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  1. Article ; Online: Emotion constructs and outcome measures following false positive breast screening test results: A systematic review of reporting clarity and selection rationale.

    Long, Hannah A / Hindmarch, Sarah / Martindale, John-Paul / Brooks, Joanna M / Harvie, Michelle / French, David P

    Psycho-oncology

    2024  Volume 33, Issue 4, Page(s) e6334

    Abstract: Objective: (i) To systematically identify constructs and outcome measures used to assess the emotional and mood impact of false positive breast screening test results; (ii) to appraise the reporting clarity and rationale for selecting constructs and ... ...

    Abstract Objective: (i) To systematically identify constructs and outcome measures used to assess the emotional and mood impact of false positive breast screening test results; (ii) to appraise the reporting clarity and rationale for selecting constructs and outcome measures.
    Methods: Databases (MEDLINE, CINAHL, PsycINFO) were systematically searched from 1970. Studies using standardised and non-standardised outcome measures to evaluate the emotion or mood impact of false positive breast screening test results were eligible. A 15-item coding scheme was devised to appraise articles on clarity and rationale for selected constructs and measures.
    Results: Forty-seven articles were identified. The most investigated constructs were general anxiety and depression and disease-specific anxiety and worry. Twenty-two standardised general outcome questionnaire measures and three standardised disease-specific outcome questionnaire measures were identified. Twenty articles used non-standardised scales/items. Reporting of constructs and outcome measures was generally clear, but rationales for their selection were lacking. Anxiety was typically justified, but justification for depression was almost always absent. Practical and psychometric justification for selecting outcome measures was lacking, and theoretical rationale was absent.
    Conclusions: Heterogeneity in constructs and measures, coupled with unclear rationale for these, impedes a thorough understanding of why there are emotional effects of false positive screening test results. This may explain the repeated practice of investigating less relevant outcomes such as depression. There is need to develop a consensual conceptual model of and standardised approach to measuring emotional impact from cancer screening test results, to address heterogeneity and other known issues of interpreting an inconsistent evidence base.
    MeSH term(s) Humans ; Emotions ; Anxiety/diagnosis ; Affect ; Anxiety Disorders ; Surveys and Questionnaires
    Language English
    Publishing date 2024-04-01
    Publishing country England
    Document type Systematic Review ; Journal Article ; Review
    ZDB-ID 1118536-3
    ISSN 1099-1611 ; 1057-9249
    ISSN (online) 1099-1611
    ISSN 1057-9249
    DOI 10.1002/pon.6334
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article ; Online: Healthcare professionals' experiences of caring for women with false-positive screening test results in the National Health Service Breast Screening Programme.

    Long, Hannah A / Brooks, Joanna M / Maxwell, Anthony J / Peters, Sarah / Harvie, Michelle / French, David P

    Health expectations : an international journal of public participation in health care and health policy

    2024  Volume 27, Issue 2, Page(s) e14023

    Abstract: Background: Understanding healthcare professionals' (HCPs) experiences of caring for women with false-positive screening test results in the National Health Service Breast Screening Programme (NHSBSP) is important for reducing the impact of such results. ...

    Abstract Background: Understanding healthcare professionals' (HCPs) experiences of caring for women with false-positive screening test results in the National Health Service Breast Screening Programme (NHSBSP) is important for reducing the impact of such results.
    Methods: Interviews were undertaken with 12 HCPs from a single NHSBSP unit, including advanced radiographer practitioners, breast radiographers, breast radiologists, clinical nurse specialists (CNSs), and a radiology healthcare assistant. Data were analysed thematically using Template Analysis.
    Results: Two themes were produced: (1) Gauging and navigating women's anxiety during screening assessment was an inevitable and necessary task for all participants. CNSs were perceived as particularly adept at this, while breast radiographers reported a lack of adequate formal training. (2) Controlling the delivery of information to women (including amount, type and timing of information). HCPs reported various communication strategies to facilitate women's information processing and retention during a distressing time.
    Conclusions: Women's anxiety could be reduced through dedicated CNS support, but this should not replace support from other HCPs. Breast radiographers may benefit from more training to emotionally support recalled women. While HCPs emphasised taking a patient-centred communication approach, the use of other strategies (e.g., standardised scripts) and the constraints of the 'one-stop shop' model pose challenges to such an approach.
    Patient and public contribution: During the study design, two Patient and Public Involvement members (women with false-positive-breast screening test results) were consulted to gain an understanding of patient perspectives and experiences of being recalled specifically in the NHSBSP. Their feedback informed the formulations of the research aim, objectives and the direction of the interview guide.
    MeSH term(s) Female ; Humans ; State Medicine ; Mammography/psychology ; Health Personnel ; Allied Health Personnel ; Delivery of Health Care ; Breast Neoplasms/diagnosis ; Qualitative Research
    Language English
    Publishing date 2024-03-20
    Publishing country England
    Document type Journal Article
    ZDB-ID 2119434-8
    ISSN 1369-7625 ; 1369-6513
    ISSN (online) 1369-7625
    ISSN 1369-6513
    DOI 10.1111/hex.14023
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article ; Online: Correction: How do women experience a false-positive test result from breast screening? A systematic review and thematic synthesis of qualitative studies.

