LIVIVO - Search results -

Search results

Result 1 - 10 of total 324

Search options

Article ; Online: Caregiver burden and vocational participation among parents of adolescents with CF.

Neri, Luca / Lucidi, Vincenzina / Catastini, Paola / Colombo, Carla

2016 Volume 51, Issue 3, Page(s) 243–252

Abstract: Aim: Cystic fibrosis (CF) require parents to make significant lifestyle changes to accommodate their children's treatments. We examined the impact of CF-related caregiving on parents' occupational adjustment and labor supply in terms of organizational ... ...

Abstract	Aim: Cystic fibrosis (CF) require parents to make significant lifestyle changes to accommodate their children's treatments. We examined the impact of CF-related caregiving on parents' occupational adjustment and labor supply in terms of organizational changes, presenteeism, and absenteeism. Methods: Nineteen Italian CF referral centers joined the LINFA group. We enrolled 168 adolescents with the disease and their parents (n = 225) in a cross-sectional survey research. Patients and their parents answered a self-administered questionnaire (child: SF-12, satisfaction with life, MRC Dyspnea scale; parent: caregiver burden scale, short depression-happiness scale, self-rated health, socio-demographic factors). A pediatrician recorded clinical information (pulmonary exacerbations, CF-related complications, treatment, BMI percentile, Fev1 %). Results: Patients mean age was 16 ± 2.6 and mean BMI percentile was 42.1 ± 29.1; 92 patients (55%) had FEV1 % > 80. Mean parents' age was 45.9 ± 5.9 years, and 59% were women; 75% of women and 24% of men reported to be the primary caregiver. Only 12% had a graduate or post-graduate degree and 56.4% were employed. Approximately 34% of parents reported short depression-happiness scale scores suggestive of clinical depression. Higher caregiving strain was associated with increased likelihood of changing job, work shift schedule, or giving up career opportunities in order to fulfill their caregiving role and increased productivity losses due to family leaves and presenteeism. Conclusion: Caregiving burden is a relevant and frequent issue among parents of adolescent patients with cystic fibrosis. We showed that the humanistic and vocational impact of caring for young patients with the disease is striking and demands health-care and welfare supportive actions.
MeSH term(s)	Absenteeism ; Adaptation, Psychological ; Adolescent ; Adult ; Caregivers ; Cost of Illness ; Cross-Sectional Studies ; Cystic Fibrosis/complications ; Employment ; Female ; Humans ; Male ; Middle Aged ; Parents ; Personal Satisfaction ; Quality of Life ; Surveys and Questionnaires ; Workplace
Language	English
Publishing date	2016-03
Publishing country	United States
Document type	Journal Article ; Research Support, Non-U.S. Gov't
ZDB-ID	632784-9
ISSN	1099-0496 ; 8755-6863
ISSN (online)	1099-0496
ISSN	8755-6863
DOI	10.1002/ppul.23352
Database	MEDical Literature Analysis and Retrieval System OnLINE

Full text online

Accessible to users with ZB MED library card

In stock of ZB MED Cologne/Königswinter

Zs.A 2143: Show issues

Location:
Je nach Verfügbarkeit (siehe Angabe bei Bestand)
bis Jg. 1994: Bestellungen von Artikeln über das Online-Bestellformular
Jg. 1995 - 2021: Lesesall (1.OG)
ab Jg. 2022: Lesesaal (EG)

Order via subito

This service is chargeable due to the Delivery terms set by subito. Orders including an article and supplementary material will be classified as separate orders. In these cases, fees will be demanded for each order.

Details ▾

Article ; Online: Delphi poll to assess consensus on issues influencing long-term adherence to treatments in cystic fibrosis among Italian health care professionals

Colombo C / Catastini P / Brivio A / Acone B / Dang P / Quattrucci S

Patient Preference and Adherence, Vol Volume 12, Pp 2233-

2018 Volume 2241

Abstract: Carla Colombo,1 Paola Catastini,2 Anna Brivio,1,3 Benedetto Acone,4 Patricia Dang,5 Serena Quattrucci6 1Cystic Fibrosis Center, Fondazione IRCCS Ca’ Granda, Ospedale Maggiore Policlinico, Department of Pathophysiology and Transplantation, Università ... ...

