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Article: Triggers for Palliative Care Referral in Pediatric Oncology.

Cuviello, Andrea / Yip, Catherine / Battles, Haven / Wiener, Lori / Boss, Renee

2021 Volume 13, Issue 6

Abstract: Palliative care (PC) integration into the care of pediatric oncology patients is growing in acceptance and has been shown to improve the quality of life of children with cancer. Yet timing for referrals and referral practices remain inconsistent, and PC ... ...

Abstract	Palliative care (PC) integration into the care of pediatric oncology patients is growing in acceptance and has been shown to improve the quality of life of children with cancer. Yet timing for referrals and referral practices remain inconsistent, and PC remains underutilized. We conducted a retrospective chart review of pediatric oncology patients treated at an academic institution between January 2015 to November 2018. Data collected included demographics, disease and therapy characteristics, and consultation notes, specifically documenting existence of predetermined "high yield triggers" for PC consultation. Among 931 eligible patients the prevalence of PC consultation was 5.6% while approximately 94% of patients had at least 1 trigger for PC consultation. The triggers that more often resulted in PC consultation included: symptom management needs (98%;
Language	English
Publishing date	2021-03-19
Publishing country	Switzerland
Document type	Journal Article
ZDB-ID	2527080-1
ISSN	2072-6694
ISSN	2072-6694
DOI	10.3390/cancers13061419
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Article: Medicaid coverage for tobacco dependence treatment: Enrollee awareness and use.

Hayes, Kim A / Olson, Lindsay T / Brown, Elizabeth M / Battles, Haven B / Juster, Harlan R

Preventive medicine reports

2021 Volume 24, Page(s) 101509

Abstract: Medicaid-insured adults smoke at twice the rate of privately insured adults. Insurance coverage for tobacco dependence treatments (TDTs) has been shown to increase quit attempts, but few published studies have measured enrollees' awareness of Medicaid ... ...

Abstract	Medicaid-insured adults smoke at twice the rate of privately insured adults. Insurance coverage for tobacco dependence treatments (TDTs) has been shown to increase quit attempts, but few published studies have measured enrollees' awareness of Medicaid coverage. We assessed awareness of Medicaid coverage for and use of TDTs among New York State (NYS) Medicaid-insured smokers and recent quitters. In July-August 2017, we conducted a probability-based online survey of Medicaid enrollees in NYS aged 18 to 65 in fee-for-service and managed care plans (n = 266; AAPOR 4RR = 22.5%). In 2017, we estimated descriptive statistics and used Adjusted Wald tests to assess differences in awareness and use of TDTs (
Language	English
Publishing date	2021-08-02
Publishing country	United States
Document type	Journal Article
ZDB-ID	2785569-7
ISSN	2211-3355
ISSN	2211-3355
DOI	10.1016/j.pmedr.2021.101509
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Article ; Online: Changes in Reported Secondhand Smoke Incursions and Smoking Behavior after Implementation of a Federal Smoke-Free Rule in New York State Federally Subsidized Public Housing.

Curry, Laurel E / Feld, Ashley L / Rogers, Todd / Coats, Ellen M / Nonnemaker, James / Anker, Elizabeth / Ortega-Peluso, Christina / Battles, Haven

International journal of environmental research and public health

2022 Volume 19, Issue 6

Abstract: This study assessed changes in smoking behavior and secondhand smoke (SHS) exposure after implementation of the U.S. Department of Housing and Urban Development (HUD) rule prohibiting the use of cigarettes, cigars, pipes, and waterpipes in all federally ... ...

