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Article ; Online: Transitioning to home and beyond following stroke: a prospective cohort study of outcomes and needs.

O'Callaghan, Geraldine / Fahy, Martin / O'Meara, Sigrid / Chawke, Mairead / Waldron, Eithne / Corry, Marie / Gallagher, Sinead / Coyne, Catriona / Lynch, Julie / Kennedy, Emma / Walsh, Thomas / Cronin, Hilary / Hannon, Niamh / Fallon, Clare / Williams, David J / Langhorne, Peter / Galvin, Rose / Horgan, Frances

BMC health services research

2024  Volume 24, Issue 1, Page(s) 449

Abstract: Introduction: Understanding of the needs of people with stroke at hospital discharge and in the first six-months is limited. This study aim was to profile and document the needs of people with stroke at hospital discharge to home and thereafter.: ... ...

Abstract Introduction: Understanding of the needs of people with stroke at hospital discharge and in the first six-months is limited. This study aim was to profile and document the needs of people with stroke at hospital discharge to home and thereafter.
Methods: A prospective cohort study recruiting individuals with stroke, from three hospitals, who transitioned home, either directly, through rehabilitation, or with early supported discharge teams. Their outcomes (global-health, cognition, function, quality of life, needs) were described using validated questionnaires and a needs survey, at 7-10 days, and at 3-, and 6-months, post-discharge.
Results: 72 patients were available at hospital discharge; mean age 70 (SD 13); 61% female; median NIHSS score of 4 (IQR 0-20). 62 (86%), 54 (75%), and 45 (63%) individuals were available respectively at each data collection time-point. Perceived disability was considerable at hospital discharge (51% with mRS ≥ 3), and while it improved at 3-months, it increased thereafter (35% with mRS ≥ 3 at 6-months). Mean physical health and social functioning were "fair" at hospital discharge and ongoing; while HR-QOL, although improved over time, remained impaired at 6-months (0.69+/-0.28). At 6-months cognitive impairment was present in 40%. Unmet needs included involvement in transition planning and care decisions, with ongoing rehabilitation, information, and support needs. The median number of unmet needs at discharge to home was four (range:1-9), and three (range:1-7) at 6-months.
Conclusion: Stroke community reintegration is challenging for people with stroke and their families, with high levels of unmet need. Profiling outcomes and unmet needs for people with stroke at hospital-to-home transition and onwards are crucial for shaping the development of effective support interventions to be delivered at this juncture.
Isrctn registration: 02/08/2022; ISRCTN44633579.
MeSH term(s) Humans ; Female ; Aged ; Male ; Stroke Rehabilitation ; Quality of Life ; Prospective Studies ; Aftercare ; Patient Discharge ; Stroke/therapy ; Stroke/psychology
Language English
Publishing date 2024-04-10
Publishing country England
Document type Journal Article
ZDB-ID 2050434-2
ISSN 1472-6963 ; 1472-6963
ISSN (online) 1472-6963
ISSN 1472-6963
DOI 10.1186/s12913-024-10820-8
Database MEDical Literature Analysis and Retrieval System OnLINE

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