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  1. Article ; Online: Lung Cancer Screening: Implementation Challenges and Health Equity Considerations For the Western Pacific Region.

    Nightingale, Claire / Bavor, Claire / Stone, Emily / Rankin, Nicole M

    JCO global oncology

    2023  Volume 9, Page(s) e2200329

    MeSH term(s) Humans ; Lung Neoplasms ; Health Equity ; Early Detection of Cancer
    Language English
    Publishing date 2023-02-08
    Publishing country United States
    Document type Journal Article ; Review ; Research Support, Non-U.S. Gov't
    ISSN 2687-8941
    ISSN (online) 2687-8941
    DOI 10.1200/GO.22.00329
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article ; Online: Evaluation and acceptability of patient-reported outcome measures in women following pelvic organ prolapse procedures.

    Ruseckaite, Rasa / Jayasinghe, Randi / Bavor, Claire / Dean, Joanne / Daly, Oliver / Ahern, Susannah

    BMC health services research

    2023  Volume 23, Issue 1, Page(s) 624

    Abstract: Background: The Australasian Pelvic Floor Procedure Registry (APFPR) captures clinical and surgical data in women undergoing pelvic floor procedures. The inclusion of patient reported outcome measures (PROMs) in the APFPR is a critical activity ... ...

    Abstract Background: The Australasian Pelvic Floor Procedure Registry (APFPR) captures clinical and surgical data in women undergoing pelvic floor procedures. The inclusion of patient reported outcome measures (PROMs) in the APFPR is a critical activity providing the additional patient perspective of their condition prior to surgery as well as monitoring beyond the usual post-surgical follow-up time. This study aimed to evaluate the acceptability of seven PROMs for women with pelvic organ prolapse (POP) and to determine the most suitable instrument for the APFPR.
    Methods: Semi-structured qualitative interviews were conducted with women with POP (n = 15) and their treating clinicians (n = 11) in Victoria, Australia. Interview topics covered appropriateness, content, and acceptability of seven POP-specific instruments identified through the literature to determine their suitability and acceptability for inclusion in the APFPR. We analysed the interview data using conventional content analysis.
    Results: All study participants agreed that PROMs were needed for the APFPR. Both women and clinicians suggested that some of the instruments were ambiguous, too long and confusing. The Australian Pelvic Floor Questionnaire was accepted widely amongst women and clinicians and recommended for inclusion in the APFPR. All participants agreed it would be appropriate to capture PROMs before surgery, and then followed up post-surgically. Email, phone call or postal mail-out were the preferred options for PROMs data collection.
    Conclusion: Most women and clinicians supported incorporating PROMs in the APFPR. Study participants believed that capturing PROMs would have potential use in individual care and improve outcomes of women with POP.
    MeSH term(s) Humans ; Female ; Data Collection ; Electronic Mail ; Pelvic Organ Prolapse/surgery ; Victoria ; Patient Reported Outcome Measures
    Language English
    Publishing date 2023-06-13
    Publishing country England
    Document type Journal Article
    ZDB-ID 2050434-2
    ISSN 1472-6963 ; 1472-6963
    ISSN (online) 1472-6963
    ISSN 1472-6963
    DOI 10.1186/s12913-023-09540-2
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article ; Online: Evaluation of the acceptability of patient-reported outcome measures in women following pelvic floor procedures.

    Ruseckaite, Rasa / Bavor, Claire / Marsh, Lucy / Dean, Joanne / Daly, Oliver / Vasiliadis, Dora / Ahern, Susannah

    Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

    2022  Volume 31, Issue 7, Page(s) 2213–2221

    Abstract: Purpose: Patient-reported outcome measures (PROMs) are valuable tools in evaluating the outcomes of surgical treatment health-related quality of life (HRQoL) of women with stress urinary incontinence (SUI) and may be incorporated into related clinical ... ...