Abstract	This study assessed changes in smoking behavior and secondhand smoke (SHS) exposure after implementation of the U.S. Department of Housing and Urban Development (HUD) rule prohibiting the use of cigarettes, cigars, pipes, and waterpipes in all federally subsidized public housing, including within residential units (apartments). Using quantitative data from a repeated cross-sectional mail survey of New York State residents of five public housing authorities (N = 761 at Wave 1, N = 649 at Wave 2), we found evidence of policy compliance (99% decrease in odds of self-reported smoking in units, OR = 0.01, p < 0.01, CI: 0.00−0.16), reduced SHS incursions (77% decrease in odds of smelling smoke within developments, OR = 0.23, p < 0.01, CI: 0.13−0.44), and lower reported smoking rates in July 2018 (9.5%, down from 16.8%), 10 months after implementation of the rule. Despite evident success, one-fifth of residents reported smelling smoke inside their apartment at least a few times per week. This study provides insights into how the policy was implemented in selected New York public housing authorities, offers evidence of policy-intended effects, and highlights challenges to consistent and impactful policy implementation.
MeSH term(s)	Cross-Sectional Studies ; Housing ; Humans ; New York/epidemiology ; Public Housing ; Smoke-Free Policy ; Smoking/epidemiology ; Tobacco Smoke Pollution/analysis
Chemical Substances	Tobacco Smoke Pollution
Language	English
Publishing date	2022-03-16
Publishing country	Switzerland
Document type	Journal Article ; Research Support, Non-U.S. Gov't
ZDB-ID	2175195-X
ISSN	1660-4601 ; 1661-7827
ISSN (online)	1660-4601
ISSN	1661-7827
DOI	10.3390/ijerph19063513
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Article: Is Participating in Psychological Research a Benefit, Burden, or Both for Medically Ill Youth and Their Caregivers?.

Wiener, Lori / Battles, Haven / Zadeh, Sima / Pao, Maryland

IRB

2016 Volume 37, Issue 6, Page(s) 1–8

MeSH term(s)	Caregivers/psychology ; Child ; Community Participation/psychology ; Female ; Humans ; Male ; Patients/psychology ; Psychology ; Research
Language	English
Publishing date	2016-01-17
Publishing country	United States
Document type	Journal Article ; Research Support, N.I.H., Intramural
ZDB-ID	347743-5
ISSN	0193-7758
ISSN	0193-7758
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Article ; Online: Participation in Online Research Examining End-of-Life Experiences: Is It Beneficial, Burdensome, or Both for Parents Bereaved by Childhood Cancer?

Tager, Julia / Battles, Haven / Bedoya, Sima Zadeh / Gerhardt, Cynthia A / Young-Saleme, Tammi / Wiener, Lori

Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses

2019 Volume 36, Issue 3, Page(s) 170–177

Abstract: It is important for the health care community to understand the impact of a child's death on parent functioning. Yet involving bereaved parents in research that enquires about such a stressful time in their life can potentially bring harm to them. The ... ...

Abstract	It is important for the health care community to understand the impact of a child's death on parent functioning. Yet involving bereaved parents in research that enquires about such a stressful time in their life can potentially bring harm to them. The current study examines the perceived benefit and burden of parents participating in a survey exploring their perceptions of their child's end-of-life (EoL) and bereavement experiences. Parents whose child died from cancer or complications of cancer treatment were invited to complete a survey developed by pediatric psychosocial oncology professionals with input from bereaved parent advocates through a closed social media (Facebook) group. One hundred seventy-eight parents of children aged 0 to 37 years at death (median age 12 years) participated. More than three quarters of parents reported at least "a little benefit" and half reported at least "a little burden" associated with participation. Less burden was perceived by younger and female parents, parents of younger children, those who had felt prepared to meet their children's emotional needs at EoL, and those not using bereavement services at the time of the survey. With the increasing use of social media as a source for bereaved parents to receive and provide emotional support, it is important for clinicians and researchers to understand the perceived benefits and risks of participating in research about EoL experiences via online recruitment. Our findings suggest that the benefit and burden of online research participation may vary for bereaved parents, but further research is necessary to replicate the findings and explore ways to optimize the use of this approach.
MeSH term(s)	Adolescent ; Adult ; Attitude to Death ; Bereavement ; Child ; Child, Preschool ; Family/psychology ; Female ; Grief ; Humans ; Infant ; Infant, Newborn ; Male ; Neoplasms/mortality ; Parents/psychology ; Surveys and Questionnaires ; Terminally Ill/psychology ; Young Adult
Language	English
Publishing date	2019-04-12
Publishing country	United States
Document type	Journal Article ; Research Support, N.I.H., Extramural
ZDB-ID	1038107-7
ISSN	1532-8457 ; 1043-4542
ISSN (online)	1532-8457
ISSN	1043-4542
DOI	10.1177/1043454219836963
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Article ; Online: Dentist and hygienist smoking cessation counseling and awareness of Medicaid benefits.

