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Article: The Provincial Patient and Family Group (PFG) for Alberta Health Services Transforms How Care is Planned and Delivered: A Decade of Experience.

Picklyk, Deanna / Volk, Shawn / Burns, Katharina Kovacs

2021 Volume 8, Page(s) 2374373521989245

Abstract: Although many health care organizations made significant headway in building relationships with patients and families at the point of care, there continues to be opportunities to partner with them at the system level. One such opportunity is the Patient ... ...

Abstract	Although many health care organizations made significant headway in building relationships with patients and families at the point of care, there continues to be opportunities to partner with them at the system level. One such opportunity is the Patient and Family Advisory Group (PFG) at Alberta Health Services (AHS). Developed 10 years ago as a formal group of patient and family volunteers, PFG has provided advice on over 350 key organization initiatives, including the Patient First Strategy and the Family Visitation policies and guidelines. Through the formal partnership with PFG and its members who bring their lived experiences with the health system and its services, AHS has demonstrated its commitment to designing and improving services with the user in mind. Now entering its second decade, PFG, supported by AHS leadership, continues to explore new strategic approaches with internal and external stakeholders to reinforce the importance of Patient and Family-Centered Care.
Language	English
Publishing date	2021-02-01
Publishing country	United States
Document type	Journal Article
ZDB-ID	2857285-3
ISSN	2374-3743 ; 2374-3735
ISSN (online)	2374-3743
ISSN	2374-3735
DOI	10.1177/2374373521989245
Database	MEDical Literature Analysis and Retrieval System OnLINE

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Article: COVID-19 Vaccination Perceptions in Patients With Rheumatic Disease: A Cross-Sectional Online Survey.

Butt, Imama N / van Eeden, Charmaine / Burns, Katharina Kovacs / Saxinger, Lynora / Clifford, Alison / Tervaert, Jan W Cohen / Yacyshyn, Elaine A

The Journal of rheumatology

2022 Volume 50, Issue 5, Page(s) 690–696

Abstract: Objective: To identify the factors that affect coronavirus disease 2019 (COVID-19) vaccine decision making among individuals diagnosed with a rheumatologic condition, given that previous international studies have demonstrated that a significant ... ...

Abstract	Objective: To identify the factors that affect coronavirus disease 2019 (COVID-19) vaccine decision making among individuals diagnosed with a rheumatologic condition, given that previous international studies have demonstrated that a significant proportion of patients with rheumatic disease (RD) are vaccine hesitant. Methods: This cross-sectional study involved an online survey with adult patients with RD from the Kaye Edmonton Clinic Rheumatology Clinic between June and August 2021. Quantitative results were descriptively analyzed, whereas qualitative thematic analysis was conducted for open-ended responses. Results: The survey had a response rate of 70.9% (N = 231). Regarding COVID-19 vaccines, patients with RD were most concerned about the possible effect of vaccination on their rheumatic condition (45.2%) and about vaccine effectiveness (45.1%). Most patients had discussed COVID-19 vaccination (75.9%) and its risks and benefits (66.1%) with their medical team, and 83.6% of respondents were confident in the information provided. Patients' perceptions of the government's role in handling the COVID-19 pandemic varied: 33% reported that they found government-instituted public health measures effective. Surprisingly, 9.7% of patients with RD still reported concerns that they could develop COVID-19 from an approved COVID-19 vaccine. Conclusion: This study describes factors implicated in COVID-19 vaccine decision making among patients with RD. Three important themes included possible adverse effects of the vaccine on RD control, reduced vaccine efficacy because of RD/treatment, and risk of contracting SARS-CoV-2 from the COVID-19 vaccine. Knowledge from this study can assist healthcare providers in looking after patients with RD to initiate discussions with patients to share evidence-based vaccine information and assist with informed decision making.
MeSH term(s)	Adult ; Humans ; COVID-19 ; COVID-19 Vaccines ; Cross-Sectional Studies ; Pandemics ; SARS-CoV-2 ; Rheumatic Diseases ; Vaccination
Chemical Substances	COVID-19 Vaccines
Language	English
Publishing date	2022-12-15
Publishing country	Canada
Document type	Journal Article
ZDB-ID	194928-7
ISSN	1499-2752 ; 0315-162X
ISSN (online)	1499-2752
ISSN	0315-162X
DOI	10.3899/jrheum.220765
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Article ; Online: Building patient-oriented research capacity by co-designing a research handbook for patient partners.

