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  1. Article ; Online: "From All, To All": Implementing a collaborative online conference to reflect on the daily living of individuals with cerebral palsy.

    Vieira, Beatriz S / Airoldi, Marina J / Chalfun, Deborah / Bonfim, Rafael G A S / Teplicky, Rachel / Rosenbaum, Peter / Mancini, Marisa C / Brandão, Marina B

    Child: care, health and development

    2024  Volume 50, Issue 2, Page(s) e13254

    Abstract: Background: Translating knowledge to improve paediatric rehabilitation has become a research area of interest. This study describes the development and evaluation of an online conference that brought together perspectives of individuals with cerebral ... ...

    Abstract Background: Translating knowledge to improve paediatric rehabilitation has become a research area of interest. This study describes the development and evaluation of an online conference that brought together perspectives of individuals with cerebral palsy (CP), families, health care professionals, and researchers to discuss the daily living of individuals with CP.
    Methods: We anchored the development and implementation of the online conference in the action cycle of the Knowledge to Action Framework. To develop the meeting, we included representatives from each stakeholder group in the programme committee. The conference programme was designed having the lifespan perspective of individuals with CP, from birth to adulthood, as its central core, with themes related to daily living (e.g., self-care, mobility, and continuing education). Participants' satisfaction with the conference was assessed using an anonymized online survey sent to all participants.
    Results: The conference had 1656 attendees, of whom 675 answered the online satisfaction survey. Most participants rated the structure of the conference (i.e., quality of the technical support, audio and video, and online platform) and discussed topics (i.e., relevance, content, discussion, speakers, and available time) positively.
    Conclusion: Collaborative conferences that include stakeholders throughout the planning and implementation are a viable, effective knowledge translation strategy that allows for sharing experiences and disseminating knowledge among families and individuals with CP, health care professionals, and researchers.
    MeSH term(s) Child ; Humans ; Cerebral Palsy/rehabilitation ; Health Personnel ; Self Care ; Education, Continuing
    Language English
    Publishing date 2024-03-22
    Publishing country England
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 223039-2
    ISSN 1365-2214 ; 0305-1862
    ISSN (online) 1365-2214
    ISSN 0305-1862
    DOI 10.1111/cch.13254
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article ; Online: Bimanual hand use in children and adolescents with unilateral spastic cerebral palsy: an exploratory study.

    Bueno, Simone A / Mancini, Marisa C / Oliveira, Rachel H S / Airoldi, Marina J / Vieira, Beatriz S / Gordon, Andrew M / Brandão, Marina B

    Brazilian journal of physical therapy

    2023  Volume 27, Issue 6, Page(s) 100561

    Abstract: Background: Individuals with unilateral spastic cerebral palsy (USCP) often show difficulties using their hands during activities of daily living.: Objective: To investigate the factors that interfere with hand use during bimanual activities in ... ...

    Abstract Background: Individuals with unilateral spastic cerebral palsy (USCP) often show difficulties using their hands during activities of daily living.
    Objective: To investigate the factors that interfere with hand use during bimanual activities in children and adolescents with USCP.
    Methods: We conducted a cross-sectional study with 102 children and adolescents with USCP, aged 6 to 18 years. We collected information with the caregivers about the classification of the child's manual ability, according to the Manual Ability Classification System (MACS); child's age; side of the involvement; Children's Hand-Use Experience Questionnaire- CHEQ2.0. Cluster analysis identified groups of children and adolescents who performed CHEQ activities with or without assistance. Multiple linear regression analyses identified the contribution of the factors: age, sex, MACS level, side of hemiparesis, and clusters of assistance, on the outcomes of efficacy, time, and feeling bothered.
    Results: MACS and clusters of assistance explained the variance in efficacy (p<0.05; R
    Conclusion: Assistance in bimanual activities and MACS level contributed to explain the efficacy of use, time, and feeling bothered in performing bimanual activities. Intervention strategies aimed at promoting the performance of bimanual activities in the daily routine of children with USCP should consider these outcomes.
    MeSH term(s) Child ; Humans ; Adolescent ; Cerebral Palsy ; Activities of Daily Living ; Cross-Sectional Studies ; Hand ; Upper Extremity
    Language English
    Publishing date 2023-11-07
    Publishing country Brazil
    Document type Journal Article
    ZDB-ID 2252917-2
    ISSN 1809-9246 ; 1809-9246
    ISSN (online) 1809-9246
    ISSN 1809-9246
    DOI 10.1016/j.bjpt.2023.100561
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article ; Online: Information and Empowerment of Families of Children With Cerebral Palsy in Brazil: The Knowledge Translation Role of Nossa Casa Institute.

    Airoldi, Marina J / Vieira, Beatriz S / Teplicky, Rachel / Chalfun, Deborah / Bonfim, Rafael G A S / Mancini, Marisa C / Rosenbaum, Peter / Brandão, Marina B

    Frontiers in rehabilitation sciences

    2021  Volume 2, Page(s) 709983

    Abstract: Knowledge translation (KT) is gaining attention in the pediatric rehabilitation field. ...

    Abstract Knowledge translation (KT) is gaining attention in the pediatric rehabilitation field.
    Language English
    Publishing date 2021-07-19
    Publishing country Switzerland
    Document type Journal Article
    ISSN 2673-6861
    ISSN (online) 2673-6861
    DOI 10.3389/fresc.2021.709983
    Database MEDical Literature Analysis and Retrieval System OnLINE

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