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Article ; Online: Validation of the Spanish Version of the Double Knowledge Expectations and Received Knowledge Significant Other Scale for Informal Caregivers of People with Dementia (KESO-DEM/RKSO-DEM).

Frías, Cindy E / Casafont, Claudia / Cabrera, Esther / Zabalegui, Adelaida

International journal of environmental research and public health

2022 Volume 19, Issue 9

Abstract: Dementia is associated with cognitive decline. Becoming an informal caregiver raises questions, requiring information and support from health professionals to guide home care. A multicenter, longitudinal study was carried out to validate the Spanish ... ...

Abstract	Dementia is associated with cognitive decline. Becoming an informal caregiver raises questions, requiring information and support from health professionals to guide home care. A multicenter, longitudinal study was carried out to validate the Spanish version of the double scale of expected and received knowledge for informal caregivers of people with dementia (KESO-DEM/RKSO-DEM), the analysis of the dimensional structure of the instrument, its validity and reliability, and temporary stability was carried out. An analysis of criterion and construct validity, internal consistency, and test−retest stability was performed. The evaluation of the interrelation between dimensions was statistically significant. Regarding internal consistency, the scale values were good both for the scale totals and for each dimension of knowledge, with Cronbach’s alpha coefficients of 0.97. For criterion validity, all items showed temporal stability for both questionnaires (p < 0.05). The availability of a valid, reliable tool for the measurement of expected and received knowledge in caregivers of people with dementia allows an approach based on the real needs of the family and the patient. It is important to design care protocols for people with dementia that are adapted to their needs and expectations and to their non-curative treatment, to improve the emotional well-being of patients and informal caregivers.
MeSH term(s)	Caregivers/psychology ; Dementia/therapy ; Humans ; Longitudinal Studies ; Motivation ; Psychometrics ; Reproducibility of Results ; Surveys and Questionnaires
Language	English
Publishing date	2022-04-27
Publishing country	Switzerland
Document type	Journal Article ; Multicenter Study ; Research Support, Non-U.S. Gov't
ZDB-ID	2175195-X
ISSN	1660-4601 ; 1661-7827
ISSN (online)	1660-4601
ISSN	1661-7827
DOI	10.3390/ijerph19095314
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Article ; Online: Validation of the Spanish Version of the Double Knowledge Expectations and Received Knowledge Significant Other Scale for Informal Caregivers of People with Dementia (KESO-DEM/RKSO-DEM)

Cindy E. Frías / Claudia Casafont / Esther Cabrera / Adelaida Zabalegui

International Journal of Environmental Research and Public Health, Vol 19, Iss 5314, p

2022 Volume 5314

Abstract	Dementia is associated with cognitive decline. Becoming an informal caregiver raises questions, requiring information and support from health professionals to guide home care. A multicenter, longitudinal study was carried out to validate the Spanish version of the double scale of expected and received knowledge for informal caregivers of people with dementia (KESO-DEM/RKSO-DEM), the analysis of the dimensional structure of the instrument, its validity and reliability, and temporary stability was carried out. An analysis of criterion and construct validity, internal consistency, and test–retest stability was performed. The evaluation of the interrelation between dimensions was statistically significant. Regarding internal consistency, the scale values were good both for the scale totals and for each dimension of knowledge, with Cronbach’s alpha coefficients of 0.97. For criterion validity, all items showed temporal stability for both questionnaires ( p < 0.05). The availability of a valid, reliable tool for the measurement of expected and received knowledge in caregivers of people with dementia allows an approach based on the real needs of the family and the patient. It is important to design care protocols for people with dementia that are adapted to their needs and expectations and to their non-curative treatment, to improve the emotional well-being of patients and informal caregivers.
Keywords	dementia ; informal caregivers ; questionnaire validation ; nurse ; Medicine ; R
Subject code	360
Language	English
Publishing date	2022-04-01T00:00:00Z
Publisher	MDPI AG
Document type	Article ; Online
Database	BASE - Bielefeld Academic Search Engine (life sciences selection)

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Article: Informal Caregivers' Roles in Dementia: The Impact on Their Quality of Life.