McCutcheon, Tess / LaPlante, James / Bibeau, Christine / Cooper, Lynn / Hammond, Jessika / Helmer-Smith, Mary / Houghton, Deanne / Burns, Katharina Kovacs / Mastin, Donald / Turner, Kevin / Liddy, Clare

Patient education and counseling

2022 Volume 105, Issue 11, Page(s) 3331–3333

Language	English
Publishing date	2022-07-06
Publishing country	Ireland
Document type	Letter
ZDB-ID	605590-4
ISSN	1873-5134 ; 0738-3991
ISSN (online)	1873-5134
ISSN	0738-3991
DOI	10.1016/j.pec.2022.07.001
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Article ; Online: Enabling patient-centred policy for electronic consultations: A qualitative analysis of discussions from a stakeholder meeting.

Liddy, Clare / Hauteclocque, Jennifer / Moroz, Isabella / Oppenheimer, Luis / Sturge, Don / Burns, Katharina Kovacs / Horsley, Tanya / Tuot, Delphine / Keely, Erin

Journal of telemedicine and telecare

2020 Volume 28, Issue 3, Page(s) 188–196

Abstract: Introduction: To support the expansion of a successful regional electronic consultation (eConsult) service, we hosted a full-day national eConsult Policy Think Tank, connecting health-services researchers, clinicians, patients and policymakers to ... ...

Abstract	Introduction: To support the expansion of a successful regional electronic consultation (eConsult) service, we hosted a full-day national eConsult Policy Think Tank, connecting health-services researchers, clinicians, patients and policymakers to discuss policy considerations related to eConsult. In this paper, we assess the discussion arising from the Think Tank to identify and understand the policy enablers and barriers to the national spread and scale of eConsult services across Canada. Methods: We conducted a constant comparative thematic analysis of stakeholder discussions captured during the Think Tank held in Ottawa, Canada, on 5 December 2016. Forty-seven participants attended and debated the following topic areas: (a) delivery of services and standards; (b) payment considerations; and (c) equitable access. The meeting was recorded, and verbatim transcripts were analysed using qualitative approaches. Results: We identified four themes affecting spread and scale of eConsult innovation from a policy perspective: (a) patient-centredness; (b) value; (c) regulation; and (d) considerations for spread and scale. Patient-centredness was viewed as a foundational principle upon which policy shifts should be guided. Active participation of patient partners transitioned the discussions and resulting recommendations from provider-centred to patient-centred thinking around the relevant policy issues, explicitly demonstrating the importance of patient involvement in healthcare policy decision making. Discussion: eConsult was viewed as a high-value, disruptive innovation with great potential to transform access to specialists in Canada. A patient-centred approach to policy change (and not just healthcare delivery) was identified as a novel yet critical enabler to the scale and spread of eConsult across Canada.
MeSH term(s)	Delivery of Health Care ; Health Policy ; Humans ; Primary Health Care/methods ; Remote Consultation ; Specialization
Language	English
Publishing date	2020-06-02
Publishing country	England
Document type	Journal Article
ZDB-ID	1340281-x
ISSN	1758-1109 ; 1357-633X
ISSN (online)	1758-1109
ISSN	1357-633X
DOI	10.1177/1357633X20926779
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Article: Patient Engagement in a Large-Scale Change Initiative: "As Safe as Possible, as Soon as Possible".

