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  1. AU=Moodley Keymanthri
  2. AU="Xuedi Zhang"
  3. AU="Fernández-López, Antonio R"
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  1. Buch: Medical ethics, law and human rights

    Moodley, Keymanthri

    a South African perspective

    2011  

    Verfasserangabe Keymanthri Moodley (ed.)
    Sprache Englisch
    Umfang XX, 377 S.
    Ausgabenhinweis 1. ed., 2. impr.
    Verlag Van Schaik Publ
    Erscheinungsort Hatfield
    Erscheinungsland Südafrika
    Dokumenttyp Buch
    HBZ-ID HT016875678
    ISBN 978-0-627-02809-0 ; 0-627-02809-8
    Datenquelle Katalog ZB MED Medizin, Gesundheit

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    2012 A 785 bestellbar zur Ausleihe Magazin

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  2. Artikel ; Online: Vaccine inequity is unethical.

    Moodley, Keymanthri

    Nature human behaviour

    2022  Band 6, Heft 2, Seite(n) 168–169

    Mesh-Begriff(e) Humans ; Morals ; Vaccines
    Chemische Substanzen Vaccines
    Sprache Englisch
    Erscheinungsdatum 2022-01-31
    Erscheinungsland England
    Dokumenttyp Journal Article
    ISSN 2397-3374
    ISSN (online) 2397-3374
    DOI 10.1038/s41562-022-01295-w
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  3. Artikel ; Online: The ethics behind mandatory COVID-19 vaccination post-Omicron

    Keymanthri Moodley

    South African Journal of Science, Vol 118, Iss 5/

    The South African context

    2022  Band 6

    Abstract: The legitimacy of mandatory vaccine policies is underscored by a public health ethics framework based on the principles of limited autonomy, social justice and the common good. Ideally, vaccine uptake ought to occur on a voluntary basis as an act of ... ...

    Abstract The legitimacy of mandatory vaccine policies is underscored by a public health ethics framework based on the principles of limited autonomy, social justice and the common good. Ideally, vaccine uptake ought to occur on a voluntary basis as an act of solidarity to ensure that everyone is protected. Given that the altruistic approach has failed and vaccine uptake remains sub-optimal in South Africa, in this paper, I argue for vaccine mandates, in a post-Omicron context. This viewpoint is substantiated by several considerations. Healthcare workers are fatigued after 2 years of treating COVID-19 and many are still treating patients with post-viral syndromes, mental health conditions and cardiovascular complications. Health systems remain under pressure as people with non-COVID diseases, neglected during the pandemic, are also now presenting to medical practices and hospitals. Although South Africa has emerged from a relatively less severe fourth wave of COVID-19, there have been many deaths. Vaccine and natural immunity in a relatively young general population has been advantageous. However, the country has a high prevalence of HIV and those who are untreated may not be able to clear the coronavirus easily. Similarly chronic illnesses place many at risk for severe disease from COVID variants, especially if unvaccinated. The future is shrouded in uncertainty. The next variant could be similar to or less severe than Omicron, yet still impact negatively on health systems, education and the economy. Physical distancing is not ideal in many low socio-economic settings, making vaccines an important component of our prevention toolbox. Our safest option now is to ensure that as many South Africans as possible are vaccinated and receive boosters. Vaccine mandates work to achieve this end. Significance: The legitimacy of COVID-19 vaccine mandates post-Omicron is explored from an ethical perspective, given that the fifth wave remains unpredictable in South Africa – a country with a high prevalence of HIV, vulnerable ...
    Schlagwörter ethics ; mandatory ; vaccines ; COVID-19 ; South Africa ; Science ; Q ; Science (General) ; Q1-390 ; Social Sciences ; H ; Social sciences (General) ; H1-99
    Thema/Rubrik (Code) 170
    Sprache Englisch
    Erscheinungsdatum 2022-05-01T00:00:00Z
    Verlag Academy of Science of South Africa
    Dokumenttyp Artikel ; Online
    Datenquelle BASE - Bielefeld Academic Search Engine (Lebenswissenschaftliche Auswahl)

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  4. Artikel ; Online: The many faces of the big data revolution in health for sub-Saharan Africa

    Keymanthri Moodley / Stuart Rennie

    South African Journal of Science, Vol 119, Iss 5/

    2023  Band 6

    Schlagwörter Science ; Q ; Science (General) ; Q1-390 ; Social Sciences ; H ; Social sciences (General) ; H1-99
    Sprache Englisch
    Erscheinungsdatum 2023-05-01T00:00:00Z
    Verlag Academy of Science of South Africa
    Dokumenttyp Artikel ; Online
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  5. Artikel ; Online: Awareness, experiences and perceptions regarding genetic testing and the return of genetic and genomics results in a hypothetical research context among patients in Uganda: a qualitative study.