Abstract	Carla Colombo,1 Paola Catastini,2 Anna Brivio,1,3 Benedetto Acone,4 Patricia Dang,5 Serena Quattrucci6 1Cystic Fibrosis Center, Fondazione IRCCS Ca’ Granda, Ospedale Maggiore Policlinico, Department of Pathophysiology and Transplantation, Università degli Studi di Milano, Milan, Italy; 2Cystic Fibrosis Regional Center, Anna Meyer Children’s Hospital, Florence, Italy; 3UOC DPS Department for Health Professional, Fondazione IRCCS Ca’ Granda, Ospedale Maggiore Policlinico, Milan, Italy; 4Cartesio Solutions S.r.l., Venice, Italy; 5Vertex Pharmaceuticals S.r.l., Rome, Italy; 6Cystic Fibrosis Lazio Regional Center, Pediatrics Department, “Sapienza” University, Rome, Italy Purpose: The aim of this study was to determine the level of consensus among Italian health care professionals (HCPs) regarding factors that influence adherence to cystic fibrosis (CF) treatments.Methods: A Delphi questionnaire with 94 statements of potential factors influencing adherence was developed based on a literature review and in consultation with a board of experts (n=4). This was distributed to a multidisciplinary expert panel of HCPs (n=110) from Italian CF centers. A Likert scale was used to indicate the level of agreement (1= no agreement to 9= maximum agreement) with each statement. Three rounds were distributed to establish a consensus (≥80% of participant ratings within one 3-point region) and, at the third round, assign a ranking to each statement with a high level of agreement (consensus in the 7–9 range) only.Results: Of 110 HCPs (from 31 Italian CF centers who were surveyed), responses were obtained from 85 (77%) in the first, 78 (71%) in the second, and 72 (65%) in the third round. The highest degree of agreement (95.8%) was reached with the statement that the HCP needs to build a relationship with the patient to influence adherence. A high level of agreement was not reached for statements that morbidity and mortality are influenced by the level of adherence to therapy, and no consensus was reached on the statement that age of ...
Keywords	Cystic fibrosis ; Long-term adherence ; Delphi technique ; Medicine (General) ; R5-920
Subject code	940
Language	English
Publishing date	2018-10-01T00:00:00Z
Publisher	Dove Medical Press
Document type	Article ; Online
Database	BASE - Bielefeld Academic Search Engine (life sciences selection)

Full text online

Full text

Inter-library loan at ZB MED

Your chosen title can be delivered directly to ZB MED Cologne location if you are registered as a user at ZB MED Cologne.

Article: Delphi poll to assess consensus on issues influencing long-term adherence to treatments in cystic fibrosis among Italian health care professionals.

Colombo, Carla / Catastini, Paola / Brivio, Anna / Acone, Benedetto / Dang, Patricia / Quattrucci, Serena

Patient preference and adherence

2018 Volume 12, Page(s) 2233–2241

Abstract: Purpose: The aim of this study was to determine the level of consensus among Italian health care professionals (HCPs) regarding factors that influence adherence to cystic fibrosis (CF) treatments.: Methods: A Delphi questionnaire with 94 statements ... ...

Abstract	Purpose: The aim of this study was to determine the level of consensus among Italian health care professionals (HCPs) regarding factors that influence adherence to cystic fibrosis (CF) treatments. Methods: A Delphi questionnaire with 94 statements of potential factors influencing adherence was developed based on a literature review and in consultation with a board of experts (n=4). This was distributed to a multidisciplinary expert panel of HCPs (n=110) from Italian CF centers. A Likert scale was used to indicate the level of agreement (1= no agreement to 9= maximum agreement) with each statement. Three rounds were distributed to establish a consensus (≥80% of participant ratings within one 3-point region) and, at the third round, assign a ranking to each statement with a high level of agreement (consensus in the 7-9 range) only. Results: Of 110 HCPs (from 31 Italian CF centers who were surveyed), responses were obtained from 85 (77%) in the first, 78 (71%) in the second, and 72 (65%) in the third round. The highest degree of agreement (95.8%) was reached with the statement that the HCP needs to build a relationship with the patient to influence adherence. A high level of agreement was not reached for statements that morbidity and mortality are influenced by the level of adherence to therapy, and no consensus was reached on the statement that age of the patient influences adherence to treatment. Conclusion: We found that Italian HCPs endorsed a strong relationship with the patient as being a key driver in improving adherence. There were several areas, such as the influence of adherence on morbidity and mortality, where the consensus of Italian HCPs differed from the published literature. These areas require investigation to determine why these discrepancies exist.
Language	English
Publishing date	2018-10-26
Publishing country	New Zealand
Document type	Journal Article
ZDB-ID	2455848-5
ISSN	1177-889X
ISSN	1177-889X
DOI	10.2147/PPA.S172222
Database	MEDical Literature Analysis and Retrieval System OnLINE

