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  1. Book ; Online: Chapter Quality of life in Health Care: focus on patients

    Digrandi, Angela / Pilo, Cinzia / Benedan, Laura / Mariani, Paolo / Zenga, Mariangela

    (Proceedings e report)

    2023  

    Series title Proceedings e report
    Keywords Society & social sciences ; Quality of Life ; Questionnaire ; Patients ; Health care
    Language English
    Size 1 electronic resource (5 pages)
    Publisher Firenze University Press, Genova University Press
    Publishing place Florence
    Document type Book ; Online
    Note English
    HBZ-ID HT030381712
    ISBN 9791221501063
    Database ZB MED Catalogue: Medicine, Health, Nutrition, Environment, Agriculture

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    Order via subito

    This service is chargeable due to the Delivery terms set by subito. Orders including an article and supplementary material will be classified as separate orders. In these cases, fees will be demanded for each order.

    Inter-library loan at ZB MED

    Your chosen title can be delivered directly to ZB MED Cologne location if you are registered as a user at ZB MED Cologne.

  2. Book ; Online: Chapter Patient-generated evidence in Epidermolysis Bullosa (EB): Development of a questionnaire to assess the Quality of Life

    Pilo, Cinzia / Benedan, Laura / El Hachem, May / Galeone, Carlotta / Mariani, Paolo / Tadini, Gianluca

    (Proceedings e report)

    2021  

    Series title Proceedings e report
    Keywords Social research & statistics ; Epidermolysis Bullosa ; Patient-centered approach ; Quality of Life ; Pseudo-Delphi
    Language 0|e
    Size 1 electronic resource (5 pages)
    Publisher Firenze University Press
    Publishing place Florence
    Document type Book ; Online
    Note English ; Open Access
    HBZ-ID HT021616611
    ISBN 9788855184618 ; 885518461X
    Database ZB MED Catalogue: Medicine, Health, Nutrition, Environment, Agriculture

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    Order via subito

    This service is chargeable due to the Delivery terms set by subito. Orders including an article and supplementary material will be classified as separate orders. In these cases, fees will be demanded for each order.

    Inter-library loan at ZB MED

    Your chosen title can be delivered directly to ZB MED Cologne location if you are registered as a user at ZB MED Cologne.

  3. Book ; Online: Chapter Development of an innovative methodology to define patient-designed quality of life: a new version of a wellknown concept in healthcare

    Bertoldi, Serena / Sofia, Francesca / Bartolini, Barbara / Benedan, Laura / Galeone, Carlotta / Mariani, Paolo / Zenga, Mariangela

    (Proceedings e report)

    2021  

    Series title Proceedings e report
    Keywords Social research & statistics ; Quality of Life ; QoL ; Pseudo Delphi ; Methodology ; Patient awareness ; Patient experience
    Language 0|e
    Size 1 electronic resource (5 pages)
    Publisher Firenze University Press
    Publishing place Florence
    Document type Book ; Online
    Note English ; Open Access
    HBZ-ID HT021616617
    ISBN 9788855184618 ; 885518461X
    Database ZB MED Catalogue: Medicine, Health, Nutrition, Environment, Agriculture

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    Order via subito

    This service is chargeable due to the Delivery terms set by subito. Orders including an article and supplementary material will be classified as separate orders. In these cases, fees will be demanded for each order.

    Inter-library loan at ZB MED

    Your chosen title can be delivered directly to ZB MED Cologne location if you are registered as a user at ZB MED Cologne.

  4. Article ; Online: The management of patients with inflammatory bowel disease-associated spondyloarthritis: Italian Group for the Study of Inflammatory Bowel Disease (IG-IBD) and Italian Society of Rheumatology (SIR) recommendations based on a pseudo-Delphi consensus.

    Macaluso, Fabio Salvatore / Caprioli, Flavio / Benedan, Laura / Bezzio, Cristina / Caporali, Roberto / Cauli, Alberto / Chimenti, Maria Sole / Ciccia, Francesco / D'Angelo, Salvatore / Fantini, Massimo Claudio / Festa, Stefano / Iannone, Florenzo / Lubrano, Ennio / Mariani, Paolo / Papi, Claudio / Provenzano, Giuseppe / Pugliese, Daniela / Rispo, Antonio / Saibeni, Simone /
    Salvarani, Carlo / Variola, Angela / Zenga, Mariangela / Armuzzi, Alessandro / Orlando, Ambrogio / Gerli, Roberto

    Autoimmunity reviews

    2024  Volume 23, Issue 5, Page(s) 103533

    Abstract: Spondyloarthritis (SpA) is the most frequent extraintestinal manifestation in patients with inflammatory bowel diseases (IBD). When IBD and spondyloarthritis coexist, musculoskeletal and intestinal disease features should be considered when planning a ... ...

