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  1. Book ; Conference proceedings: Elder abuse and its prevention

    Taylor, Rachel M.

    [Forum on Global Violence Prevention] ; workshop summary

    2014  

    Author's details Rachel M. Taylor, rapporteur
    Language English
    Size XIV, 153 S. : graph. Darst.
    Publisher National Acad. Press
    Publishing place Washington, DC
    Publishing country United States
    Document type Book ; Conference proceedings
    HBZ-ID HT018158194
    ISBN 978-0-309-29351-8 ; 0-309-29351-0
    Database Catalogue ZB MED Medicine, Health

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  2. Book ; Online ; Conference proceedings: Exploring shared value in global health and safety

    Taylor, Rachel M. / Amankwah, Francis

    workshop summary

    2016  

    Institution National Academies of Sciences, Engineering, and Medicine / Forum on Public-Private Partnerships for Global Health and Safety
    Author's details Rachel M. Taylor and Francis Amankwah, Rapporteurs.Forum on Public-Private Partnerships for Global Health and Safety. Board on Global Health. Health and Medicine Division. The National Academies of Sciences, Engineering, Medicine
    Language English
    Size 1 Online-Ressource (xiv, 156 Seiten), Illustrationen
    Publisher National Academies Press
    Publishing place Washington, DC
    Publishing country United States
    Document type Book ; Online ; Conference proceedings
    HBZ-ID HT019121607
    ISBN 978-0-309-44250-3 ; 0-309-44250-8
    Database ZB MED Catalogue: Medicine, Health, Nutrition, Environment, Agriculture

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  3. Article ; Online: An evaluation of staff experiences of the Royal Literary Fund writer-in-residence service to support improvements in written communication in healthcare.

    Pengelly, Catherine / Spring, Carolyn / Taylor, Rachel M

    Qualitative research in medicine & healthcare

    2023  Volume 7, Issue 3, Page(s) 11601

    Abstract: Written communication is essential to staff and patient experience in healthcare. The Royal Literary Fund has hosted a writing fellow in an NHS Trust since 2018 providing professional writing training. The aim of this evaluation was to explore the ... ...

    Abstract Written communication is essential to staff and patient experience in healthcare. The Royal Literary Fund has hosted a writing fellow in an NHS Trust since 2018 providing professional writing training. The aim of this evaluation was to explore the experiences of staff using the service. Semi-structured interviews were conducted with 21 staff members from a range of professions who had accessed the service. Data were analysed using thematic analysis. Findings: The writing service was highly valued. Three themes emerged: feelings about writing at work, reported benefits of attending sessions, and perceived barriers to accessing them. Staff felt underskilled in professional writing and described the wish to write more succinctly and reflectively. Self-reported confidence increased after sessions. Stigma around writing skills prevented some staff from recommending the service. Wider adoption of professional writing skills training through the NHS could have benefits in terms of increasing self-perceived skills and confidence.
    Language English
    Publishing date 2023-12-29
    Publishing country Italy
    Document type Journal Article
    ISSN 2532-2044
    ISSN (online) 2532-2044
    DOI 10.4081/qrmh.2023.11601
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  4. Article ; Online: Choosing the right questions - A systematic review of patient reported outcome measures used in radiotherapy and proton beam therapy.

    Fairweather, Danielle / Taylor, Rachel M / Simões, Rita

    Radiotherapy and oncology : journal of the European Society for Therapeutic Radiology and Oncology

    2023  Volume 191, Page(s) 110071

    Abstract: The implementation of PROMs into clinical practice has been shown to improve quality of care. This systematic review aims to identify which PROMs are suitable for implementation within routine clinical practice in a radiotherapy or PBT service.The ... ...