Full text online

Accessible to users with ZB MED library card

Order via subito

Details ▾
- Full text online
- Order with fees

Article: Identità corporea e alimentazione nell'adolescente con malattia cronica.

Micheletti, E / Catastini, P

Minerva pediatrica

2000 Volume 52, Issue 10, Page(s) 525–526

Title translation	Body image and eating in adolescents with chronic disease.
MeSH term(s)	Adolescent ; Body Image ; Chronic Disease ; Cystic Fibrosis/psychology ; Cystic Fibrosis/therapy ; Diabetes Mellitus/psychology ; Diabetes Mellitus/therapy ; Feeding Behavior ; Female ; Humans ; Patient Compliance/psychology
Language	Italian
Publishing date	2000-10
Publishing country	Italy
Document type	Journal Article
ZDB-ID	123571-0
ISSN	1827-1715 ; 0026-4946
ISSN (online)	1827-1715
ISSN	0026-4946
Database	MEDical Literature Analysis and Retrieval System OnLINE

In stock of ZB MED Cologne/Königswinter

Um IV Zs.161: Show issues

Location:
Je nach Verfügbarkeit (siehe Angabe bei Bestand)
bis Jg. 2021: Bestellungen von Artikeln über das Online-Bestellformular
ab Jg. 2022: Lesesaal (EG)

Order via subito

Details ▾
- See ZB MED holdings
- Order with fees

Article ; Online: End of life care for patients with cystic fibrosis.

Sands, Dorota / Repetto, Teresa / Dupont, Lieven J / Korzeniewska-Eksterowicz, Aleksandra / Catastini, Paola / Madge, Susan

Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society

2011 Volume 10 Suppl 2, Page(s) S37–44

Abstract: Palliative care is an approach that improves quality of life for patients and their families facing problems associated with a life-threatening illness. Care planning is particularly important in CF, where predicting a time of death is extremely ... ...

Abstract	Palliative care is an approach that improves quality of life for patients and their families facing problems associated with a life-threatening illness. Care planning is particularly important in CF, where predicting a time of death is extremely difficult. The patient and family should receive realistic information about health status and further options of care. Particularly important is the explanation that treatment does not stop during the terminal phase of the disease, instead the primary aim is to alleviate unpleasant symptoms. More invasive end of life care is becoming the norm in patients awaiting lung transplantation. Terminal care should be organised in the place chosen by the patient and their family. Ideally terminal care should not end when the patient dies, instead psychological and spiritual support should continue to bereaved families.
MeSH term(s)	Cystic Fibrosis/surgery ; Cystic Fibrosis/therapy ; Humans ; Lung Transplantation ; Palliative Care/methods ; Palliative Care/standards ; Terminal Care/methods ; Terminal Care/standards ; Waiting Lists
Language	English
Publishing date	2011-06
Publishing country	Netherlands
Document type	Journal Article ; Research Support, Non-U.S. Gov't ; Review
ZDB-ID	2091075-7
ISSN	1873-5010 ; 1569-1993
ISSN (online)	1873-5010
ISSN	1569-1993
DOI	10.1016/S1569-1993(11)60007-6
Database	MEDical Literature Analysis and Retrieval System OnLINE

Order via subito

Article ; Online: Measuring health-related quality of life in clinical trials in cystic fibrosis.

Abbott, J / Hart, A / Havermans, T / Matossian, A / Goldbeck, L / Barreto, C / Bergsten-Brucefors, A / Besier, T / Catastini, P / Lupi, F / Staab, D

Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society

2011 Volume 10 Suppl 2, Page(s) S82–5

Abstract: The inclusion of health-related quality of life (HRQoL) as an outcome measure in cystic fibrosis (CF) clinical trials can supply important patient-reported information not captured by other endpoints. Both an appropriate HRQoL measure and sound ... ...

