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  1. AU=Eijkholt Marleen
  2. AU=Sousa Braian L A AU=Sousa Braian L A
  3. AU="Fresel, Marielle"
  4. AU="Ilana Babaev"
  5. AU="Tang, Hang"
  6. AU="McBride, Erin"

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  1. Artikel ; Online: Medicine's collision with false hope: The False Hope Harms (FHH) argument.

    Eijkholt, Marleen

    Bioethics

    2020  Band 34, Heft 7, Seite(n) 703–711

    Abstract: The goal of this paper is to introduce the false hope harms (FHH) argument, as a new concept in healthcare. The FHH argument embodies a conglomerate of specific harms that have not convinced providers to stop endorsing false hope. In this paper, it is ... ...

    Abstract The goal of this paper is to introduce the false hope harms (FHH) argument, as a new concept in healthcare. The FHH argument embodies a conglomerate of specific harms that have not convinced providers to stop endorsing false hope. In this paper, it is submitted that the healthcare profession has an obligation to avoid collaborating or participating in, propagating or augmenting false hope in medicine. Although hope serves important functions-it can be 'therapeutic' and important for patients' 'self-identity as active agents'- the presentation of false hope along the hope continuum entails a misconstrued balancing act. By not speaking up against unrealistic patient and family requests-including some requests for rights to try, resuscitative efforts in terminally ill patients, or other demands for non-beneficial treatments-healthcare providers precipitate harms, i.e., the FHH. These harms arise on both individual and communal levels and cannot be ignored. The goal of this paper is not to offer a definition of false hope, because the phenomenon of false hope is too complex for any simple definition. Instead, this paper seeks to make four points while outlining the FHH argument: consumer medicine and false hope are connected; providers and patients are very vulnerable in the system of consumer medicine; providers have a responsibility to stand up against false hope; and how the FHH argument could perhaps offer a footing to resist giving in to false hope.
    Mesh-Begriff(e) Deception ; Ethics, Medical ; Hope ; Humans ; Marketing/standards ; Medicine/standards ; Moral Obligations ; Patient Harm/ethics ; Professional-Patient Relations/ethics ; Standard of Care
    Sprache Englisch
    Erscheinungsdatum 2020-03-05
    Erscheinungsland England
    Dokumenttyp Journal Article
    ZDB-ID 632984-6
    ISSN 1467-8519 ; 0269-9702
    ISSN (online) 1467-8519
    ISSN 0269-9702
    DOI 10.1111/bioe.12731
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  2. Artikel ; Online: Patient Rights to Publicity versus Provider Rights to Privacy: Striking a Balance When Blogging in the Medical Setting.

    Eijkholt, Marleen / Fisher, Marilyn / Jankowski, Jane

    The American journal of bioethics : AJOB

    2021  Band 21, Heft 7, Seite(n) 77–80

    Mesh-Begriff(e) Blogging ; Confidentiality ; Humans ; Patient Rights ; Privacy
    Sprache Englisch
    Erscheinungsdatum 2021-07-14
    Erscheinungsland United States
    Dokumenttyp Journal Article ; Comment
    ZDB-ID 2060433-6
    ISSN 1536-0075 ; 1526-5161
    ISSN (online) 1536-0075
    ISSN 1526-5161
    DOI 10.1080/15265161.2021.1926577
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  3. Artikel ; Online: Palliative Care in Severe Neurotrauma Patients in the Intensive Care Unit.

    Dolmans, Rianne G F / Robertson, Faith C / Eijkholt, Marleen / van Vliet, Peter / Broekman, Marike L D

    Neurocritical care

    2023  Band 39, Heft 3, Seite(n) 557–564

    Abstract: Traumatic brain injury (TBI) is a significant cause of mortality and morbidity worldwide and many patients with TBI require intensive care unit (ICU) management. When facing a life-threatening illness, such as TBI, a palliative care approach that focuses ...

