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  1. Article ; Online: eHealth Interventions for Dementia - Using WordPress Plugins as a Flexible Dissemination for Dementia Service Providers.

    Reichold, Michael / Selau, Marina / Graessel, Elmar / Kolominsky-Rabas, Peter L / Prokosch, Hans-Ulrich

    Studies in health technology and informatics

    2021  Volume 279, Page(s) 1–9

    Abstract: The benefits of eHealth interventions for people with dementia and their informal caregivers have been demonstrated in several studies. In times of contact restrictions, digital solutions have become increasingly important, especially for people with ... ...

    Abstract The benefits of eHealth interventions for people with dementia and their informal caregivers have been demonstrated in several studies. In times of contact restrictions, digital solutions have become increasingly important, especially for people with dementia and their mostly elderly caregiving relatives, which are at increased risk of severe illness from COVID-19. As in many other health areas, there is a lack of digital interventions in the dementia landscape that are successfully implemented (i.e., put into practice), especially digital interventions that are scientifically evaluated. Evaluated and proven effective digital interventions exist, but these often do not find their way from research into practice and stay on low-level implementation readiness. Within the project digiDEM Bayern, a digital platform with digital services and interventions for people affected by dementia (people with dementia, caregivers, volunteers and interested citizens) is established. As one digital intervention for informal caregivers, the 'Angehörigenampel' (caregivers' traffic-light) was developed, which is able to assess the physical and psychological burden of caregivers. This can help to counteract the health effects of caregiving burden early on before it is too late. The development of the digital intervention as a WordPress-plugin was kept generic so that it can easily be adapted to other languages on further websites. The 'intervention as a plugin' approach demonstrates an easy and flexible way of deploying eHealth interventions to other service providers, especially from other countries. The implementation barriers for other service providers are low enough for them to be able to easily integrate the eHealth intervention on their website, enabling more caregivers to benefit from the disseminated eHealth intervention.
    MeSH term(s) Aged ; COVID-19 ; Caregivers ; Dementia/therapy ; Humans ; SARS-CoV-2 ; Telemedicine
    Language English
    Publishing date 2021-05-06
    Publishing country Netherlands
    Document type Journal Article
    ISSN 1879-8365
    ISSN (online) 1879-8365
    DOI 10.3233/SHTI210081
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article ; Online: Designing and Implementing an IT Architecture for a Digital Multicenter Dementia Registry: digiDEM Bayern.

    Reichold, Michael / Dietzel, Nikolas / Chmelirsch, Christina / Kolominsky-Rabas, Peter L / Graessel, Elmar / Prokosch, Hans-Ulrich

    Applied clinical informatics

    2021  Volume 12, Issue 3, Page(s) 551–563

    Abstract: Background: Registries are an essential research tool to investigate the long-term course of diseases and their impact on the affected. The project digiDEM Bayern will set up a prospective dementia registry to collect long-term data of people with ... ...

    Abstract Background: Registries are an essential research tool to investigate the long-term course of diseases and their impact on the affected. The project digiDEM Bayern will set up a prospective dementia registry to collect long-term data of people with dementia and their caregivers in Bavaria (Germany) supported by more than 300 research partners.
    Objective: The objective of this article is to outline an information technology (IT) architecture for the integration of a registry and comprehensive participant management in a dementia study. Measures to ensure high data quality, study governance, along with data privacy, and security are to be included in the architecture.
    Methods: The architecture was developed based on an iterative, stakeholder-oriented process. The development was inspired by the Twin Peaks Model that focuses on the codevelopment of requirements and architecture. We gradually moved from a general to a detailed understanding of both the requirements and design through a series of iterations. The experience learned from the pilot phase was integrated into a further iterative process of continuous improvement of the architecture.
    Results: The infrastructure provides a standardized workflow to support the electronic data collection and trace each participant's study process. Therefore, the implementation consists of three systems: (1) electronic data capture system for Web-based or offline app-based data collection; (2) participant management system for the administration of the identity data of participants and research partners as well as of the overall study governance process; and (3) videoconferencing software for conducting interviews online. First experiences in the pilot phase have proven the feasibility of the framework.
    Conclusion: This article outlines an IT architecture to integrate a registry and participant management in a dementia research project. The framework was discussed and developed with the involvement of numerous stakeholders. Due to its adaptability of used software systems, a transfer to other projects should be easily possible.
    MeSH term(s) Caregivers ; Dementia ; Humans ; Information Technology ; Prospective Studies ; Registries
    Language English
    Publishing date 2021-06-16
    Publishing country Germany
    Document type Journal Article ; Multicenter Study ; Research Support, Non-U.S. Gov't
    ISSN 1869-0327
    ISSN (online) 1869-0327
    DOI 10.1055/s-0041-1731286
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article ; Online: Usability Evaluation of an Offline Electronic Data Capture App in a Prospective Multicenter Dementia Registry (digiDEM Bayern): Mixed Method Study.