Abstract	The inclusion of health-related quality of life (HRQoL) as an outcome measure in cystic fibrosis (CF) clinical trials can supply important patient-reported information not captured by other endpoints. Both an appropriate HRQoL measure and sound methodology are required in order to draw valid inferences about treatments and HRQoL. This paper provides the current consensus of the HRQoL Outcomes Group. Particular consideration has been given to the appropriateness of measurement scales, the rationale for including specific domains as endpoints, the importance of considering baseline ceiling effects and the difficulties of data interpretation. Guidance is provided on HRQoL measurement in National and European CF clinical trials.
MeSH term(s)	Clinical Trials as Topic/standards ; Cystic Fibrosis/psychology ; Cystic Fibrosis/therapy ; Europe ; Humans ; Outcome Assessment (Health Care)/standards ; Practice Guidelines as Topic ; Quality of Life
Language	English
Publishing date	2011-06
Publishing country	Netherlands
Document type	Consensus Development Conference ; Journal Article ; Research Support, Non-U.S. Gov't
ZDB-ID	2091075-7
ISSN	1873-5010 ; 1569-1993
ISSN (online)	1873-5010
ISSN	1569-1993
DOI	10.1016/S1569-1993(11)60013-1
Database	MEDical Literature Analysis and Retrieval System OnLINE

Order via subito

Article: On industrial melanism. Kettlewell's missing evidence.

Sermonti, G P / Catastini, P

Rivista di biologia

1984 Volume 77, Issue 1, Page(s) 35–52

MeSH term(s)	Animals ; Moths ; Mutation ; Pigmentation ; Selection, Genetic
Language	Italian
Publishing date	1984
Publishing country	Italy
Document type	Journal Article
ZDB-ID	205519-3
ISSN	0035-6050
ISSN	0035-6050
Database	MEDical Literature Analysis and Retrieval System OnLINE

In stock of ZB MED Cologne/Königswinter

Zs.B 695: Show issues

Location:
Je nach Verfügbarkeit (siehe Angabe bei Bestand)
bis Jg. 2021: Bestellungen von Artikeln über das Online-Bestellformular
ab Jg. 2022: Lesesaal (EG)

Order via subito

Details ▾
- See ZB MED holdings
- Order with fees

Article ; Online: The prevalence of anxiety and depression in Italian patients with cystic fibrosis and their caregivers.

Catastini, Paola / Di Marco, Serena / Furriolo, Maria / Genovese, Carmela / Grande, Alessia / Iacinti, Eugenia / Iusco, Danila Rosa / Nobili, Rita Maria Vittoria / Pescini, Rita / Ragni, Roberto / Randazzo, Roberto / Risso, Cristiana / Tabarini, Paola / Braggion, Cesare / De Masi, Salvatore / McGreevy, Kathleen S

Pediatric pulmonology

2016 Volume 51, Issue 12, Page(s) 1311–1319

Abstract: Background: Cystic fibrosis, like other chronic diseases, is a risk factor for the development of elevated symptoms of depression and anxiety. The objective of this study was to investigate the prevalence of anxiety and depression in Italian patients ... ...