    Abstract Traumatic brain injury (TBI) is a significant cause of mortality and morbidity worldwide and many patients with TBI require intensive care unit (ICU) management. When facing a life-threatening illness, such as TBI, a palliative care approach that focuses on noncurative aspects of care should always be considered in the ICU. Research shows that neurosurgical patients in the ICU receive palliative care less frequently than the medical patients in the ICU, which is a missed opportunity for these patients. However, providing appropriate palliative care to neurotrauma patients in an ICU can be difficult, particularly for young adult patients. The patients' prognoses are often unclear, the likelihood of advance directives is small, and the bereaved families must act as decision-makers. This article highlights the different aspects of the palliative care approach as well as barriers and challenges that accompany the TBI patient population, with a particular focus on young adult patients with TBI and the role of their family members. The article concludes with recommendations for physicians for effective and adequate communication to successfully implement the palliative care approach into standard ICU care and to improve quality of care for patients with TBI and their families.
    Mesh-Begriff(e) Young Adult ; Humans ; Palliative Care ; Intensive Care Units ; Brain Injuries, Traumatic/therapy ; Family ; Prognosis
    Sprache Englisch
    Erscheinungsdatum 2023-05-12
    Erscheinungsland United States
    Dokumenttyp Journal Article
    ZDB-ID 2381896-7
    ISSN 1556-0961 ; 1541-6933
    ISSN (online) 1556-0961
    ISSN 1541-6933
    DOI 10.1007/s12028-023-01717-1
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  4. Artikel ; Online: Patient participation in Dutch ethics support: practice, ideals, challenges and recommendations-a national survey.

    Eijkholt, Marleen / de Snoo-Trimp, Janine / Ligtenberg, Wieke / Molewijk, Bert

    BMC medical ethics

    2022  Band 23, Heft 1, Seite(n) 62

    Abstract: Background: Patient participation in clinical ethics support services (CESS) has been marked as an important issue. There seems to be a wide variety of practices globally, but extensive theoretical or empirical studies on the matter are missing. Scarce ... ...

    Abstract Background: Patient participation in clinical ethics support services (CESS) has been marked as an important issue. There seems to be a wide variety of practices globally, but extensive theoretical or empirical studies on the matter are missing. Scarce publications indicate that, in Europe, patient participation in CESS (fused and abbreviated hereafter as: PP) varies from region to region, and per type of support. Practices vary from being non-existent, to patients being a full conversation partner. This contrasts with North America, where PP seems more or less standard. While PP seems to be on the rise in Europe, there is no data to confirm this. This study sought a deep understanding of both habits and the attitudes towards PP in the Netherlands, including respondents' practical and normative perspectives on the matter.
    Methods and results: We developed a national survey on PP for Dutch CESS staff. Our survey comprised a total of 25 open and close-ended questions, focused on four topics related to PP (1) goals of CESS, (2) status quo of PP, (3) ideas and ideals concerning PP, and (4) obstacles for PP.
    Discussion: The four most important findings were that: (1) Patient participation in Dutch CESS is far from standard. (2) Views on patient participation are very much intertwined with the goals of ethics support. (3) Hesitations, fears and perceived obstacles for PP were not on principle and (4) Most respondents see PP as a positive opportunity, yet requiring additional training, practical guidance and experience.
    Conclusions: Various normative reasons require PP. However, PP seems far from standard and somewhat rare in Dutch CESS settings. Our respondents did not raise many principled objections to PP. Instead, reasons for the lack of PP are intertwined with viewpoints on the goals of CESS, which seemingly focus on supporting health care professionals (HCPs). Training and practical guidance was thought to be helpful for gaining experience for both CESS staff and HCPs.
    Mesh-Begriff(e) Ethics Consultation ; Ethics, Clinical ; Europe ; Humans ; Morals ; Patient Participation
    Sprache Englisch
    Erscheinungsdatum 2022-06-22
    Erscheinungsland England
    Dokumenttyp Journal Article
    ZDB-ID 2041552-7
    ISSN 1472-6939 ; 1472-6939
    ISSN (online) 1472-6939
    ISSN 1472-6939
    DOI 10.1186/s12910-022-00801-z
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  5. Artikel ; Online: Three pitfalls of accountable healthcare rationing.

    Eijkholt, Marleen / Broekman, Marike / Balak, Naci / Mathiesen, Tiit

    Journal of medical ethics

    2021  

    Abstract: A pandemic may cause a sudden imbalance between available medical resources and medical needs where fundamental care to a patient cannot be delivered. Inability to fulfil a professional commitment to deliver care as needed can lead to distress among ... ...

