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Article ; Online: Co-producing research with people impacted by dementia and service providers

Ellen Gaffy / Bianca Brijnath / Briony Dow

Public Health Research & Practice, Vol 32, Iss

issues and challenges

2022 Volume 2

Abstract: Background/objective: Co-production is a collaborative method that can make the research process more egalitarian by ensuring researchers work in partnership with key stakeholders in both the design and delivery of research projects and outcomes. A ... ...

Abstract	Background/objective: Co-production is a collaborative method that can make the research process more egalitarian by ensuring researchers work in partnership with key stakeholders in both the design and delivery of research projects and outcomes. A departure from more traditional ways of conducting research, co-production requires the researcher to reflect on their role in the co-production partnership. However, academic research projects are often constrained by parameters set by funding bodies, ethics committees and the researchers themselves. This raises questions about whether some of the key tenets of co-production, including equally shared power, control and responsibility, can be achieved in a meaningful way. This paper presents some of the issues and challenges faced by researchers in achieving shared power when utilising co-production methodology in academic settings. Type of program or service: The application of co-production within an academic research project is illustrated by a case study involving co-production with family carers, people living with dementia and service providers to develop dementia-specific training for home care workers. Results: There were unavoidable external constraints on sharing power and decision making within some elements of this project. Project parameters, including the research topic, timelines and funds available, were set by the funding body. Similarly, the study objectives and methods involving participants were required to be predetermined for ethical review. Power was redistributed by shifting the power dynamic in various ways within the internal project environment. Researchers developed strong relationships and built trust with key stakeholders, maintained consistent communication, negotiated conflict, ensured each stakeholder voice was heard and supported people living with dementia to be involved safely and comfortably. Lessons learnt: Funding body requirements, ethical governance and researcher responsibilities can limit power sharing and decision making ...
Keywords	aged-care ; dementia ; co-producing research ; service providers ; Public aspects of medicine ; RA1-1270
Subject code	306
Language	English
Publishing date	2022-06-01T00:00:00Z
Publisher	Sax Institute
Document type	Article ; Online
Database	BASE - Bielefeld Academic Search Engine (life sciences selection)

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Article ; Online: The ENJOY MAP for HEALTH

Pazit Levinger / Jeremy Dunn / Emma Abfalter / Briony Dow / Frances Batchelor / Stephanie Garratt / Neil T Diamond / Keith D. Hill

BMC Public Health, Vol 22, Iss 1, Pp 1-

Exercise interveNtion outdoor proJect in the cOmmunitY for older people—More Active People for HEALTHier communities: a study protocol

2022 Volume 10

Abstract: Abstract Background Physical activity is important to maintain health in older age, with physical activity in the outdoors providing mental and physical health benefits for all age groups. One way by which older people can engage in physical activity in ... ...

Abstract	Abstract Background Physical activity is important to maintain health in older age, with physical activity in the outdoors providing mental and physical health benefits for all age groups. One way by which older people can engage in physical activity in the outdoors is through using suitable age-friendly outdoor exercise equipment, the Seniors Exercise Park. The ENJOY MAP for HEALTH aims to evaluate the effect of the Seniors Exercise Park installation and associated capacity building activities on park visitation, park-based physical activity by older people and delivery of community physical activity programs. Method This study is a quasi-experimental (natural experiment) with pre and post study design evaluating the effect of age-friendly outdoor spaces with specialised outdoor exercise equipment on older people’s physical activity and wellbeing in six Victorian municipalities (local governments/councils). Each council will undergo four stages (site construction and development, promotion and marketing, capacity building and training, evaluation and sustainability). Several activities and methods will be employed from stage one through stage four to evaluate the potential impact of the age-friendly outdoor spaces on physical activity and wellbeing and will comprise the following elements: site observation and equipment utilisation, face to face intercept surveys, development of an online access monitor and community building activities. Discussion The project is expected to result in a significant change in the physical outdoor environment for the participating councils and communities whereby older people and other community members will be able to engage in safe physical and social activity programs, socialise more and hence improve the overall wellbeing of older people. Trial registration This trial is retrospectively registered with the Australian New Zealand Clinical Trials Registry. Trial registration number ACTRN12621000965808 . Date registered 23/07/2021.
Keywords	Seniors Exercise Park ; Physical activity ; Exercise ; Built environment ; Older people ; Public aspects of medicine ; RA1-1270
Subject code	796
Language	English
Publishing date	2022-05-01T00:00:00Z
Publisher	BMC
Document type	Article ; Online
Database	BASE - Bielefeld Academic Search Engine (life sciences selection)