Frias, Cindy E / Cabrera, Esther / Zabalegui, Adelaida

Life (Basel, Switzerland)

2020 Volume 10, Issue 11

Abstract: The constantly changing process of caring for a person with dementia affects the informal caregivers' role due to its psychosocial impact. This cross-sectional study aimed to analyze the impact of the Person with Dementia informal caregiver's role ... ...

Abstract	The constantly changing process of caring for a person with dementia affects the informal caregivers' role due to its psychosocial impact. This cross-sectional study aimed to analyze the impact of the Person with Dementia informal caregiver's role caregiver to a person with dementia on the self-perceived quality of life (QoL) of the caregiver. In total, 160 informal caregivers were recruited between January and December 2019. Informal caregivers' quality of life was assessed using the European Quality of Life 5-Dimension scale, burden with the Zarit Burden Scale, emotional wellbeing using the General Health Questionnaire, and caregiver reactions using Caregiver Reaction Aspects. Patients' cognitive impairment was assessed with the Mini-Mental State Examination, their quality of life using Quality of Life in Alzheimer's Disease, and neuropsychiatric symptoms using the Neuropsychiatric Inventory. Outcomes were studied using the Pearson correlation coefficient and ANOVA test. Most informal caregivers' outcomes were significantly associated with their quality of life. Male informal caregivers have a slightly better quality of life than female caregivers (
Language	English
Publishing date	2020-10-23
Publishing country	Switzerland
Document type	Journal Article
ZDB-ID	2662250-6
ISSN	2075-1729
ISSN	2075-1729
DOI	10.3390/life10110251
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Article ; Online: Psychoeducational intervention on burden and emotional well-being addressed to informal caregivers of people with dementia.

Frias, Cindy E / Risco, Ester / Zabalegui, Adelaida

Psychogeriatrics : the official journal of the Japanese Psychogeriatric Society

2020 Volume 20, Issue 6, Page(s) 900–909

Abstract: Background: In dementia it is necessary that a family member become an informal caregiver. This labour has social, physical and emotional repercussions on the caregiver's health. The objective was to assesses the impact of the INFOSA-DEM intervention on ...

Abstract	Background: In dementia it is necessary that a family member become an informal caregiver. This labour has social, physical and emotional repercussions on the caregiver's health. The objective was to assesses the impact of the INFOSA-DEM intervention on burden and emotional well-being among caregivers of people with dementia, evaluating the effects at 3 and 6 months. Method: We adopted an experimental, non-randomised design with an intervention group and a control group. The intervention group received the intervention and the control group received usual care. The study was carried out in the catchment areas of three centres specialising in the care of people with cognitive impairment in the province of Barcelona. Results: At 3 months, there was an improvement with respect to burden in the intervention group with a significant worsening (P < 0.012) in the control group. Similarly, a positive effect on emotional well-being was observed in the intervention group compared with a small negative effect among controls. Conclusions: Programs addressed to informal caregivers based on psychoeducational and cognitive-behavioural therapies are effective in improving quality of life and emotional well-being, and in reducing burden, with a positive effect on the quality of care provided at home.
MeSH term(s)	Aged ; Aged, 80 and over ; Caregiver Burden/prevention & control ; Caregiver Burden/psychology ; Caregivers/education ; Caregivers/psychology ; Cognitive Dysfunction/therapy ; Dementia/therapy ; Family/psychology ; Female ; Humans ; Male ; Middle Aged ; Quality of Life ; Spain
Language	English
Publishing date	2020-10-04
Publishing country	England
Document type	Journal Article
ZDB-ID	2213105-X
ISSN	1479-8301 ; 1346-3500
ISSN (online)	1479-8301
ISSN	1346-3500
DOI	10.1111/psyg.12616
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Article ; Online: Impact of Hospitalization of People With Dementia or Cognitive Impairment on Family Caregivers.

