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Article ; Online: Experiences of COVID-19 patients in a Fangcang shelter hospital in China during the first wave of the COVID-19 pandemic

Yaping Zhong / Huan Zhao / Tsorng-Yeh Lee / Tianchi Yu / Ming Fang Liu / Ji Ji

BMJ Open, Vol 12, Iss

a qualitative descriptive study

2022 Volume 9

Abstract: Objectives This study aimed to examine COVID-19 patients’ experiences in a Fangcang shelter hospital in China, to provide insights into the effectiveness of this centralised isolation strategy as a novel solution to patient management during emerging ... ...

Abstract	Objectives This study aimed to examine COVID-19 patients’ experiences in a Fangcang shelter hospital in China, to provide insights into the effectiveness of this centralised isolation strategy as a novel solution to patient management during emerging infectious disease outbreaks.Design This study adopted a qualitative descriptive design. Data were collected by individual semistructured interviews and analysed using thematic analysis.Setting This study was undertaken in 1 of the 16 Fangcang shelter hospitals in Wuhan, China between 28 February 2020 and 7 March 2020. Fangcang shelter hospitals were temporary healthcare facilities intended for large-scale centralised isolation, treatment and disease monitoring of mild-to-moderate COVID-19 cases. These hospitals were an essential component of China’s response to the first wave of the COVID-19 pandemic.Participants A total of 27 COVID-19 patients were recruited by purposive sampling. Eligible participants were (1) COVID-19 patients; (2) above 18 years of age and (3) able to communicate effectively. Exclusion criteria were (1) being clinically or emotionally unstable and (2) experiencing communication difficulties.Results Three themes and nine subthemes were identified. First, COVID-19 patients experienced a range of psychological reactions during hospitalisation, including fear, uncertainty, helplessness and concerns. Second, there were positive and negative experiences associated with communal living. While COVID-19 patients’ evaluation of essential services in the hospital was overall positive, privacy and hygiene issues were highlighted as stressors during their hospital stay. Third, positive peer support and a trusting patient–healthcare professional relationship served as a birthplace for resilience, trust and gratitude in COVID-19 patients.Conclusions Our findings suggest that, while sacrificing privacy, centralised isolation has the potential to mitigate negative psychological impacts of social isolation in COVID-19 patients by promoting meaningful peer ...
Keywords	Medicine ; R
Subject code	360
Language	English
Publishing date	2022-09-01T00:00:00Z
Publisher	BMJ Publishing Group
Document type	Article ; Online
Database	BASE - Bielefeld Academic Search Engine (life sciences selection)

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Article ; Online: Diet therapy in patients with rare diseases: a scoping review

Liu, Xuehua / Chen, Huifang / Zhong, Yaping / Lee, Tsorng‐Yeh / Han, Wenxuan / Yu, Dafang / Liu, Huaxia / Ji, Ji

Journal of Human Nutrition and Dietetics. 2023 June, v. 36, no. 3 p.742-753

2023

Abstract: BACKGROUND: This scoping review presents existing research evidence regarding diet therapy in patients with rare diseases (RDs). METHODS: Using the five‐stage scoping review framework proposed by Arksey, O'Malley and Levac, we searched the published ... ...

Abstract	BACKGROUND: This scoping review presents existing research evidence regarding diet therapy in patients with rare diseases (RDs). METHODS: Using the five‐stage scoping review framework proposed by Arksey, O'Malley and Levac, we searched the published literature in PubMed, Web of Science, Royal Society of Chemistry, China National Knowledge Infrastructure, VIP Database and Wan Fang Database from January 2010 to November 2022. We selected diet therapy studies on 121 RDs, as categorised by the National Health Commission of China in 2018. Charts for research analysis were developed and used to categorise the data. RESULTS: We ultimately included 34 diet therapy studies from 19 countries and territories for 10 RDs and 3 RD groups. RD diet therapy studies have mainly focused on inborn errors of metabolism (92.3%) and are common in Western countries. Most studies focused on diet therapy methods for RDs (44%). In addition, 29% of studies included diet therapy management, 15% included guidelines for diet therapy and 12% included the impact of diet therapy on patients. CONCLUSIONS: Current diet therapies for RDs lack specificity and present with limited characteristics. Therefore, it is necessary to expand the scope and depth of future research and explore evidence‐based recommendations and new diet therapies focused on patient needs and family support to provide a reference for improving the efficacy and safety of diet therapies for RDs.
Keywords	chemistry ; databases ; diet ; diet therapy ; dietetics ; family support ; patients ; China
Language	English
Dates of publication	2023-06
Size	p. 742-753.
Publishing place	John Wiley & Sons, Ltd
Document type	Article ; Online
Note	JOURNAL ARTICLE
ZDB-ID	645183-4
ISSN	1365-277X ; 0952-3871 ; 1465-8178
ISSN (online)	1365-277X
ISSN	0952-3871 ; 1465-8178
DOI	10.1111/jhn.13116
Database	NAL-Catalogue (AGRICOLA)

