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  1. Article ; Online: Cepacia syndrome in a cystic fibrosis patient colonised with Burkholderia multivorans.

    Shafiq, Irfan / Carroll, Marry P / Nightingale, Julia A / Daniels, Thomas V W

    BMJ case reports

    2011  Volume 2011

    MeSH term(s) Adolescent ; Burkholderia Infections/complications ; Burkholderia cepacia complex ; Cystic Fibrosis/complications ; Female ; Humans ; Syndrome
    Language English
    Publishing date 2011-01-25
    Publishing country England
    Document type Case Reports ; Journal Article
    ISSN 1757-790X
    ISSN (online) 1757-790X
    DOI 10.1136/bcr.08.2010.3296
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article ; Online: Pragmatic criteria to define chronic pseudomonas aeruginosa infection among adults with cystic fibrosis.

    Hoo, Zhe Hui / Coates, Elizabeth / Maguire, Chin / Cantrill, Hannah / Shafi, Nadia / Nash, Edward F / McGowan, Angela / Bourke, Stephen J / Flight, William G / Daniels, Thomas V / Nightingale, Julia A / Allenby, Mark I / Curley, Rachael / Wildman, Martin J

    European journal of clinical microbiology & infectious diseases : official publication of the European Society of Clinical Microbiology

    2018  Volume 37, Issue 11, Page(s) 2219–2222

    MeSH term(s) Cystic Fibrosis/complications ; Humans ; Pseudomonas Infections/diagnosis ; Pseudomonas Infections/etiology ; Pseudomonas aeruginosa/classification ; Pseudomonas aeruginosa/genetics
    Language English
    Publishing date 2018-08-18
    Publishing country Germany
    Document type Consensus Development Conference ; Journal Article
    ZDB-ID 603155-9
    ISSN 1435-4373 ; 0934-9723 ; 0722-2211
    ISSN (online) 1435-4373
    ISSN 0934-9723 ; 0722-2211
    DOI 10.1007/s10096-018-3358-8
    Database MEDical Literature Analysis and Retrieval System OnLINE

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    Zs.A 1732: Show issues Location:
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    bis Jg. 1994: Bestellungen von Artikeln über das Online-Bestellformular
    Jg. 1995 - 2021: Lesesall (1.OG)
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  3. Article ; Online: Real-World Adherence Among Adults With Cystic Fibrosis Is Low: A Retrospective Analysis of the CFHealthHub Digital Learning Health System.

    Hoo, Zhe Hui / Totton, Nikki / Waterhouse, Simon / Lewis, Jen / Girling, Carla / Bradburn, Michael / Arden, Madelynne A / Whelan, Pauline / Ainsworth, John / Dawson, Sophie / Millward, Sarah / Barnett, Kate / Dewar, Jane / Barr, Helen L / Saini, Gauri / Shepherd, Elizabeth / Carroll, Mary / Allenby, Mark I / Daniels, Thomas V /
    Nightingale, Julia A / Lowther, Michelle / Carolan, Charlotte / Clarke, Charlotte / Szczepanski, Rachel / Hutchings, Marlene / Edenborough, Frank P / Curley, Rachael / Wildman, Martin J

    Chest

    2021  Volume 160, Issue 6, Page(s) 2061–2065

    MeSH term(s) Adult ; Cystic Fibrosis/drug therapy ; England ; Female ; Humans ; Learning Health System ; Male ; Medication Adherence ; Nebulizers and Vaporizers ; Retrospective Studies
    Language English
    Publishing date 2021-06-26
    Publishing country United States
    Document type Journal Article ; Multicenter Study ; Observational Study ; Research Support, Non-U.S. Gov't
    ZDB-ID 1032552-9
    ISSN 1931-3543 ; 0012-3692
    ISSN (online) 1931-3543
    ISSN 0012-3692
    DOI 10.1016/j.chest.2021.06.039
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    Ui III Zs.45: Show issues Location:
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    Zs.MO 349: Show issues

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  4. Article ; Online: Corrigendum to "Using a learning health system to understand the mismatch between medicines supply and actual medicines use among adults with cystic fibrosis" [J Cyst Fibros (2022), 21/2, 323-331].

    Bevan, Amanda / Hoo, Zhe Hui / Totton, Nikki / Girling, Carla / Davids, India R / Whelan, Pauline / Antrobus, Steven / Ainsworth, John / Buchan, Iain / Anderson, Alan / Bourke, Stephen / Doe, Simon / Echevarria, Carlos / Taylor, Jill / Bell, Nicholas J / Bateman, Kathryn / Jones, Carys / Moran, Peter / Fitch, Giles /
    Martin, Michael / McGowan, Angela / Morrow, Stephen / Seabridge, Heather / Bush, Nicki / Daniels, Tracey / Lee, Katy / Robson, Nicola / Shiferaw, Dejene / Sweis, Dimah / Thomas, Rebecca / Faulkner, Jayne / Flight, William G / Poole, Sarah / Warnock, Louise / Allenby, Mark I / Carroll, Mary / Daniels, Thomas V / Dunn, Helen / Nightingale, Julia A / Shepherd, Elizabeth / Ohri, Chandra / Gadsby, Jessica / Range, Simon / Tature, Darren / Barr, Helen L / Dawson, Sophie / Dewar, Jane / Miller, Bryony / Saini, Gauri / Galey, Penny / Johnson, Jack / Pasteur, Mark C / Derry, David / Gledhill, Harriet / Lawson, Angharad / Thomas, Michelle / Waine, David / Cunningham, Josie / Damani, Annant / Higton, Alexandra / Orchard, Christopher / Carolan, Charlotte / Tahir, Misbah / Plummer, Amanda / Hutchings, Marlene / Edenborough, Frank P / Curley, Rachael / Wildman, Martin J

    Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society

    2022  Volume 21, Issue 5, Page(s) 893–897

    Language English
    Publishing date 2022-07-28
    Publishing country Netherlands
    Document type Published Erratum
    ZDB-ID 2084724-5
    ISSN 1873-5010 ; 1569-1993
    ISSN (online) 1873-5010
    ISSN 1569-1993
    DOI 10.1016/j.jcf.2022.07.011
    Database MEDical Literature Analysis and Retrieval System OnLINE

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    Zs.A 6028: Show issues Location:
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    Zs.MO 459: Show issues

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  5. Article ; Online: Using a learning health system to understand the mismatch between medicines supply and actual medicines use among adults with cystic fibrosis.

    Bevan, Amanda / Hoo, Zhe Hui / Totton, Nikki / Girling, Carla / Davids, India R / Whelan, Pauline / Antrobus, Steven / Ainsworth, John / Buchan, Iain / Anderson, Alan / Bourke, Stephen / Doe, Simon / Echevarria, Carlos / Taylor, Jill / Bell, Nicholas J / Bateman, Kathryn / Jones, Carys / Moran, Peter / Fitch, Giles /
    Martin, Michael / McGowan, Angela / Morrow, Stephen / Seabridge, Heather / Bush, Nicki / Daniels, Tracey / Lee, Katy / Robson, Nicola / Shiferaw, Dejene / Sweis, Dimah / Thomas, Rebecca / Faulkner, Jayne / Flight, William G / Poole, Sarah / Warnock, Louise / Allenby, Mark I / Carroll, Mary / Daniels, Thomas V / Dunn, Helen / Nightingale, Julia A / Shepherd, Elizabeth / Ohri, Chandra / Gadsby, Jessica / Range, Simon / Tature, Darren / Barr, Helen L / Dawson, Sophie / Dewar, Jane / Miller, Bryony / Saini, Gauri / Galey, Penny / Johnson, Jack / Pasteur, Mark C / Derry, David / Gledhill, Harriet / Lawson, Angharad / Thomas, Michelle / Waine, David / Cunningham, Josie / Damani, Annant / Higton, Alexandra / Orchard, Christopher / Carolan, Charlotte / Tahir, Misbah / Plummer, Amanda / Hutchings, Marlene / Edenborough, Frank P / Curley, Rachael / Wildman, Martin J

    Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society

    2021  Volume 21, Issue 2, Page(s) 323–331

    Abstract: Background: Studies in separate cohorts suggest possible discrepancies between inhaled medicines supplied (median 50-60%) and medicines used (median 30-40%). We performed the first study that directly compares CF medicine supply against use to identify ... ...

    Abstract Background: Studies in separate cohorts suggest possible discrepancies between inhaled medicines supplied (median 50-60%) and medicines used (median 30-40%). We performed the first study that directly compares CF medicine supply against use to identify the cost of excess medicines supply.
    Methods: This cross-sectional study included participants from 12 UK adult centres with ≥1 year of continuous adherence data from data-logging nebulisers. Medicine supply was measured as medication possession ratio (MPR) for a 1-year period from the first suitable supply date. Medicine use was measured as electronic data capture (EDC) adherence over the same period. The cost of excess medicines was calculated as whole excess box(es) supplied after accounting for the discrepancy between EDC adherence and MPR with 20% contingency.
    Results: Among 275 participants, 133 (48.4%) were females and mean age was 30 years (95% CI 29-31 years). Median EDC adherence was 57% (IQR 23-86%), median MPR was 74% (IQR 46-96%) and the discrepancy between measures was median 14% (IQR 2-29%). Even with 20% contingency, mean potential cost of excess medicines was £1,124 (95% CI £855-1,394), ranging from £183 (95% CI £29-338) for EDC adherence ≥80% to £2,017 (95% CI £1,507-2,526) for EDC adherence <50%.
    Conclusions: This study provides a conservative estimate of excess inhaled medicines supply cost among adults with CF in the UK. The excess supply cost was highest among those with lowest EDC adherence, highlighting the importance of adherence support and supplying medicine according to actual use. MPR provides information about medicine supply but over-estimates actual medicine use.
    MeSH term(s) Adult ; Cross-Sectional Studies ; Cystic Fibrosis/drug therapy ; Cystic Fibrosis/epidemiology ; Female ; Humans ; Learning Health System ; Medication Adherence ; Nebulizers and Vaporizers ; Retrospective Studies
    Language English
    Publishing date 2021-09-23
    Publishing country Netherlands
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 2084724-5
    ISSN 1873-5010 ; 1569-1993
    ISSN (online) 1873-5010
    ISSN 1569-1993
    DOI 10.1016/j.jcf.2021.09.007
    Database MEDical Literature Analysis and Retrieval System OnLINE

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    In stock of ZB MED Cologne/Königswinter

    Zs.A 6028: Show issues Location:
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    Zs.MO 459: Show issues

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