Brown, Elizabeth M / Hayes, Kim A / Olson, Lindsay T / Battles, Haven / Ortega-Peluso, Christina

Journal of public health dentistry

2019 Volume 79, Issue 3, Page(s) 246–252

Abstract: Objectives: Integrating smoking cessation interventions into dental care is an efficient way to intervene with smokers. This study of dentists and dental hygienists who provide dental care to Medicaid-insured patients explores awareness of Medicaid ... ...

Abstract	Objectives: Integrating smoking cessation interventions into dental care is an efficient way to intervene with smokers. This study of dentists and dental hygienists who provide dental care to Medicaid-insured patients explores awareness of Medicaid smoking cessation benefits, awareness of Quitline resources, beliefs about perceived role in providing tobacco interventions, and behaviors around clinical intervention. Methods: In 2015, we conducted a survey of dentists and hygienists who serve Medicaid patients in New York State. Results: A total of 182 dentists and 92 hygienists completed the survey. Ninety percent reported that helping patients quit smoking is part of their role, while 51.0 percent reported feeling confident in their ability to counsel a patient about quitting. Most respondents (73.4 percent) asked patients about tobacco use, 83.7 percent advised smokers to quit, and 49.1 percent assisted with quit attempts. We found that 26.7 percent were aware that dentist smoking cessation counseling is covered by Medicaid, and 15.5 percent were aware that hygienist smoking cessation counseling is covered. A total of 38.9 percent were aware of any Medicaid coverage for smoking cessation. Awareness of the Medicaid smoking cessation benefit was associated with intervention behaviors of asking and assisting. Conclusions: Most dental care providers see smoking cessation as part of their role, but few are aware of the Medicaid benefits available to help patients. Expanding coverage of and promoting Medicaid benefits for smoking cessation have the potential to increase the reach and quality of smoking cessation interventions for Medicaid-insured smokers, a population disproportionately affected by tobacco use.
MeSH term(s)	Counseling ; Dental Hygienists ; Dentist-Patient Relations ; Dentists ; Humans ; Medicaid ; Smoking Cessation ; United States
Language	English
Publishing date	2019-05-07
Publishing country	United States
Document type	Journal Article
ZDB-ID	410719-6
ISSN	1752-7325 ; 0022-4006
ISSN (online)	1752-7325
ISSN	0022-4006
DOI	10.1111/jphd.12321
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Article ; Online: Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents.

Wiener, Lori / Tager, Julia / Mack, Jennifer / Battles, Haven / Bedoya, Sima Zadeh / Gerhardt, Cynthia A

Pediatric blood & cancer

2019 Volume 67, Issue 2, Page(s) e27993

Abstract: Background: Most parents vividly recall the weeks, days, and moments preceding their child's death for years to come. Dissatisfaction with communication about their child's condition and lack of guidance can contribute to stress prior to a child's death. ...

