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  1. Article ; Online: Patient and provider perspectives on preterm birth risk assessment and communication.

    Tesfalul, Martha A / Feuer, Sky K / Castillo, Esperanza / Coleman-Phox, Kimberly / O'Leary, Allison / Kuppermann, Miriam

    Patient education and counseling

    2021  Volume 104, Issue 11, Page(s) 2814–2823

    Abstract: Objective: To describe and compare how obstetric patients and care providers view preterm birth risk assessment and communication.: Methods: We conducted eight focus groups with obstetric patients (n = 35) and 16 qualitative interviews with obstetric ...

    Abstract Objective: To describe and compare how obstetric patients and care providers view preterm birth risk assessment and communication.
    Methods: We conducted eight focus groups with obstetric patients (n = 35) and 16 qualitative interviews with obstetric providers. Grounded theory was used to identify and analyze themes.
    Results: Patients' knowledge about preterm birth varied greatly. Similar benefits and risks of preterm birth risk counseling were discussed by patients and providers with notable exceptions: patients cited preparedness as a benefit and providers cited maternal blame, patient alienation, and estimate uncertainty as potential risks. Most patients expressed a desire to know their personalized preterm birth risk during pregnancy. Providers differed in whether they offer universal versus selective, and quantitative versus qualitative, preterm birth risk counseling. Many providers expressed concern about discussing social and structural risk factors for preterm birth.
    Conclusion: While many patients desired knowing their personalized preterm birth risk, prenatal care providers' disclosure practices vary because of uncertainty of estimates, concerns about negative consequences and challenges of addressing systemic inequities and social determinants of health.
    Practice implications: Given the existing asymmetry of information about preterm birth risk, providers should consider patient preferences regarding and potential benefits and risks of such disclosure in their practice.
    MeSH term(s) Communication ; Counseling ; Female ; Focus Groups ; Humans ; Infant, Newborn ; Pregnancy ; Premature Birth ; Qualitative Research ; Risk Assessment
    Language English
    Publishing date 2021-04-01
    Publishing country Ireland
    Document type Journal Article ; Research Support, N.I.H., Extramural ; Research Support, Non-U.S. Gov't
    ZDB-ID 605590-4
    ISSN 1873-5134 ; 0738-3991
    ISSN (online) 1873-5134
    ISSN 0738-3991
    DOI 10.1016/j.pec.2021.03.038
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    In stock of ZB MED Cologne/Königswinter

    Zs.A 1465: Show issues Location:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
    bis Jg. 1994: Bestellungen von Artikeln über das Online-Bestellformular
    Jg. 1995 - 2021: Lesesall (1.OG)
    ab Jg. 2022: Lesesaal (EG)

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  2. Article ; Online: Asian American Women's Experiences of Discrimination and Health Behaviors during the COVID-19 Pandemic.

    Wang, Katarina / Guan, Alice / Seto, Janice / Oh, Debora L / Lau, Kathie / Duffy, Christine / Castillo, Esperanza / McGuire, Valerie / Wadhwa, Michelle / Tepper, Clifford G / Wakelee, Heather A / DeRouen, Mindy C / Shariff-Marco, Salma / Cheng, Iona / Gomez, Scarlett Lin

    Journal of immigrant and minority health

    2023  Volume 26, Issue 2, Page(s) 421–425

    Abstract: The COVID-19 pandemic exacerbated racism experienced by Asian Americans, especially women and older individuals. Little is known about how discriminatory experiences during the pandemic have influenced health behaviors among Asian Americans. Between 10/ ... ...