    Abstract The implementation of PROMs into clinical practice has been shown to improve quality of care. This systematic review aims to identify which PROMs are suitable for implementation within routine clinical practice in a radiotherapy or PBT service.The bibliographic databases MEDLINE, EMBASE and EMCARE were searched. Articles published between 1st January 2008 to 1st June 2023, that reported PROMs being utilised as an outcome measure were included. Inclusion criteria also included being written in English, involving human patients, aged 16 and above, receiving external beam radiotherapy or PBT for six defined tumour sites. PROMs identified within the included articles were subjected to quality assessment using the COSMIN reporting guidelines. Results are reported as per PRISMA guidelines. A total of 268 studies were identified in the search, of which 52 fulfilled the inclusion criteria. The use of 39 different PROMs was reported. The PROMs identified were mostly tumour or site-specific quality of life (n = 23) measures but also included generic cancer (n = 3), health-related quality-of-life (n = 6), and symptom specific (n = 7) measures.None of the PROMs identified received a high GRADE score for good content. There were 13 PROMs that received a moderate GRADE score. The remaining PROMs either had limited evidence of development and validation within the patient cohorts investigated, or lacked relevance or comprehensiveness needed for routine PROMs collection in a radiotherapy or PBT service.This review highlights that there are a wide variety of PROMs being utilised within radiotherapy research, but most lack specificity to radiotherapy side-effects. There is a risk that by using non-specific PROMs in clinical practice, patients might not receive the supportive care that they need.
    MeSH term(s) Humans ; Proton Therapy ; Quality of Life ; Patient Reported Outcome Measures ; Neoplasms/radiotherapy ; Outcome Assessment, Health Care
    Language English
    Publishing date 2023-12-22
    Publishing country Ireland
    Document type Systematic Review ; Journal Article ; Review
    ZDB-ID 605646-5
    ISSN 1879-0887 ; 0167-8140
    ISSN (online) 1879-0887
    ISSN 0167-8140
    DOI 10.1016/j.radonc.2023.110071
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  5. Article ; Online: Prevention of internalizing difficulties in the middle years: Protocol for a noninferiority randomized trial of Mindfulness-Based Cognitive Therapy for Children and Cognitive Behavioural Therapy.

    Taylor, Amanda / Wright, Kathleen / Roberts, Rachel M / Proeve, Michael / Turner, Jasmine / Miller, Caroline

    Early intervention in psychiatry

    2024  

    Abstract: Aim: Mindfulness-based interventions have been tested as preventive programs for childhood internalizing difficulties, but most research has been at a 'universal' level with small to null effects. Mindfulness-Based Cognitive Therapy for Children (MBCT-C) ...

    Abstract Aim: Mindfulness-based interventions have been tested as preventive programs for childhood internalizing difficulties, but most research has been at a 'universal' level with small to null effects. Mindfulness-Based Cognitive Therapy for Children (MBCT-C) has similar effects to Cognitive Behaviour Therapy (CBT) when used as a small-group, targeted preventive program. Knowledge gaps include the longer-term effectiveness of MBCT-C relative to CBT and the benefits of adding a parent module. This trial aims to compare MCBT-C to traditional CBT, including a parent module, to 15-months post-intervention and to test the feasibility and acceptability of adding a parent module.
    Methods: Participants will be recruited from primary schools in areas of socio-economic disadvantage in South Australia (n = 194). Children (aged 9-12) years with signs of internalizing difficulties (e.g., shy, withdrawn, worried), and their parents, will be eligible for this two-armed randomized controlled non-inferiority trial (RCT). Children will participate in 10 group sessions of MBCT-C or CBT, facilitated by psychologists, and parents from both conditions will participate in two parent-only group sessions. Child self-report measures include depression and anxiety, as well as attention, mindfulness and self-compassion. Parent measures include symptoms of depression and anxiety, mindfulness, and parent-child relationship strength. The primary outcome will be child anxiety and depression (Revised Child Anxiety and Depression Scale-25). Measures will be collected pre and post intervention, and at 3, 6, 12 and 15-month follow up.
    Results: Schools will be recruited from October 2022. Nomination of children will commence from February 2023. Program implementation will begin May 2023.
    Conclusions: This trial will have implications for the feasibility of involving parents in preventative programs, as well as whether mindfulness-based interventions prevent internalizing difficulties over time.
    Language English
    Publishing date 2024-02-06
    Publishing country Australia
    Document type Journal Article
    ZDB-ID 2272425-4
    ISSN 1751-7893 ; 1751-7885
    ISSN (online) 1751-7893
    ISSN 1751-7885
    DOI 10.1111/eip.13501
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  6. Article ; Online: Psychosocial and Support Needs of the Main Caregiver for Adolescents and Young Adults Undergoing Treatment for Cancer.