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Article ; Online: Diet therapy in patients with rare diseases: a scoping review.

Liu, Xuehua / Chen, Huifang / Zhong, Yaping / Lee, Tsorng-Yeh / Han, Wenxuan / Yu, Dafang / Liu, Huaxia / Ji, Ji

Journal of human nutrition and dietetics : the official journal of the British Dietetic Association

2023 Volume 36, Issue 3, Page(s) 742–753

Abstract: Background: This scoping review presents existing research evidence regarding diet therapy in patients with rare diseases (RDs).: Methods: Using the five-stage scoping review framework proposed by Arksey, O'Malley and Levac, we searched the published ...

Abstract	Background: This scoping review presents existing research evidence regarding diet therapy in patients with rare diseases (RDs). Methods: Using the five-stage scoping review framework proposed by Arksey, O'Malley and Levac, we searched the published literature in PubMed, Web of Science, Royal Society of Chemistry, China National Knowledge Infrastructure, VIP Database and Wan Fang Database from January 2010 to November 2022. We selected diet therapy studies on 121 RDs, as categorised by the National Health Commission of China in 2018. Charts for research analysis were developed and used to categorise the data. Results: We ultimately included 34 diet therapy studies from 19 countries and territories for 10 RDs and 3 RD groups. RD diet therapy studies have mainly focused on inborn errors of metabolism (92.3%) and are common in Western countries. Most studies focused on diet therapy methods for RDs (44%). In addition, 29% of studies included diet therapy management, 15% included guidelines for diet therapy and 12% included the impact of diet therapy on patients. Conclusions: Current diet therapies for RDs lack specificity and present with limited characteristics. Therefore, it is necessary to expand the scope and depth of future research and explore evidence-based recommendations and new diet therapies focused on patient needs and family support to provide a reference for improving the efficacy and safety of diet therapies for RDs.
MeSH term(s)	Humans ; Rare Diseases/therapy ; Research Design ; China
Language	English
Publishing date	2023-01-15
Publishing country	England
Document type	Review ; Journal Article ; Research Support, Non-U.S. Gov't
ZDB-ID	645183-4
ISSN	1365-277X ; 0952-3871 ; 1465-8178
ISSN (online)	1365-277X
ISSN	0952-3871 ; 1465-8178
DOI	10.1111/jhn.13116
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Article ; Online: Experiences of COVID-19 patients in a Fangcang shelter hospital in China during the first wave of the COVID-19 pandemic: a qualitative descriptive study.

Zhong, Yaping / Zhao, Huan / Lee, Tsorng-Yeh / Yu, Tianchi / Liu, Ming Fang / Ji, Ji

BMJ open

2022 Volume 12, Issue 9, Page(s) e065799

Abstract: Objectives: This study aimed to examine COVID-19 patients' experiences in a Fangcang shelter hospital in China, to provide insights into the effectiveness of this centralised isolation strategy as a novel solution to patient management during emerging ... ...

