Page(s) 2243–2255

    Abstract: The 2019/2020 COVID outbreak has surfaced as a global pandemic. The news has carried stories of the heroic efforts of medical and other health practitioners, with public health officials charting the course of spread. In an urban center like Detroit, the ...

    Abstract The 2019/2020 COVID outbreak has surfaced as a global pandemic. The news has carried stories of the heroic efforts of medical and other health practitioners, with public health officials charting the course of spread. In an urban center like Detroit, the generosity of everyday citizens and church organizations has also played an important role. This inspection of the pandemic from the view of Detroit will examine the epidemiology of the coronavirus, translation of professional practice into people's awareness of the chronic disease risk factors which are prevalent in Detroit, moral and ethical views on the distribution of resources, and three major ways that religious faith has helped to sustain people's health and welfare in the midst of the broad social challenges posed by this novel coronavirus.
    MeSH term(s) Betacoronavirus ; COVID-19 ; Coronavirus Infections ; Disease Outbreaks ; Humans ; Pandemics ; Pneumonia, Viral ; Public Health ; SARS-CoV-2
    Keywords covid19
    Language English
    Publishing date 2020-06-16
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2017250-3
    ISSN 1573-6571 ; 0022-4197
    ISSN (online) 1573-6571
    ISSN 0022-4197
    DOI 10.1007/s10943-020-01052-1
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  6. Article ; Online: Medicaid Expansions

    Stephen M. Modell / Lisa Schlager / Caitlin G. Allen / Gail Marcus

    Healthcare, Vol 10, Iss 1066, p

    Probing Medicaid’s Filling of the Cancer Genetic Testing and Screening Space

    2022  Volume 1066

    Abstract: Cancer is the third largest source of spending for Medicaid in the United States. A working group of the American Public Health Association Genomics Forum Policy Committee reviewed 133/149 pieces of literature addressing the impact of Medicaid expansion ... ...

    Abstract Cancer is the third largest source of spending for Medicaid in the United States. A working group of the American Public Health Association Genomics Forum Policy Committee reviewed 133/149 pieces of literature addressing the impact of Medicaid expansion on cancer screening and genetic testing in underserved groups and the general population. Breast and colorectal cancer screening rates improved during very early Medicaid expansion but displayed mixed improvement thereafter. Breast cancer screening rates have remained steady for Latina Medicaid enrollees; colorectal cancer screening rates have improved for African Americans. Urban areas have benefited more than rural. State programs increasingly cover BRCA1/2 and Lynch syndrome genetic testing, though testing remains underutilized in racial and ethnic groups. While increased federal matching could incentivize more states to engage in Medicaid expansion, steps need to be taken to ensure that they have an adequate distribution of resources to increase screening and testing utilization.
    Keywords Medicaid ; African Americans ; Latinos ; rural population ; breast cancer ; colorectal cancer ; Medicine ; R
    Language English
    Publishing date 2022-06-01T00:00:00Z
    Publisher MDPI AG
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  7. Article ; Online: Cancer genetic testing in marginalized groups during an era of evolving healthcare reform.

    Modell, Stephen M / Allen, Caitlin G / Ponte, Amy / Marcus, Gail

    Journal of cancer policy

    2021  Volume 28, Page(s) 100275

    Abstract: Background: The Affordable Care Act and subsequent reforms pose tradeoffs for racial-ethnic, rural, and sex-related groups in the United States experiencing disparities in BRCA1/2 genetic counseling and testing and colorectal cancer screening, calling ... ...

