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  1. Book ; Online ; E-Book: Health inequity experienced by Australian paediatric patients

    Xafis, Vicki

    empirical analyses of case reports

    2021  

    Abstract: This book provides rare insight into how real children/adolescents' lives unfold as a result of health inequity. The authors present the findings of empirical research into the health and social circumstances of 61 Australian children/adolescents, as ... ...

    Author's details Vicki Xafis, Amireh Fakhouri, Kathryn Currow, Stephen Brancatisano, Wendy Bryan-Clothier
    Abstract This book provides rare insight into how real children/adolescents' lives unfold as a result of health inequity. The authors present the findings of empirical research into the health and social circumstances of 61 Australian children/adolescents, as reported by healthcare professionals who attended to their medical needs, revealing how healthcare professionals deal with health inequity on the ground.
    Keywords Child health services/Regional disparities ; Pediatrics
    Subject code 618.9200994
    Language English
    Size 1 online resource (171 pages)
    Publisher Springer
    Publishing place Gateway East, Singapore
    Document type Book ; Online ; E-Book
    Remark Zugriff für angemeldete ZB MED-Nutzerinnen und -Nutzer
    ISBN 981-16-3338-X ; 981-16-3337-1 ; 978-981-16-3338-6 ; 978-981-16-3337-9
    Database ZB MED Catalogue: Medicine, Health, Nutrition, Environment, Agriculture

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  2. Article ; Online: 'What is Inconvenient for You is Life-saving for Me': How Health Inequities are playing out during the COVID-19 Pandemic.

    Xafis, Vicki

    Asian bioethics review

    2020  Volume 12, Issue 2, Page(s) 223–234

    Abstract: The COVID-19 pandemic has had a significant impact globally. Most affected, however, are those individuals and groups routinely disadvantaged by the social injustice created by the misdistribution of power, money, and resources. Simple measures that ... ...

    Abstract The COVID-19 pandemic has had a significant impact globally. Most affected, however, are those individuals and groups routinely disadvantaged by the social injustice created by the misdistribution of power, money, and resources. Simple measures that prevent the spread of COVID-19, such as frequent hand washing and social distancing, are unavailable to millions of people in the wealthiest of nations and in the poorest of nations. Disadvantaged groups are impacted more directly and in disproportionately higher numbers due to existing poor health, and the disruption of services central to securing an income and an education will have lasting consequences for their futures. The unintended effect of exclusionary government policies is that privileged citizens and healthcare systems are also at greater risk. This paper seeks to highlight the impact of COVID-19 on those already suffering health inequities through consideration of some of the social determinants of health on groups in affluent and poorer nations. It also highlights some of the factors that may assist in tackling health inequities as we emerge from this pandemic.
    Keywords covid19
    Language English
    Publishing date 2020-05-16
    Publishing country England
    Document type Journal Article
    ZDB-ID 2602378-7
    ISSN 1793-9453 ; 1793-8759
    ISSN (online) 1793-9453
    ISSN 1793-8759
    DOI 10.1007/s41649-020-00119-1
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article ; Online: ‘What is Inconvenient for You is Life-saving for Me’

    Xafis, Vicki

    Asian Bioethics Review

    How Health Inequities are playing out during the COVID-19 Pandemic

    2020  Volume 12, Issue 2, Page(s) 223–234

    Keywords Philosophy ; Health Policy ; Health(social science) ; covid19
    Language English
    Publisher Springer Science and Business Media LLC
    Publishing country us
    Document type Article ; Online
    ZDB-ID 2602378-7
    ISSN 1793-9453 ; 1793-8759
    ISSN (online) 1793-9453
    ISSN 1793-8759
    DOI 10.1007/s41649-020-00119-1
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  4. Article: 'What is Inconvenient for You is Life-saving for Me': How Health Inequities are playing out during the COVID-19 Pandemic

    Xafis, Vicki

    Asian Bioeth Rev

    Abstract: The COVID-19 pandemic has had a significant impact globally. Most affected, however, are those individuals and groups routinely disadvantaged by the social injustice created by the misdistribution of power, money, and resources. Simple measures that ... ...