    Long, Hannah / Brooks, Joanna M / Harvie, Michelle / Maxwell, Anthony / French, David P

    British journal of cancer

    2021  Volume 125, Issue 7, Page(s) 1031

    Language English
    Publishing date 2021-07-28
    Publishing country England
    Document type Published Erratum
    ZDB-ID 80075-2
    ISSN 1532-1827 ; 0007-0920
    ISSN (online) 1532-1827
    ISSN 0007-0920
    DOI 10.1038/s41416-021-01503-w
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  4. Article ; Online: How do women experience a false-positive test result from breast screening? A systematic review and thematic synthesis of qualitative studies.

    Long, Hannah / Brooks, Joanna M / Harvie, Michelle / Maxwell, Anthony / French, David P

    British journal of cancer

    2019  Volume 121, Issue 4, Page(s) 351–358

    Abstract: Background: This is the first review to identify, appraise and synthesise women's experiences of having a false-positive breast screening test result.: Methods: We systematically searched eight databases for qualitative research reporting women's ... ...

    Abstract Background: This is the first review to identify, appraise and synthesise women's experiences of having a false-positive breast screening test result.
    Methods: We systematically searched eight databases for qualitative research reporting women's experiences of receiving a false-positive screening test result. Two reviewers independently screened articles. Eight papers reporting seven studies were included. Study quality was appraised. Data were thematically synthesised.
    Results: Women passively attended screening in order to prove their perceived good health. Consequently, being recalled was unexpected, shocking and disempowering: women felt without options. They endured great uncertainty and stress and sought clarity about their health (e.g. by scrutinising the wording of recall letters and conversations with healthcare professionals). Their result was accompanied by relief and welcome feelings of certainty about their health, but some received unclear explanations of their result, contributing to lasting breast cancer-related worry and an ongoing need for further reassurance.
    Conclusion: The organisation of breast screening programmes may constrain choice for women: they became passive recipients. The way healthcare professionals verbally communicate results to women may contribute to lasting breast cancer-related worry. Women need more reassurance, emotional support and answers to their questions before and during screening assessment, and after receiving their result.
    MeSH term(s) Breast Neoplasms/diagnosis ; Breast Neoplasms/psychology ; False Positive Reactions ; Female ; Humans ; Qualitative Research ; Uncertainty ; Women's Health
    Language English
    Publishing date 2019-07-23
    Publishing country England
    Document type Journal Article ; Research Support, Non-U.S. Gov't ; Systematic Review
    ZDB-ID 80075-2
    ISSN 1532-1827 ; 0007-0920
    ISSN (online) 1532-1827
    ISSN 0007-0920
    DOI 10.1038/s41416-019-0524-4
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  5. Article ; Online: Attributions, distress and behavioural responses in the significant others of people with chronic fatigue syndrome.

    Brooks, Joanna M / Daglish, Julie / Wearden, Alison J

    Journal of health psychology

    2013  Volume 18, Issue 10, Page(s) 1288–1295

    Abstract: To test an attribution-emotion model of reactions to chronic fatigue syndrome/myalgic encephalomyelitis, 30 significant others of 30 adult patients with chronic fatigue syndrome/myalgic encephalomyelitis were administered a semi-structured interview ... ...

    Abstract To test an attribution-emotion model of reactions to chronic fatigue syndrome/myalgic encephalomyelitis, 30 significant others of 30 adult patients with chronic fatigue syndrome/myalgic encephalomyelitis were administered a semi-structured interview about their beliefs regarding the patient's illness and completed questionnaire measures of distress and behavioural responses to the patient. Spontaneous causal explanations (attributions) for illness events, symptom exacerbation and negative patient mood were extracted and coded. Significant others' distress and negative behavioural responses towards the chronic fatigue syndrome/myalgic encephalomyelitis patient were associated with attributing illness events to causes personal and internal to the patient. Our findings may inform the future family-based interventions for chronic fatigue syndrome/myalgic encephalomyelitis.
    MeSH term(s) Adolescent ; Adult ; Affect ; Aged ; Attitude to Health ; Family/psychology ; Fatigue Syndrome, Chronic/psychology ; Female ; Humans ; Interviews as Topic ; Male ; Middle Aged ; Spouses/psychology ; Stress, Psychological/etiology ; Stress, Psychological/psychology ; Surveys and Questionnaires ; Young Adult
    Language English
    Publishing date 2013-10
    Publishing country England
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 2021897-7
    ISSN 1461-7277 ; 1359-1053
    ISSN (online) 1461-7277
    ISSN 1359-1053
    DOI 10.1177/1359105312464670
    Database MEDical Literature Analysis and Retrieval System OnLINE

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