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  1. Article ; Online: Avoiding Therapeutic Misconception and Reassessing the Concept of Vulnerability.

    Mohd Yusof, Aimi Nadia / Abdul Rahman, Noraiza

    AJOB neuroscience

    2021  Volume 12, Issue 1, Page(s) 73–74

    MeSH term(s) Electrophysiology ; Ethics, Research ; Humans ; Informed Consent ; Research Design ; Therapeutic Misconception
    Language English
    Publishing date 2021-02-01
    Publishing country United States
    Document type Journal Article ; Comment
    ZDB-ID 2576262-X
    ISSN 2150-7759 ; 2150-7740
    ISSN (online) 2150-7759
    ISSN 2150-7740
    DOI 10.1080/21507740.2020.1866110
    Database MEDical Literature Analysis and Retrieval System OnLINE

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    Zs.A 6886: Show issues Location:
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    ab Jg. 2022: Lesesaal (EG)

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  2. Article ; Online: Human-Pig Chimeric Organ in Organ Transplantation from Islamic Bioethics Perspectives.

    Mohd Zailani, Muhammad Faiq / Hamdan, Mohammad Naqib / Mohd Yusof, Aimi Nadia

    Asian bioethics review

    2022  Volume 15, Issue 2, Page(s) 181–188

    Abstract: The use of pig derivatives in medicine is forbidden in Islamic law texts, despite the fact that certain applications offer medical advantages. Pigs can be one of the best human organ hosts; therefore, using human-pig chimeras may generate beneficial ... ...

    Abstract The use of pig derivatives in medicine is forbidden in Islamic law texts, despite the fact that certain applications offer medical advantages. Pigs can be one of the best human organ hosts; therefore, using human-pig chimeras may generate beneficial impact in organ transplantation, particularly in xenotransplantation. In Islam, medical emergencies may allow some pig-based treatments and medical procedures to be employed therapeutically. However, depending on the sort of medical use, emergency situation might differ. Using Islamic legal maxim as bioethical framework, the purpose of this study is to examine the use of pigs for the purpose of human-pig chimeric transplant from the perspective of Islamic bioethics. According to the findings, chimeric organ transplantation using pigs should only be done in emergency situations.
    Language English
    Publishing date 2022-11-16
    Publishing country England
    Document type Journal Article
    ZDB-ID 2602378-7
    ISSN 1793-9453 ; 1793-8759
    ISSN (online) 1793-9453
    ISSN 1793-8759
    DOI 10.1007/s41649-022-00233-2
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  3. Article ; Online: A Preliminary Study to Explore the Informed Consent Approach and the Ethical Challenges in the Malaysian Biobanking for Research.

    Azahar, Amnah / Mohd Yusof, Aimi Nadia / Azhar, Zahir Izuan

    Asian bioethics review

    2022  Volume 15, Issue 2, Page(s) 141–154

    Abstract: ... research and its ethical challenges. This study aims to identify the approach in obtaining informed consent ...

    Abstract Since 2005, Malaysia has established several biobanks to keep in line with the advancement of biomedical research and development of biobanks in other countries such as the UK and the USA. Despite the establishment of several biobanks in Malaysia, little is known about the informed consent approach in biobanking research and its ethical challenges. This study aims to identify the approach in obtaining informed consent in the Malaysian biobanking for research and explore its ethical challenges. Using non-probability purposive sampling, an in-depth interview with the key informants was conducted in Klang Valley. Based on the interviews, broad consent is the main approach used in obtaining informed consent in biobanking for research in Malaysia and five major ethical challenges were identified. These challenges include the informants' opinion on the current informed consent approach, understanding participants' rights, the role of the research ethics committee, biobanking governance in Malaysia, and informants' knowledge and awareness. In summary, there is a lack of understanding among those involved in biobanking on the ethical, legal, and social aspects of biobanking for research in Malaysia.
    Language English
    Publishing date 2022-11-08
    Publishing country England
    Document type Journal Article
    ZDB-ID 2602378-7
    ISSN 1793-9453 ; 1793-8759
    ISSN (online) 1793-9453
    ISSN 1793-8759
    DOI 10.1007/s41649-022-00229-y
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  4. Article ; Online: A Case of Linear Scleroderma in a Young Child: A Diagnosis Easily Missed in Primary Care.