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Article ; Online: Art centres supporting our Elders - ‘old people, that’s where our strength comes from’ - results from a national survey of Australian Aboriginal and Torres Strait Islander community controlled art centres

Paulene Mackell / Kathryn Squires / Scott Fraser / Jessica Cecil / Maree Meredith / Roslyn Malay / Melissa Lindeman / Chrischona Schmidt / Frances Batchelor / Briony Dow

Rural and Remote Health, Vol

2022 Volume 22

Abstract: Introduction: There are approximately 90 Aboriginal and Torres Strait Islander community controlled art centres across Australia, the majority in geographically remote locations. This survey explored how these centres are supporting older people, ... ...

Abstract	Introduction: There are approximately 90 Aboriginal and Torres Strait Islander community controlled art centres across Australia, the majority in geographically remote locations. This survey explored how these centres are supporting older people, including people living with dementia, if and how they are collaborating with aged care services and what challenges and opportunities they identify in these arrangements. Methods: An online survey was developed by a team of Aboriginal and non-Aboriginal researchers, art centre staff and art centre consultants. The survey was distributed in 2018 to art centres across Australia via their four art centre peak bodies: Desart; the Association of Northern, Kimberley and Arnhem Aboriginal Artists; the Indigenous Art Centre Alliance - Far North Queensland and Torres Strait Islands; and the Aboriginal Art Centre Hub - Western Australia. The survey was also conducted face-to-face with participants at art centre annual events; and on field trips to North Western and Central Australia, conducted as part of an overarching study. Results: There were 53 completed surveys, with the highest proportion of responses (43%) from art centre managers. The survey generated 330 qualitative responses to the 13 questions that provided this option. The results showed that art centres play a wide ranging and vital role in supporting the health and wellbeing of older artists, many of whom are considered Elders within their communities, and that this reaches far beyond the production of art. The results showed that art centres are a safe place providing older people with the purpose and means to generate income, to enact governance, and to share cultural knowledge through intergenerational connection. Additionally, the results indicate that art centres provide a significant amount of direct care for older people, and that relationships are fundamental to delivering this social, emotional, spiritual and physical care. Furthermore, they showed a great deal of collaboration between art centres and aged ...
Keywords	Aboriginal and Torres Strait Islander peoples ; aged care ; art centres ; Australia ; dementia ; Elders ; Special situations and conditions ; RC952-1245 ; Public aspects of medicine ; RA1-1270
Subject code	700
Language	English
Publishing date	2022-05-01T00:00:00Z
Publisher	James Cook University
Document type	Article ; Online
Database	BASE - Bielefeld Academic Search Engine (life sciences selection)

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Article ; Online: Volunteer-led behavioural activation to reduce depression in residential care

Christina Bryant / Lydia Brown / Meg Polacsek / Frances Batchelor / Hannah Capon / Briony Dow

Pilot and Feasibility Studies, Vol 6, Iss 1, Pp 1-

a feasibility study

2020 Volume 10

Abstract: Abstract Objectives Symptoms of depression are highly prevalent and under-treated in residential aged care facilities. Behavioural activation is a simple, cost-effective psychosocial intervention that might be appropriate to help reduce depression and ... ...

Abstract	Abstract Objectives Symptoms of depression are highly prevalent and under-treated in residential aged care facilities. Behavioural activation is a simple, cost-effective psychosocial intervention that might be appropriate to help reduce depression and improve well-being in this setting. The purpose of this study was to investigate the feasibility and efficacy of an 8-week, volunteer-led behavioural activation intervention designed for depressed aged care residents. Method This feasibility study employed a single-arm design, where outcomes were measured at baseline, post-intervention and 3-month follow-up. Aged care residents with depressive symptoms were invited to participate, and healthy volunteers were trained to deliver the intervention. Intervention feasibility was assessed on six a priori-determined domains. Depression, anxiety and flourishing were included as outcomes using intention-to-treat analysis. Result Seventeen aged care residents with depressive symptoms and 13 volunteers were successfully recruited within the expected 6-month timeframe. Both residents and volunteers were satisfied with the intervention (7/8), and there was a high (87%) completion rate. The intervention was associated with a large and statistically significant reduction in resident depressive symptoms, d = − 1.14, with the effect increasing to d = 2.82 when comparing baseline to 3-month follow-up. Anxiety reduced from mild symptoms at baseline mean = 6.17 (5.12) to the subclinical range post-intervention, mean = 3.53 (4.29) (g = 0.61, p = 0.03). Conclusion This 8-week volunteer-led behavioural activation intervention was found to be feasible and acceptable to depressed aged care residents. The intervention was effective in ameliorating depression. A larger randomized controlled trial is warranted.
Keywords	Behavioural activation ; Depression ; Residential aged care ; Well-being ; Medicine (General) ; R5-920
Language	English
Publishing date	2020-07-01T00:00:00Z
Publisher	BMC
Document type	Article ; Online
Database	BASE - Bielefeld Academic Search Engine (life sciences selection)