    Abstract Purpose: Patient-reported outcome measures (PROMs) are valuable tools in evaluating the outcomes of surgical treatment health-related quality of life (HRQoL) of women with stress urinary incontinence (SUI) and may be incorporated into related clinical quality registries. The aim of this study was to assess the feasibility and acceptability of incorporating PROMs into the Australian Pelvic Floor Procedure Registry (APFPR).
    Methods: Semi-structured qualitative interviews were conducted with women with SUI (N = 12) and their managing clinicians (N = 11) in Victoria, Australia. Interview topics covered content and face validity, appropriateness, and acceptability of three incontinence-specific, two pain, one anxiety and depression, one sexual function and one patient global impression of improvement instruments identified through the literature to determine their suitability and acceptability for the APFPR. We analysed interview data into topics using conventional content analysis.
    Results: Study participants agreed that PROMs were needed for the APFPR. Both participant groups suggested that some of the instruments were ambiguous, therefore only three instruments (one incontinence-specific, sexual function and patient global impression of improvement) will be included in the APFPR. Both clinicians and women agreed it would be appropriate to answer PROMs at baseline and then at 6- and 12-month postsurgically. Email, phone call and mail-out of the instruments were the preferred options for administration.
    Conclusion: Most women and clinicians supported the feasibility of incorporating PROMs in the APFPR. Participants believed the PROMs would demonstrate useful aggregate HRQoL data and have potential for use in individual care.
    MeSH term(s) Australia ; Female ; Humans ; Patient Reported Outcome Measures ; Pelvic Floor ; Quality of Life/psychology ; Treatment Outcome ; Urinary Incontinence ; Urinary Incontinence, Stress/surgery
    Language English
    Publishing date 2022-02-03
    Publishing country Netherlands
    Document type Journal Article
    ZDB-ID 1161148-0
    ISSN 1573-2649 ; 0962-9343
    ISSN (online) 1573-2649
    ISSN 0962-9343
    DOI 10.1007/s11136-022-03099-x
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  4. Article ; Online: The impact of delayed diagnosis and treatment due to COVID-19 on Australian thyroid cancer patients: a qualitative interview study.

    D'souza, Bianka / Glover, Anthony / Bavor, Claire / Brown, Benjamin / Dodd, Rachael H / Lee, James C / Millar, Jeremy / Miller, Julie A / Zalcberg, John R / Serpell, Jonathan / Ioannou, Liane J / Nickel, Brooke

    BMJ open

    2024  Volume 14, Issue 4, Page(s) e069236

    Abstract: Objectives: The study aims to investigate the perceptions of patients with thyroid cancer on the potential impact of diagnosis and treatment delays during the COVID-19 pandemic.: Design: This study involved qualitative semi-structured telephone ... ...

    Abstract Objectives: The study aims to investigate the perceptions of patients with thyroid cancer on the potential impact of diagnosis and treatment delays during the COVID-19 pandemic.
    Design: This study involved qualitative semi-structured telephone interviews. The interviews were transcribed verbatim, analysed using the thematic framework analysis method and reported using the Consolidated Criteria for Reporting Qualitative Research.
    Setting: Participants in the study were treated and/or managed at hospital sites across New South Wales and Victoria, Australia.
    Participants: 17 patients with thyroid cancer were interviewed and included in the analysis (14 females and 3 males).
    Results: The delays experienced by patients ranged from <3 months to >12 months. The patients reported about delays to diagnostic tests, delays to surgery and radioactive iodine treatment, perceived disease progression and, for some, the financial burden of choosing to go through private treatment to minimise the delay. Most patients also reported not wanting to experience delays any longer than they did, due to unease and anxiety.
    Conclusions: This study highlights an increased psychological burden in patients with thyroid cancer who experienced delayed diagnosis and/or treatment during COVID-19. The impacts experienced by patients during this time may be similar in the case of other unexpected delays and highlight the need for regular clinical review during delays to diagnosis or treatment.
    MeSH term(s) Male ; Female ; Humans ; Thyroid Neoplasms/diagnosis ; Thyroid Neoplasms/therapy ; COVID-19 ; Delayed Diagnosis ; Iodine Radioisotopes ; Pandemics ; Victoria ; Qualitative Research ; COVID-19 Testing
    Chemical Substances Iodine Radioisotopes
    Language English
    Publishing date 2024-04-15
    Publishing country England
    Document type Journal Article
    ZDB-ID 2599832-8
    ISSN 2044-6055 ; 2044-6055
    ISSN (online) 2044-6055
    ISSN 2044-6055
    DOI 10.1136/bmjopen-2022-069236
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  5. Article ; Online: The early impacts of primary HPV cervical screening implementation in Australia on the pathology sector: a qualitative study.

    Bavor, Claire / Brotherton, Julia Ml / Smith, Megan A / Prang, Khic-Houy / McDermott, Tracey / Rankin, Nicole M / Zammit, Claire M / Jennett, Chloe J / Sultana, Farhana / Machalek, Dorothy A / Nightingale, Claire E

    BMC health services research

    2023  Volume 23, Issue 1, Page(s) 1073

    Abstract: Background: The transition of Australia's National Cervical Screening Program from cytology to a molecular test for human papillomavirus (HPV) (locally referred to as the 'Renewal'), including a longer five-year interval and older age at commencement, ... ...