    Abstract Spondyloarthritis (SpA) is the most frequent extraintestinal manifestation in patients with inflammatory bowel diseases (IBD). When IBD and spondyloarthritis coexist, musculoskeletal and intestinal disease features should be considered when planning a therapeutic strategy. Treatment options for IBD and SpA have expanded enormously over the last few years, but randomized controlled trials with specific endpoints focused on SpA are not available in the IBD setting. To address this important clinical topic, the Italian Group for the Study of Inflammatory Bowel Disease (IG-IBD) and the Italian Society of Rheumatology (SIR) jointly planned to draw updated therapeutic recommendations for IBD-associated SpA using a pseudo-Delphi method. This document presents the official recommendations of IG-IBD and SIR on the management of IBD-associated SpA in the form of 34 statements and 4 therapeutic algorithms. It is intended to be a reference guide for gastroenterologists and rheumatologists dealing with IBD-associated SpA.
    Language English
    Publishing date 2024-03-22
    Publishing country Netherlands
    Document type Journal Article ; Review
    ZDB-ID 2144145-5
    ISSN 1873-0183 ; 1568-9972
    ISSN (online) 1873-0183
    ISSN 1568-9972
    DOI 10.1016/j.autrev.2024.103533
    Database MEDical Literature Analysis and Retrieval System OnLINE

    Full text online

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    In stock of ZB MED Cologne/Königswinter

    Zs.A 5913: Show issues Location:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
    bis Jg. 1994: Bestellungen von Artikeln über das Online-Bestellformular
    Jg. 1995 - 2021: Lesesall (2.OG)
    ab Jg. 2022: Lesesaal (EG)

    Order via subito

    This service is chargeable due to the Delivery terms set by subito. Orders including an article and supplementary material will be classified as separate orders. In these cases, fees will be demanded for each order.

  5. Article ; Online: Suggestibility in neglected children: The influence of intelligence, language, and social skills.

    Benedan, Laura / Powell, Martine B / Zajac, Rachel / Lum, Jarrad A G / Snow, Pamela

    Child abuse & neglect

    2018  Volume 79, Page(s) 51–60

    Abstract: We administered the GSS-2, a standardised measure of suggestibility, to 5- to 12-year-old children to ascertain whether neglected children's responses to leading questions distinguish them from those of their non-neglected counterparts. Neglected ... ...

    Abstract We administered the GSS-2, a standardised measure of suggestibility, to 5- to 12-year-old children to ascertain whether neglected children's responses to leading questions distinguish them from those of their non-neglected counterparts. Neglected children (n = 75) were more likely than an age-matched sample of non-neglected children (n = 75) to yield to leading questions, despite no difference in their ability to recall the test stimuli. Subsequent collection of individual difference data from the neglected sample revealed that this effect could not be attributed to intelligence, language ability, problem behaviours, age at onset of neglect, or time spent in out-of-home care. With respect to social skill, however, suggestibility was positively correlated with communicative skill, and marginally positively correlated with assertion and engagement. While on the surface our social skills findings seem counter-intuitive, it is possible that maltreated children with relative strengths in these areas have learned to comply with adults in their environment as a way to protect themselves or even foster belonging. Our data, while preliminary, raise interesting questions about whether targeted interventions could help these children to more actively participate in decisions about their lives.
    MeSH term(s) Adult ; Analysis of Variance ; Child ; Child Abuse/psychology ; Child, Preschool ; Communication ; Female ; Humans ; Intelligence ; Language ; Male ; Mental Recall ; Social Skills ; Suggestion
    Language English
    Publishing date 2018-02-05
    Publishing country England
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 799143-5
    ISSN 1873-7757 ; 0145-2134
    ISSN (online) 1873-7757
    ISSN 0145-2134
    DOI 10.1016/j.chiabu.2018.01.005
    Database MEDical Literature Analysis and Retrieval System OnLINE

    Full text online

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    In stock of ZB MED Cologne/Königswinter

    Zs.A 1437: Show issues Location:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
    bis Jg. 1994: Bestellungen von Artikeln über das Online-Bestellformular
    Jg. 1995 - 2021: Lesesall (1.OG)
    ab Jg. 2022: Lesesaal (EG)

    Order via subito

    This service is chargeable due to the Delivery terms set by subito. Orders including an article and supplementary material will be classified as separate orders. In these cases, fees will be demanded for each order.

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