    Pettitt, Nicola J / Petrella, Anika R / Neilson, Susan / Topping, Annie / Taylor, Rachel M

    Cancer nursing

    2024  

    Abstract: Background: Family relationships and social networks are critically important to adolescents and young adults (AYAs) with cancer, impacting their experience and well-being throughout the cancer trajectory. A cancer diagnosis impacts the development of ... ...

    Abstract Background: Family relationships and social networks are critically important to adolescents and young adults (AYAs) with cancer, impacting their experience and well-being throughout the cancer trajectory. A cancer diagnosis impacts the development of independence and an adult identity, which can present challenges to psychosocial well-being needs and relationships between caregivers and AYAs.
    Objective: The aim of this study was to explore the psychosocial and support needs of the main caregivers of AYAs.
    Methods: This is a secondary analysis of the BRIGHTLIGHT caregiver survey, exploring items pertaining to support offered/engaged with, appraisal of helpfulness, and caregivers' emotional and psychological distress experience. Descriptive statistics, a correlational analysis, and a 1-way analysis of variance were conducted.
    Results: There were 518 caregiver responses (62%). Over half received information about their caregiving needs, with the majority finding this very/fairly helpful. Most (80%) of those who had not received the information would have valued it. High levels of negative emotional and psychological well-being were reported, with 91% feeling depressed or anxious since the AYAs' diagnosis and 41% always/often experiencing these feelings. Total distress was associated with being younger, a parent, female, and unemployed, and earning a below-average income.
    Conclusions: The needs of caregivers are broad and multidimensional; however, some characteristics were associated with higher distress. When caregiver-specific information was provided by healthcare professionals, it was well received.
    Implications for practice: Healthcare professionals should consider caregivers' needs individually and provide/signpost to support. Caregivers need to be involved in designing and implementing future research, given the heterogeneity of needs identified.
    Language English
    Publishing date 2024-04-24
    Publishing country United States
    Document type Journal Article
    ZDB-ID 391995-x
    ISSN 1538-9804 ; 0162-220X
    ISSN (online) 1538-9804
    ISSN 0162-220X
    DOI 10.1097/NCC.0000000000001352
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  7. Article ; Online: The Impact of Specialist Care on Teenage and Young Adult Patient-Reported Outcomes in England: A BRIGHTLIGHT Study.

    Taylor, Rachel M / Whelan, Jeremy S / Barber, Julie A / Alvarez-Galvez, Javier / Feltbower, Richard G / Gibson, Faith / Stark, Dan P / Fern, Lorna A

    Journal of adolescent and young adult oncology

    2024  

    Abstract: Purpose: ...

    Abstract Purpose:
    Language English
    Publishing date 2024-01-30
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2607978-1
    ISSN 2156-535X ; 2156-5333
    ISSN (online) 2156-535X
    ISSN 2156-5333
    DOI 10.1089/jayao.2023.0141
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  8. Article ; Online: Provision of information by midwives for pregnant women in England on guidance on foods/drinks to avoid or limit.

    Beasant, Lucy / Ingram, Jenny / Tonks, Rachel / Taylor, Caroline M

    BMC pregnancy and childbirth

    2023  Volume 23, Issue 1, Page(s) 152

    Abstract: Background: The National Health Service (NHS) website gives guidance for pregnant women in England on foods/drinks to avoid or limit because of microbiological, toxicological or teratogenic hazards. These include, for example, some types of soft cheeses, ...