    Reichold, Michael / Heß, Miriam / Kolominsky-Rabas, Peter / Gräßel, Elmar / Prokosch, Hans-Ulrich

    JMIR formative research

    2021  Volume 5, Issue 11, Page(s) e31649

    Abstract: Background: Digital registries have been shown to provide an efficient way of gaining a better understanding of the clinical complexity and long-term progression of diseases. The paperless method of electronic data capture (EDC) during a patient ... ...

    Abstract Background: Digital registries have been shown to provide an efficient way of gaining a better understanding of the clinical complexity and long-term progression of diseases. The paperless method of electronic data capture (EDC) during a patient interview saves both time and resources. In the prospective multicenter project "Digital Dementia Registry Bavaria (digiDEM Bayern)," interviews are also performed on site in rural areas with unreliable internet connectivity. It must be ensured that EDC can still be performed in such a context and that there is no need to fall back on paper-based questionnaires. In addition to a web-based data collection solution, the EDC system REDCap (Research Electronic Data Capture) offers the option to collect data offline via an app and to synchronize it afterward.
    Objective: The aim of this study was to evaluate the usability of the REDCap app as an offline EDC option for a lay user group and to examine the necessary technology acceptance of using mobile devices for data collection. The feasibility of the app-based offline data collection in the digiDEM Bayern dementia registry project was then evaluated before going live.
    Methods: An exploratory mixed method design was employed in the form of an on-site usability test with the "Thinking Aloud" method combined with an online questionnaire including the System Usability Scale (SUS). The acceptance of mobile devices for data collection was surveyed based on five categories of the technology acceptance model.
    Results: Using the "Thinking Aloud" method, usability issues were identified and solutions were accordingly derived. Evaluation of the REDCap app resulted in a SUS score of 74, which represents "good" usability. After evaluating the technology acceptance questionnaire, it can be concluded that the lay user group is open to mobile devices as interview tools.
    Conclusions: The usability evaluation results show that a lay user group generally agree that data collecting partners in the digiDEM project can handle the REDCap app well. The usability evaluation provided statements about positive aspects and could also identify usability issues relating to the REDCap app. In addition, the current technology acceptance in the sample showed that heterogeneous groups of different ages with diverse experiences in handling mobile devices are also ready for the use of app-based EDC systems. Based on these results, it can be assumed that the offline use of an app-based EDC system on mobile devices is a viable solution for collecting data in a decentralized registry-based research project.
    Language English
    Publishing date 2021-11-03
    Publishing country Canada
    Document type Journal Article
    ISSN 2561-326X
    ISSN (online) 2561-326X
    DOI 10.2196/31649
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  4. Article ; Online: Designing a Framework of Components to Support Patient Engagement in Research.

    Öfelein, Matthias / Reichold, Michael / Maier, Christian / Prokosch, Hans-Ulrich

    Studies in health technology and informatics

    2019  Volume 267, Page(s) 20–27

    Abstract: In the context of the German Medical Informatics Initiative (MII), where data reuse and data sharing are major goals, cross-site, long-term research on patient care data can only be conducted lawfully with informed patient consent. Thus, the MII consent ... ...

    Abstract In the context of the German Medical Informatics Initiative (MII), where data reuse and data sharing are major goals, cross-site, long-term research on patient care data can only be conducted lawfully with informed patient consent. Thus, the MII consent working group developed a template form for patient information and broad consent based on work that has been done for a former biobank project. The broad consent enables the patient to consent to the use of a wide range of the documented data including research purposes. Therefore, a user-friendly tool is needed which not only supports the storage and maintenance of the patient's consents but also allows him to easily review or withdraw his consents. Furthermore, the tool should allow the patient to review the use of his data in research projects and possible publications. This is why we developed a concept of how such a tool could be integrated into the clinical and research system landscape and implemented a prototype as a proof of concept.
    MeSH term(s) Humans ; Information Dissemination ; Informed Consent ; Male ; Patient Participation
    Language English
    Publishing date 2019-09-03
    Publishing country Netherlands
    Document type Journal Article
    ISSN 1879-8365
    ISSN (online) 1879-8365
    DOI 10.3233/SHTI190800
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  5. Article ; Online: Stakeholder Perspectives on the Key Components of a Digital Service Platform Supporting Dementia - digiDEM Bayern.

