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  1. Article ; Online: Careful the Things You Say, Children Will Listen: Parents, Adolescents, and Fairytales.

    Benedetti, Daniel J / Wilfond, Benjamin S

    Perspectives in biology and medicine

    2024  Volume 66, Issue 4, Page(s) 552–565

    Abstract: Being a parent is hard, particularly parenting adolescents, who need to be given choices and allowed the space to learn how to make choices for themselves, even when those choices result in negative consequences. This essay explores how Steven Sondheim ... ...

    Abstract Being a parent is hard, particularly parenting adolescents, who need to be given choices and allowed the space to learn how to make choices for themselves, even when those choices result in negative consequences. This essay explores how Steven Sondheim and James Lapine's 1987 musical Into the Woods provides relatable stories of the challenges of being a parent, the challenges of parenting adolescents, and just how messy parents and families can be despite everyone trying their best. The stories of Little Red Riding Hood, Rapunzel, Jack, and Cinderella show us various stages, trajectories, and occasional tragedies of adolescents' emerging autonomy, while the Baker's and the Witch's struggles becoming and being parents encapsulate how disorderly and untidy parenting often is. Pediatricians and clinical bioethicists, who are often in a position to scrutinize the choices of parents and teens, should remember that parents and adolescents are almost always motivated by good intentions and doing the best that they can. Perhaps the best we can do is accompany them on their journey "into the woods."
    MeSH term(s) Humans ; Adolescent ; Parents/psychology ; Parenting/psychology ; Parent-Child Relations ; Choice Behavior ; Adolescent Behavior/psychology ; Female ; Child ; Personal Autonomy
    Language English
    Publishing date 2024-04-25
    Publishing country United States
    Document type Journal Article
    ZDB-ID 80373-x
    ISSN 1529-8795 ; 0031-5982
    ISSN (online) 1529-8795
    ISSN 0031-5982
    DOI 10.1353/pbm.2023.a909726
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article ; Online: A case of high-risk neuroblastoma in a child with CLOVES syndrome.

    Girgis, Marina / Benedetti, Daniel J

    Pediatric blood & cancer

    2023  , Page(s) e30393

    Language English
    Publishing date 2023-04-24
    Publishing country United States
    Document type Letter
    ZDB-ID 2131448-2
    ISSN 1545-5017 ; 1545-5009
    ISSN (online) 1545-5017
    ISSN 1545-5009
    DOI 10.1002/pbc.30393
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    Zs.A 1131: Show issues Location:
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  3. Article ; Online: Fuzzy Logic: How the Practicalities of State Involvement Shape the Most Ethically Supportable Way Forward.

    Turnbull, Jessica M / Benedetti, Daniel J

    The American journal of bioethics : AJOB

    2022  Volume 22, Issue 4, Page(s) 83–84

    MeSH term(s) Fuzzy Logic ; Humans
    Language English
    Publishing date 2022-04-12
    Publishing country United States
    Document type Journal Article ; Comment
    ZDB-ID 2060433-6
    ISSN 1536-0075 ; 1526-5161
    ISSN (online) 1536-0075
    ISSN 1526-5161
    DOI 10.1080/15265161.2022.2044545
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  4. Article ; Online: Overcoming refusal of treatment in pediatric cancer without legal involvement: A descriptive case series from interviews with pediatric oncologists.

    Benedetti, Daniel J / Beskow, Laura M / Brown, Amy E Caruso

    Pediatric blood & cancer

    2023  Volume 70, Issue 11, Page(s) e30656

    Abstract: To describe strategies that pediatric oncologists utilize to persuade families to initiate or continue chemotherapy after refusing treatment, we examined transcripts from interviews of oncologists with relevant experience. We identified three cases in ... ...

    Abstract To describe strategies that pediatric oncologists utilize to persuade families to initiate or continue chemotherapy after refusing treatment, we examined transcripts from interviews of oncologists with relevant experience. We identified three cases in which the pediatric oncologists' approaches led to voluntary acceptance of recommended treatment without legal intervention. Strategies used include direct communication with alternative medicine providers, time-limited trial of alternative therapy, and praying with the family. While we cannot conclude whether these approaches could be generalized to other cases, they offer ideas for pediatric oncologists to consider when facing the decision to seek judicial involvement or discontinue persuasive efforts.
    MeSH term(s) Child ; Humans ; Neoplasms/drug therapy ; Communication ; Oncologists ; Pediatricians ; Treatment Refusal
    Language English
    Publishing date 2023-08-28
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2131448-2
    ISSN 1545-5017 ; 1545-5009
    ISSN (online) 1545-5017
    ISSN 1545-5009
    DOI 10.1002/pbc.30656
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  5. Article: Ethical Challenges in Pediatric Oncology Care and Clinical Trials.