    Bin Ahmad, Mohd Zulfikry / Mat Nasir, Nafiza / Md Yasin, Mazapuspavina / Yusof, Aimi Nadia Mohd / Bakrin, Ikmal Hisyam / Lim, Sern Chin

    The American journal of case reports

    2023  Volume 24, Page(s) e940148

    Abstract: ... early to prevent late irreversible fibrotic sequelae. This report aims to highlight the importance ...

    Abstract BACKGROUND This case illustrates the challenges in diagnosing linear scleroderma (LS) in a child who presented to a primary care setting. Diagnosis of LS is easily missed due to the lack of prominent symptoms, subtle visible skin changes, and under-recognition of this condition. CASE REPORT A 7-year-old boy presented with a linear, painless, non-itchy rash at the center of his forehead, which has been present for 6 months. The rash extends vertically from the hairline to the bridge of the nose. The color gradually evolved from reddish to purplish-grey and shiny within 3 months. He had underlying eczema, allergic rhinitis, and allergic conjunctivitis since birth. His condition remained unrecognized despite consultations with various medical specialties, including family medicine specialist, ophthalmologist, otorhinolaryngologist, and a general pediatrician. Six months after the onset of his lesion, he was subsequently referred to a pediatric dermatologist and pediatric rheumatologist, who made the diagnosis of LS. Laboratory investigations for autoimmune disease showed that negative antinuclear antibodies (ANA) and inflammatory markers, including erythrocyte sedimentation rate (ESR) and C-reactive protein (CRP), were normal. Skin biopsy provided a tissue confirmation of the diagnosis. MRI of the lesion showed no extension into the underlying muscle or bone erosions. The patient was initially treated with intravenous (IV) methylprednisolone for 3 days, followed by oral methotrexate weekly and prednisolone. The lesion improved after 1 month of treatment, and after 15 months it was less pigmented and less noticeable. CONCLUSIONS LS is the commonest form of localized scleroderma in children. LS on the forehead can erode into the underlying tissues and is sometimes associated with extensive hemifacial atrophy. Treatment should be instituted early to prevent late irreversible fibrotic sequelae. This report aims to highlight the importance of early diagnosis and treatment of an uncommon but potentially disfiguring condition.
    MeSH term(s) Male ; Humans ; Child ; Scleroderma, Localized/diagnosis ; Methylprednisolone ; Methotrexate/therapeutic use ; Exanthema ; Primary Health Care
    Chemical Substances Methylprednisolone (X4W7ZR7023) ; Methotrexate (YL5FZ2Y5U1)
    Language English
    Publishing date 2023-05-19
    Publishing country United States
    Document type Case Reports ; Journal Article
    ZDB-ID 2517183-5
    ISSN 1941-5923 ; 1941-5923
    ISSN (online) 1941-5923
    ISSN 1941-5923
    DOI 10.12659/AJCR.940148
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  5. Article ; Online: Can dynamic consent facilitate the protection of biomedical big data in biobanking in Malaysia?

    Abdul Aziz, Mohammad Firdaus / Mohd Yusof, Aimi Nadia

    Asian bioethics review

    2019  Volume 11, Issue 2, Page(s) 209–222

    Abstract: As with many other countries, Malaysia is also developing and promoting biomedical research to increase the understanding of human diseases and possible interventions. To facilitate this development, there is a significant growth of biobanks in the ... ...

