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  1. Book: Risky genes

    Mozersky, Jessica

    genetics, breast cancer, and Jewish identity

    (Genetics and society)

    2013  

    Author's details Jessica Mozersky
    Series title Genetics and society
    Keywords Breast/Cancer/Risk factors ; Cancer/Risk factors ; Jewish women/Health risk assessment ; Women/Health risk assessment
    Language English
    Size XII, 163 S.
    Publisher Routledge
    Publishing place London u.a.
    Publishing country Great Britain
    Document type Book
    Note Includes bibliographical references and index ; Introduction -- Setting the scene: Ashkenazi Jews and genetic disease -- The "Ashkenazi BRCA mutations" -- Re-thinking the consequences of medical genetic research -- On being Jewish -- History, memory and the BRCA genes -- Future generations -- Conclusion
    HBZ-ID HT017202184
    ISBN 978-0-415-50228-3 ; 9780203102572 ; 0-415-50228-4 ; 0203102576
    Database Catalogue ZB MED Medicine, Health

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    In stock of ZB MED Cologne/Königswinter

    Shelf markLoan statusLocation
    2012 A 3407 order for loan Magazin

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  2. Book ; Online: Chapter Mapping Jewish Identities : Migratory Histories and the Transnational Re-Framing of 'Ashkenazi BRCA Mutations' in the UK and Brazil

    Mozersky, Jessica / Gibbon, Sahra

    2014  

    Keywords Society & culture: general ; Social & cultural anthropology, ethnography ; Sociology ; brca ; breast cancer ; comparison ; research ; UK ; Brazil
    Size 1 Online-Ressource
    Publisher Taylor and Francis
    Document type Book ; Online
    Note English ; Open Access
    HBZ-ID HT021048260
    Database ZB MED Catalogue: Medicine, Health, Nutrition, Environment, Agriculture

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  3. Article ; Online: Should Researchers Destroy Audio or Video Recordings?

    Resnik, David B / Antes, Alison / Mozersky, Jessica

    Ethics & human research

    2024  Volume 46, Issue 2, Page(s) 30–35

    Abstract: It is a common practice in qualitative research to transcribe audio or video files from interviews or focus groups and then destroy the files at some future time, usually after validating the transcript or concluding the research. We argue that it is ... ...

    Abstract It is a common practice in qualitative research to transcribe audio or video files from interviews or focus groups and then destroy the files at some future time, usually after validating the transcript or concluding the research. We argue that it is time to rethink this practice and that retention of original qualitative data-including audio and video recordings-should be the default stance in most cases.
    MeSH term(s) Humans ; Research Personnel ; Video Recording ; Focus Groups ; Qualitative Research ; Records
    Language English
    Publishing date 2024-02-22
    Publishing country United States
    Document type Journal Article
    ISSN 2578-2363
    ISSN (online) 2578-2363
    DOI 10.1002/eahr.500205
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  4. Article ; Online: Living with Alzheimer Disease and Other Types of Dementia: Stories from Caregivers.

    Mozersky, Jessica / Davis, Dena S

    Narrative inquiry in bioethics

    2021  Volume 10, Issue 2, Page(s) 89–93

    Abstract: This symposium includes twelve personal narratives from people who have provided care to a spouse, parent, another relative, or friend with Alzheimer disease or related dementias (ADRD). People with ADRDs often face years of cognitive decline with memory ...

    Abstract This symposium includes twelve personal narratives from people who have provided care to a spouse, parent, another relative, or friend with Alzheimer disease or related dementias (ADRD). People with ADRDs often face years of cognitive decline with memory and thinking that eventually require help from others to assist with their daily activities. Most people caring for older adults in the US are unpaid family members, friends, or other informal caregivers. People providing care often experience emotional and physical stress, or financial burdens. This symposium also includes three commentaries by experts in the fields of bioethics and philosophy, justice in healthcare, family caregiving, and end of life choices. These narratives provide a forum for exploring caregiver needs, suffering, benefits, and joys, as well as opportunities to improve the way we support caregivers and people with dementia and Alzheimer disease.
    Language English
    Publishing date 2021-01-08
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2632728-4
    ISSN 2157-1740 ; 2157-1732
    ISSN (online) 2157-1740
    ISSN 2157-1732
    DOI 10.1353/nib.2020.0028
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  5. Article: A Content Analysis of 100 Qualitative Health Research Articles to Examine Researcher-Participant Relationships and Implications for Data Sharing.