    Benedetti, Daniel J / Marron, Jonathan M

    Recent results in cancer research. Fortschritte der Krebsforschung. Progres dans les recherches sur le cancer

    2021  Volume 218, Page(s) 149–173

    Abstract: The care of pediatric cancer patients is a vast departure from cancer care of adults. While the available treatment modalities-chemotherapy, radiation, and surgery-are the same, the diseases, care-delivery, and outcomes differ greatly. And just as ' ... ...

    Abstract The care of pediatric cancer patients is a vast departure from cancer care of adults. While the available treatment modalities-chemotherapy, radiation, and surgery-are the same, the diseases, care-delivery, and outcomes differ greatly. And just as 'children are not just little adults,' pediatric bioethics occupies a distinct place within the broader field of bioethics. In this chapter, we will begin with an introduction to fundamental principles and frameworks for understanding ethical issues in pediatrics, highlighting the triadic nature of medical decision-making between a physician, the child-patient, and the child's parent as the surrogate decision-maker. We will then delve into further details of how these principles and frameworks shape the care of children with cancer, examining specific ethical challenges commonly encountered by pediatric oncologists. We will traverse this landscape by examining issues involving (a) informed consent; (b) research involving children; (c) end of life; (d) genetic and genomic testing; and (e) professionalism. We also examine ethical challenges in clinical research, in children and more broadly. While not an exhaustive exploration of the myriad ethical issues one might encounter in pediatric cancer medicine and clinical trials, this chapter provides readers with a foundation for further reading.
    MeSH term(s) Adult ; Child ; Decision Making ; Humans ; Informed Consent ; Medical Oncology ; Neoplasms/therapy ; Pediatrics
    Language English
    Publishing date 2021-05-21
    Publishing country Germany
    Document type Journal Article
    ISSN 0080-0015
    ISSN 0080-0015
    DOI 10.1007/978-3-030-63749-1_11
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  6. Article: Corrigendum: Landscape of pediatric cancer treatment refusal and abandonment in the US: a qualitative study.

    Benedetti, Daniel J / Hammack-Aviran, Catherine M / Diehl, Carolyn / Beskow, Laura M

    Frontiers in pediatrics

    2024  Volume 12, Page(s) 1386784

    Abstract: This corrects the article DOI: 10.3389/fped.2022.1049661.]. ...

    Abstract [This corrects the article DOI: 10.3389/fped.2022.1049661.].
    Language English
    Publishing date 2024-02-26
    Publishing country Switzerland
    Document type Published Erratum
    ZDB-ID 2711999-3
    ISSN 2296-2360
    ISSN 2296-2360
    DOI 10.3389/fped.2024.1386784
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  7. Article ; Online: Two cases of hepatoblastoma in Bohring-Opitz syndrome: An emerging association.

    Patel, Kritika / McQuaid, Shelly / Ketterl, Tyler / Benedetti, Daniel J / Sokol, Elizabeth

    Pediatric blood & cancer

    2024  , Page(s) e31010

    Language English
    Publishing date 2024-04-18
    Publishing country United States
    Document type Letter
    ZDB-ID 2131448-2
    ISSN 1545-5017 ; 1545-5009
    ISSN (online) 1545-5017
    ISSN 1545-5009
    DOI 10.1002/pbc.31010
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  8. Article ; Online: Not All Conflicts Are Bad: Why Some Conflicts of Interests Advance Patients' Interests.

    Benedetti, Daniel J / Langerman, Alexander

    The American journal of bioethics : AJOB

    2020  Volume 20, Issue 10, Page(s) 92–94

    MeSH term(s) Biomedical Research ; Conflict of Interest ; Humans ; Research Personnel
    Language English
    Publishing date 2020-09-18
    Publishing country United States
    Document type Journal Article ; Comment
    ZDB-ID 2060433-6
    ISSN 1536-0075 ; 1526-5161
    ISSN (online) 1536-0075
    ISSN 1526-5161
    DOI 10.1080/15265161.2020.1806626
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  9. Article: Landscape of pediatric cancer treatment refusal and abandonment in the US: A qualitative study.