    Reichold, Michael / Dietzel, Nikolas / Karrer, Linda / Graessel, Elmar / Kolominsky-Rabas, Peter L / Prokosch, Hans-Ulrich

    Studies in health technology and informatics

    2020  Volume 271, Page(s) 224–231

    Abstract: The increasing number of people with dementia and caregiving relatives will require a change in the provision of dementia-related services in the future. Digital technologies are a force for change. The new project digiDEM Bayern with its digital ... ...

    Abstract The increasing number of people with dementia and caregiving relatives will require a change in the provision of dementia-related services in the future. Digital technologies are a force for change. The new project digiDEM Bayern with its digital services on a digital platform and a digital patient registry should help to improve the situation for people with dementia and their caregivers especially in rural settings. An online survey among service providers for people with dementia and caregiving relatives in Bavaria was conducted to find out how they assess the current landscape of digital and non-digital service offers for people with dementia and their caregivers. The results of the survey have revealed that there is currently a large gap in the provision of digital services varying between the different categories surveyed. digiDEM Bayern addresses this gap with its digital dementia-related service platform.
    MeSH term(s) Caregivers ; Dementia ; Humans ; Rural Population ; Surveys and Questionnaires
    Language English
    Publishing date 2020-06-23
    Publishing country Netherlands
    Document type Journal Article
    ISSN 1879-8365
    ISSN (online) 1879-8365
    DOI 10.3233/SHTI200100
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  6. Conference proceedings: IT-Architektur für eine multizentrische, prospektive Längsschnittstudie: Das Digitale Demenzregister Bayern – digiDEM Bayern

    Reichold, Michael / Dietzel, Nikolas / Chmelirsch, Christina / Gräßel, Elmar / Kolominsky-Rabas, Peter L. / Prokosch, Hans-Ulrich

    2021  , Page(s) 21dkvf412

    Event/congress 20. Deutscher Kongress für Versorgungsforschung (DKVF); sine loco [digital]; Deutsches Netzwerk Versorgungsforschung; 2021
    Keywords Medizin, Gesundheit
    Publishing date 2021-09-27
    Publisher German Medical Science GMS Publishing House; Düsseldorf
    Document type Conference proceedings
    DOI 10.3205/21dkvf412
    Database German Medical Science

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  7. Article: Designing and Implementing an IT Architecture for a Digital Multicenter Dementia Registry: digiDEM Bayern

    Reichold, Michael / Dietzel, Nikolas / Chmelirsch, Christina / Kolominsky-Rabas, Peter L. / Graessel, Elmar / Prokosch, Hans-Ulrich

    Applied Clinical Informatics

    2021  Volume 12, Issue 03, Page(s) 551–563

    Abstract: Background: Registries are an essential research tool to investigate the long-term course of diseases and their impact on the affected. The project digiDEM Bayern will set up a prospective dementia registry to collect long-term data of people with ... ...

    Abstract Background: Registries are an essential research tool to investigate the long-term course of diseases and their impact on the affected. The project digiDEM Bayern will set up a prospective dementia registry to collect long-term data of people with dementia and their caregivers in Bavaria (Germany) supported by more than 300 research partners.
    Objective: The objective of this article is to outline an information technology (IT) architecture for the integration of a registry and comprehensive participant management in a dementia study. Measures to ensure high data quality, study governance, along with data privacy, and security are to be included in the architecture.
    Methods: The architecture was developed based on an iterative, stakeholder-oriented process. The development was inspired by the Twin Peaks Model that focuses on the codevelopment of requirements and architecture. We gradually moved from a general to a detailed understanding of both the requirements and design through a series of iterations. The experience learned from the pilot phase was integrated into a further iterative process of continuous improvement of the architecture.
    Results: The infrastructure provides a standardized workflow to support the electronic data collection and trace each participant's study process. Therefore, the implementation consists of three systems: (1) electronic data capture system for Web-based or offline app-based data collection; (2) participant management system for the administration of the identity data of participants and research partners as well as of the overall study governance process; and (3) videoconferencing software for conducting interviews online. First experiences in the pilot phase have proven the feasibility of the framework.
    Conclusion: This article outlines an IT architecture to integrate a registry and participant management in a dementia research project. The framework was discussed and developed with the involvement of numerous stakeholders. Due to its adaptability of used software systems, a transfer to other projects should be easily possible.
    Keywords registries ; data collection ; workflow ; research planning and conduct ; dementia ; participant management
    Language English
    Publishing date 2021-05-01
    Publisher Georg Thieme Verlag KG
    Publishing place Stuttgart ; New York
    Document type Article
    ISSN 1869-0327
    ISSN (online) 1869-0327
    DOI 10.1055/s-0041-1731286
    Database Thieme publisher's database