    Abstract The COVID-19 pandemic has had a significant impact globally. Most affected, however, are those individuals and groups routinely disadvantaged by the social injustice created by the misdistribution of power, money, and resources. Simple measures that prevent the spread of COVID-19, such as frequent hand washing and social distancing, are unavailable to millions of people in the wealthiest of nations and in the poorest of nations. Disadvantaged groups are impacted more directly and in disproportionately higher numbers due to existing poor health, and the disruption of services central to securing an income and an education will have lasting consequences for their futures. The unintended effect of exclusionary government policies is that privileged citizens and healthcare systems are also at greater risk. This paper seeks to highlight the impact of COVID-19 on those already suffering health inequities through consideration of some of the social determinants of health on groups in affluent and poorer nations. It also highlights some of the factors that may assist in tackling health inequities as we emerge from this pandemic.
    Keywords covid19
    Publisher WHO
    Document type Article
    Note WHO #Covidence: #276164
    Database COVID19

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  5. Article ; Online: Why respecting all human beings' privacy matters.

    Xafis, Vicki

    Journal of paediatrics and child health

    2016  Volume 52, Issue 3, Page(s) 256–257

    MeSH term(s) Adolescent ; Child ; Child, Preschool ; Confidentiality/ethics ; Female ; Human Rights ; Humans ; Male ; New South Wales ; Privacy/psychology ; Quality of Life
    Language English
    Publishing date 2016-03
    Publishing country Australia
    Document type Journal Article
    ZDB-ID 1024476-1
    ISSN 1440-1754 ; 1034-4810
    ISSN (online) 1440-1754
    ISSN 1034-4810
    DOI 10.1111/jpc.13144
    Database MEDical Literature Analysis and Retrieval System OnLINE

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    In stock of ZB MED Cologne/Königswinter

    Zs.A 227: Show issues Location:
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  6. Article ; Online: Exploring ethical challenges in Singapore physiotherapy practice

    Audrey Lim / Vicki Xafis / Clare Delany

    The Asia Pacific Scholar, Vol 8, Iss 1, Pp 13-

    Implications for ethics education

    2023  Volume 24

    Abstract: Introduction: Workplace contexts, including political and sociocultural systems influence health professions’ perception and experience of ethical issues. Although established health ethics principles are relevant guiding values, they may be experienced ... ...

    Abstract Introduction: Workplace contexts, including political and sociocultural systems influence health professions’ perception and experience of ethical issues. Although established health ethics principles are relevant guiding values, they may be experienced and interpreted differently within different health contexts. How should ethics education account for this? This paper presents ethical dilemmas and concerns encountered by physiotherapists practicing in Singapore and discusses the implications for ethics education. Methods: Qualitative methods informed by interpretivism and phenomenology were employed. In-depth interviews with 42 physiotherapists from different workplace settings in Singapore were conducted. Participants described everyday ethical challenges they encountered. Inductive content analysis was used to analyse the interview transcript data. Results: Ethical issues occurred within and across three spheres of ethics: micro, meso and macro. Ethical issues at the micro sphere centered around physiotherapist-patient relationships, interactions with colleagues, and therapists’ feelings of moral distress. In the meso sphere, ethical challenges related to influences arising from the organizational resources or systems. In the macro sphere, ethical challenges developed or were influenced by sociocultural, religious, economic, and political factors. Conclusion: The findings reflect current literature indicating that context can influence ethical situations, as experienced and perceived by physiotherapists in their unique settings. Such empirical data might inform the development of ethics curricula to ensure that universal ethical principles are situated within the realities of clinical practice. Locally relevant and realistic ethical case studies will better enable students to recognise and address these situations.
    Keywords ethics ; physiotherapy ; health professions education ; ethics education ; asian context ; singapore ; healthcare principles ; health ethics principles ; Education (General) ; L7-991 ; Medicine (General) ; R5-920
    Subject code 170
    Language English
    Publishing date 2023-01-01T00:00:00Z
    Publisher National University of Singapore
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  7. Article ; Online: The acceptability of conducting data linkage research without obtaining consent: lay people's views and justifications.

    Xafis, Vicki

    BMC medical ethics

    2015  Volume 16, Issue 1, Page(s) 79

    Abstract: Background: A key ethical issue arising in data linkage research relates to consent requirements. Patients' consent preferences in the context of health research have been explored but their consent preferences regarding data linkage specifically have ... ...