    Abstract Background: The Affordable Care Act and subsequent reforms pose tradeoffs for racial-ethnic, rural, and sex-related groups in the United States experiencing disparities in BRCA1/2 genetic counseling and testing and colorectal cancer screening, calling for policy changes.
    Methods: A working group of the American Public Health Association Genomics Forum Policy Committee engaged in monthly meetings to examine ongoing literature and identify policy alternatives in the coverage of cancer genetic services for marginalized groups. 589 items were collected; 408 examined. Efforts continued from February 2015 through September 2020.
    Results: African Americans and Latinos have shown 7-8 % drops in uninsured rates since the Exchanges opened. The ACA has increased BRCA1/2 test availability while several disparities remain, including by sex. Rural testing and screening utilization rates have improved. Medicaid expansion and the inclusion of Medicare in the ACA have resulted in mixed improvements in colorectal cancer screening rates in marginalized groups.
    Conclusion: Cancer genetic testing and screening to date have only partially benefited from healthcare reforms. Sensitivity to cost concerns and further monitoring of emerging data are needed. A reduction in disparities depends on the availability of private insurance, Medicaid and Medicare to the marginalized. Attention to value-based design and the way cancer benefits are translated into actual testing and screening are crucial.
    Policy summary: The findings suggest the need for further benefits-related health agency interpretation of and amendments to the ACA, continued Medicaid and innovative Medicare expansion, and incorporation of cancer services values-based considerations at several levels, aimed at reducing group disparities.
    MeSH term(s) Aged ; Colorectal Neoplasms/diagnosis ; Genetic Testing ; Health Care Reform ; Healthcare Disparities ; Humans ; Insurance Coverage ; Medicare ; Patient Protection and Affordable Care Act ; United States
    Language English
    Publishing date 2021-02-16
    Publishing country England
    Document type Journal Article ; Review ; Research Support, N.I.H., Extramural
    ISSN 2213-5383
    ISSN (online) 2213-5383
    DOI 10.1016/j.jcpo.2021.100275
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  8. Article: Health in Our Hands: diabetes and substance use education through a new genomic framework for schools and communities.

    Modell, Stephen M / Bayer, Irene S / Kardia, Sharon L R / Morales, Consuelo J / Adler, Idit / Greene-Moton, Ella

    Journal of community genetics

    2023  Volume 14, Issue 2, Page(s) 211–225

    Abstract: From May 2014 through June 2019, educational, health, and academic partners under an NIH Science Education Partnership Award (SEPA) engaged 1271 6th through 8th grade students and their families in the "A New Genomic Framework for Schools and Communities" ...

    Abstract From May 2014 through June 2019, educational, health, and academic partners under an NIH Science Education Partnership Award (SEPA) engaged 1271 6th through 8th grade students and their families in the "A New Genomic Framework for Schools and Communities" program. Evaluation addressed the effectiveness of the Health in Our Hands genomics curriculum, which employed Next Generation Science Standards and community action research projects to target two common, complex conditions-type 2 diabetes and substance use disorder (SUD)-in the underserved cities of Flint and Detroit, MI, USA. Curriculum outcomes were measured with classroom surveys, presentation event questionnaires, and adult interviews using mixed qualitative/quantitative (SPSS V. 25.0) methods involving generalized linear mixed modeling-based ANOVA. The diabetes unit enactment registered a 12% pre- /post-gain among students in perceived learning about genes and the environment. Both diabetes and SUD units showed statistically significant gains in perceived learning about health and health conditions and the importance of what students were learning to everyday life. A total of 73.4% of fall 2018 SUD event participants indicated increased awareness of educational and career choices in science. Moderate gains were noted during the diabetes curriculum in students sharing what they learned with friends and family. 9/11 parents and 5/9 community members attending the student presentation event had discussed diabetes with a student. Linked formal classroom and informal community-connected approaches can successfully be used to teach genomics and promote project-based learning in students, family, and community members. Further efforts are needed to effectively engage families.
    Language English
    Publishing date 2023-01-16
    Publishing country Germany
    Document type Journal Article
    ZDB-ID 2543127-4
    ISSN 1868-6001 ; 1868-310X
    ISSN (online) 1868-6001
    ISSN 1868-310X
    DOI 10.1007/s12687-022-00631-x
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  9. Article ; Online: Work in Progress: Immigrant Health Care from the Vantage of Cancer Testing and Screening.