    Abstract A pandemic may cause a sudden imbalance between available medical resources and medical needs where fundamental care to a patient cannot be delivered. Inability to fulfil a professional commitment to deliver care as needed can lead to distress among caregivers and patients. This distress is sometimes alleviated through mechanisms that hide the facts that care is rationed and not all medical needs are met. We have identified three mechanisms that jeopardise accountable and optimal allocation of resources: (1) hidden value judgements that allow rationing under the disguise of triage or prioritisation, (2) disguised conflict of interest between societal and individual patient's needs and (3) concealed biases in the application of medical tools. Under these three pitfalls decisions of resource allocation and who gets treated are handled as medical decisions: normative decisions are concealed and perceived as falling with the realm of medical judgement. Value judgements and moral agency are hidden to offer a 'false sense of medical judgement', while in fact there are several ethical judgements and biases at stake. The three pitfalls entail hidden normative deliberation and are inappropriate for sustainable healthcare delivery and resource allocation. We believe it is necessary to maintain transparency in decision making under conditions of insufficient resources to maintain trust in professional care givers and secure fair treatment allocation. Recognition of the pitfalls, by applying our recommendations, may help to ensure transparent and accountable distribution of care and contribute to public acceptance of the ethics behind rationing.
    Sprache Englisch
    Erscheinungsdatum 2021-01-13
    Erscheinungsland England
    Dokumenttyp Journal Article
    ZDB-ID 194927-5
    ISSN 1473-4257 ; 0306-6800
    ISSN (online) 1473-4257
    ISSN 0306-6800
    DOI 10.1136/medethics-2020-106943
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  6. Artikel ; Online: Health, honesty and happiness: Authenticity and anonymity in social media participation of individuals with multiple sclerosis.

    Eijkholt, Marleen / Sparling, Alica

    Multiple sclerosis and related disorders

    2018  Band 27, Seite(n) 121–126

    Abstract: Background: Multiple Sclerosis (MS) can impair social participation and lead to isolation. Online platforms could help to increase this participation for individuals with MS, circumventing potential physical, emotional and cognitive barriers. Yet, ... ...

    Abstract Background: Multiple Sclerosis (MS) can impair social participation and lead to isolation. Online platforms could help to increase this participation for individuals with MS, circumventing potential physical, emotional and cognitive barriers. Yet, minimal research has examined the differential impact of online versus face-to face interaction on happiness.
    Objective: In our study we analyzed the relationship between honesty, anonymity, and happiness in individuals diagnosed with MS, who reported using online social networks.
    Methods: We merged answers of 440 individuals from the Davidson Social Participation Survey with the NARCOMS Enrollment and Update Surveys. Descriptive analysis, T-tests, Pearson correlations and OLS multivariate regression analysis were conducted.
    Results: Individuals reported they could be more honest in face-to face interactions than with online contacts, regardless of whether they were anonymous or identifiable. Happiness was associated with honesty or authenticity in in-person interactions. We found a negative association between happiness and honesty for anonymous participants online, and no association between happiness and honesty when using real names. Consistent results emerged for individuals using patient-specific and generic platforms.
    Conclusion: Our study implies that anonymity may not improve happiness of individuals with MS. We need to address structural barriers to enable their in-person interactions.
    Mesh-Begriff(e) Adult ; Female ; Happiness ; Humans ; Interpersonal Relations ; Male ; Multiple Sclerosis/psychology ; Registries/statistics & numerical data ; Social Media ; Social Networking ; Social Participation ; Surveys and Questionnaires
    Sprache Englisch
    Erscheinungsdatum 2018-09-19
    Erscheinungsland Netherlands
    Dokumenttyp Journal Article
    ISSN 2211-0356
    ISSN (online) 2211-0356
    DOI 10.1016/j.msard.2018.09.020
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  7. Artikel ; Online: The right to found a family as a stillborn right to procreate?