Abstract	Objectives: This study aimed to examine COVID-19 patients' experiences in a Fangcang shelter hospital in China, to provide insights into the effectiveness of this centralised isolation strategy as a novel solution to patient management during emerging infectious disease outbreaks. Design: This study adopted a qualitative descriptive design. Data were collected by individual semistructured interviews and analysed using thematic analysis. Setting: This study was undertaken in 1 of the 16 Fangcang shelter hospitals in Wuhan, China between 28 February 2020 and 7 March 2020. Fangcang shelter hospitals were temporary healthcare facilities intended for large-scale centralised isolation, treatment and disease monitoring of mild-to-moderate COVID-19 cases. These hospitals were an essential component of China's response to the first wave of the COVID-19 pandemic. Participants: A total of 27 COVID-19 patients were recruited by purposive sampling. Eligible participants were (1) COVID-19 patients; (2) above 18 years of age and (3) able to communicate effectively. Exclusion criteria were (1) being clinically or emotionally unstable and (2) experiencing communication difficulties. Results: Three themes and nine subthemes were identified. First, COVID-19 patients experienced a range of psychological reactions during hospitalisation, including fear, uncertainty, helplessness and concerns. Second, there were positive and negative experiences associated with communal living. While COVID-19 patients' evaluation of essential services in the hospital was overall positive, privacy and hygiene issues were highlighted as stressors during their hospital stay. Third, positive peer support and a trusting patient-healthcare professional relationship served as a birthplace for resilience, trust and gratitude in COVID-19 patients. Conclusions: Our findings suggest that, while sacrificing privacy, centralised isolation has the potential to mitigate negative psychological impacts of social isolation in COVID-19 patients by promoting meaningful peer connections, companionship and support within the shared living space. To our knowledge, this is the first study bringing patients' perspectives into healthcare service appraisal in emergency shelter hospitals.
MeSH term(s)	COVID-19/epidemiology ; Hospitals ; Hospitals, Special ; Humans ; Mobile Health Units ; Pandemics
Language	English
Publishing date	2022-09-14
Publishing country	England
Document type	Journal Article ; Research Support, Non-U.S. Gov't
ZDB-ID	2599832-8
ISSN	2044-6055 ; 2044-6055
ISSN (online)	2044-6055
ISSN	2044-6055
DOI	10.1136/bmjopen-2022-065799
Database	MEDical Literature Analysis and Retrieval System OnLINE

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Article ; Online: Risk perception, knowledge, information sources and emotional states among COVID-19 patients in Wuhan, China.

Zhong, Yaping / Liu, Weihua / Lee, Tsorng-Yeh / Zhao, Huan / Ji, Ji

Nursing outlook

2020 Volume 69, Issue 1, Page(s) 13–21

Abstract: Background: The rapidly evolving COVID-19 pandemic has become a global health crisis. Several factors influencing risk perception have been identified, including knowledge of the disease, information sources, and emotional states. Prior studies on COVID- ...

Abstract	Background: The rapidly evolving COVID-19 pandemic has become a global health crisis. Several factors influencing risk perception have been identified, including knowledge of the disease, information sources, and emotional states. Prior studies on COVID-19-related risk perception primarily focused on the general public, with little data available on COVID-19 patients. Purpose: To investigate COVID-19 patients' risk perception, knowledge of the disease, information sources, and emotional states in the epicenter, Wuhan, during the COVID-19 outbreak in China. Methods: Data were collected online using self-administered electronic questionnaire developed with reference to previous relevant studies and publications by the World Health Organization. Findings: A higher level of perceived risk was found in relation to COVID-19 as compared to other potential health threats. Knowledge gaps existed regarding transmission and prevention of COVID-19. Additionally, risk perception was negatively related to knowledge and positively related to depressive states. Moreover, social media was a primary source for COVID-19 information, whereas the most trusted sources were health professionals. Discussion: Realistic perception of risk should be encouraged considering both physical and mental health while developing relevant strategies. Furthermore, risk communication needs to be specifically tailored for various target groups, such as the elderly and mentally vulnerable individuals, with the adoption of popular media platforms.
MeSH term(s)	Adult ; Aged ; COVID-19/epidemiology ; COVID-19/therapy ; China/epidemiology ; Consumer Health Information/statistics & numerical data ; Emotions ; Female ; Health Knowledge, Attitudes, Practice ; Humans ; Male ; Middle Aged ; Patients/psychology ; Patients/statistics & numerical data ; Risk Assessment ; Surveys and Questionnaires ; Young Adult
Keywords	covid19
Language	English
Publishing date	2020-08-22
Publishing country	United States
Document type	Journal Article
ZDB-ID	300568-9
ISSN	1528-3968 ; 0029-6554
ISSN (online)	1528-3968
ISSN	0029-6554
DOI	10.1016/j.outlook.2020.08.005
Database	MEDical Literature Analysis and Retrieval System OnLINE

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Article ; Online: The outbreak of coronavirus disease in China: Risk perceptions, knowledge, and information sources among prenatal and postnatal women.