    Ochieng, Joseph / Kwagala, Betty / Barugahare, John / Möller, Marlo / Moodley, Keymanthri

    Journal of medical ethics

    2024  

    Abstract: Background: Genetic testing presents unique ethical challenges for research and clinical practice, particularly in low-resource settings. To address such challenges, context-specific understanding of ethical, legal and social issues is essential. Return ...

    Abstract Background: Genetic testing presents unique ethical challenges for research and clinical practice, particularly in low-resource settings. To address such challenges, context-specific understanding of ethical, legal and social issues is essential. Return of genetics and genomics research (GGR) results remains an unresolved yet topical issue particularly in African settings that lack appropriate regulation and guidelines. Despite the need to understand what is contextually acceptable, there is a paucity of empirical research and literature on what constitutes appropriate practice with respect to GGR.The study assessed patients' awareness, experiences and perceptions regarding genetic testing and the return of GGR results in a hypothetical context.
    Methods: This cross-sectional study employed a qualitative exploratory approach. Respondents were patients attending the medical outpatient unit of Mulago National Hospital. Three deliberative focus group discussions involving 18 respondents were conducted. Data were analysed through thematic analysis.
    Results: Three main themes and several subthemes were identified. Most respondents were aware of genetic testing, supportive of GGR and receiving results. However, only a few had undergone genetic testing due to cost constraints. They articulated the need for adequate information and genetic counselling to inform decision-making. Privacy of results was important to respondents while others were willing to share results.
    Conclusion: There was general awareness and support for GGR and the return of results. Stigmatisation emerged as a barrier to disclosure of results for some. Global health inequity impacts access and affordability of genetic testing and counselling in Africa and should be addressed as a matter of social justice.
    Sprache Englisch
    Erscheinungsdatum 2024-01-30
    Erscheinungsland England
    Dokumenttyp Journal Article
    ZDB-ID 194927-5
    ISSN 1473-4257 ; 0306-6800
    ISSN (online) 1473-4257
    ISSN 0306-6800
    DOI 10.1136/jme-2022-108885
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  6. Artikel ; Online: Research-Related Stakeholders' Perspectives on Sociocultural Considerations in Biobanking Practice in South Africa.

    Singh, Shenuka / Cadigan, Rosemary Jean / Moodley, Keymanthri

    Biopreservation and biobanking

    2022  Band 21, Heft 1, Seite(n) 81–89

    Abstract: Background: ...

    Abstract Background:
    Mesh-Begriff(e) Humans ; South Africa ; Biological Specimen Banks
    Sprache Englisch
    Erscheinungsdatum 2022-06-27
    Erscheinungsland United States
    Dokumenttyp Journal Article
    ZDB-ID 2593993-2
    ISSN 1947-5543 ; 1947-5535
    ISSN (online) 1947-5543
    ISSN 1947-5535
    DOI 10.1089/bio.2021.0149
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  7. Artikel ; Online: Key ethical issues encountered during COVID-19 research: a thematic analysis of perspectives from South African research ethics committees.

    Burgess, Theresa / Rennie, Stuart / Moodley, Keymanthri

    BMC medical ethics

    2023  Band 24, Heft 1, Seite(n) 11

    Abstract: Background: The COVID-19 pandemic presents significant challenges to research ethics committees (RECs) in balancing urgency of review of COVID-19 research with careful consideration of risks and benefits. In the African context, RECs are further ... ...