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Article ; Online: Challenges and lessons learnt from the ENJOY project

Pazit Levinger / Jeremy Dunn / Maya Panisset / Briony Dow / Frances Batchelor / Stuart J. H. Biddle / Gustavo Duque / Keith D. Hill

BMC Public Health, Vol 21, Iss 1, Pp 1-

recommendations for future collaborative research implementation framework with local governments for improving the environment to promote physical activity for older people

2021 Volume 9

Abstract: Abstract Background The physical environment has been shown to have a positive effect on the promotion of physical activity of older people. Outdoor environments that incorporate specialised exercise equipment suitable for older people are uniquely ... ...

Abstract	Abstract Background The physical environment has been shown to have a positive effect on the promotion of physical activity of older people. Outdoor environments that incorporate specialised exercise equipment suitable for older people are uniquely placed to promote physical activity and social connectedness amongst older people. The ENJOY project included the installation of specialised outdoor exercise equipment (the Seniors Exercise Park) and the delivery of a physical and social activity program for older people as part of a prospective pre-post research design. The installation of the specialised equipment in public sites and an aged care facility was also aimed at increasing usage of the equipment by older people from the wider community and to increase physical and social activities. Method A conceptual framework for implementation and several engagement methods were utilised to guide the research and to support the participating partners throughout the project. This paper is a reflective narrative describing the collaborative process and approach utilised to engage local governments and community, and reports the challenges and the lessons learnt to inform future strategies for implementation. Results The conceptual framework for the implementation process that guided the conduct and delivery of the ENJOY project included the core elements of the Interactive Systems Framework and the ecologic framework. These models incorporate elements of research-to-practice and community-centred implementation to accommodate the unique perspectives of a range of stakeholders. Conclusion Partner characteristics such as local governments’ structure and policy as well as community factors can impact on implementation. Partnership with local governments with effective communication, strategic planning and community and seniors engagement approaches are recommended for successful implementation. The lessons learnt can further assist public health research design around changes to the built environment to positively impact ...
Keywords	Physical activity ; Older people ; Implementation ; Seniors Exercise Park ; Outdoor ; Public aspects of medicine ; RA1-1270
Subject code	380
Language	English
Publishing date	2021-06-01T00:00:00Z
Publisher	BMC
Document type	Article ; Online
Database	BASE - Bielefeld Academic Search Engine (life sciences selection)

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Article ; Online: Correction

Trials, Vol 25, Iss 1, Pp 1-

Clinical and cost-effectiveness of a New psychosocial intervention to support Independence in Dementia (NIDUS-family) for family carers and people living with dementia in their own homes: a randomised controlled trial

2024 Volume 1

Keywords	Medicine (General) ; R5-920
Language	English
Publishing date	2024-01-01T00:00:00Z
Publisher	BMC
Document type	Article ; Online
Database	BASE - Bielefeld Academic Search Engine (life sciences selection)

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Article ; Online: START-online

Samantha M. Loi / Joanne Tropea / Ellen Gaffy / Anita Panayiotou / Hannah Capon / Jodi Chiang / Christina Bryant / Colleen Doyle / Michelle Kelly / Gill Livingston / Briony Dow

Pilot and Feasibility Studies, Vol 8, Iss 1, Pp 1-

acceptability and feasibility of an online intervention for carers of people living with dementia

2022 Volume 11

Abstract: Abstract Background With increasing numbers of people living with dementia relying on family to care for them at home, there is an urgent need for practical and evidence-based programs to support carers in maintaining their mental health and well-being. ... ...