Lee, Tsorng-Yeh / Zhong, Yaping / Zhou, Jie / He, Xiaojuan / Kong, Rui / Ji, Ji

Women and birth : journal of the Australian College of Midwives

2020 Volume 34, Issue 3, Page(s) 212–218

Abstract: Background: The COVID-19 pandemic has created anxiety among members of the public, including all women over the childbirth continuum, who are considered to be at a greater risk of contracting most infectious diseases. Understanding the perspectives of ... ...

Abstract	Background: The COVID-19 pandemic has created anxiety among members of the public, including all women over the childbirth continuum, who are considered to be at a greater risk of contracting most infectious diseases. Understanding the perspectives of health care consumers on COVID-19 will play a crucial role in the development of effective risk communication strategies. This study aimed to examine COVID-19-related risk perceptions, knowledge, and information sources among prenatal and postnatal Chinese women during the initial phase of the COVID-19 pandemic. Methods: A cross-sectional survey design was adopted, and a four-section online questionnaire was used to collect data. Using a social media platform, the online survey was administered to 161 participants during the outbreak of COVID-19 in Nanjing, China, in February 2020. Results: The participants perceived their risk of contracting and dying from COVID-19 to be lower than their risk of contracting influenza, however many of them were worried that they might contract COVID-19. The participants demonstrated adequate knowledge about COVID-19. The three major sources from which they obtained information about COVID-19 were doctors, nurses/midwives, and the television, and they placed a high level of confidence in these sources. There was no significant relationship between the perceived risk of contracting COVID-19 and knowledge about this disease. Conclusion: The present findings offer valuable insights to healthcare professionals, including midwives, who serve on the frontline and provide care to pregnant women. Although the participants were adequately knowledgeable about COVID-19, they had misunderstood some of the recommendations of the World Health Organisation.
MeSH term(s)	Adult ; Anxiety/epidemiology ; COVID-19/epidemiology ; COVID-19/psychology ; China/epidemiology ; Cross-Sectional Studies ; Delivery, Obstetric ; Disease Outbreaks ; Female ; Health Knowledge, Attitudes, Practice ; Humans ; Male ; Middle Aged ; Pandemics/prevention & control ; Pregnancy ; Pregnant Women/psychology ; SARS-CoV-2 ; Social Media ; Young Adult
Keywords	covid19
Language	English
Publishing date	2020-05-29
Publishing country	Netherlands
Document type	Journal Article
ZDB-ID	2235085-8
ISSN	1878-1799 ; 1871-5192
ISSN (online)	1878-1799
ISSN	1871-5192
DOI	10.1016/j.wombi.2020.05.010
Database	MEDical Literature Analysis and Retrieval System OnLINE

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Article ; Online: Risk perception, knowledge, information sources and emotional states among COVID-19 patients in Wuhan, China

Zhong, Yaping / Liu, Weihua / Lee, Tsorng-Yeh / Zhao, Huan / Ji, Ji

Nursing Outlook ; ISSN 0029-6554

2020

Keywords	General Nursing ; covid19
Language	English
Publisher	Elsevier BV
Publishing country	us
Document type	Article ; Online
DOI	10.1016/j.outlook.2020.08.005
Database	BASE - Bielefeld Academic Search Engine (life sciences selection)

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Article ; Online: The lived experience of Taiwanese mothers of a child diagnosed with adrenoleukodystrophy.

Lee, Tsorng-Yeh / Li, Chia-Chi / Liaw, Jen-Jiuan

Journal of health psychology

2014 Volume 19, Issue 2, Page(s) 195–206

Abstract: This research was conducted to describe Taiwanese mothers' lived experience of caring for their child diagnosed with adrenoleukodystrophy. Analysis of eight interviews by Colaizzi's method revealed six themes: (1) difficulty confirming the diagnosis; (2) ...

Abstract	This research was conducted to describe Taiwanese mothers' lived experience of caring for their child diagnosed with adrenoleukodystrophy. Analysis of eight interviews by Colaizzi's method revealed six themes: (1) difficulty confirming the diagnosis; (2) powerlessness toward unsatisfactory treatment; (3) struggles with decisions around carrier testing; (4) guilt about being a carrier; (5) support from family, other parents, and religion; and (6) lack of integrated resources and support. The results suggest the need to raise public and physician awareness about adrenoleukodystrophy via the media and medical education. A central organization to provide parents with comprehensive information is needed.
MeSH term(s)	Adrenoleukodystrophy/diagnosis ; Adrenoleukodystrophy/genetics ; Adrenoleukodystrophy/psychology ; Adult ; Child ; Female ; Guilt ; Health Services Needs and Demand ; Heterozygote ; Humans ; Male ; Middle Aged ; Mothers/psychology ; Qualitative Research ; Social Support ; Taiwan
Language	English
Publishing date	2014-02
Publishing country	England
Document type	Journal Article ; Research Support, Non-U.S. Gov't
ZDB-ID	2021897-7
ISSN	1461-7277 ; 1359-1053
ISSN (online)	1461-7277
ISSN	1359-1053
DOI	10.1177/1359105312467388
Database	MEDical Literature Analysis and Retrieval System OnLINE

