Article ; Online: Caregiver's psychological well-being and quality of relationship with cardiac amyloidosis patients.
2023 Volume 29, Issue 1, Page(s) 66–78
Abstract: Caregivers' psychological well-being is linked to the quality of care provided for familiar with chronic illness. Despite caregivers of cardiac patients present an impaired psychological well-being, less investigated is the psychological well-being of ... ...
| Abstract | Caregivers' psychological well-being is linked to the quality of care provided for familiar with chronic illness. Despite caregivers of cardiac patients present an impaired psychological well-being, less investigated is the psychological well-being of caregivers of individuals with a rare disease such as the Transthyretin Cardiac Amyloidosis (ATTR-CA). Specifically, given that no study explored the well-being of the caregiver and the caregiver-patient relationship, this study aimed to analyze the prevalence of anxiety and depression in ATTR-CA caregivers and if these disorders were associated with patient's and caregiver's characteristics. Fifty-eight dyad caregiver-ATTR-CA patients completed the Hospital Anxiety and Depression Scale and the Network of Relationships Inventory. Moreover, ATTR-CA patients completed the Kansas City Cardiomyopathy Questionnaire, while caregivers completed the Multidimensional Scale of Social Support. Results showed that anxious caregivers (44%) reported higher conflict with patients. They had ATTR-CA relatives with a worse perception of cardiac symptoms and higher anxiety and depression. Depressed caregivers (39%) reported higher conflict with ATTR-CA relatives and lower perceived social support. Caregiver reported a high prevalence of anxiety and depression associated with worse personal relational well-being and to patient's psycho-physical condition. The care of ATTR-CA patient should consider the caregiver well-being. |
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| MeSH term(s) | Humans ; Caregivers/psychology ; Psychological Well-Being ; Anxiety/epidemiology ; Prevalence ; Amyloidosis |
| Language | English |
| Publishing date | 2023-12-29 |
| Publishing country | England |
| Document type | Journal Article |
| ZDB-ID | 1477841-5 |
| ISSN | 1465-3966 ; 1354-8506 |
| ISSN (online) | 1465-3966 |
| ISSN | 1354-8506 |
| DOI | 10.1080/13548506.2023.2280463 |
| Database | MEDical Literature Analysis and Retrieval System OnLINE |
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