    Modell, Stephen M / Fleming, Paul J / Lopez, William D / Goltz, Heather Honore'

    Journal of immigrant and minority health

    2020  Volume 23, Issue 1, Page(s) 1–3

    Abstract: This letter offers a perspective from cancer testing and screening on the improvements in immigrant insurance coverage and care charted in Bustamante et al.'s April 2019 article in JOIH on "Health Care Access and Utilization Among U.S. Immigrants Before ... ...

    Abstract This letter offers a perspective from cancer testing and screening on the improvements in immigrant insurance coverage and care charted in Bustamante et al.'s April 2019 article in JOIH on "Health Care Access and Utilization Among U.S. Immigrants Before and After the Affordable Care Act." Supportive evidence for their data may be found in complementary literature drawing from both the National Health Interview Survey the authors use and the Medical Expenditure Panel Survey, while post-ACA surveys and state level information suggest disparities remain for lawfully present and undocumented immigrants ineligible for Medicaid and unable to secure insurance to pay medical costs. Existent options for cancer services are discussed. Further relevant reform depends on voter awareness and collaborative efforts between consumer advocates and legislators.
    MeSH term(s) Early Detection of Cancer ; Emigrants and Immigrants ; Health Services Accessibility ; Humans ; Insurance Coverage ; Insurance, Health ; Medicaid ; Neoplasms/diagnosis ; Patient Protection and Affordable Care Act ; United States
    Language English
    Publishing date 2020-11-24
    Publishing country United States
    Document type Letter
    ZDB-ID 2220162-2
    ISSN 1557-1920 ; 1557-1912
    ISSN (online) 1557-1920
    ISSN 1557-1912
    DOI 10.1007/s10903-020-01129-9
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  10. Article ; Online: Public Health Genetics: Surveying Preparedness for the Next Generation of Public Health Professionals

    Jacko, Anastasia M. / Durst, Andrea L. / Niemchick, Karen L. / Modell, Stephen M. / Ponte, Amy H.

    Genes (Basel). 2023 Jan. 26, v. 14, no. 2

    2023  

    Abstract: Since the Human Genome Project’s completion in 2003, the need for increased population genetic literacy has grown exponentially. To address this need, public health professionals must be educated appropriately to serve the public best. This study ... ...

    Abstract Since the Human Genome Project’s completion in 2003, the need for increased population genetic literacy has grown exponentially. To address this need, public health professionals must be educated appropriately to serve the public best. This study examines the current state of public health genetics education within existing master of public health (MPH) programs. A total of 171 MPH Council on Education for Public Health Accreditation (CEPH)-accredited programs across the nation were identified via a preliminary internet search. The American Public Health Association (APHA) Genomics Forum Policy Committee created 14 survey questions to assess the current status of incorporating genetics/genomics education within MPH programs. Using the Qualtrics survey system through the University of Pittsburgh, a link to the anonymous survey was sent to each director’s email address obtained from their program’s website. There were 41 survey responses, with 37 finished to completion, for a response rate of 21.6% (37/171). A total of 75.7% (28/37) of respondents reported having courses containing genetics/genomics information in their programs’ coursework. Only 12.6% reported such coursework to be required for program completion. Commonly listed barriers to incorporating genetics/genomics include limited faculty knowledge and lack of space in existing courses and programs. Survey results revealed the incongruous and limited incorporation of genetics/genomics within the context of graduate-level public health education. While most recorded programs report offering public health genetics coursework, the extent and requirement of such instruction are not considered necessary for program completion, thereby potentially limiting the genetic literacy of the current pool of public health professionals.
    Keywords Internet ; e-mail ; genome ; genomics ; health education ; humans ; issues and policy ; literacy ; population genetics ; population growth ; public health ; surveys
    Language English
    Dates of publication 2023-0126
    Publishing place Multidisciplinary Digital Publishing Institute
    Document type Article ; Online
    ZDB-ID 2527218-4
    ISSN 2073-4425
    ISSN 2073-4425
    DOI 10.3390/genes14020317
    Database NAL-Catalogue (AGRICOLA)

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