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Article ; Online: Centering patients with advanced cancer includes supporting their caregivers.

Kent, Erin E

Journal of the National Cancer Institute

2023 Volume 115, Issue 8, Page(s) 881–882

MeSH term(s)	Humans ; Caregivers ; Neoplasms/therapy
Language	English
Publishing date	2023-07-03
Publishing country	United States
Document type	Journal Article ; Comment
ZDB-ID	2992-0
ISSN	1460-2105 ; 0027-8874 ; 0198-0157
ISSN (online)	1460-2105
ISSN	0027-8874 ; 0198-0157
DOI	10.1093/jnci/djad110
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Article ; Online: Time to Recognize and Support Emerging Adult Caregivers in Public Health.

Kent, Erin E

American journal of public health

2020 Volume 110, Issue 12, Page(s) 1720–1721

MeSH term(s)	Adult ; Caregivers ; Drinking Behavior ; Humans ; Public Health ; Smoking ; Social Support ; United States
Language	English
Publishing date	2020-11-11
Publishing country	United States
Document type	Editorial ; Comment
ZDB-ID	121100-6
ISSN	1541-0048 ; 0090-0036 ; 0002-9572
ISSN (online)	1541-0048
ISSN	0090-0036 ; 0002-9572
DOI	10.2105/AJPH.2020.305951
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Article: An Environmental Scan and Qualitative Inquiry of Cancer Patient Navigation Services in North Carolina.

Fathi, Leila / Umble, Karl / Waters, Austin R / Kent, Erin E

Research square

2024

Abstract: Background and objectives: Patient navigation services reduce barriers to accessing cancer care and lead to improved outcomes for patients. North Carolina (NC) has thousands of cancer patients seeking cancer care services each year. We sought to ... ...

Abstract	Background and objectives: Patient navigation services reduce barriers to accessing cancer care and lead to improved outcomes for patients. North Carolina (NC) has thousands of cancer patients seeking cancer care services each year. We sought to complete a digital environmental scan and qualitative inquiry of cancer patient navigation services throughout the state to better inform patients, hospitals administrators, and state officials about the current state of patient navigation programs for cancer patients throughout NC. Methods: For seven cancer hospitals in NC, two steps were used: an environmental scan of publicly available information on the hospitals' websites about navigation services, and key informant interviews with navigation staff at each site. Results: The website scans revealed information about navigation services was incomplete. Each hospital had a page dedicated to cancer navigation, but many did not outline the specific services available to patients. Interviews revealed that navigation services are available to cancer patients across diagnoses, although only a subset of patients receive services. Cancer navigators reported that their work includes care coordination, patient advocacy, emotional support, and addressing non-medical barriers to health care access (transportation, finances, childcare, etc.). Each navigation service had a unique configuration and referral pattern. Conclusions: Cancer hospitals throughout NC are working to address barriers to care commonly faced by patients, with some programs offering more robust services compared to others. Hospitals would benefit from updating their websites at regular intervals to fully report the services available to patients through their programs, including direct and clear patient navigation contact methods.
Language	English
Publishing date	2024-04-12
Publishing country	United States
Document type	Preprint
DOI	10.21203/rs.3.rs-4189013/v1
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Article ; Online: Gender differences in the association between unmet support service needs and mental health among American cancer caregivers.

Qian, Yiqing / Kent, Erin E

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

2022 Volume 30, Issue 6, Page(s) 5469–5480

Abstract: Purpose: Cancer caregiving can be distressing, and many caregivers have support service needs. Given the role gender has played in shaping norms around caring, gender may influence caregiving experiences. Using Behavioral Risk Factor Surveillance System ...