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  8. Article: Demenz und Digitalisierung

    Bujan Rivera, Janina / Dietzel, Nikolas / Meuer, Sebastian / Reichold, Michael / Prokosch, Hans-Ulrich / Gräßel, Elmar / Kolominsky-Rabas, Peter L.

    neuroreha

    2021  Volume 13, Issue 02, Page(s) 87–94

    Abstract: Um die Demenzversorgung, besonders in der Häuslichkeit, zu optimieren, bedarf es innovativer Lösungsansätze. Eine Möglichkeit bietet die Digitalisierung. Digitale Technologien haben den wesentlichen Vorteil, dass sie allzeit verfügbar sind, unabhängig ... ...

    Abstract Um die Demenzversorgung, besonders in der Häuslichkeit, zu optimieren, bedarf es innovativer Lösungsansätze. Eine Möglichkeit bietet die Digitalisierung. Digitale Technologien haben den wesentlichen Vorteil, dass sie allzeit verfügbar sind, unabhängig vom Zeitbudget und der Anzahl der Dienstleister*innen. So können sie gerade in strukturschwachen ländlichen Regionen die medizinischen und pflegerischen Angebote ergänzen und erweitern. Das Versorgungsforschungsprojekt digiDEM Bayern ist beispielhaft für einen digitalen Forschungs- und Versorgungsansatz bei Demenz.
    Language German
    Publishing date 2021-06-01
    Publisher Georg Thieme Verlag KG
    Publishing place Stuttgart ; New York
    Document type Article
    ZDB-ID 2492087-3
    ISSN 1611-7654 ; 1611-6496
    ISSN (online) 1611-7654
    ISSN 1611-6496
    DOI 10.1055/a-1472-9826
    Database Thieme publisher's database

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  9. Book: Einführung in die Rechtswissenschaft

    Kühl, Kristian / Reichold, Hermann / Ronellenfitsch, Michael

    ein Studienbuch

    (Juristische Kurzlehrbücher ; Kurzlehrbücher für das juristische Studium)

    2015  

    Author's details von Kristian Kühl; Hermann Reichold; Michael Ronellenfitsch
    Series title Juristische Kurzlehrbücher
    Kurzlehrbücher für das juristische Studium
    Keywords Rechtswissenschaft ; Deutschland ; Rechtswissenschaft. Einführung
    Language German
    Size XXVII, 489 S., graph. Darst.
    Edition 2., überarb. Aufl.
    Publisher Beck
    Publishing place München
    Document type Book
    ISBN 3406672736 ; 9783406672736
    Database Library catalogue of the German National Library of Science and Technology (TIB), Hannover

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  10. Book: Einführung in die Rechtswissenschaft

    Kühl, Kristian / Reichold, Hermann / Ronellenfitsch, Michael

    ein Studienbuch

    (Juristische Kurzlehrbücher ; Kurzlehrbücher für das juristische Studium)

    2015  

    Author's details von Kristian Kühl; Hermann Reichold; Michael Ronellenfitsch
    Series title Juristische Kurzlehrbücher
    Kurzlehrbücher für das juristische Studium
    Keywords Rechtswissenschaft ; Deutschland
    Language German
    Size XXVII, 489 S., graph. Darst.
    Edition 2., überarb. Aufl.
    Publisher Beck
    Publishing place München
    Document type Book
    ISBN 3406672736 ; 9783406672736
    Database Former special subject collection: coastal and deep sea fishing

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