    Abstract Background: The transition of Australia's National Cervical Screening Program from cytology to a molecular test for human papillomavirus (HPV) (locally referred to as the 'Renewal'), including a longer five-year interval and older age at commencement, significantly impacted all sectors of program delivery. The Renewal had major implications for the roles and requirements of pathology laboratories providing services for the Program. This study aimed to understand the early impacts of the Renewal and its implementation on the pathology sector.
    Methods: Semi-structured qualitative interviews were conducted with key stakeholders (N = 49) involved in the STakeholder Opinions of Renewal Implementation and Experiences Study (STORIES), 11-20 months after the program transition. A subset of interviews (N = 24) that discussed the pathology sector were analysed using inductive thematic analysis.
    Results: Four overarching themes were identified: implementation enablers, challenges, missed opportunities, and possible improvements. Participants believed that the decision to transition to primary HPV screening was highly acceptable and evidence-based, but faced challenges due to impacts on laboratory infrastructure, resources, staffing, and finances. These challenges were compounded by unfamiliarity with new information technology (IT) systems and the new National Cancer Screening Register ('Register') not being fully functional by the date of the program transition. The limited availability of self-collection and lack of standardised fields in pathology forms were identified as missed opportunities to improve equity in the Program. To improve implementation processes, participants suggested increased pathology sector involvement in planning was needed, along with more timely and transparent communication from the Government, and clearer clinical management guidelines.
    Conclusion: The transition to primary HPV screening had a significant and multifaceted impact on the Australian pathology sector reflecting the magnitude and complexity of the Renewal. Strategies to support the pathology sector through effective change management, clear, timely, and transparent communication, as well as adequate funding sources will be critical for other countries planning to transition cervical screening programs.
    MeSH term(s) Female ; Humans ; Uterine Cervical Neoplasms/diagnosis ; Uterine Cervical Neoplasms/prevention & control ; Early Detection of Cancer ; Papillomavirus Infections/diagnosis ; Papillomavirus Infections/prevention & control ; Australia ; Mass Screening
    Language English
    Publishing date 2023-10-06
    Publishing country England
    Document type Journal Article
    ZDB-ID 2050434-2
    ISSN 1472-6963 ; 1472-6963
    ISSN (online) 1472-6963
    ISSN 1472-6963
    DOI 10.1186/s12913-023-10040-6
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  6. Article ; Online: Self-Collection Cervical Screening in the Asia-Pacific Region: A Scoping Review of Implementation Evidence.

    Creagh, Nicola Stephanie / Boyd, Lucy Ann Patricia / Bavor, Claire / Zammit, Claire / Saunders, Tessa / Oommen, Anu Mary / Rankin, Nicole Marion / Brotherton, Julia Mary Louise / Nightingale, Claire Elizabeth

    JCO global oncology

    2023  Volume 9, Page(s) e2200297

    Abstract: Purpose: Although cervical cancer is a disease of inequity, it can be eliminated as a public health problem through vaccination, screening, and treatment. Human papillomavirus vaginal self-collection cervical screening is a high-performance test that ... ...

    Abstract Purpose: Although cervical cancer is a disease of inequity, it can be eliminated as a public health problem through vaccination, screening, and treatment. Human papillomavirus vaginal self-collection cervical screening is a high-performance test that can increase reach of screening. This review describes the different contexts and models of care used to pilot or implement self-collection within the Asia-Pacific, measures the extent that implementation outcome measures are reported and, where available, summarizes key implementation findings.
    Methods: A scoping review was conducted by searching five databases of the peer-reviewed literature on June 20, 2022. Two researchers assessed eligibility and extracted data independently to the model of care used and the Conceptual Framework for Implementation Outcomes. A mixed-method consolidation of findings (quantitative: count and frequencies; qualitative: content analysis) was undertaken to narratively report findings.
    Results: Fifty-seven articles, comprising 50 unique studies from 11 countries and two special autonomous regions, were included; 82% were conducted in trials. The implementation of self-collection was conducted in low- (2%), lower-middle- (32%), upper-middle- (32%), and high-income (35%) settings, with 10 different delivery models used; 80% delivered through practitioner-supported models with diversity in how samples were processed, and treatment was offered. Acceptability (73%) and appropriateness (64%) measures were most reported, followed by adoption (57%), feasibility (48%), and fidelity (38%). Only 7% of articles reported implementation cost or penetration measures. No articles reported sustainability measures.
    Conclusion: The literature confirms that self-collection cervical screening has been implemented within the Asia-Pacific region, with evidence demonstrating that it is acceptable and appropriate from the user's perspective. Well-designed, high-quality implementation trials and real-world evaluations of self-collection that report the breadth of implementation outcomes can support the progression toward the elimination of cervical cancer.
    MeSH term(s) Female ; Humans ; Uterine Cervical Neoplasms/diagnosis ; Uterine Cervical Neoplasms/prevention & control ; Early Detection of Cancer ; Asia/epidemiology ; Income
    Language English
    Publishing date 2023-02-01
    Publishing country United States
    Document type Journal Article ; Review ; Research Support, Non-U.S. Gov't
    ISSN 2687-8941
    ISSN (online) 2687-8941
    DOI 10.1200/GO.22.00297
    Database MEDical Literature Analysis and Retrieval System OnLINE

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