    Abstract The COVID-19 pandemic exacerbated racism experienced by Asian Americans, especially women and older individuals. Little is known about how discriminatory experiences during the pandemic have influenced health behaviors among Asian Americans. Between 10/2021 and 6/2022, we surveyed 193 Asian American women in the San Francisco area. Participants were asked to report types of discrimination they experienced since March 2020. We explored bivariable associations of discrimination and changes in health behaviors and healthcare utilization. Most women were Chinese American (75%) and over 45-years-old (87%). The top three discriminatory experiences reported were being treated with less respect (60%), being treated unfairly at restaurants/stores (49%), and people acting as if they are better (47%). Chinese American women (vs. non-Chinese Asian American women) reported higher frequencies of being threatened/harassed (40% vs. 22%). Women who reported any discriminatory experience (vs. none) were more likely to report less physical exercise (42.7% vs. 26.3%) and canceling/rescheduling medical appointments (65.0% vs. 45.1%). Our findings begin to elucidate Asian American women's experiences of discrimination since the pandemic and provide evidence of the harmful impacts of anti-Asian racism on health behaviors.
    MeSH term(s) Humans ; Female ; Middle Aged ; Asian ; COVID-19 ; Pandemics ; Health Behavior ; Exercise ; Racism
    Language English
    Publishing date 2023-10-26
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2220162-2
    ISSN 1557-1920 ; 1557-1912
    ISSN (online) 1557-1920
    ISSN 1557-1912
    DOI 10.1007/s10903-023-01558-2
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  3. Article ; Online: Adaptation of the Person-Centered Maternity Care Scale in the United States: Prioritizing the Experiences of Black Women and Birthing People.

    Afulani, Patience A / Altman, Molly R / Castillo, Esperanza / Bernal, Nayeli / Jones, Linda / Camara, Tanefer / Carrasco, Zoe / Williams, Shanell / Sudhinaraset, May / Kuppermann, Miriam

    Women's health issues : official publication of the Jacobs Institute of Women's Health

    2022  Volume 32, Issue 4, Page(s) 352–361

    Abstract: Introduction: Mistreatment by health care providers disproportionately affects Black, Indigenous, and other people of color in the United States. The goal of this study is to adapt the global Person-Centered Maternity Care (PCMC) scale for use in the ... ...

    Abstract Introduction: Mistreatment by health care providers disproportionately affects Black, Indigenous, and other people of color in the United States. The goal of this study is to adapt the global Person-Centered Maternity Care (PCMC) scale for use in the United States, with particular attention to the experiences of Black women and birthing people.
    Methods: We used a community-engaged approach including expert reviews and cognitive interviews to assess content validity, relevance, comprehension, and comprehensiveness of the PCMC items. Surveys of 297 postpartum people, 82% of whom identified as Black, were used for psychometric analysis in which we assessed construct and criterion validity and reliability. The University of California, San Francisco California Preterm Birth Initiative's Community Advisory Board, which consists of community members, community-based health workers, and social service providers in Northern California, provided input during all stages of the project.
    Results: Through an iterative process of factor analysis, discussions with the Community Advisory Board, and a prioritization survey, we eliminated items that performed poorly in psychometric analysis, yielding a 35-item PCMC-U.S. scale with subscales for dignity and respect, communication and autonomy, and responsive and supportive care. The Cronbach's alpha for the full scale is 0.95 and for the subscales is 0.87. Standardized summative scores range from 0 to 100, with higher scores indicating more PCMC. Correlations with related measures indicated high criterion validity.
    Conclusions: The 35-item PCMC-U.S. scale and its subscales have high validity and reliability in a sample of predominantly Black women. This scale provides a tool to support efforts to reduce the inequities in birth outcomes experienced by Black, Indigenous, and other people of color.
    MeSH term(s) Community Participation ; Female ; Humans ; Infant, Newborn ; Maternal Health Services ; Pregnancy ; Premature Birth ; Psychometrics ; Reproducibility of Results ; Stakeholder Participation ; Surveys and Questionnaires ; United States
    Language English
    Publishing date 2022-03-09
    Publishing country United States
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 1085396-0
    ISSN 1878-4321 ; 1049-3867
    ISSN (online) 1878-4321
    ISSN 1049-3867
    DOI 10.1016/j.whi.2022.01.006
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    In stock of ZB MED Cologne/Königswinter

    Zs.A 3298: Show issues Location:
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    bis Jg. 1994: Bestellungen von Artikeln über das Online-Bestellformular
    Jg. 1995 - 2021: Lesesall (2.OG)
    ab Jg. 2022: Lesesaal (EG)

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  4. Article ; Online: User-testing of a decision-support tool for parents facing threatened periviable delivery: The Periviable GOALS decision aid.