Abstract	Purpose: Cancer caregiving can be distressing, and many caregivers have support service needs. Given the role gender has played in shaping norms around caring, gender may influence caregiving experiences. Using Behavioral Risk Factor Surveillance System data, 2015-2018, we aimed to examine gender as an effect modifier of the unmet support service needs and mental health association among cancer caregivers. Methods: Our n = 5814 sample represented approximately 4.8 million caregivers. Mental health was operationalized as number of mentally unhealthy days over the past 30 (MUDs) and Frequent Mental Distress (FMD, MUDs ± 14 days). Unmet supportive care needs included endorsement of needing but not receiving caregiving classes, help accessing services, support groups, counseling, and respite care. We conducted zero-inflated negative binomial (ZINB) and logistic regression analyses to examine the associations between unmet needs with MUDs and FMD and then tested gender as an effect modifier. Results: Cancer caregivers reported an average of 6 MUDs. Approximately 20% of caregivers reported FMD, and 17% reported having any unmet needs. Gender moderated the unmet needs and FMD association. Among female caregivers, those with unmet needs were more likely to report FMD (aOR: 2.167; 95%CI: 1.447, 3.243); among male caregivers, no association was found (aOR: 0.970; 95%CI: 0.471, 2.001). In the ZINB model of MUDs, no significant moderation effect of gender was found. Conclusion: Though distress does not appear to vary by gender, having unmet support needs may negatively affect mental health in female cancer caregivers. Studies on gendered experiences can inform strategies to meet caregiver needs.
MeSH term(s)	Caregivers/psychology ; Female ; Health Services Needs and Demand ; Humans ; Male ; Mental Health ; Neoplasms/therapy ; Sex Factors ; Social Support ; United States
Language	English
Publishing date	2022-03-19
Publishing country	Germany
Document type	Journal Article
ZDB-ID	1134446-5
ISSN	1433-7339 ; 0941-4355
ISSN (online)	1433-7339
ISSN	0941-4355
DOI	10.1007/s00520-022-06966-y
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Article ; Online: Neuroanatomical asymmetry in the canine brain.

Barton, Sophie A / Kent, Marc / Hecht, Erin E

Brain structure & function

2023 Volume 228, Issue 7, Page(s) 1657–1669

Abstract: The brains of humans and non-human primates exhibit left/right asymmetries in grey matter morphology, white matter connections, and functional responses. These asymmetries have been implicated in specialized behavioral adaptations such as language, tool ... ...

Abstract	The brains of humans and non-human primates exhibit left/right asymmetries in grey matter morphology, white matter connections, and functional responses. These asymmetries have been implicated in specialized behavioral adaptations such as language, tool use, and handedness. Left/right asymmetries are also observed in behavioral tendencies across the animal kingdom, suggesting a deep evolutionary origin for the neural mechanisms underlying lateralized behavior. However, it is still unclear to what extent brain asymmetries supporting lateralized behaviors are present in other large-brained animals outside the primate order. Canids and other carnivorans evolved large, complex brains independently and convergently with primates, and exhibit lateralized behaviors. Therefore, domestic dogs offer an opportunity to address this question. We examined T2-weighted MRI images of 62 dogs from 33 breeds, opportunistically collected from a veterinary MRI scanner from dogs who were referred for neurological examination but were not found to show any neuropathology. Volumetrically asymmetric regions of gray matter included portions of the temporal and frontal cortex, in addition to portions of the cerebellum, brainstem, and other subcortical regions. These results are consistent with the perspective that asymmetry may be a common feature underlying the evolution of complex brains and behavior across clades, and provide neuro-organizational information that is likely relevant to the growing field of canine behavioral neuroscience.
MeSH term(s)	Dogs ; Animals ; Brain/physiology ; Gray Matter/diagnostic imaging ; Gray Matter/anatomy & histology ; Cerebral Cortex ; Brain Mapping ; Primates ; Magnetic Resonance Imaging ; Functional Laterality/physiology
Language	English
Publishing date	2023-07-12
Publishing country	Germany
Document type	Journal Article
ZDB-ID	2273162-3
ISSN	1863-2661 ; 1863-2653
ISSN (online)	1863-2661
ISSN	1863-2653
DOI	10.1007/s00429-023-02677-0
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Article ; Online: Caregiver Education and Training: Learning Preferences of Informal Caregivers of Adult Care Recipients.

Mollica, Michelle A / Kent, Erin E

Clinical journal of oncology nursing

2021 Volume 25, Issue 4, Page(s) 483–487

Abstract: Oncology nurses play a key role in supporting caregivers through education and training in both inpatient and outpatient settings. This article describes the learning preferences of informal caregivers of adult care recipients. Caregiver respondents ... ...