    Mozersky, Jessica / Friedrich, Annie B / DuBois, James M

    International journal of qualitative methods

    2022  Volume 21

    Abstract: We conducted a qualitative content analysis of health science literature ( ...

    Abstract We conducted a qualitative content analysis of health science literature (
    Language English
    Publishing date 2022-05-31
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2135788-2
    ISSN 1609-4069
    ISSN 1609-4069
    DOI 10.1177/16094069221105074
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  6. Book ; Online: Breast Cancer Gene Research and Medical Practices : Transnational Perspectives in the Time of BRCA

    Gibbon, Sahra / Joseph, Galen / Mozersky, Jessica / zur Nieden, Andrea / Palfner, Sonja

    2014  

    Keywords Society & culture: general ; Social & cultural anthropology, ethnography ; Sociology ; Society and culture: general ; Social and cultural anthropology
    Size 1 electronic resource (248 pages)
    Document type Book ; Online
    Note English ; Open Access
    HBZ-ID HT021050832
    ISBN 9780203385517 ; 0203385519
    Database ZB MED Catalogue: Medicine, Health, Nutrition, Environment, Agriculture

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  7. Article ; Online: What's the Role of Time in Shared Decision Making?

    Yahanda, Alexander T / Mozersky, Jessica

    AMA journal of ethics

    2020  Volume 22, Issue 5, Page(s) E416–422

    Abstract: Shared decision making (SDM) is a desirable process and outcome of patient-clinician relationships. Ideally, patients and clinicians have sufficient time to engage in SDM. In reality, time is often insufficient. This article explores time as a barrier to ...

    Abstract Shared decision making (SDM) is a desirable process and outcome of patient-clinician relationships. Ideally, patients and clinicians have sufficient time to engage in SDM. In reality, time is often insufficient. This article explores time as a barrier to SDM, alternative ways clinicians can think about time, and steps they can take to have fulfilling SDM interactions despite time constraints. Although discussions of time typically focus on time quantity, redirecting attention to the ethical significance of time in establishing patient-clinician relationships suggests the importance of also considering time quality.
    MeSH term(s) Decision Making ; Decision Making, Shared ; Humans ; Patient Participation
    Language English
    Publishing date 2020-05-01
    Publishing country United States
    Document type Journal Article
    ISSN 2376-6980
    ISSN (online) 2376-6980
    DOI 10.1001/amajethics.2020.416
    Database MEDical Literature Analysis and Retrieval System OnLINE

    Full text online

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    Inter-library loan at ZB MED

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  8. Article ; Online: Potentially Identifying Variables Reported in 100 Qualitative Health Research Articles

    Annie B. Friedrich / Jessica Mozersky / James M. DuBois

    Forum: Qualitative Social Research, Vol 24, Iss

    Implications for Data Sharing and Secondary Analysis

    2023  Volume 2

    Abstract: There is a growing trend in social science research to share qualitative data in a repository for others to access. However, some researchers are reticent to share qualitative data. One major concern is how to de-identify qualitative data while ... ...