Abstract	Background: Cystic fibrosis, like other chronic diseases, is a risk factor for the development of elevated symptoms of depression and anxiety. The objective of this study was to investigate the prevalence of anxiety and depression in Italian patients with CF and their parents. Methods: The Hospital Anxiety and Depression Scale (HADS) and Center for Epidemiologic Studies Depression Scale (CES-D) questionnaires were administered to a sample of patients and their parents recruited at the cystic fibrosis centers in Italy. Results: Elevated levels of anxiety were higher in mothers than in fathers, and also higher in female patients than in male patients. A correlation between elevated levels of anxiety/depression and geographical area also emerged. Patient anxiety (OR 2.33) and depression (OR 4.09) were significantly associated with forced expiratory volume in one second (FEV1) <40% and forced vital capacity (FVC) <80% (OR 1.60 and 1.61, respectively). Conclusions: Cystic fibrosis increases the risk of developing anxiety and depression in female patients and in mothers. Geographical differences were observed, with higher anxiety and depression in southern Italy for parents, but not for patients. Anxiety and depression levels also depend on clinical status. Pediatr Pulmonol. 2016;51:1311-1319. © 2016 Wiley Periodicals, Inc.
MeSH term(s)	Adolescent ; Anxiety/epidemiology ; Anxiety/psychology ; Anxiety Disorders/epidemiology ; Anxiety Disorders/psychology ; Caregivers/psychology ; Caregivers/statistics & numerical data ; Child ; Chronic Disease ; Cystic Fibrosis/epidemiology ; Cystic Fibrosis/physiopathology ; Cystic Fibrosis/psychology ; Depression/epidemiology ; Depression/psychology ; Depressive Disorder/epidemiology ; Depressive Disorder/psychology ; Fathers/psychology ; Fathers/statistics & numerical data ; Female ; Forced Expiratory Volume ; Humans ; Italy/epidemiology ; Male ; Mothers/psychology ; Mothers/statistics & numerical data ; Parents/psychology ; Prevalence ; Risk Factors ; Severity of Illness Index ; Surveys and Questionnaires ; Vital Capacity ; Young Adult
Language	English
Publishing date	2016-12
Publishing country	United States
Document type	Journal Article
ZDB-ID	632784-9
ISSN	1099-0496 ; 8755-6863
ISSN (online)	1099-0496
ISSN	8755-6863
DOI	10.1002/ppul.23566
Database	MEDical Literature Analysis and Retrieval System OnLINE

Full text online

Accessible to users with ZB MED library card

In stock of ZB MED Cologne/Königswinter

Zs.A 2143: Show issues

Location:
Je nach Verfügbarkeit (siehe Angabe bei Bestand)
bis Jg. 1994: Bestellungen von Artikeln über das Online-Bestellformular
Jg. 1995 - 2021: Lesesall (1.OG)
ab Jg. 2022: Lesesaal (EG)

Order via subito

Details ▾

Article ; Online: Prevalence of depression and anxiety in patients with cystic fibrosis and parent caregivers: results of The International Depression Epidemiological Study across nine countries.

Quittner, Alexandra L / Goldbeck, Lutz / Abbott, Janice / Duff, Alistair / Lambrecht, Patrick / Solé, Amparo / Tibosch, Marijke M / Bergsten Brucefors, Agneta / Yüksel, Hasan / Catastini, Paola / Blackwell, Laura / Barker, Dave

Thorax

2014 Volume 69, Issue 12, Page(s) 1090–1097

Abstract: Background: Individuals with chronic diseases and parent caregivers are at increased risk for symptoms of depression and anxiety. Prevalence of psychological symptoms was evaluated in adolescents and adults with cystic fibrosis (CF) and parent ... ...

Abstract	Background: Individuals with chronic diseases and parent caregivers are at increased risk for symptoms of depression and anxiety. Prevalence of psychological symptoms was evaluated in adolescents and adults with cystic fibrosis (CF) and parent caregivers across nine countries. Methods: Patients with CF, ages 12 years and older, and caregivers of children with CF, birth to18 years of age, completed measures of depression and anxiety across 154 CF centres in Europe and the USA. Psychological symptoms were compared across countries using χ(2). Logistic regression examined extent of comorbid symptoms, predictors of depression and anxiety, and concordance between parent and adolescent symptomatology. Results: Psychological symptoms were reported by 6088 patients with CF and 4102 parents. Elevated symptoms of depression were found in 10% of adolescents, 19% of adults, 37% of mothers and 31% of fathers. Elevations in anxiety were found in 22% of adolescents, 32% of adults, 48% of mothers and 36% of fathers. Overall, elevations were 2-3 times those of community samples. Participants reporting elevated anxiety were more likely to report depression (ORs: adolescents=14.97, adults=13.64, mothers=15.52, fathers=9.20). Significant differences in reports of depression and anxiety were found by patient age and parent respondent. Concordance between 1122 parent-teen dyads indicated that adolescents whose parents reported depression were more likely to be elevated on depression (OR=2.32). Similarly, adolescents whose parents reported anxiety were more likely to score in the elevated range on the anxiety measure (OR=2.22). Conclusions: Symptoms of depression and anxiety were elevated in both patients with CF and parents across several European countries and the USA. Annual screening of psychological symptoms is recommended for both patients and parents.
MeSH term(s)	Adolescent ; Adult ; Anxiety/epidemiology ; Anxiety/etiology ; Caregivers/psychology ; Caregivers/statistics & numerical data ; Child ; Comorbidity ; Cystic Fibrosis/epidemiology ; Cystic Fibrosis/psychology ; Depression/epidemiology ; Depression/etiology ; Europe/epidemiology ; Family Health/statistics & numerical data ; Female ; Humans ; Male ; Middle Aged ; Parents/psychology ; Prevalence ; Psychiatric Status Rating Scales ; Risk Factors ; Turkey/epidemiology ; United States/epidemiology ; Young Adult
Language	English
Publishing date	2014-12
Publishing country	England
Document type	Journal Article ; Multicenter Study ; Research Support, Non-U.S. Gov't
ZDB-ID	204353-1
ISSN	1468-3296 ; 0040-6376
ISSN (online)	1468-3296
ISSN	0040-6376
DOI	10.1136/thoraxjnl-2014-205983
Database	MEDical Literature Analysis and Retrieval System OnLINE