Casafont, Claudia / González-García, Maria Josefa / Casadamon-Munarriz, Irache / Piazuelo, Mercè / Cobo-Sánchez, Jose Luis / Bravo, María / Frías, Cindy E / Zabalegui, Adelaida

Research in gerontological nursing

2023 Volume 16, Issue 6, Page(s) 283–290

Abstract: People with dementia (PWD) have a higher risk of hospitalization than people without dementia. Hospitalizations are stressful events for PWD and their caregivers, representing a considerable change to their routines. The current descriptive longitudinal ... ...

Abstract	People with dementia (PWD) have a higher risk of hospitalization than people without dementia. Hospitalizations are stressful events for PWD and their caregivers, representing a considerable change to their routines. The current descriptive longitudinal study aimed to identify the positive and negative reactions, experiences related to health and social integrated care, resource use, and work status of family caregivers of PWD or cognitive impairment admitted to the hospital with a proximal femur fracture undergoing surgery. Findings indicated that family caregivers (
MeSH term(s)	Humans ; Caregivers/psychology ; Dementia ; Activities of Daily Living ; Longitudinal Studies ; Cognitive Dysfunction ; Hospitalization
Language	English
Publishing date	2023-08-25
Publishing country	United States
Document type	Journal Article
ZDB-ID	2555277-6
ISSN	1938-2464 ; 1940-4921
ISSN (online)	1938-2464
ISSN	1940-4921
DOI	10.3928/19404921-20230817-01
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Article ; Online: Informal Caregivers’ Roles in Dementia

Cindy E. Frias / Esther Cabrera / Adelaida Zabalegui

Life, Vol 10, Iss 251, p

The Impact on Their Quality of Life

2020 Volume 251

Abstract: The constantly changing process of caring for a person with dementia affects the informal caregivers’ role due to its psychosocial impact. This cross-sectional study aimed to analyze the impact of the Person with Dementia informal caregiver’s role ... ...

Abstract	The constantly changing process of caring for a person with dementia affects the informal caregivers’ role due to its psychosocial impact. This cross-sectional study aimed to analyze the impact of the Person with Dementia informal caregiver’s role caregiver to a person with dementia on the self-perceived quality of life (QoL) of the caregiver. In total, 160 informal caregivers were recruited between January and December 2019. Informal caregivers’ quality of life was assessed using the European Quality of Life 5-Dimension scale, burden with the Zarit Burden Scale, emotional wellbeing using the General Health Questionnaire, and caregiver reactions using Caregiver Reaction Aspects. Patients’ cognitive impairment was assessed with the Mini-Mental State Examination, their quality of life using Quality of Life in Alzheimer’s Disease, and neuropsychiatric symptoms using the Neuropsychiatric Inventory. Outcomes were studied using the Pearson correlation coefficient and ANOVA test. Most informal caregivers’ outcomes were significantly associated with their quality of life. Male informal caregivers have a slightly better quality of life than female caregivers ( p < 0.001). Caregiver burden ( p < 0.001), psychological wellbeing ( p < 0.001) and negative aspects of caregiving on health ( p < 0.001) correlated moderately with informal caregivers’ quality of life. Factors associated with dementia, including the course of the illness and its severity with the presence of neuropsychiatric symptoms can negatively affect the informal caregiver’s role and produce a low self-perception of quality of life; thus, social and professional support for informal caregivers is essential.
Keywords	dementia ; informal caregivers ; quality of life ; emotional wellbeing ; nurse ; Science ; Q
Subject code	360
Language	English
Publishing date	2020-10-01T00:00:00Z
Publisher	MDPI AG
Document type	Article ; Online
Database	BASE - Bielefeld Academic Search Engine (life sciences selection)

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Article ; Online: Stress on health-related quality of life in older adults: the protective nature of mindfulness.

de Frias, Cindy M / Whyne, Erum

Aging & mental health

2014 Volume 19, Issue 3, Page(s) 201–206

Abstract: ... of self-reported health status (i.e. SF36v2: mental and physical health composites), life stress (using the Elders ... Life Stress Inventory [ELSI]), and trait mindfulness (i.e. Mindful Attention Awareness Scale).: Results ...

