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  1. Article ; Online: Mothers working to prevent early stillbirth study (MiNESS 20–28)

    Claire Storey / Alexander Edward Heazell / Lucy K Smith / Jack Wilkinson / R Katie Morris / Nigel Simpson / Tomasina Stacey / Lucy Higgins

    BMJ Open, Vol 14, Iss

    a case–control study protocol

    2024  Volume 1

    Abstract: Introduction In the UK, 1600 babies die every year before, during or immediately after birth at 20–28 weeks’ gestation. This bereavement has a similar impact on parental physical and psychological well-being to late stillbirth (>28 weeks’ gestation). ... ...

    Abstract Introduction In the UK, 1600 babies die every year before, during or immediately after birth at 20–28 weeks’ gestation. This bereavement has a similar impact on parental physical and psychological well-being to late stillbirth (>28 weeks’ gestation). Improved understanding of potentially modifiable risk factors for late stillbirth (including supine going-to-sleep position) has influenced international clinical practice. Information is now urgently required to similarly inform clinical practice and aid decision-making by expectant mothers/parents, addressing inequalities in pregnancy loss between 20 and 28 weeks.Methods and analysis This study focuses on what portion of risk of pregnancy loss 20–28 weeks’ gestation is associated with exposures amenable to public health campaigns/antenatal care adaptation. A case–control study of non-anomalous singleton baby loss (via miscarriage, stillbirth or early neonatal death) 20+0 to 27+6 (n=316) and randomly selected control pregnancies (2:1 ratio; n=632) at group-matched gestations will be conducted. Data is collected via participant recall (researcher-administered questionnaire) and extraction from contemporaneous medical records. Unadjusted/confounder-adjusted ORs will be calculated. Exposures associated with early stillbirth at OR≥1.5 will be detectable (p<0.05, β>0.80) assuming exposure prevalence of 30%–60%.Ethics and dissemination NHS research ethical approval has been obtained from the London—Seasonal research ethics committee (23/LO/0622). The results will be presented at international conferences and published in peer-reviewed open-access journals. Information from this study will enable development of antenatal care and education for healthcare professionals and pregnant people to reduce risk of early stillbirth.Trial registration number NCT06005272.
    Keywords Medicine ; R
    Subject code 170
    Language English
    Publishing date 2024-01-01T00:00:00Z
    Publisher BMJ Publishing Group
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  2. Article ; Online: Strengthening open disclosure after incidents in maternity care

    Mary Adams / Julie Hartley / Natalie Sanford / Alexander Edward Heazell / Rick Iedema / Charlotte Bevan / Maria Booker / Maureen Treadwell / Jane Sandall

    BMC Health Services Research, Vol 23, Iss 1, Pp 1-

    a realist synthesis of international research evidence

    2023  Volume 55

    Abstract: Abstract Background Open Disclosure (OD) is open and timely communication about harmful events arising from health care with those affected. It is an entitlement of service-users and an aspect of their recovery, as well as an important dimension of ... ...

    Abstract Abstract Background Open Disclosure (OD) is open and timely communication about harmful events arising from health care with those affected. It is an entitlement of service-users and an aspect of their recovery, as well as an important dimension of service safety improvement. Recently, OD in maternity care in the English National Health Service has become a pressing public issue, with policymakers promoting multiple interventions to manage the financial and reputational costs of communication failures. There is limited research to understand how OD works and its effects in different contexts. Methods Realist literature screening, data extraction, and retroductive theorisation involving two advisory stakeholder groups. Data relevant to families, clinicians, and services were mapped to theorise the relationships between contexts, mechanisms, and outcomes. From these maps, key aspects for successful OD were identified. Results After realist quality appraisal, 38 documents were included in the synthesis (22 academic, 2 training guidance, and 14 policy report). 135 explanatory accounts were identified from the included documents (with n = 41 relevant to families; n = 37 relevant to staff; and n = 37 relevant to services). These were theorised as five key mechanism sets: (a) meaningful acknowledgement of harm, (b) opportunity for family involvement in reviews and investigations, (c) possibilities for families and staff to make sense of what happened, (d) specialist skills and psychological safety of clinicians, and (e) families and staff knowing that improvements are happening. Three key contextual factors were identified: (a) the configuration of the incident (how and when identified and classified as more or less severe); (b) national or state drivers, such as polices, regulations, and schemes, designed to promote OD; and (c) the organisational context within which these these drivers are recieived and negotiated. Conclusions This is the first review to theorise how OD works, for whom, in what circumstances, and ...
    Keywords Open disclosure ; Adverse events ; Incident reviews ; Family involvement ; Realist evaluation ; Realist literature synthesis ; Public aspects of medicine ; RA1-1270
    Subject code 360
    Language English
    Publishing date 2023-03-01T00:00:00Z
    Publisher BMC
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  3. Article ; Online: Investigation of the critical factors required to improve the disclosure and discussion of harm with affected women and families

    Alexander Edward Heazell / Rick Iedema / Jane Sandall / Mary Adams / Charlotte Bevan / Maria Booker / Maureen Treadwell / Julie Hartley

    BMJ Open, Vol 12, Iss

    a study protocol for a qualitative, realist study in NHS maternity services (the DISCERN study)

    2022  Volume 2

    Keywords Medicine ; R
    Language English
    Publishing date 2022-02-01T00:00:00Z
    Publisher BMJ Publishing Group
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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    Inter-library loan at ZB MED

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  4. Article ; Online: Protocol for the development of a core outcome set for stillbirth care research (iCHOOSE Study)

    Danya Bakhbakhi / Christy Burden / Alexander Edward Heazell / Mary Lynch / Laura Timlin / Soo Downe / Lisa Hinton / Pauline Slade / Abigail Fraser / Vicki Flenady / Anna Davies / Sara Brookes / Margaret Murphy / James M N Duffy / Maggie Redshaw / Kate Mulley / Dimitris Siasakos / Abi Merriel / Aleena Wojcieszek /
    Heloisa de Oliveira Salgado / Danielle Pollock / Neelam Aggarwal / Irene Attachie / Susannah Leisher / Wanijiru Kihusa / Lindsey Wimmer / Lisa Thorne / Will Hatton / Carla Mereu Keating / Heather Jane Coombs / Dave Coombs / Michelle Fischer / Ali Fischer / Fraser Morton / Naomi Hepworth

    BMJ Open, Vol 12, Iss

    2022  Volume 2

    Keywords Medicine ; R
    Language English
    Publishing date 2022-02-01T00:00:00Z
    Publisher BMJ Publishing Group
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

    Full text online

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    Inter-library loan at ZB MED

    Your chosen title can be delivered directly to ZB MED Cologne location if you are registered as a user at ZB MED Cologne.

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