    Benedetti, Daniel J / Hammack-Aviran, Catherine M / Diehl, Carolyn / Beskow, Laura M

    Frontiers in pediatrics

    2023  Volume 10, Page(s) 1049661

    Abstract: Objective: To describe United States (US) pediatric oncologists' experiences with treatment refusal or abandonment, exploring types and frequency of decision-making conflicts, and their impact.: Study design: We conducted exploratory qualitative ... ...

    Abstract Objective: To describe United States (US) pediatric oncologists' experiences with treatment refusal or abandonment, exploring types and frequency of decision-making conflicts, and their impact.
    Study design: We conducted exploratory qualitative interviews of pediatric oncologists (
    Results: Many oncologists reported multiple experiences with refusal and abandonment. Most anticipated case frequency would increase due to misinformation, particularly on the internet. Interviewees described cases of treatment refusal and abandonment, but also a wider variety of cases than previously described in existing publications, including cases involving: non-adherence; negotiations for different treatments; negotiations for complementary and alternative medicine; delayed treatment initiation; and refusal of a component of recommended therapy. Cases often involved multiple stages or types of conflicts. Recurring patient/family behaviors emerged: clear opposition to treatment from the outset; hesitancy about treatment despite initiating therapy; and psychosocial circumstances becoming an obstacle to treatment completion. Oncologists revealed substantial professional and personal repercussions of these cases.
    Conclusion: Oncologist interviews highlight a broad range of conflicts, yielding a taxonomy of treatment refusal, non-adherence and abandonment (TRNA) that accounts for the heterogeneity of situations described. Cases' complexity and interrelatedness points to a functional model of TRNA that includes families' behaviors. This preliminary taxonomy and model warrant further research and examination to refine the model and generate strategies to prevent and mitigate TRNA.
    Language English
    Publishing date 2023-01-09
    Publishing country Switzerland
    Document type Journal Article
    ZDB-ID 2711999-3
    ISSN 2296-2360
    ISSN 2296-2360
    DOI 10.3389/fped.2022.1049661
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  10. Article ; Online: Thrombotic Microangiopathy Due to Progressive Disseminated Histoplasmosis in a Child With Down Syndrome and Acute Lymphoblastic Leukemia.

    Cowfer, Brittany A / Hunley, Tracy E / Mason, Emily F / Dulek, Daniel E / Benedetti, Daniel J

    Journal of pediatric hematology/oncology

    2022  Volume 45, Issue 1, Page(s) 38–40

    Abstract: Histoplasmosis, a common mycosis in the south-central United States, may be life threatening in immunocompromised patients. We describe a 4-year-old female with Down syndrome and acute lymphoblastic leukemia who developed hemolytic anemia, ... ...

    Abstract Histoplasmosis, a common mycosis in the south-central United States, may be life threatening in immunocompromised patients. We describe a 4-year-old female with Down syndrome and acute lymphoblastic leukemia who developed hemolytic anemia, thrombocytopenia, and renal failure, consistent with thrombotic microangiopathy. Bone marrow biopsy revealed non-necrotizing granulomas with GMS staining demonstrating budding yeast. Serum Histoplasma antigen testing was positive, providing further evidence for the diagnosis of progressive disseminated histoplasmosis. Treatment with amphotericin B, plasma exchange, and ventilator, vasopressor, and renal replacement support led to a full recovery. Providers should have a low threshold for histoplasmosis testing in ill immunocompromised patients, who are at greater risk for infection-related morbidity.
    MeSH term(s) Female ; Humans ; Child ; Child, Preschool ; Histoplasmosis/complications ; Histoplasmosis/diagnosis ; Histoplasmosis/therapy ; Down Syndrome/complications ; Amphotericin B/therapeutic use ; Thrombotic Microangiopathies/etiology ; Precursor Cell Lymphoblastic Leukemia-Lymphoma/complications
    Chemical Substances Amphotericin B (7XU7A7DROE)
    Language English
    Publishing date 2022-09-22
    Publishing country United States
    Document type Case Reports ; Journal Article
    ZDB-ID 1231152-2
    ISSN 1536-3678 ; 1077-4114 ; 0192-8562
    ISSN (online) 1536-3678
    ISSN 1077-4114 ; 0192-8562
    DOI 10.1097/MPH.0000000000002556
    Database MEDical Literature Analysis and Retrieval System OnLINE

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