Burns, Katharina Kovacs / Davis, Donna / Popescu, Ioana / Laeeque, Hina / Kossey, Sandi / Misfeldt, Renee / Thrall, Christopher

Healthcare quarterly (Toronto, Ont.)

2020 Volume 22, Issue SP, Page(s) 27–39

Abstract: Patients for Patient Safety Canada (PFPSC) member engagement has evolved from individual stories to having 27 patients and family members actively participating in the National Patient Safety Consortium. PFPSC collaborated with 270 other stakeholders in ... ...

Abstract	Patients for Patient Safety Canada (PFPSC) member engagement has evolved from individual stories to having 27 patients and family members actively participating in the National Patient Safety Consortium. PFPSC collaborated with 270 other stakeholders in governance, leadership and action teams to design, implement and evaluate the National Patient Safety Consortium and Integrated Patient Safety Action Plan. There were several key outputs, including a patient engagement guide. This article illustrates how patients were meaningfully engaged in a large-scale change initiative, highlighting the experiences of the patient partners and organizational partners in this transformational change.
MeSH term(s)	Canada ; Family ; Humans ; Leadership ; Medical Errors/prevention & control ; Patient Participation/methods ; Patient Safety ; Program Development ; Quality of Health Care
Language	English
Publishing date	2020-02-07
Publishing country	Canada
Document type	Journal Article
ISSN	1710-2774
ISSN	1710-2774
DOI	10.12927/hcq.2020.26049
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Article: Patient and family engagement in Alberta Health Services: Improving care delivery and research outcomes.

Singh, Sarah / Burns, Katharina Kovacs / Rees, Jennifer / Picklyk, Deanna / Spence, Jessica / Marlett, Nancy

Healthcare management forum

2018 Volume 31, Issue 2, Page(s) 57–61

Abstract: Engaging patients and families in research and the design of quality improvement is an essential component of Patient and Family Centred Care (PFCC). Alberta Health Services (AHS) has been engaging patients and families to promote a cultural shift ... ...

Abstract	Engaging patients and families in research and the design of quality improvement is an essential component of Patient and Family Centred Care (PFCC). Alberta Health Services (AHS) has been engaging patients and families to promote a cultural shift towards PFCC. The AHS trains patient and family advisors to share their experiences and encourages staff to work with advisors to co-design improvements in care. This article briefly describes the role and growth of patient and family advisors, advisory groups, and the participation of advisors in research initiatives through AHS' Strategic Clinical Networks
MeSH term(s)	Alberta ; Patient Participation ; Patient Safety/standards ; Patient-Centered Care/standards ; Quality Improvement/organization & administration ; Quality of Health Care/standards ; Research
Language	English
Publishing date	2018-03-30
Publishing country	United States
Document type	Journal Article
ZDB-ID	2140831-2
ISSN	2352-3883 ; 0840-4704
ISSN (online)	2352-3883
ISSN	0840-4704
DOI	10.1177/0840470417747003
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Article: Confidentiality and treatment decisions of minor clients: a health professional's dilemma & policy makers challenge.

Jackson, Margot Karen / Burns, Katharina Kovacs / Richter, Magdalena S

SpringerPlus

2014 Volume 3, Page(s) 320

Abstract: Issues relating to confidentiality and consent for physical and mental health treatment with minor clients can pose challenges health care providers. Decisions need to be made regarding these issues despite the absence of clear, direct, or comprehensive ... ...