Abstract	Objectives: The current study examined whether the link between stress and health-related quality of life was buffered by protective factors, namely mindfulness, in a sample of middle-aged and older adults. Methods: In this cross-sectional study, 134 healthy, community-dwelling adults (ages 50-85 years) were recruited from Dallas, TX. The participants were screened for depressive symptoms and severity (using the Patient Health Questionnaire [PHQ-9]). All participants completed measures of self-reported health status (i.e. SF36v2: mental and physical health composites), life stress (using the Elders Life Stress Inventory [ELSI]), and trait mindfulness (i.e. Mindful Attention Awareness Scale). Results: Hierarchical regressions (covarying for age, gender, and education) showed that life stress was inversely related to physical and mental health. Mindfulness was positively related to mental health. The negative effect of life stress on mental health was weakened for those individuals with higher levels of trait mindfulness. Conclusions: The results suggest that mindfulness is a powerful, adaptive strategy that may protect middle-aged and older adults from the well-known harmful effects of stress on mental health.
MeSH term(s)	Aged ; Aged, 80 and over ; Aging/psychology ; Female ; Humans ; Male ; Middle Aged ; Mindfulness ; Quality of Life/psychology ; Stress, Psychological/psychology
Language	English
Publishing date	2014-06-18
Publishing country	England
Document type	Journal Article
ZDB-ID	1474804-6
ISSN	1364-6915 ; 1360-7863
ISSN (online)	1364-6915
ISSN	1360-7863
DOI	10.1080/13607863.2014.924090
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Article ; Online: Effectiveness of a psychoeducational intervention for caregivers of People With Dementia with regard to burden, anxiety and depression: A systematic review.

Frias, Cindy E / Garcia-Pascual, Marta / Montoro, Mercedes / Ribas, Nuria / Risco, Ester / Zabalegui, Adelaida

Journal of advanced nursing

2020 Volume 76, Issue 3, Page(s) 787–802

Abstract: Aim: To assess the effectiveness of psychoeducational interventions with respect to burden, anxiety and depression in family caregivers of People With Dementia living at home.: Background: In dementia, the family assumes the role of main caregiver, ... ...

Abstract	Aim: To assess the effectiveness of psychoeducational interventions with respect to burden, anxiety and depression in family caregivers of People With Dementia living at home. Background: In dementia, the family assumes the role of main caregiver, maintaining the patient in a good state of health. Nevertheless, burden, anxiety and depression may have negative repercussions in caregivers. Therefore, professional supports through psychoeducational programmes are recommended as interventions for improving caregivers' health. Design: A quantitative systematic review. Data sources: Electronic searches were performed in CINAHL/AMED/CENTRAL/Web of Science/LILACS/PUBMED from January 2005-August 2018. Review methods: The review was conducted using the JADAD scale to assess bias risk and the quality of the randomized controlled trials (RCTs) and the CONSORT instrument to assess study quality report. The extracted data were reviewed by independent reviewer pairs. The review was reported using PRISMA. Results: A total of 18 RCTs met inclusion criteria. Seven were classified as Technology-based Interventions and 11 as Group-based Interventions. Conclusion: Psychoeducational interventions for caregivers allow them to increase their knowledge of the illness, develop problem-solving skills and facilitate social support. Technology-based Interventions significantly affect burden while Group-based Interventions affect anxiety, depression, insomnia and burden and quality of life and self-efficacy. Impact: Research findings can be used to classify caregivers in future interventions according to illness stage to obtain more precise results.
MeSH term(s)	Anxiety ; Caregivers/psychology ; Dementia/nursing ; Depression ; Humans ; Inservice Training/organization & administration ; Inservice Training/standards
Language	English
Publishing date	2020-01-13
Publishing country	England
Document type	Journal Article ; Systematic Review
ZDB-ID	197634-5
ISSN	1365-2648 ; 0309-2402
ISSN (online)	1365-2648
ISSN	0309-2402
DOI	10.1111/jan.14286
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Article ; Online: Lived Experiences of Hospitalized COVID-19 Patients: A Qualitative Study.