Abstract	Abstract Background With increasing numbers of people living with dementia relying on family to care for them at home, there is an urgent need for practical and evidence-based programs to support carers in maintaining their mental health and well-being. The objective of this study was to evaluate the acceptability and feasibility of a modified STrAtegies for RelaTives (START) program delivered online (START-online). Method A mixed-methods non-blinded evaluation of START-online (using Zoom as videoconferencing platform) for acceptability and feasibility (completion rates and qualitative feedback through surveys and focus groups) and quantitative evaluation. This occurred at the National Ageing Research Institute, in metropolitan Victoria, Australia. Results Twenty-nine eligible carers were referred, 20 (70%) consented to the study. Of these, 16 (80%) completed all 8 sessions, 2 completed only 3 sessions, and 2 withdrew. Carers’ qualitative feedback indicated that the therapist interaction was valued, content and online delivery of the program was acceptable. Feedback was mixed on the appropriate stage of caring. Conclusion START-online was feasible and acceptable for carers, including those living outside of metropolitan areas who might otherwise be unable to access face-to-face programs. With the recent COVID-19 pandemic necessitating social distancing to avoid infection, interventions such as this one have increasing relevance in the provision of flexible services.
Keywords	Family carers ; Caregivers ; Dementia ; Online ; Intervention ; Medicine (General) ; R5-920
Language	English
Publishing date	2022-02-01T00:00:00Z
Publisher	BMC
Document type	Article ; Online
Database	BASE - Bielefeld Academic Search Engine (life sciences selection)

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Article ; Online: Exercise interveNtion outdoor proJect in the cOmmunitY for older people – results from the ENJOY Seniors Exercise Park project translation research in the community

Pazit Levinger / Maya Panisset / Jeremy Dunn / Terry Haines / Briony Dow / Frances Batchelor / Stuart Biddle / Gustavo Duque / Keith D. Hill

BMC Geriatrics, Vol 20, Iss 1, Pp 1-

2020 Volume 13

Abstract: Abstract Background Many research studies evaluate physical activity interventions for older people in the community, however relatively few successfully promote maintenance of physical activity beyond the completion of the intervention. This study aimed ...

Abstract	Abstract Background Many research studies evaluate physical activity interventions for older people in the community, however relatively few successfully promote maintenance of physical activity beyond the completion of the intervention. This study aimed to implement and evaluate the effects of sustained engagement in physical activity on mental, social and physical health outcomes through the use of the Seniors Exercise Park physical activity program for older people (the ENJOY project). Method People aged ≥60 years underwent a 12-week structured supervised physical activity program using outdoor exercise park equipment followed by 6 months unstructured independent use of the exercise park. Participants were assessed at baseline, 3 months and 9 months and completed a test battery evaluating physical activity, physical function and health related quality of life measures. Repeated measures ANOVA was used to compare differences between baseline, 3 and 9 months. Results Of the 95 participants, 80 (84.2%) completed the 3 months supervised program, and 58 (61%) completed the 9 month assessment (the latter impacted by COVID-19 restrictions). A significant increase in physical activity level was demonstrated following the 12 weeks intervention (p < 0.01). Significant improvements were also demonstrated in all physical function measures (p < 0.01), self-rated quality of life (p < 0.05), wellbeing (p < 0.01), fear of falls (p < 0.01), falls risk (p < 0.01), depressive symptoms (p = 0.01) and loneliness (p = 0.03) at 3 months. At the 9 months follow up, significant improvements from baseline were demonstrated in the frequency, duration and total of physical activity level (p < 0.05), and all physical function measures (p < 0.05), with no decline in these measures from 3 to 9 months. At 9 months, significant changes were observed in the health related quality of life mobility and self care domains with reductions in both fear of falls and falls risk (p < 0.05). Conclusion The Seniors Exercise Park may be an effective modality for improving and sustaining older people’s physical function and wellbeing and can be an important public health infrastructure investment in promoting physical activity for older people. Future work should focus on wider implementation of the program and on scaling up this initiative to achieve public health benefit for the community. Trial registration Trial registration number ACTRN12618001727235, Date of registration 19th October 2018, https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=375979
Keywords	Physical activity ; Older people ; Falls prevention ; Seniors Exercise Park ; Outdoor ; Geriatrics ; RC952-954.6 ; covid19
Subject code	796
Language	English
Publishing date	2020-11-01T00:00:00Z
Publisher	BMC
Document type	Article ; Online
Database	BASE - Bielefeld Academic Search Engine (life sciences selection)

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Article ; Online: “Is Life Worth Living?”