    Eijkholt, Marleen

    Medical law review

    2010  Band 18, Heft 2, Seite(n) 127–151

    Mesh-Begriff(e) Europe ; Humans ; Reproductive Rights/ethics ; Reproductive Rights/legislation & jurisprudence
    Sprache Englisch
    Erscheinungsdatum 2010
    Erscheinungsland England
    Dokumenttyp Journal Article ; Legal Cases
    ZDB-ID 1197078-9
    ISSN 1464-3790 ; 0967-0742
    ISSN (online) 1464-3790
    ISSN 0967-0742
    DOI 10.1093/medlaw/fwq013
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  8. Artikel ; Online: Sterilisation and the birth of a right: effective access to medical records.

    Eijkholt, Marleen

    Medical law review

    2010  Band 18, Heft 1, Seite(n) 96–102

    Mesh-Begriff(e) Access to Information/legislation & jurisprudence ; Coercion ; Humans ; Medical Records/legislation & jurisprudence ; Reproductive Rights/legislation & jurisprudence ; Slovakia ; Sterilization/legislation & jurisprudence
    Sprache Englisch
    Erscheinungsdatum 2010
    Erscheinungsland England
    Dokumenttyp Journal Article ; Legal Cases
    ZDB-ID 1197078-9
    ISSN 1464-3790 ; 0967-0742
    ISSN (online) 1464-3790
    ISSN 0967-0742
    DOI 10.1093/medlaw/fwq003
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  9. Artikel ; Online: The right to procreate is not aborted. Dickson v. United Kingdom.

    Eijkholt, Marleen

    Medical law review

    2008  Band 16, Heft 2, Seite(n) 284–293

    Mesh-Begriff(e) Female ; Health Services Accessibility/legislation & jurisprudence ; Humans ; Insemination, Artificial/legislation & jurisprudence ; Insemination, Artificial, Homologous ; Male ; Marriage/legislation & jurisprudence ; Prisoners/legislation & jurisprudence ; Reproductive Rights/legislation & jurisprudence ; United Kingdom
    Sprache Englisch
    Erscheinungsdatum 2008
    Erscheinungsland England
    Dokumenttyp Journal Article ; Legal Cases
    ZDB-ID 1197078-9
    ISSN 1464-3790 ; 0967-0742
    ISSN (online) 1464-3790
    ISSN 0967-0742
    DOI 10.1093/medlaw/fwn011
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  10. Artikel ; Online: Screen Shots: When Patients and Families Publish Negative Health Care Narratives Online.

    Eijkholt, Marleen / Jankowski, Jane / Fisher, Marilyn

    Narrative inquiry in bioethics

    2017  Band 7, Heft 3, Seite(n) 245–254

    Abstract: Social media sites and their relationship to health care is a subject of intense debate. Common discussions regarding social media address patient privacy, or e-professionalism. This case study explores the tensions that arise for health care providers ... ...

    Abstract Social media sites and their relationship to health care is a subject of intense debate. Common discussions regarding social media address patient privacy, or e-professionalism. This case study explores the tensions that arise for health care providers when negative patient statements surface in social media and blog forums. Recognizing that patients and families often find relief in sharing personal illness narratives, we contemplate if, and how, individual health care professionals and institutions should address complaints aired in public, unmoderated media. Our discussion begins by presenting a case of a family blogging on the Internet to share grievances (to deidentify the case, we have changed some details). Next, we offer an exploration of the impact on health care delivery when professionals become aware of specific criticisms published online. Strategies for managing electronic criticisms are then proposed. We conclude by proposing a novel E-THICS approach to address negative patient expressions via electronic word of mouth (eWOM). Our examination of this evolving issue focuses on maintaining satisfactory relationships between health care providers and patients/families when dealing with health care narratives published in open online media.
    Mesh-Begriff(e) Blogging ; Communication ; Delivery of Health Care ; Electronics ; Family ; Humans ; Internet ; Narration ; Patient Satisfaction ; Professional-Patient Relations ; Social Behavior ; Social Media
    Sprache Englisch
    Erscheinungsdatum 2017
    Erscheinungsland United States
    Dokumenttyp Journal Article
    ZDB-ID 2632728-4
    ISSN 2157-1740 ; 2157-1732
    ISSN (online) 2157-1740
    ISSN 2157-1732
    DOI 10.1353/nib.2017.0072
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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