Venturas, Montserrat / Prats, Judith / Querol, Elena / Zabalegui, Adelaida / Fabrellas, Núria / Rivera, Paula / Casafont, Claudia / Cuzco, Cecilia / Frías, Cindy E / Olivé, Maria Carmen / Pérez-Ortega, Silvia

International journal of environmental research and public health

2021 Volume 18, Issue 20

Abstract: The COVID-19 pandemic has resulted in many hospitalized patients and deaths worldwide. Coronavirus patients were isolated from their relatives and visits were banned to prevent contagion. This has brought about a significant change in deeply rooted care ... ...

Abstract	The COVID-19 pandemic has resulted in many hospitalized patients and deaths worldwide. Coronavirus patients were isolated from their relatives and visits were banned to prevent contagion. This has brought about a significant change in deeply rooted care habits in Mediterranean and Latin American countries where the family normally accompanies vulnerable hospitalized patients. The aim of this qualitative study was to examine the hospitalization experience of COVID-19 patients and their family members. A phenomenological qualitative approach was used. Data collection included inductive, in-depth interviews with 11 COVID-19 hospitalized patients. The mean age of patients was 55.4 years and 45% were female. Nearly 50% required Intensive Care Unit (ICU) admission. Ten meaningful statements were identified and grouped in three themes: Positive and negative aspects of the care provided, the patient's perspective, and perception of the experience of the disease. In conclusion, COVID-19 patients, aware of the severity of the pandemic, were very adaptable to the situation and had full confidence in health professionals. Patient isolation was perceived as necessary. Technology has helped to maintain communication between patients and relatives.
MeSH term(s)	COVID-19 ; Female ; Humans ; Intensive Care Units ; Middle Aged ; Pandemics ; Qualitative Research ; SARS-CoV-2
Language	English
Publishing date	2021-10-18
Publishing country	Switzerland
Document type	Journal Article ; Research Support, Non-U.S. Gov't
ZDB-ID	2175195-X
ISSN	1660-4601 ; 1661-7827
ISSN (online)	1660-4601
ISSN	1661-7827
DOI	10.3390/ijerph182010958
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Article: Resilience and Emotional Support in Health Care Professionals During the COVID-19 Pandemic.

Frias, Cindy E / Cuzco, Cecilia / Martín, Carmen Frias / Pérez-Ortega, Silvia / Triviño López, Joselyn A / Lombraña, Maria

Journal of psychosocial nursing and mental health services

2020 Volume 58, Issue 6, Page(s) 5–6

MeSH term(s)	Burnout, Professional/nursing ; Burnout, Professional/prevention & control ; Burnout, Professional/psychology ; COVID-19 ; Coronavirus Infections/nursing ; Coronavirus Infections/psychology ; Humans ; Interdisciplinary Communication ; Intersectoral Collaboration ; Pandemics ; Patient Care Team ; Pneumonia, Viral/nursing ; Pneumonia, Viral/psychology ; Psychiatric Nursing ; Psychological Distress ; Resilience, Psychological ; Social Support ; Spain
Keywords	covid19
Language	English
Publishing date	2020-05-29
Publishing country	United States
Document type	Letter
ZDB-ID	225817-1
ISSN	1938-2413 ; 0279-3695
ISSN (online)	1938-2413
ISSN	0279-3695
DOI	10.3928/02793695-20200506-02
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