    Abstract Background: A key ethical issue arising in data linkage research relates to consent requirements. Patients' consent preferences in the context of health research have been explored but their consent preferences regarding data linkage specifically have been under-explored. In addition, the views on data linkage are often those of patient groups. As a result, little is known about lay people's views and their preferences about consent requirements in the context of data linkage. This study explores lay people's views and justifications regarding the acceptability of conducting data linkage research without obtaining consent.
    Methods: A qualitative study explored lay people's views regarding consent requirements in data linkage via four hypothetical data linkage scenarios of increasing complexity. Prior to considering the scenarios, participants were provided with information regarding best practice data linkage processes via discussion and a diagrammatic representation of the process.
    Results: Lay people were able to understand the intricate processes involved in data linkage and the key protections afforded within a short amount of time. They were supportive of data linkage research and, on the whole, believed it should be conducted without consent provided a data linkage organization de-identifies the data used so that researchers do not handle identifiable data. Many thought that de-identified data holds a different status to identifiable data and should be used without specific consent in research that aims to benefit society. In weighing up conflicting values and interests, participants shifted consent preferences before arriving at their final consent preference for each scenario and provided justifications for their choices. They considered the protection of people's information, societal benefits, and the nature and constraints of research and recognized that these need to be balanced.
    Conclusions: With some exposure to the features of data linkage, lay people have the capacity to understand the processes sufficiently in order to consider ethical issues associated with consent preferences. Shifts in views reveal the complexity of such decisions. While privacy protection remained an important consideration for most participants, adequate protection measures adopted in best practice data linkage were viewed by most as protection enough for data linkage to proceed without specific individual consent.
    MeSH term(s) Adult ; Comprehension ; Confidentiality/ethics ; Electronic Health Records/ethics ; Humans ; Information Dissemination/ethics ; Information Storage and Retrieval/ethics ; Informed Consent/ethics ; Patient Satisfaction/statistics & numerical data ; Qualitative Research ; Research Design ; Research Personnel
    Language English
    Publishing date 2015-11-17
    Publishing country England
    Document type Journal Article ; Research Support, Non-U.S. Gov't ; Review
    ZDB-ID 2041552-7
    ISSN 1472-6939 ; 1472-6939
    ISSN (online) 1472-6939
    ISSN 1472-6939
    DOI 10.1186/s12910-015-0070-4
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  8. Article ; Online: Ethically Justified Restrictions on Citizen Science: A Perspective from Singapore.

    Labude, Markus / Xafis, Vicki

    The American journal of bioethics : AJOB

    2019  Volume 19, Issue 8, Page(s) 38–40

    MeSH term(s) Biomedical Research ; Community Participation ; Humans ; Singapore
    Language English
    Publishing date 2019-09-26
    Publishing country United States
    Document type Journal Article ; Comment
    ZDB-ID 2060433-6
    ISSN 1536-0075 ; 1526-5161
    ISSN (online) 1536-0075
    ISSN 1526-5161
    DOI 10.1080/15265161.2019.1619872
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    In stock of ZB MED Cologne/Königswinter

    Zs.A 6814: Show issues Location:
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  9. Article ; Online: Commentary: Treating Ambiguity in the Clinical Context: Is what you hear the doctor say what the doctor means?

    Xafis, Vicki / Wilkinson, Dominic

    Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees

    2019  Volume 28, Issue 3, Page(s) 422–432

    MeSH term(s) Humans ; Physician-Patient Relations ; Physicians
    Language English
    Publishing date 2019-07-11
    Publishing country United States
    Document type Journal Article ; Comment
    ZDB-ID 1146581-5
    ISSN 1469-2147 ; 0963-1801
    ISSN (online) 1469-2147
    ISSN 0963-1801
    DOI 10.1017/S0963180119000343
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  10. Article ; Online: Vulnerability and the Ethics of Human Germline Genome Editing.

    Labude, Markus K / Xafis, Vicki / Lai, Poh San / Mills, Catherine

    The CRISPR journal

    2022  Volume 5, Issue 3, Page(s) 358–363

    Abstract: The concept of vulnerability has played an important role in theoretical bioethics as well as in numerous authoritative guidelines on research ethics. The concept helps to identify situations in which research participants and other individuals may be at ...

    Abstract The concept of vulnerability has played an important role in theoretical bioethics as well as in numerous authoritative guidelines on research ethics. The concept helps to identify situations in which research participants and other individuals may be at a heightened risk of experiencing harm. However, existing guidance documents on the ethics of human germline gene editing largely fail to make any reference to considerations of vulnerability. In this article, we discuss this oversight and we highlight the role that vulnerability can play in ethical debates about human heritable genome editing. Future guidance documents on germline gene editing should pay attention to considerations of vulnerability and reference these appropriately.
    MeSH term(s) CRISPR-Cas Systems/genetics ; Ethics, Research ; Gene Editing ; Genome, Human/genetics ; Germ Cells ; Humans
    Language English
    Publishing date 2022-05-17
    Publishing country United States
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 3017891-5
    ISSN 2573-1602 ; 2573-1599
    ISSN (online) 2573-1602
    ISSN 2573-1599
    DOI 10.1089/crispr.2021.0053
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