Abstract	Oncology nurses play a key role in supporting caregivers through education and training in both inpatient and outpatient settings. This article describes the learning preferences of informal caregivers of adult care recipients. Caregiver respondents preferred multiple training methods, with most endorsing in-person instruction, online video instruction, and reading materials.
MeSH term(s)	Adult ; Caregivers ; Health Education ; Humans ; Inpatients
Language	English
Publishing date	2021-07-16
Publishing country	United States
Document type	Journal Article
ZDB-ID	2014665-6
ISSN	1538-067X ; 1092-1095
ISSN (online)	1538-067X
ISSN	1092-1095
DOI	10.1188/21.CJON.483-487
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Zs.A 5229: Show issues			Location: Je nach Verfügbarkeit (siehe Angabe bei Bestand) bis Jg. 1994: Bestellungen von Artikeln über das Online-Bestellformular Jg. 1995 - 2021: Lesesall (2.OG) ab Jg. 2022: Lesesaal (EG)
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Article ; Online: Associations Among Family Caregivers' Perceptions of Loneliness, Choice, and Purpose: a Comparative Analysis Between Non-Hispanic Black Caregivers and Non-Hispanic White Caregivers in a Population-Based Sample.

Qian, Yiqing / Matthews, Derrick D / Fisher, Edwin B / Muessig, Kathryn E / Song, Lixin / Kent, Erin E

International journal of behavioral medicine

2024

Abstract: ... e.g., hour of caregiving) and sociodemographic characteristics (e.g., age and education).: Results ...

Abstract	Background: Loneliness is a frequent experience among family members engaging in caregiving responsibilities and may vary across racial and ethnic groups. This study aimed to examine (a) the difference in loneliness between non-Hispanic Black and non-Hispanic White caregivers, (b) the associations between loneliness and perceptions of choice and purpose in caregiving, and (c) whether those associations with loneliness differ by caregivers' race. Method: Descriptive statistics and ordinal logistic regression were conducted in a population-based sample of 1000 caregivers (Black caregivers, n = 199; White caregivers, n = 801) from the 2020 Caregiving in the U.S. Study: The survey design was properly addressed. Key variables included loneliness (level of feeling alone about being a caregiver), choice (whether or not reporting a choice in taking on the caregiver responsibility), sense of purpose (level of purpose/meaning in life from caregiving), and race (Black/White). Models adjusted for caregiving characteristics (e.g., hour of caregiving) and sociodemographic characteristics (e.g., age and education). Results: Black caregivers had lower odds of reporting a higher level vs. a lower level of loneliness than White caregivers (aOR = 0.67, 95%CI = 0.47, 0.96). Reporting having no choice was associated with higher odds of a higher level of loneliness (aOR, 0.77, 95%CI = 0.67, 0.88). Higher sense of purpose scores were associated with lower odds of a higher level of loneliness (aOR = 0.81, 95%CI = 0.71, 0.93). No significant moderation effects of race were found. Conclusion: Black caregivers reported lower loneliness scores than White caregivers. Reporting no choice and lower sense of purpose were associated with higher loneliness in both racial groups.
Language	English
Publishing date	2024-01-23
Publishing country	England
Document type	Journal Article
ZDB-ID	1187972-5
ISSN	1532-7558 ; 1070-5503
ISSN (online)	1532-7558
ISSN	1070-5503
DOI	10.1007/s12529-023-10246-2
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Article ; Online: Reply to M. Ishida et al.

Applebaum, Allison J / Kent, Erin E / Lichtenthal, Wendy G

Journal of clinical oncology : official journal of the American Society of Clinical Oncology

2021 Volume 39, Issue 28, Page(s) 3188–3189

Language	English
Publishing date	2021-08-02
Publishing country	United States
Document type	Research Support, N.I.H., Extramural ; Letter ; Comment
ZDB-ID	604914-x
ISSN	1527-7755 ; 0732-183X
ISSN (online)	1527-7755
ISSN	0732-183X
DOI	10.1200/JCO.21.01618
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Zs.A 1847: Show issues			Location: Je nach Verfügbarkeit (siehe Angabe bei Bestand) bis Jg. 1994: Bestellungen von Artikeln über das Online-Bestellformular Jg. 1995 - 2021: Lesesall (1.OG) ab Jg. 2022: Lesesaal (EG)
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Article ; Online: The impact of employment loss on mentally unhealthy days among LGBTQ+ cancer survivors during the COVID-19 pandemic: Findings from the OUT National Survey.

Waters, Austin R / Lyerly, Reece / Scout, N F N / Kent, Erin E

Psycho-oncology

2023 Volume 32, Issue 10, Page(s) 1586–1597

Abstract: Objective: Lesbian, Gay, Bisexual, Transgender, Queer, and all other sexual and gender minority (LGBTQ+) populations made up 7.1% of the US population in 2021. LGBTQ+ cancer survivors face a variety of economic and mental health disparities; however, ... ...