    Abstract There is a growing trend in social science research to share qualitative data in a repository for others to access. However, some researchers are reticent to share qualitative data. One major concern is how to de-identify qualitative data while maintaining adequate contextual detail to allow secondary users to meaningfully interpret de-identified data. To help inform discussions regarding qualitative data sharing, we reviewed 100 qualitative health science studies to determine what potentially identifying variables (PIVs) are reported in the published literature. There are relatively few PIVs reported in each qualitative study; the majority of studies (n=64) reported two or fewer PIVs. The most commonly reported PIVs were profession, sex or gender, and age. Our findings can help guide de-identification efforts going forward as presumably the PIVs that are most commonly reported provide essential contextual details that will also be needed by secondary users, while PIVs that are rarely reported may not provide essential contextual information for interpretation of data. This suggests it is possible to share qualitative data that are both de-identified and useful for secondary analysis. As data are shared, we recommend researchers mask study sites, as these may uniquely increase the chance of re-identification.
    Keywords qualitative data sharing ; health sciences ; secondary analysis ; potentially identifying variables ; de-identification ; Social sciences (General) ; H1-99
    Subject code 306 ; 360
    Language German
    Publishing date 2023-05-01T00:00:00Z
    Publisher FQS
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

    Full text online

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  9. Article ; Online: Exchanging words: Engaging the challenges of sharing qualitative research data.

    DuBois, James M / Mozersky, Jessica / Parsons, Meredith / Walsh, Heidi A / Friedrich, Annie / Pienta, Amy

    Proceedings of the National Academy of Sciences of the United States of America

    2023  Volume 120, Issue 43, Page(s) e2206981120

    Abstract: In January 2023, a new NIH policy on data sharing went into effect. The policy applies to both quantitative and qualitative research (QR) data such as data from interviews or focus groups. QR data are often sensitive and difficult to deidentify, and thus ...

    Abstract In January 2023, a new NIH policy on data sharing went into effect. The policy applies to both quantitative and qualitative research (QR) data such as data from interviews or focus groups. QR data are often sensitive and difficult to deidentify, and thus have rarely been shared in the United States. Over the past 5 y, our research team has engaged stakeholders on QR data sharing, developed software to support data deidentification, produced guidance, and collaborated with the ICPSR data repository to pilot the deposit of 30 QR datasets. In this perspective article, we share important lessons learned by addressing eight clusters of questions on issues such as where, when, and what to share; how to deidentify data and support high-quality secondary use; budgeting for data sharing; and the permissions needed to share data. We also offer a brief assessment of the state of preparedness of data repositories, QR journals, and QR textbooks to support data sharing. While QR data sharing could yield important benefits to the research community, we quickly need to develop enforceable standards, expertise, and resources to support responsible QR data sharing. Absent these resources, we risk violating participant confidentiality and wasting a significant amount of time and funding on data that are not useful for either secondary use or data transparency and verification.
    Language English
    Publishing date 2023-10-13
    Publishing country United States
    Document type Journal Article
    ZDB-ID 209104-5
    ISSN 1091-6490 ; 0027-8424
    ISSN (online) 1091-6490
    ISSN 0027-8424
    DOI 10.1073/pnas.2206981120
    Database MEDical Literature Analysis and Retrieval System OnLINE

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    In stock of ZB MED Cologne/Königswinter

    Zs.A 1148: Show issues Location:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
    bis Jg. 1994: Bestellungen von Artikeln über das Online-Bestellformular
    Jg. 1995 - 2021: Lesesall (1.OG)
    ab Jg. 2022: Lesesaal (EG)

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  10. Article ; Online: Corrigendum to: Enabling qualitative research data sharing using a natural language processing pipeline for deidentification: moving beyond HIPAA Safe Harbor identifiers.

    Gupta, Aditi / Lai, Albert / Mozersky, Jessica / Ma, Xiaoteng / Walsh, Heidi / DuBois, James M

    JAMIA open

    2022  Volume 5, Issue 1, Page(s) ooab108

    Abstract: This corrects the article DOI: 10.1093/jamiaopen/ooab069.]. ...

    Abstract [This corrects the article DOI: 10.1093/jamiaopen/ooab069.].
    Language English
    Publishing date 2022-01-19
    Publishing country United States
    Document type Published Erratum
    ISSN 2574-2531
    ISSN (online) 2574-2531
    DOI 10.1093/jamiaopen/ooab108
    Database MEDical Literature Analysis and Retrieval System OnLINE

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