Abstract	Background: Most parents vividly recall the weeks, days, and moments preceding their child's death for years to come. Dissatisfaction with communication about their child's condition and lack of guidance can contribute to stress prior to a child's death. Based on findings from a study assessing the degree of preparation bereaved parents received and our collective clinical experience, the authors provide suggestions on end-of-life communication and guidance for parents. Methods: Caregivers of a child who died from cancer were invited to complete a 46-item survey through a closed social media (Facebook) group ("Parents who lost children to cancer"). In four months' time, 131 bereaved caregivers completed the survey. Results were analyzed using descriptive statistics, chi-square analyses, and a thematic content analysis framework. The mean age of the child at the time of death was 12. Results: Approximately 40% of the parents in this study felt unprepared for both the medical problems their child faced and how to respond to their child's emotional needs; fewer than 10% felt very prepared for either. Parents were more likely to feel unprepared when perceived suffering was high, highlighting the critical importance of communication and support from the healthcare team as an adjunct to optimal symptom control. Conclusions: Through quantitative and open-ended responses, this study identified specific medical and emotional issues about which parents wanted greater preparation. Future research to evaluate guidance strategies to reduce parental suffering prior to the child's death is needed.
MeSH term(s)	Adolescent ; Adult ; Aged ; Attitude to Death ; Bereavement ; Child ; Child, Preschool ; Communication ; Female ; Follow-Up Studies ; Humans ; Infant ; Male ; Middle Aged ; Neoplasms/mortality ; Neoplasms/psychology ; Parents/psychology ; Professional-Family Relations ; Retrospective Studies ; Stress, Psychological ; Surveys and Questionnaires ; Terminally Ill/psychology ; Young Adult
Language	English
Publishing date	2019-10-08
Publishing country	United States
Document type	Journal Article ; Research Support, N.I.H., Intramural
ZDB-ID	2131448-2
ISSN	1545-5017 ; 1545-5009
ISSN (online)	1545-5017
ISSN	1545-5009
DOI	10.1002/pbc.27993
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Article ; Online: Utilization of palliative care consultations in pediatric oncology phase I clinical trials.

Cuviello, Andrea / Boss, Renee / Shah, Nirali / Battles, Haven / Beri, Andrea / Wiener, Lori

Pediatric blood & cancer

2019 Volume 66, Issue 8, Page(s) e27771

Abstract: Pediatric phase I clinical oncology trials represent a unique cohort of patients who have not responded to standard therapies and remain highly vulnerable to treatment toxicity and/or disease burden. Incorporating a palliative care consultation into the ... ...

Abstract	Pediatric phase I clinical oncology trials represent a unique cohort of patients who have not responded to standard therapies and remain highly vulnerable to treatment toxicity and/or disease burden. Incorporating a palliative care consultation into the care plan for those with relapsed/refractory cancer where chance of cure is limited is generally recommended. A retrospective chart review of pediatric phase I trials revealed that palliative care was consulted in <20% of patients, most often for symptom management. Efforts to increase the use of palliative services in this population may enhance quality of life for children and families enrolled in phase I studies.
MeSH term(s)	Adolescent ; Clinical Trials, Phase I as Topic/statistics & numerical data ; Female ; Follow-Up Studies ; Humans ; Male ; Neoplasms/therapy ; Palliative Care/statistics & numerical data ; Prognosis ; Quality of Life ; Referral and Consultation/statistics & numerical data ; Retrospective Studies ; Standard of Care/statistics & numerical data
Language	English
Publishing date	2019-04-22
Publishing country	United States
Document type	Journal Article ; Research Support, N.I.H., Intramural
ZDB-ID	2131448-2
ISSN	1545-5017 ; 1545-5009
ISSN (online)	1545-5017
ISSN	1545-5009
DOI	10.1002/pbc.27771
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Article ; Online: Home testing for SARS-CoV-2 and impact on surveillance in New York State.

Mitchell, Ethan C / Nguyen, Trang / Boulais, Michele / Ravi Brenner, I / Dorabawila, Vajeera / Hoen, Rebecca / Li, Yunshu / Cavazos, Michelle / Levine, Burton / Anderson, Bridget J / Battles, Haven / Brissette, Ian / Backenson, Bryon / Lutterloh, Emily / Bauer, Ursula E / Rosenberg, Eli S

Annals of epidemiology

2023 Volume 91, Page(s) 74–81

Abstract: Purpose: To determine the distribution of diagnosed SARS-CoV-2 infections by testing modality (at-home rapid antigen [home tests] versus laboratory-based tests in clinical settings [clinical tests]), assess factors associated with clinical testing, and ... ...