    Tucker Edmonds, Brownsyne / Hoffman, Shelley M / Laitano, Tatiana / Coleman-Phox, Kimberly / Castillo, Esperanza / Kuppermann, Miriam

    Patient education and counseling

    2020  Volume 104, Issue 6, Page(s) 1286–1294

    Abstract: Background: To report user-centered design methods and stakeholder acceptability ratings of the Periviable GOALS (Getting Optimal Alignment around Life Support) decision aid (DA).: Methods: 'Experienced' and 'expectant' mothers engaged in content and ...

    Abstract Background: To report user-centered design methods and stakeholder acceptability ratings of the Periviable GOALS (Getting Optimal Alignment around Life Support) decision aid (DA).
    Methods: 'Experienced' and 'expectant' mothers engaged in content and design refining sessions. Five videos (10 families) were embedded in the DA to highlight life after delivery. User-testing sessions were conducted with mothers and providers to assess acceptability. End-user testing was conducted with hospitalized women facing potential periviable delivery to assess acceptability and feasibility in the clinical setting.
    Results: 108 participants engaged in sessions from July 2017-January 2020. Twenty-seven refining sessions resulted in a DA providing survival estimates, neonatal outcomes descriptions, and values clarification exercises. Five white and five black women participated in the videos; six having surviving children (ages 16 months-4 years). Twelve mothers, 16 providers, and six hospitalized women evaluated acceptability. 95.1 % found the content "just right," 94.9 % rated the videos "good" or "excellent," and 97.2 % believed GOALS would support families in periviable decision-making.
    Conclusion: Our results highlight the importance of developing a DA that is acceptable for patient use with direct involvement of stakeholders.
    Practice implications: The GOALS DA may prepare families to engage in shared decision-making to facilitate more patient-centered models of periviable care.
    MeSH term(s) Child ; Decision Making ; Decision Making, Shared ; Decision Support Techniques ; Female ; Goals ; Humans ; Infant ; Infant, Newborn ; Parents
    Language English
    Publishing date 2020-10-10
    Publishing country Ireland
    Document type Journal Article ; Research Support, N.I.H., Extramural ; Research Support, Non-U.S. Gov't
    ZDB-ID 605590-4
    ISSN 1873-5134 ; 0738-3991
    ISSN (online) 1873-5134
    ISSN 0738-3991
    DOI 10.1016/j.pec.2020.10.004
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    In stock of ZB MED Cologne/Königswinter

    Zs.A 1465: Show issues Location:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
    bis Jg. 1994: Bestellungen von Artikeln über das Online-Bestellformular
    Jg. 1995 - 2021: Lesesall (1.OG)
    ab Jg. 2022: Lesesaal (EG)

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  5. Article ; Online: Development of the person-centered prenatal care scale for people of color.

    Afulani, Patience A / Altman, Molly R / Castillo, Esperanza / Bernal, Nayeli / Jones, Linda / Camara, Tamentanefer L / Carrasco, Zoe / Williams, Shanell / Sudhinaraset, May / Kuppermann, Miriam

    American journal of obstetrics and gynecology

    2021  Volume 225, Issue 4, Page(s) 427.e1–427.e13

    Abstract: Background: Given the stark disparities in maternal mortality and adverse birth outcomes among Black, indigenous, and other people of color, there is a need to better understand and measure how individuals from these communities experience their care ... ...