    Abstract Background: The National Health Service (NHS) website gives guidance for pregnant women in England on foods/drinks to avoid or limit because of microbiological, toxicological or teratogenic hazards. These include, for example, some types of soft cheeses, fish/seafood and meat products. This website and midwives are trusted sources of information for pregnant women, but the ways in which midwives can be supported to provide clear and accurate information are unknown.
    Aims: The aims were to: (1) determine midwives' accuracy of recall of information and confidence in delivering the guidance to women; (2) identify barriers to provision; (3) identify the ways in which midwives provide this information to women.
    Methods: Registered Midwives practicing in England completed an online questionnaire. Questions included those on what information they provided and their confidence in delivering it, the ways they provided information on foods to avoid/limit, their recall of some of the guidance, and what resources they used. Ethics approval was given by the University of Bristol.
    Results: More than 10% of midwives (n = 122) were 'Not at all confident/Don't know' in providing advice about ten items, including game meat/gamebirds (42% and 43%, respectively), herbal teas (14%) and cured meats (12%). Only 32% correctly recalled overall advice on eating fish, and only 38% the advice on tinned tuna. The main barriers to provision were lack of time in appointments and lack of training. The most usual methods of disseminating information were verbal (79%) and signposting to websites (55%).
    Conclusion: Midwives were often unconfident about their ability to provide accurate guidance, and recall on items tested was frequently mistaken. Delivery of guidance by midwives on foods to avoid or limit needs to be supported by appropriate training and access to resources, and sufficient time in appointments. Further research on barriers to the delivery and implementation of the NHS guidance is needed.
    MeSH term(s) Female ; Pregnancy ; Humans ; Pregnant Women ; Midwifery ; Prenatal Care ; State Medicine ; England
    Language English
    Publishing date 2023-03-08
    Publishing country England
    Document type Journal Article
    ZDB-ID 2059869-5
    ISSN 1471-2393 ; 1471-2393
    ISSN (online) 1471-2393
    ISSN 1471-2393
    DOI 10.1186/s12884-023-05441-8
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  9. Article ; Online: Evaluation of the Family Liaison Officer role during the COVID-19 pandemic.

    Hughes, Luke / Anderton, Lisa / Taylor, Rachel M

    Qualitative research in medicine & healthcare

    2022  Volume 6, Issue 1, Page(s) 10287

    Abstract: Communication within healthcare settings is often a subject of contention for patients' families at the best of times; however, contention was greatly magnified in the United Kingdom by restrictions on hospital visitations during the early stage of the ... ...

    Abstract Communication within healthcare settings is often a subject of contention for patients' families at the best of times; however, contention was greatly magnified in the United Kingdom by restrictions on hospital visitations during the early stage of the COVID-19 pandemic. To support communication between families and patients, a central London hospital introduced the role of the family liaison officer (FLO). This study was designed to evaluate the rapid implementation of the FLO and to explore potential for it to become a standard role. Semi-structured interviews were conducted with five FLOs and seven colleagues who had worked alongside them between April and June, 2020. Two versions of the role emerged based on FLOs' previous background: clinical (primarily nurses) and pastoral (primarily play specialists). The FLO became a key role during the pandemic in facilitating communication between patients, clinical teams, and families. Challenges associated with the role reflect the speed in which it was implemented. It was evident to those in the role, and clinicians who the role was supporting, that it had potential to help improve hospital communication and the work of healthcare staff beyond the pandemic.
    Language English
    Publishing date 2022-05-31
    Publishing country Italy
    Document type Journal Article
    ISSN 2532-2044
    ISSN (online) 2532-2044
    DOI 10.4081/qrmh.2022.10287
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  10. Article: Evaluation of the DAISY (Diseases Attacking the Immune SYstem) Award for recognising excellence in nursing.

    Williamson, Lauren / Burog, Walter / Taylor, Rachel M

    British journal of nursing (Mark Allen Publishing)

    2022  Volume 31, Issue 19, Page(s) 976–982

    Abstract: Background: With increasing demand for nursing services worldwide, the onus is on healthcare systems to implement measures to improve retention. The DAISY Award was designed to celebrate nursing with the suggestion that it may improve staff retention.!## ...

    Abstract Background: With increasing demand for nursing services worldwide, the onus is on healthcare systems to implement measures to improve retention. The DAISY Award was designed to celebrate nursing with the suggestion that it may improve staff retention.
    Aim: To describe the experience and impact of winning the DAISY Award.
    Method: Data were collected through virtual semistructured interviews from award winners (
    Findings: Four major themes emerged from the responses: awareness of the DAISY Award; the nomination process, the impact on retention and winner benefits.
    Conclusion: Being nominated or winning a DAISY Award had a positive impact on nurses' feelings towards their role. This was a small evaluation in a single organisation, so the value of adopting the DAISY Award for recognising nurses' contributions to patient care merits further investigation, especially with regards to its effects on retention.
    MeSH term(s) Humans ; Awards and Prizes ; Immune System
    Language English
    Publishing date 2022-10-28
    Publishing country England
    Document type Journal Article
    ZDB-ID 1119191-0
    ISSN 0966-0461
    ISSN 0966-0461
    DOI 10.12968/bjon.2022.31.19.976
    Database MEDical Literature Analysis and Retrieval System OnLINE

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