Abstract	Issues relating to confidentiality and consent for physical and mental health treatment with minor clients can pose challenges health care providers. Decisions need to be made regarding these issues despite the absence of clear, direct, or comprehensive policies and legislation. In order to fully understand the scope of this topic, a systemic review of several pieces of legislation and guidelines related to this topic are examined. These include the: Canadian Human Rights Act, Children's Rights: International and National Laws and Practices, Health Information Act, Gillick Competence and Medical Emancipation, Freedom of Information and Protection of Privacy Act, Child, Youth and Family Enhancement Act, Common Law Mature Minor Doctrine, and Alberta Health Services Consent to Treatment/Practice(s) Minor/Mature Minor. In order to assist health professionals with decisions regarding confidentiality and treatment with minor clients a case study and guide for decision-making is also presented.
Language	English
Publishing date	2014-06-26
Publishing country	Switzerland
Document type	Journal Article
ZDB-ID	2661116-8
ISSN	2193-1801
ISSN	2193-1801
DOI	10.1186/2193-1801-3-320
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Article: Using an Integrated Knowledge Translation (IKT) Approach to Enable Policy Change for Electronic Consultations in Canada.

Liddy, Clare / Moroz, Isabella / Joschko, Justin / Horsley, Tanya / Kuziemsky, Craig / Burns, Katharina Kovacs / Kossey, Sandi / Mitera, Gunita / Keely, Erin

Healthcare policy = Politiques de sante

2018 Volume 14, Issue 1, Page(s) 19–29

Abstract: This paper explores our efforts to support the expansion of a regional electronic consultation (eConsult) service on a national level by addressing potential policy barriers. We used an integrated knowledge translation (IKT) strategy based on five key ... ...

Abstract	This paper explores our efforts to support the expansion of a regional electronic consultation (eConsult) service on a national level by addressing potential policy barriers. We used an integrated knowledge translation (IKT) strategy based on five key activities leading to a National eConsult Policy Think Tank meeting: (1) identifying potential policy enablers and barriers; (2) engaging national and provincial/territorial partners; (3) including patient voices; (4) undertaking co-design and planning; and (5) adopting a solution-based approach. We successfully leveraged a diverse set of stakeholders in strategic discussions, culminating in actionable suggestions for next steps, which will serve to inform a national implementation strategy.
MeSH term(s)	Canada ; Health Policy ; Humans ; Remote Consultation/organization & administration ; Translational Medical Research/methods
Language	English
Publishing date	2018-08-20
Publishing country	Canada
Document type	Journal Article
ZDB-ID	2481657-7
ISSN	1715-6572
ISSN	1715-6572
DOI	10.12927/hcpol.2018.25551
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Article ; Online: Key factors for national spread and scale-up of an eConsult innovation.

Moroz, Isabella / Archibald, Douglas / Breton, Mylaine / Cote-Boileau, Elizabeth / Crowe, Lois / Horsley, Tanya / Hyseni, Lirjie / Johar, Gina / Keely, Erin / Burns, Katharina Kovacs / Kuziemsky, Craig / Laplante, Jim / Mihan, Ariana / Oppenheimer, Luis / Sturge, Don / Tuot, Delphine S / Liddy, Clare

Health research policy and systems

2020 Volume 18, Issue 1, Page(s) 57

Abstract: Background: Expanding healthcare innovations from the local to national level is a complex pursuit requiring careful assessment of all relevant factors. In this study (a component of a larger eConsult programme of research), we aimed to identify the key ...