    Abstract Background: Given the stark disparities in maternal mortality and adverse birth outcomes among Black, indigenous, and other people of color, there is a need to better understand and measure how individuals from these communities experience their care during pregnancy.
    Objective: This study aimed to develop and validate a tool that can be used to measure person-centered prenatal care that reflects the experiences of people of color.
    Study design: We followed standard procedures for scale development-integrated with community-based participatory approaches-to adapt a person-centered maternity care scale that was initially developed and validated for intrapartum care in low-resource countries to reflect the needs and prenatal care experiences of people of color in the United States. The adaptation process included expert reviews with a Community Advisory Board, consisting of community members, community-based health workers, and social service providers from San Francisco, Oakland, and Fresno, to assess content validity. We conducted cognitive interviews with potential respondents to assess the clarity, appropriateness, and relevance of the questions, which were then refined and administered in an online survey to people in California who had given birth in the past year. Data from 293 respondents (84% of whom identified as Black) who received prenatal care were used in psychometric analysis to assess construct and criterion validity and reliability.
    Results: Exploratory factor analysis yielded 3 factors with eigenvalues of >1, but with 1 dominant factor. A 34-item version of the person-centered prenatal care scale was developed based on factor analyses and recommendations from the Community Advisory Board. We also developed a 26-item version using stricter criteria for relevance, factor loadings, and uniqueness. Items were grouped into 3 conceptual domains representing subscales for "dignity and respect," "communication and autonomy," and "responsive and supportive care." The Cronbach alphas for the 34-item and the 26-item versions and for the subscales were >0.8. Scores based on the sum of responses for the 2 person-centered prenatal care scale versions and all subscales were standardized to range from 0 to 100, where higher scores indicate more person-centered prenatal care. These scores were correlated with global measures of prenatal care satisfaction suggesting good criterion validity.
    Conclusion: We present 2 versions of the person-centered prenatal care scale: a 34-item and a 26-item version. Both versions have high validity and reliability in a sample made up predominantly of Black women. This scale will facilitate measurement to improve person-centered prenatal care for people of color and could contribute to reducing disparities in birth outcomes. The similarity with the original scale also suggests that the person-centered prenatal care may be applicable across different contexts. However, validation with more diverse samples in additional settings is needed.
    MeSH term(s) Adolescent ; Adult ; African Americans ; American Indians or Alaska Natives ; Asian Americans ; Communication ; Community-Based Participatory Research ; Ethnicity ; Factor Analysis, Statistical ; Female ; Healthcare Disparities/ethnology ; Hispanic or Latino ; Humans ; Native Hawaiian or Other Pacific Islander ; Needs Assessment ; Patient Satisfaction ; Patient-Centered Care ; Personal Autonomy ; Pregnancy ; Prenatal Care ; Professional-Patient Relations ; Psychometrics ; Reproducibility of Results ; Respect ; Social Support ; Surveys and Questionnaires ; United States ; Young Adult
    Language English
    Publishing date 2021-04-20
    Publishing country United States
    Document type Journal Article ; Research Support, N.I.H., Extramural ; Research Support, Non-U.S. Gov't ; Validation Study
    ZDB-ID 80016-8
    ISSN 1097-6868 ; 0002-9378
    ISSN (online) 1097-6868
    ISSN 0002-9378
    DOI 10.1016/j.ajog.2021.04.216
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    In stock of ZB MED Cologne/Königswinter

    Um I Zs.152: Show issues Location:
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    bis Jg. 2021: Bestellungen von Artikeln über das Online-Bestellformular
    ab Jg. 2022: Lesesaal (EG)

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  6. Article ; Online: Gut Microbiota Composition Is Related to Cardiorespiratory Fitness in Healthy Young Adults.

    Durk, Ryan P / Castillo, Esperanza / Márquez-Magaña, Leticia / Grosicki, Gregory J / Bolter, Nicole D / Lee, C Matthew / Bagley, James R

    International journal of sport nutrition and exercise metabolism

    2018  Volume 29, Issue 3, Page(s) 249–253

    Abstract: Bacteria residing in the human gastrointestinal tract has a symbiotic relationship with its host. Animal models have demonstrated a relationship between exercise and gut microbiota composition. This was the first study to explore the relationship between ...