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Article: Risk Perception, Knowledge, Information Sources and Emotional States among COVID-19 Patients in Wuhan, China: A Cross-sectional Survey

Zhong, Yaping / Liu, Weihua / Lee, Tsorng-Yeh / Zhao, Huan / Ji, Ji

Nursing Outlook

Abstract: Background The rapidly evolving COVID-19 pandemic has become a global health crisis Several factors influencing risk perception have been identified, including knowledge of the disease, information sources, and emotional states Prior studies on COVID-19- ... ...

Abstract	Background The rapidly evolving COVID-19 pandemic has become a global health crisis Several factors influencing risk perception have been identified, including knowledge of the disease, information sources, and emotional states Prior studies on COVID-19-related risk perception primarily focused on the general public, with little data available on COVID-19 patients Purpose To investigate COVID-19 patients’ risk perception, knowledge of the disease, information sources, and emotional states in the epicenter, Wuhan, during the COVID-19 outbreak in China Method Data were collected online using self-administered electronic questionnaire developed with reference to previous relevant studies and publications by the World Health Organization Findings A higher level of perceived risk was found in relation to COVID-19 as compared to other potential health threats Knowledge gaps existed regarding transmission and prevention of COVID-19 Additionally, risk perception was negatively related to knowledge and positively related to depressive states Moreover, social media was a primary source for COVID-19 information, whereas the most trusted sources were health professionals Discussion Realistic perception of risk should be encouraged considering both physical and mental health while developing relevant strategies Furthermore, risk communication needs to be specifically tailored for various target groups, such as the elderly and mentally vulnerable individuals, with the adoption of popular media platforms
Keywords	covid19
Publisher	WHO
Document type	Article
Note	WHO #Covidence: #726808
Database	COVID19

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Article: The outbreak of coronavirus disease in China: Risk perceptions, knowledge, and information sources among prenatal and postnatal women

Lee, Tsorng-Yeh / Zhong, Yaping / Zhou, Jie / He, Xiaojuan / Kong, Rui / Ji, Ji

Women and birth (Online)

Abstract: BACKGROUND: The COVID-19 pandemic has created anxiety among members of the public, including all women over the childbirth continuum, who are considered to be at a greater risk of contracting most infectious diseases. Understanding the perspectives of ... ...

Abstract	BACKGROUND: The COVID-19 pandemic has created anxiety among members of the public, including all women over the childbirth continuum, who are considered to be at a greater risk of contracting most infectious diseases. Understanding the perspectives of health care consumers on COVID-19 will play a crucial role in the development of effective risk communication strategies. This study aimed to examine COVID-19-related risk perceptions, knowledge, and information sources among prenatal and postnatal Chinese women during the initial phase of the COVID-19 pandemic. METHODS: A cross-sectional survey design was adopted, and a four-section online questionnaire was used to collect data. Using a social media platform, the online survey was administered to 161 participants during the outbreak of COVID-19 in Nanjing, China, in February 2020. RESULTS: The participants perceived their risk of contracting and dying from COVID-19 to be lower than their risk of contracting influenza, however many of them were worried that they might contract COVID-19. The participants demonstrated adequate knowledge about COVID-19. The three major sources from which they obtained information about COVID-19 were doctors, nurses/midwives, and the television, and they placed a high level of confidence in these sources. There was no significant relationship between the perceived risk of contracting COVID-19 and knowledge about this disease. CONCLUSION: The present findings offer valuable insights to healthcare professionals, including midwives, who serve on the frontline and provide care to pregnant women. Although the participants were adequately knowledgeable about COVID-19, they had misunderstood some of the recommendations of the World Health Organisation.
Keywords	covid19
Publisher	WHO
Document type	Article
Note	WHO #Covidence: #436548
Database	COVID19

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