Abstract	Background: Expanding healthcare innovations from the local to national level is a complex pursuit requiring careful assessment of all relevant factors. In this study (a component of a larger eConsult programme of research), we aimed to identify the key factors involved in the spread and scale-up of a successful regional eConsult model across Canada. Methods: We conducted a constant comparative thematic analysis of stakeholder discussions captured during a full-day National eConsult Forum meeting held in Ottawa, Canada, on 11 December 2017. Sixty-four participants attended, representing provincial and territorial governments, national organisations, healthcare providers, researchers and patients. Proceedings were recorded, transcribed and underwent qualitative analysis using the Framework for Applied Policy Research. Results: This study identified four main themes that were critical to support the intentional efforts to spread and scale-up eConsult across Canada, namely (1) identifying population care needs and access problems, (2) engaging stakeholders who were willing to roll up their sleeves and take action, (3) building on current strategies and policies, and (4) measuring and communicating outcomes. Conclusions: Efforts to promote innovation in healthcare are more likely to succeed if they are based on an understanding of the forces that drive the spread and scale-up of innovation. Further research is needed to develop and strengthen the conceptual and applied foundations of the spread and scale-up of healthcare innovations, especially in the context of emergent learning health systems across Canada and beyond.
MeSH term(s)	Canada ; Communication ; Delivery of Health Care ; Diffusion of Innovation ; Health Policy ; Health Services Accessibility ; Health Services Needs and Demand ; Humans ; Primary Health Care ; Referral and Consultation ; Research ; Stakeholder Participation ; Telemedicine
Language	English
Publishing date	2020-06-03
Publishing country	England
Document type	Journal Article
ZDB-ID	2101196-5
ISSN	1478-4505 ; 1478-4505
ISSN (online)	1478-4505
ISSN	1478-4505
DOI	10.1186/s12961-020-00574-0
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Article ; Online: Top ten priorities for anesthesia and perioperative research: a report from the Canadian Anesthesia Research Priority Setting Partnership.

McKeen, Dolores M / Banfield, Jillian C / McIsaac, Daniel I / McVicar, Jason / McGavin, Colleen / Earle, Mary Anne / Ward, Claire / Burns, Katharina Kovacs / Penner, Donna / Blaise, Gilbert / de Greef, Thierry / Cowan, Katherine / Laupacis, Andreas

Canadian journal of anaesthesia = Journal canadien d'anesthesie

2020 Volume 67, Issue 6, Page(s) 641–654

Abstract: Purpose: The purpose of the Canadian Anesthesia Research Priority Setting Partnership (CAR PSP) was to identify a top ten list of shared priorities for research in anesthesia and perioperative care in Canada.: Methods: We used the methods of the ... ...

Title translation	Les dix priorités principales pour la recherche périopératoire et en anesthésie : un rapport du Partenariat canadien pour l’établissement des priorités de la recherche en anesthésie.
Abstract	Purpose: The purpose of the Canadian Anesthesia Research Priority Setting Partnership (CAR PSP) was to identify a top ten list of shared priorities for research in anesthesia and perioperative care in Canada. Methods: We used the methods of the James Lind Alliance to involve patients, caregivers, healthcare professionals, and researchers in determining the research priorities in Canada. In a first survey, participants submitted questions that they want research to answer about anesthesia and perioperative care. We summarized those responses into a longlist of questions. We reviewed the literature to see if any of those questions were already answered. In a second survey, participants chose up to ten questions from the longlist that they thought were most important to be answered with research. From that list, the highest ranking questions were discussed and assigned a final rank at an in-person workshop. Results: A total of 254 participants submitted 574 research suggestions that were then summarized into 49 questions. Those questions were checked against the literature to be sure they were not already adequately addressed, and in a second survey of those 49 questions, participants chose up to 10 that they thought were most important. A total of 233 participants submitted their priorities, which were then used to choose 24 questions for discussion at the final workshop. At the final workshop, 22 participants agreed on a top ten list of priorities. Conclusion: The CAR PSP top ten priorities reflect a wide variety of priorities captured by a broad spectrum of Canadians who receive and provide anesthesia care. The priorities are a tool to initiate and guide patient-oriented research in anesthesia and perioperative care.
MeSH term(s)	Adolescent ; Adult ; Aged ; Aged, 80 and over ; Anesthesia ; Biomedical Research ; Canada ; Female ; Gender Identity ; Health Priorities ; Humans ; Male ; Middle Aged ; Young Adult
Language	English
Publishing date	2020-03-10
Publishing country	United States
Document type	Journal Article
ZDB-ID	91002-8
ISSN	1496-8975 ; 0832-610X
ISSN (online)	1496-8975
ISSN	0832-610X
DOI	10.1007/s12630-020-01607-6
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