    Abstract Bacteria residing in the human gastrointestinal tract has a symbiotic relationship with its host. Animal models have demonstrated a relationship between exercise and gut microbiota composition. This was the first study to explore the relationship between cardiorespiratory fitness (maximal oxygen consumption, VO
    MeSH term(s) Adult ; Bacteroidetes/isolation & purification ; Cardiorespiratory Fitness ; Diet ; Exercise ; Female ; Firmicutes/isolation & purification ; Gastrointestinal Microbiome ; Gastrointestinal Tract/microbiology ; Humans ; Male ; Oxygen Consumption ; Young Adult
    Language English
    Publishing date 2018-10-28
    Publishing country United States
    Document type Journal Article
    ZDB-ID 1101115-4
    ISSN 1543-2742 ; 1050-1606 ; 1526-484X
    ISSN (online) 1543-2742
    ISSN 1050-1606 ; 1526-484X
    DOI 10.1123/ijsnem.2018-0024
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    In stock of ZB MED Cologne/Königswinter

    Zs.A 4143: Show issues Location:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
    bis Jg. 1994: Bestellungen von Artikeln über das Online-Bestellformular
    Jg. 1995 - 2021: Lesesall (2.OG)
    ab Jg. 2022: Lesesaal (EG)

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  7. Article: Evaluation of cortisol and telomere length measurements in ethnically diverse women with breast cancer using culturally sensitive methods.

    Ramirez, Julio / Elmofty, May / Castillo, Esperanza / DeRouen, Mindy / Shariff-Marco, Salma / Allen, Laura / Gomez, Scarlett Lin / Nápoles, Anna María / Márquez-Magaña, Leticia

    Journal of community genetics

    2017  Volume 8, Issue 2, Page(s) 75–86

    Abstract: The under-representation of ethnic minority participants, who are more likely to be socially disadvantaged in biomedical research, limits generalizability of results and reductions in health disparities. To facilitate investigations of how social ... ...

    Abstract The under-representation of ethnic minority participants, who are more likely to be socially disadvantaged in biomedical research, limits generalizability of results and reductions in health disparities. To facilitate investigations of how social disadvantage "gets under the skin," this pilot study evaluated low-intensity methods for collecting hair and saliva samples from multiethnic breast cancer survivors (N = 70) and analysis of biomarkers of chronic stress (cortisol levels) and biological age (telomere length). Methods allowed for easy self-collection of hair (for cortisol) and saliva (for telomere lengths) samples that were highly stable for shipment and long-term storage. Measuring cortisol in hair as a biomarker of chronic stress was found to overcome many of the limitations of salivary cortisol measurements, and the coefficient of variation obtained using an ELISA-based approach to measure cortisol was within acceptable standards (16%). Telomere length measurements obtained using a qPCR approach had a coefficient of variation of <10% when the DNA extracted from the saliva biospecimens was of sufficient quantity and quality (84%). The overall response rate was 47%; rates were 32% for African-Americans, 39% for Latinas, 40% for Asians, and 82% for non-Latina Whites. Self-collection of hair and saliva overcame cultural and logistical barriers associated with collection of blood. Results support the use of these biospecimen collection and analysis methods among ethnically diverse and disadvantaged populations to identify biopsychosocial pathways of health disparities. Our tools should stimulate research to better understand how social disadvantage "gets under the skin" and increase participation of ethnic minorities in biomedical research.
    Language English
    Publishing date 2017-01-03
    Publishing country Germany
    Document type Journal Article
    ZDB-ID 2543127-4
    ISSN 1868-6001 ; 1868-310X
    ISSN (online) 1868-6001
    ISSN 1868-310X
    DOI 10.1007/s12687-016-0288-y
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