In stock of ZB MED Cologne/Königswinter

Ui III Zs.83: Show issues

Location:
Je nach Verfügbarkeit (siehe Angabe bei Bestand)
bis Jg. 2021: Bestellungen von Artikeln über das Online-Bestellformular
ab Jg. 2022: Lesesaal (EG)

Order via subito

Details ▾
- See ZB MED holdings
- Order with fees

Article: Measuring health-related quality of life in clinical trials in cystic fibrosis

Abbott, J. / Hart, A. / Havermans, T. / Matossian, A. / Goldbeck, L. / Barreto, C. / Bergsten-Brucefors, A. / Besier, T. / Catastini, P. / Lupi, F. / Staab, D.

Journal of Cystic Fibrosis

2011 Volume 10, Page(s) S82–S85

Abstract	The inclusion of health-related quality of life (HRQoL) as an outcome measure in cystic fibrosis (CF) clinical trials can supply important patient-reported information not captured by other endpoints. Both an appropriate HRQoL measure and sound methodology are required in order to draw valid inferences about treatments and HRQoL. This paper provides the current consensus of the HRQoL Outcomes Group. Particular consideration has been given to the appropriateness of measurement scales, the rationale for including specific domains as endpoints, the importance of considering baseline ceiling effects and the difficulties of data interpretation. Guidance is provided on HRQoL measurement in National and European CF clinical trials. (C) 2011 European Cystic Fibrosis Society. Published by Elsevier B.V. All rights reserved.
Keywords	Clinical Trials ; Cystic Fibrosis ; Klinische Prüfung ; Lebensqualität ; Psychological Assessment ; Psychologische Messung ; Quality of Life ; Therapieergebnisse ; Treatment Outcomes ; Zystische Fibrose
Language	English
Document type	Article
ZDB-ID	2084724-5
ISSN	1569-1993
ISSN	1569-1993
DOI	10.1016/S1569-1993(11)60013-1
Database	PSYNDEX

In stock of ZB MED Cologne/Königswinter

Zs.A 6028: Show issues			Location: Je nach Verfügbarkeit (siehe Angabe bei Bestand) bis Jg. 2021: Bestellungen von Artikeln über das Online-Bestellformular ab Jg. 2022: Lesesaal (EG)
Zs.MO 459: Show issues

Order via subito

Details ▾
- See ZB MED holdings
- Order with fees

To top

Full text online

More links

Kategorien

In stock of ZB MED Cologne/Königswinter

Order via subito

Full text online

More links

Kategorien

Inter-library loan at ZB MED

Full text online

More links

Kategorien

Order via subito

More links

Kategorien

In stock of ZB MED Cologne/Königswinter

Order via subito

More links

Kategorien

Order via subito

More links

Kategorien

Order via subito

More links

Kategorien

In stock of ZB MED Cologne/Königswinter

Order via subito

Full text online

More links

Kategorien

In stock of ZB MED Cologne/Königswinter

Order via subito

More links

Kategorien

In stock of ZB MED Cologne/Königswinter

Order via subito

More links

Kategorien

In stock of ZB MED Cologne/Königswinter

Order via subito