Kylie King / Briony Dow / Louise Keogh / Peter Feldman / Allison Milner / David Pierce / Richard Chenhall / Marisa Schlichthorst

American Journal of Men's Health, Vol

The Role of Masculinity in the Way Men Aged Over 80 Talk About Living, Dying, and Suicide

2020 Volume 14

Abstract: Men aged 85 years and over have the highest rate of suicide of any age or gender group in Australia. However, little is known about their trajectory toward suicide. The objective of this study was to understand the role of masculine norms and other life ... ...

Abstract	Men aged 85 years and over have the highest rate of suicide of any age or gender group in Australia. However, little is known about their trajectory toward suicide. The objective of this study was to understand the role of masculine norms and other life factors in the suicidality of older men. Thirty-three men aged 80 years or more took part in a semistructured focus group or interview, and/or completed a survey. Participants were asked about the issues facing older men, well-being and aging, physical health challenges, social support, mental health and help-seeking, and suicide and suicide prevention. Five themes emerged: “finding out we’re not invincible,” “active and tough,” “strong silent types,” “decision makers,” and “right to die.” Participants spoke about masculine norms that had influenced their lives as providers and decision makers, and now influenced how they coped with aging and their journey toward death. For some participants, suicide was seen to be a rational alternative to dependence in their final years. Suicide prevention should adopt a gendered approach and be cognizant of the influence of gender roles and masculinity in older men’s lives. Further research and prevention efforts should be mindful of the impact of masculine norms of self-reliance and control on an older man’s decision to end his life. Suicide prevention efforts should work to reduce stigma around the challenges of aging, maximize opportunities for control, facilitate social connection, and improve residential aged care.
Keywords	Medicine ; R
Subject code	360
Language	English
Publishing date	2020-10-01T00:00:00Z
Publisher	SAGE Publishing
Document type	Article ; Online
Database	BASE - Bielefeld Academic Search Engine (life sciences selection)

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Article ; Online: “The right way at the right time”

Claudia Meyer / Briony Dow / Keith Hill / Jean Tinney / Sophie Hill

Frontiers in Public Health, Vol

Insights on the uptake of falls prevention strategies from people with dementia and their caregivers

2016 Volume 4

Abstract: Strong evidence exists for effective falls prevention strategies for community-dwelling older people. Understanding the translation of these strategies into practice for people with dementia has had limited research focus. People with dementia desire to ... ...

Abstract	Strong evidence exists for effective falls prevention strategies for community-dwelling older people. Understanding the translation of these strategies into practice for people with dementia has had limited research focus. People with dementia desire to have their voice heard, to engage meaningfully in the healthcare decision-making process, making it a priority for researchers and practitioners to better understand how to engage them in this process. This paper reports on the qualitative aspects of a series of studies; which aimed to identify the views of people with dementia and their caregivers regarding perceptions of falls prevention and the successes and challenges of adopting falls prevention strategies.Twenty five people with dementia and their caregivers were interviewed in their homes at baseline, and 24 caregivers and 16 people with dementia were interviewed at completion of a 6-month individualised falls prevention intervention. Interviews were audio-recorded, transcribed verbatim and thematically analysed. Five themes were identified at baseline: perceptions of falls; caregivers navigating the new and the unpredictable; recognition of decline; health services – the need for an appropriate message; and negotiating respectful relationships. At six months, caregivers and people with dementia decided on ‘what we need to know’ with firm views that the information regarding falls risk reduction needed to be in ‘the right way…at the right time’. Rather than caregivers and people with dementia being only recipients of knowledge, they felt they were ‘more than just empty vessels to be filled’ drawing on a ‘variety of resources’ within their circle of influence to be able to positively ‘adapt to change’. The voices of people with dementia and their caregivers add an important dimension to understanding the translation of falls prevention knowledge for this population. Insights from this study will enable community care health professionals to understand that people with dementia and their caregivers can, and ...
Keywords	Caregivers ; Dementia ; falls ; Qualitative ; Knowledge translation ; Public aspects of medicine ; RA1-1270
Subject code	360
Language	English
Publishing date	2016-11-01T00:00:00Z
Publisher	Frontiers Media S.A.
Document type	Article ; Online
Database	BASE - Bielefeld Academic Search Engine (life sciences selection)

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