    Abstract As with many other countries, Malaysia is also developing and promoting biomedical research to increase the understanding of human diseases and possible interventions. To facilitate this development, there is a significant growth of biobanks in the country to ensure continuous collection of biological samples for future research, which contain extremely important personal information and health data of the participants involved. Given the vast amount of samples and data accumulated by biobanks, they can be considered as reservoirs of precious biomedical big data. It is therefore imperative for biobanks to have in place regulatory measures to ensure ethical use of the biomedical big data. Malaysia has yet to introduce specific legislation for the field of biobanking. However, it can be argued that its existing Personal Data Protection Act 2010 (PDPA) has laid down legal principles that can be enforced to protect biomedical big data generated by the biobanks. Consent is a mechanism to enable data subjects to exercise their autonomy by determining how their data can be used and ensure compliance with legal principles. However, there are two main concerns surrounding the current practice of consent in biomedical big data in Malaysia. First, it is uncertain that the current practice would be able to respect the underlying notion of autonomy, and second, it is not in accordance with the legal principles of the PDPA. Scholars have deliberated on different strategies of informed consent, and a more interactive approach has recently been introduced: dynamic consent. It is argued that a dynamic consent approach would be able to address these concerns.
    Language English
    Publishing date 2019-05-25
    Publishing country England
    Document type Journal Article
    ZDB-ID 2602378-7
    ISSN 1793-9453 ; 1793-8759
    ISSN (online) 1793-9453
    ISSN 1793-8759
    DOI 10.1007/s41649-019-00086-2
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  6. Article ; Online: Should the Decisions of Institutional Review Boards Be Consistent?

    Friesen, Phoebe / Yusof, Aimi Nadia Mohd / Sheehan, Mark

    Ethics & human research

    2019  Volume 41, Issue 4, Page(s) 2–14

    Abstract: In response to increasing concerns regarding inconsistency in the decision-making of institutional review boards (IRBs), we introduce the decision-maker's dilemma, which arises when complex, normative decisions must be made regularly. Those faced with ... ...

    Abstract In response to increasing concerns regarding inconsistency in the decision-making of institutional review boards (IRBs), we introduce the decision-maker's dilemma, which arises when complex, normative decisions must be made regularly. Those faced with such decisions can either develop a process of algorithmic decision-making, in which consistency is ensured but many morally relevant factors are excluded from the process, or embrace discretionary decision-making, which makes space for morally relevant factors to shape decisions but leads to decisions that are inconsistent. Based on an exploration of similarities between systems of criminal sentencing and of research ethics review, we argue for a discretionary system of decision-making, even though it leads to more inconsistency than does an algorithmic system. We conclude with a discussion of some safeguards that could improve consistency while still making space for discretion to enter IRBs' decision-making processes.
    MeSH term(s) Biomedical Research/standards ; Decision Making ; Ethics Committees, Research/standards ; Humans ; Informed Consent ; Research Subjects
    Language English
    Publishing date 2019-08-06
    Publishing country United States
    Document type Journal Article
    ISSN 2578-2363
    ISSN (online) 2578-2363
    DOI 10.1002/eahr.500022
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  7. Article: Honouring Wishes of Patients: An Islamic View on the Implementation of the Advance Medical Directive in Malaysia.

    Malek, Mohammad Mustaqim / Saifuddeen, Shaikh Mohd / Abdul Rahman, Noor Naemah / Yusof, Aimi Nadia Mohd / Abdul Majid, Wan Roslili

    The Malaysian journal of medical sciences : MJMS

    2021  Volume 28, Issue 2, Page(s) 28–38

    Abstract: An Advance Medical Directive (AMD) is a document in which competent patients express their wishes regarding their preferred choice of future medical plans in the event they become incompetent. AMD is important in relation to the patient's right to refuse ...