    Abstract Background: The COVID-19 pandemic presents significant challenges to research ethics committees (RECs) in balancing urgency of review of COVID-19 research with careful consideration of risks and benefits. In the African context, RECs are further challenged by historical mistrust of research and potential impacts on COVID-19 related research participation, as well as the need to facilitate equitable access to effective treatments or vaccines for COVID-19. In South Africa, an absent National Health Research Ethics Council (NHREC) also left RECs without national guidance for a significant duration of the COVID-19 pandemic. We conducted a qualitative descriptive study that explored the perspectives and experiences of RECs regarding the ethical challenges of COVID-19 research in South Africa.
    Methods: We conducted in-depth interviews with 21 REC chairpersons or members from seven RECs at large academic health institutions across South Africa that were actively involved in the review of COVID-19 related research from January to April 2021. In-depth interviews were conducted remotely via Zoom. Interviews (60-125 min) were conducted in English using an in-depth interview guide, until data saturation was achieved. Audio-recordings were transcribed verbatim and field notes were converted into data documents. Line-by-line coding of transcripts was performed, and data were organised into themes and sub-themes. An inductive approach to thematic analysis was used to analyse data.
    Results: Five main themes were identified, namely: rapidly evolving research ethics landscape, extreme vulnerability of research participants, unique challenges to informed consent, challenges to community engagement during COVID-19, and overlapping research ethics and public health equity issues. Sub-themes were identified for each main theme.
    Conclusions: Numerous, significant ethical complexities and challenges were identified by South African REC members in the review of COVID-19 related research. While RECs are resilient and adaptable, reviewer and REC member fatigue were major concerns. The numerous ethical issues identified also highlight the need for research ethics teaching and training, especially in informed consent, as well as the urgent requirement for the development of national guidelines for research ethics during public health emergencies. Further, comparative analysis between different countries is needed to develop the discourse around African RECs and COVID-19 research ethics issues.
    Mesh-Begriff(e) Humans ; South Africa ; Ethics Committees, Research ; COVID-19 Vaccines ; Pandemics ; COVID-19
    Chemische Substanzen COVID-19 Vaccines
    Sprache Englisch
    Erscheinungsdatum 2023-02-15
    Erscheinungsland England
    Dokumenttyp Journal Article ; Research Support, N.I.H., Extramural ; Research Support, Non-U.S. Gov't
    ZDB-ID 2041552-7
    ISSN 1472-6939 ; 1472-6939
    ISSN (online) 1472-6939
    ISSN 1472-6939
    DOI 10.1186/s12910-023-00888-y
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  8. Artikel ; Online: Delineating the role of penile transplantation when traditional male circumcisions go wrong in South Africa.

    Rennie, Stuart / Moodley, Keymanthri

    Journal of medical ethics

    2019  

    Sprache Englisch
    Erscheinungsdatum 2019-04-27
    Erscheinungsland England
    Dokumenttyp Journal Article
    ZDB-ID 194927-5
    ISSN 1473-4257 ; 0306-6800
    ISSN (online) 1473-4257
    ISSN 0306-6800
    DOI 10.1136/medethics-2019-105414
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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    Jg. 1995 - 2021: Lesesall (1.OG)
    ab Jg. 2022: Lesesaal (EG)

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  9. Artikel ; Online: Exploring perspectives of research ethics committee members on the governance of big data in sub-Saharan Africa

    Nezerith Cengiz / Siti M. Kabanda / Tonya M. Esterhuizen / Keymanthri Moodley

    South African Journal of Science, Vol 119, Iss 5/

    2023  Band 6

    Abstract: Interest in the governance of big data is growing exponentially. However, finding the right balance between making large volumes of data accessible, and safeguarding privacy, preventing data misuse, determining authorship and protecting intellectual ... ...