Abstract	Purpose: To determine the distribution of diagnosed SARS-CoV-2 infections by testing modality (at-home rapid antigen [home tests] versus laboratory-based tests in clinical settings [clinical tests]), assess factors associated with clinical testing, and estimate the true total number of diagnosed infections in New York State (NYS). Methods: We conducted an online survey among NYS residents and analyzed data from 1012 adults and 246 children with diagnosed infection July 13-December 7, 2022. Weighted descriptive and logistic regression model analyses were conducted. Weighted percentages and prevalence ratios by testing modality were generated. The percent of infections diagnosed by clinical tests via survey data were synthesized with daily lab-reported results to estimate the total number of diagnosed SARS-CoV-2 infections in NYS July 1-December 31, 2022. Results: Over 70% of SARS-CoV-2 infections in NYS during the study period were diagnosed exclusively with home tests. Diagnosis with a clinical test was associated with age, race/ethnicity, and region among adults, and sex, age, and education among children. We estimate 4.1 million NYS residents had diagnosed SARS-CoV-2 infection July 1-December 31, 2022, compared to 1.1 million infections reported over the same period. Conclusions: Most SARS-CoV-2 infections in NYS were diagnosed exclusively with home tests. Surveillance metrics using laboratory-based reporting data underestimate diagnosed infections.
MeSH term(s)	Adult ; Child ; Humans ; SARS-CoV-2 ; COVID-19/diagnosis ; COVID-19/epidemiology ; COVID-19 Testing ; New York/epidemiology ; Clinical Laboratory Techniques/methods
Language	English
Publishing date	2023-11-22
Publishing country	United States
Document type	Journal Article
ZDB-ID	1074355-8
ISSN	1873-2585 ; 1047-2797
ISSN (online)	1873-2585
ISSN	1047-2797
DOI	10.1016/j.annepidem.2023.11.009
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Article ; Online: How Low-Income Smokers in New York Access Cheaper Cigarettes.

Curry, Laurel / Schmitt, Carol L / Henes, Amy / Ortega-Peluso, Christina / Battles, Haven

American journal of health promotion : AJHP

2018 Volume 33, Issue 4, Page(s) 558–565

Abstract: Purpose: To understand the tobacco acquisition practices of low-income smokers in New York State in light of high cigarette prices due to high cigarette taxes.: Design: Eight focus groups with low-income smokers were conducted in spring 2015 and 2016 ...

Abstract	Purpose: To understand the tobacco acquisition practices of low-income smokers in New York State in light of high cigarette prices due to high cigarette taxes. Design: Eight focus groups with low-income smokers were conducted in spring 2015 and 2016 (n = 74). Setting: New York City (NYC) and Buffalo, New York. Participants: Low-income adults aged 18 to 65 who smoke cigarettes regularly. Method: Qualitative analysis of focus group transcripts that explored differences and similarities by region. We used the interview guide-which covered the process of acquiring cigarettes and the impact of cigarette prices-as a framework for analysis to generate themes and subthemes (deductive coding). We also generated themes and subthemes that emerged during focus group discussions (inductive coding). Results: Some smokers in Western New York have switched to untaxed cigarettes from Native American reservations, whereas low-income smokers in NYC described convenient sources of bootlegged cigarettes (packs or loosies) in their local neighborhood stores, through acquaintances, or on the street. Familiarity with the retailer was key to accessing bootlegged cigarettes from retailers. Conclusions: Smokers in this study could access cheaper cigarettes, which discouraged quit attempts and allowed them to continue smoking. The availability of lower priced cigarettes may attenuate public health efforts aimed at reducing smoking prevalence through price and tax increases.
MeSH term(s)	Adolescent ; Adult ; Costs and Cost Analysis ; Female ; Focus Groups ; Humans ; Male ; Middle Aged ; New York ; New York City ; Poverty/economics ; Poverty/psychology ; Smoking/economics ; Smoking/epidemiology ; Taxes ; Tobacco Products/economics ; Tobacco Products/supply & distribution ; Young Adult
Language	English
Publishing date	2018-10-09
Publishing country	United States
Document type	Journal Article
ZDB-ID	645160-3
ISSN	2168-6602 ; 0890-1171
ISSN (online)	2168-6602
ISSN	0890-1171
DOI	10.1177/0890117118805060
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