    Abstract An Advance Medical Directive (AMD) is a document in which competent patients express their wishes regarding their preferred choice of future medical plans in the event they become incompetent. AMD is important in relation to the patient's right to refuse treatment. However, they must also consider cultural and religious values of different communities. In Islam, there are several concerns that need to be addressed, namely the validity of the AMD according to Islamic jurisprudence and patients' right to end-of-life decision-making. To address these concerns, this article refers to multiple sources of Islamic jurisprudence, such as the
    Language English
    Publishing date 2021-04-21
    Publishing country Malaysia
    Document type Journal Article ; Review
    ZDB-ID 2197205-9
    ISSN 2180-4303 ; 1394-195X
    ISSN (online) 2180-4303
    ISSN 1394-195X
    DOI 10.21315/mjms2021.28.2.3
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  8. Article ; Online: Sharing Information on COVID-19: the ethical challenges in the Malaysian setting.

    Yusof, Aimi Nadia Mohd / Muuti, Muhamad Zaid / Ariffin, Lydia Aiseah / Tan, Mark Kiak Min

    Asian bioethics review

    2020  Volume 12, Issue 3, Page(s) 349–361

    Abstract: The COVID-19 pandemic has raised challenges in dealing with information sharing by the public and the authorities. There are two categories of information sharing on social media that are believed to be potentially problematic and unethical: the sharing ... ...

    Abstract The COVID-19 pandemic has raised challenges in dealing with information sharing by the public and the authorities. There are two categories of information sharing on social media that are believed to be potentially problematic and unethical: the sharing of personal information of patients and the sharing of fake news or false information. We present a discussion on how the response to the COVID-19 pandemic in Malaysia can be ethically handled in terms of information sharing. It is recommended that the public should cultivate the basic skills to evaluate information and determine its validity. On the other hand, the authorities should refrain from placing the blame on patients to avoid them from being stigmatized. It is crucial that all parties are aware of their ethical duty to ensure only ethical and valid information gets shared on social media.
    Keywords covid19
    Language English
    Publishing date 2020-06-25
    Publishing country England
    Document type Journal Article
    ZDB-ID 2602378-7
    ISSN 1793-9453 ; 1793-8759
    ISSN (online) 1793-9453
    ISSN 1793-8759
    DOI 10.1007/s41649-020-00132-4
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  9. Article ; Online: Sharing Information on COVID-19

    Yusof, Aimi Nadia Mohd / Muuti, Muhamad Zaid / Ariffin, Lydia Aiseah / Tan, Mark Kiak Min

    Asian Bioethics Review

    the ethical challenges in the Malaysian setting

    2020  Volume 12, Issue 3, Page(s) 349–361

    Keywords Philosophy ; Health Policy ; Health(social science) ; covid19
    Language English
    Publisher Springer Science and Business Media LLC
    Publishing country us
    Document type Article ; Online
    ZDB-ID 2602378-7
    ISSN 1793-9453 ; 1793-8759
    ISSN (online) 1793-9453
    ISSN 1793-8759
    DOI 10.1007/s41649-020-00132-4
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  10. Article: Sharing Information on COVID-19: the ethical challenges in the Malaysian setting

    Yusof, Aimi Nadia Mohd / Muuti, Muhamad Zaid / Ariffin, Lydia Aiseah / Tan, Mark Kiak Min

    Asian Bioeth Rev

    Abstract: The COVID-19 pandemic has raised challenges in dealing with information sharing by the public and the authorities. There are two categories of information sharing on social media that are believed to be potentially problematic and unethical: the sharing ... ...

    Abstract The COVID-19 pandemic has raised challenges in dealing with information sharing by the public and the authorities. There are two categories of information sharing on social media that are believed to be potentially problematic and unethical: the sharing of personal information of patients and the sharing of fake news or false information. We present a discussion on how the response to the COVID-19 pandemic in Malaysia can be ethically handled in terms of information sharing. It is recommended that the public should cultivate the basic skills to evaluate information and determine its validity. On the other hand, the authorities should refrain from placing the blame on patients to avoid them from being stigmatized. It is crucial that all parties are aware of their ethical duty to ensure only ethical and valid information gets shared on social media.
    Keywords covid19
    Publisher WHO
    Document type Article
    Note WHO #Covidence: #614402
    Database COVID19

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