Abstract	Objective: Lesbian, Gay, Bisexual, Transgender, Queer, and all other sexual and gender minority (LGBTQ+) populations made up 7.1% of the US population in 2021. LGBTQ+ cancer survivors face a variety of economic and mental health disparities; however, the determinants of poor mental health among LGBTQ+ cancer survivors are understudied. Methods: This analysis utilized the OUT National Survey which consists of N = 2233 LGBTQ+ cancer survivors (complete cases). Multivariable negative binomial and logit regression models were used to generate predicted values, predicted probabilities, and average marginal effects (AME) to assess the association between COVID-19 related employment loss and mentally unhealthy days (MUDs) and frequent mental distress among LGBTQ+ cancer survivors. Predicted values and marginal effects were generated with interaction terms (demographics interacted with employment loss) to explore the heterogeneity of the effect of employment loss among LGBTQ+ sub-populations. Results: In bivariate analyses employment loss was associated with a higher number of MUDs (10.3, SD = 9.9 vs. 8.4, SD = 9.6; p-value<0.001) and frequent mental distress (34% vs. 26%; p-value = 0.001). AME from a multivariable negative binomial model revealed that employment loss was associated with 1.42 more MUDs (95%CI: 0.33-2.86). Demographic factors such as some sexual orientations, cis-female and non-binary gender, younger age, and a current cancer diagnosis were also associated with significant expected increases in the number of MUDs. When assessing the heterogeneity of the effect of employment loss some sub-populations experienced changes in the number of MUDs that pushed them over the threshold of frequent mental distress while others did not. Furthermore, identifying with multiple sexual orientations (AME: 0.19, 95%CI: 0.11-0.27), cis-female and non-binary genders (AME: 0.07, 95%CI: 0.2-0.12; AME: 0.18, 95%CI: 0.07-0.28), American Indian and Alaska Native race (AME: 0.17, 95%CI: 0.03-0.31), and a current cancer diagnosis (AME: 0.14, 95%CI: 0.09-0.19) were associated with an increase in the probability of experiencing frequent mental distress. Conclusions: COVID-19 related employment loss negatively impacted the mental health of LGBTQ+ cancer survivors. LGBTQ+ specific supportive services as well as equity-based employment and income interventions are needed.
Language	English
Publishing date	2023-09-13
Publishing country	England
Document type	Journal Article
ZDB-ID	1118536-3
ISSN	1099-1611 ; 1057-9249
ISSN (online)	1099-1611
ISSN	1057-9249
DOI	10.1002/pon.6210
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Article ; Online: "If I wasn't in a rural area, I would definitely have more support": social needs identified by rural cancer caregivers and hospital staff.

Kent, Erin E / Lee, Sejin / Asad, Sarah / Dobbins, Erin E / Aimone, Elizabeth V / Park, Eliza M

Journal of psychosocial oncology

2022 Volume 41, Issue 4, Page(s) 393–410

Abstract: Background: The social needs of rural families facing cancer warrant investigation to inform psychosocial care planning and policy development.: Methods: Using purposive sampling, we interviewed 24 rural caregivers and 17 hospital staff from an ... ...

Abstract	Background: The social needs of rural families facing cancer warrant investigation to inform psychosocial care planning and policy development. Methods: Using purposive sampling, we interviewed 24 rural caregivers and 17 hospital staff from an academic cancer center in the U.S. South. Social needs were defined as the support needed to effectively provide informal caregiving across economic, physical, interpersonal, and service domains. We used the framework method to code and synthesize findings. Findings: Caregiver economic and physical needs were interconnected and most pressing, including common examples of distance to care and transportation barriers. Caregivers desired additional support from the health system, insurance providers, and community resources. Staff identified similar need patterns and gaps in health system capacity. Conclusions: Rural cancer caregivers experience multiple unmet social needs. Supportive interventions for this population will benefit from flexible implementation and multilevel, multisector approaches. In particular, interventions that address financial hardship and limited internet access are needed.
MeSH term(s)	Humans ; Caregivers ; Neoplasms/therapy ; Personnel, Hospital ; Research Design ; Social Support ; Rural Population
Language	English
Publishing date	2022-10-10
Publishing country	United States
Document type	Journal Article
ZDB-ID	605892-9
ISSN	1540-7586 ; 0734-7332
ISSN (online)	1540-7586
ISSN	0734-7332
DOI	10.1080/07347332.2022.2129547
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