    Abstract Interest in the governance of big data is growing exponentially. However, finding the right balance between making large volumes of data accessible, and safeguarding privacy, preventing data misuse, determining authorship and protecting intellectual property remain challenging. In sub-Saharan Africa (SSA), research ethics committees (RECs) play an important role in reviewing data-intense research protocols. However, this regulatory role must be embedded in a context of robust governance. There is currently a paucity of published literature on how big data are regulated in SSA and if the capacity to review protocols is sufficient. The aim of this study was to provide a broad overview of REC members’ awareness and perceptions of big data governance in SSA. A descriptive cross-sectional survey was conducted from April to July 2022. We invited 300 REC members to participate in our online survey via Research Electronic Data Capture (REDCap). A total of 140 REC members, representing 34 SSA countries, completed the online survey. Awareness of data governance laws, policies and guidelines was variable across the subcontinent. A quarter of respondents (25%) indicated that national regulations on the transborder flow of research data are inadequate. Institutional policies on research data protection were also regarded as being inadequate. Most respondents (64%) believed that they lacked experience in reviewing data-intense protocols. Data governance and regulation in SSA need to be strengthened at both national and institutional levels. There is a strong need for capacity development in the review of data-intense research protocols on the subcontinent. Significance: This is the first empirical survey in SSA in which awareness and perspectives of REC members have been explored specifically relating to the review of data-intense research protocols. Big data have raised new ethics and legal challenges, and this survey provides a broad overview of these challenges in SSA. Our study confirms that knowledge and awareness of ...
    Schlagwörter big data ; data governance ; data regulation ; research ethics committees ; sub-Saharan Africa ; Science ; Q ; Science (General) ; Q1-390 ; Social Sciences ; H ; Social sciences (General) ; H1-99
    Thema/Rubrik (Code) 306
    Sprache Englisch
    Erscheinungsdatum 2023-05-01T00:00:00Z
    Verlag Academy of Science of South Africa
    Dokumenttyp Artikel ; Online
    Datenquelle BASE - Bielefeld Academic Search Engine (Lebenswissenschaftliche Auswahl)

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  10. Artikel ; Online: Stakeholder perspectives on the ethico-legal dimensions of biobanking in South Africa.

    Singh, Shenuka / Moodley, Keymanthri

    BMC medical ethics

    2021  Band 22, Heft 1, Seite(n) 84

    Abstract: Background: Biobanking provides exciting opportunities for research on stored biospecimens. However, these opportunities to advance medical science are fraught with challenges including ethical and legal dilemmas. This study was undertaken to establish ... ...

    Abstract Background: Biobanking provides exciting opportunities for research on stored biospecimens. However, these opportunities to advance medical science are fraught with challenges including ethical and legal dilemmas. This study was undertaken to establish perspectives of South African stakeholders on the ethico-legal dimensions of biobanking.
    Methods: An in-depth exploratory study was conducted with 25 purposively selected biobankers, clinicians, researchers, postgraduate students in biobanking research, and research ethics committee (REC) members in South Africa. Potential study participants were recruited through known hubs for biobanking in the country, online searches and the snowball sampling technique. A semi-structured face-to-face or Skype interview was arranged. Data was analysed using thematic analysis.
    Results: The emergent themes included: inconsistency in understanding consent models, disconnect between biobank researchers and biosample donors, inadequate processes to support re-consenting minors, inconsistent governance processes for biobanking research; challenges with sample and data sharing, and suboptimal strategies for benefit sharing and return of results. Biobanking practice in general appeared to be inconsistent and fragmented. While the need for consent in research is explicitly outlined in legislative documents, some respondents were unclear on the type of consent model to apply in biosample collection. They also reported inconsistencies in research participants' understanding of consent. Furthermore, these respondents' own understanding of consent and consent models were dependent on where they were positioned in biobanking practice (roles occupied). Respondents were unsure about the process to follow to re-consent child participants once the age of majority (≥ 18 years) was reached. It was not surprising that consent was identified as one of the major ethical challenges in biobanking practice. In certain settings, some respondents reported suboptimal governance processes for sample collection. Participants were generally unsure about how to operationalise benefit sharing and how to approach the idea of returning results to research participants and biobank donors.
    Conclusion: The study findings indicated inconsistencies in stakeholder understanding of ethico-legal considerations related to biobanking in South Africa. A need for ongoing ethics capacity development among stakeholders was identified. Improving understanding of the ethics of biobanking could be facilitated by acknowledging the disconnect created by biosamples in the relationship between biobank researchers and donors.
    Mesh-Begriff(e) Adolescent ; Biological Specimen Banks ; Biomedical Research ; Child ; Ethics Committees, Research ; Humans ; Informed Consent ; South Africa
    Sprache Englisch
    Erscheinungsdatum 2021-07-01
    Erscheinungsland England
    Dokumenttyp Journal Article ; Research Support, N.I.H., Extramural
    ZDB-ID 2041552-7
    ISSN 1472-6939 ; 1472-6939
    ISSN (online) 1472-6939
    ISSN 1472-6939
    DOI 10.1186/s12910-021-00645-z
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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