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  1. Article ; Online: Toward more mindful reporting of patient and public involvement in healthcare

    Brett Scholz / Alan Bevan

    Research Involvement and Engagement, Vol 7, Iss 1, Pp 1-

    2021  Volume 4

    Abstract: Plain English summary Checklists (such as the GRIPP2) have been proposed as a way to improve how research papers report patient and public involvement in research projects. We were recently asked to complete a GRIPP2 as part of a peer review process, and ...

    Abstract Plain English summary Checklists (such as the GRIPP2) have been proposed as a way to improve how research papers report patient and public involvement in research projects. We were recently asked to complete a GRIPP2 as part of a peer review process, and it felt divisive. AB—a service user researcher—was just as much a part of the research team as was BS—a critical health psychologist. However, the role of BS in the research did not have to be justified or reported in the same way that was being asked of AB. A further concern about being required to use the checklist was that it did not necessarily lead to better reporting. Rather, it created a false sense of objectivity about patient and public involvement, and this might serve to hide power imbalances and tokenism in the research process. We recommend that instead of relying on such checklists, that researchers, reviewers, editors and readers reflect on patient and public involvement processes and the ways in which these are reported. We also make recommendations to make future iterations of the GRIPP more inclusive.
    Keywords Patient partners ; Research reporting ; Checklists ; Consumer leadership ; Consumer researchers ; Lived experience leadership ; Medicine ; R ; Medicine (General) ; R5-920
    Language English
    Publishing date 2021-09-01T00:00:00Z
    Publisher BMC
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  2. Article ; Online: Mapping young people's journeys through mental health services

    Caitlin Pilbeam / Erin Walsh / Katelyn Barnes / Brett Scholz / Anna Olsen / Louise Stone

    PLoS ONE, Vol 18, Iss 6, p e

    A prospective longitudinal qualitative study protocol.

    2023  Volume 0287098

    Abstract: Mental ill health is a major health risk for young people. There is unmet need for mental health assessment and treatment across Australia despite significant investment in government-funded plans to cover mental health and youth-oriented services. ... ...

    Abstract Mental ill health is a major health risk for young people. There is unmet need for mental health assessment and treatment across Australia despite significant investment in government-funded plans to cover mental health and youth-oriented services. Understandings of mental health care for young people are impeded by a lack of longitudinal research. Without this research, it is difficult to understand how services do or do not support the recovery of young people over time. This project will analyse the healthcare journeys of young people aged 16-25 years experiencing their first episode of mental ill health for which they have sought GP support, over 12 months in the Australian Capital Territory. The study team will recruit up to 25 diverse young people and their general practitioners (GPs), and conduct four qualitative semi-structured interviews over 12 months with each participant. GP interviews will explore their role in the mental health care and care coordination for the young person. Interviews with young people will explore experiences and perceptions of navigating the health system, and the supports and resources they engaged with during the 12-month period. In between interviews, young people will be asked to keep a record of their mental health care experiences, through their choice of media. Participant-produced materials will also form the basis for interviews, providing stimuli to discuss the lived experience of care. Through analysing the narratives of both young people and their GPs, the study will establish how young people understand value in mental health care delivery. The study will use longitudinal qualitative mapping of healthcare journeys to identify key barriers and enablers to establishing effective, person-centred health care for young people with mental ill health.
    Keywords Medicine ; R ; Science ; Q
    Subject code 360
    Language English
    Publishing date 2023-01-01T00:00:00Z
    Publisher Public Library of Science (PLoS)
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

    Full text online

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    Inter-library loan at ZB MED

    Your chosen title can be delivered directly to ZB MED Cologne location if you are registered as a user at ZB MED Cologne.

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