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  1. Book: Paediatric respiratory disease / 1

    Davies, Jane C. / Bush, Andrew

    2011  

    Author's details ed. by Andrew Bush
    Collection Paediatric respiratory disease
    Language English
    Size VIII, 109 S. : Ill., graph. Darst.
    Publisher Clinical Publ
    Publishing place Oxford
    Publishing country Great Britain
    Document type Book
    HBZ-ID HT016985525
    ISBN 978-1-904392-97-2 ; 1-904392-97-0 ; 9781846926150 ; 1846926157
    Database Catalogue ZB MED Medicine, Health

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    In stock of ZB MED Cologne/Königswinter

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    2011 A 4624 order for loan Magazin

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  2. Article ; Online: The coronavirus pandemic has forced rapid changes in care protocols for cystic fibrosis.

    Davies, Jane

    Nature

    2020  Volume 583, Issue 7818, Page(s) S15

    MeSH term(s) Adult ; COVID-19 ; Child ; Clinical Protocols ; Coronavirus Infections/epidemiology ; Coronavirus Infections/prevention & control ; Cystic Fibrosis/psychology ; Cystic Fibrosis/therapy ; Delivery of Health Care/methods ; Delivery of Health Care/organization & administration ; Humans ; Infant ; Pandemics/prevention & control ; Pneumonia, Viral/epidemiology ; Pneumonia, Viral/prevention & control ; Telemedicine/methods ; Telemedicine/trends ; United Kingdom
    Keywords covid19
    Language English
    Publishing date 2020-07-29
    Publishing country England
    Document type Journal Article
    ZDB-ID 120714-3
    ISSN 1476-4687 ; 0028-0836
    ISSN (online) 1476-4687
    ISSN 0028-0836
    DOI 10.1038/d41586-020-02112-y
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article ; Online: The life rafts sailed; Now let's take stock and set the course ahead (Commentary).

    Davies, Jane C

    Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society

    2021  Volume 20 Suppl 3, Page(s) 29–30

    MeSH term(s) COVID-19 ; Cystic Fibrosis ; Humans ; Membrane Microdomains ; Telemedicine
    Language English
    Publishing date 2021-12-20
    Publishing country Netherlands
    Document type Journal Article ; Comment
    ZDB-ID 2084724-5
    ISSN 1873-5010 ; 1569-1993
    ISSN (online) 1873-5010
    ISSN 1569-1993
    DOI 10.1016/j.jcf.2021.08.022
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  4. Article ; Online: The experience and role of partners in helping to meet the support needs of adolescents and young adults with cancer.

    Davies, Jane

    Journal of advanced nursing

    2019  Volume 75, Issue 5, Page(s) 1119–1125

    Abstract: Aim: To explore the experiences and needs of partners who are supporting adolescents and young adults with cancer. The diagnosis of cancer at any age is significant. Uniquely, in adolescents and young adults this is set against the backdrop of early ... ...

    Abstract Aim: To explore the experiences and needs of partners who are supporting adolescents and young adults with cancer. The diagnosis of cancer at any age is significant. Uniquely, in adolescents and young adults this is set against the backdrop of early adult development. This is at a time when young people may be embarking on new experiences and the development of romantic relationships is no exception. There is limited evidence of how partners cope during this time and what their role is alongside how the relationship may change over time.
    Design: An exploratory qualitative study using narrative enquiry.
    Methods: The protocol was approved in February 2018 and data will be collected between May - December 2018. The theoretical approach will incorporate positioning theory by considering the contextual situation of the partner with reference to their stories, including their rights and duties. Two interviews will be undertaken which will be approximately 2 months apart, where participants will be asked to share their stories. They will also be given a diary at the end of the first interview to record their thoughts about their role and relationship. The diary and interview data will be thematically analysed.
    Discussion: It is envisaged that the study will culminate in the identification of key themes which will illuminate the experiences, needs and roles of partners of adolescents and young adults with cancer.
    Impact: These findings will inform the development of guidance which will help partners in the future in this area of practice.
    MeSH term(s) Adolescent ; Adult ; Caregivers/psychology ; Family/psychology ; Female ; Humans ; Male ; Neoplasms/psychology ; Qualitative Research ; Sexual Partners/psychology ; Social Support ; United Kingdom ; Young Adult
    Language English
    Publishing date 2019-02-20
    Publishing country England
    Document type Journal Article
    ZDB-ID 197634-5
    ISSN 1365-2648 ; 0309-2402
    ISSN (online) 1365-2648
    ISSN 0309-2402
    DOI 10.1111/jan.13944
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  5. Book: Paediatric respiratory disease / 2

    Bush, Andrew / Davies, Jane C.

    2011  

    Author's details ed. by Andrew Bush
    Collection Paediatric respiratory disease
    Language English
    Size 86 S. : zahlr. Ill., graph. Darst.
    Publisher Clinical Publ
    Publishing place Oxford
    Publishing country Great Britain
    Document type Book
    HBZ-ID HT016704882
    ISBN 978-1-84692-086-8 ; 1-84692-086-8 ; 9781846926280 ; 1846926289
    Database Catalogue ZB MED Medicine, Health

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    In stock of ZB MED Cologne/Königswinter

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    2011 A 3991 order for loan Magazin

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  6. Article ; Online: Trials and tribulations: The highs and lows of running cystic fibrosis drug studies.

    Davies, Jane C

    Paediatric respiratory reviews

    2019  Volume 31, Page(s) 25–27

    Abstract: So many new trials of drugs for CF are being conducted each year it can be difficult to keep up. Yet, almost as numerous are the review articles written about them. I have chosen therefore to use this paper to discuss some of the difficult ethical issues ...

    Abstract So many new trials of drugs for CF are being conducted each year it can be difficult to keep up. Yet, almost as numerous are the review articles written about them. I have chosen therefore to use this paper to discuss some of the difficult ethical issues arising during trials, in particular how to fairly distribute opportunities to participate. Some of these issues may be specific to countries like my own with very limited access to genotype-specific CFTR modulators, others may apply more generally. We have made enormous progress as a community over the recent past, but there is still much more to do before all our patients are reaping health and quality of life benefits.
    MeSH term(s) Clinical Trials as Topic/ethics ; Cystic Fibrosis/drug therapy ; Drug Development/ethics ; Humans ; Patient Selection/ethics
    Language English
    Publishing date 2019-03-14
    Publishing country England
    Document type Journal Article ; Review
    ZDB-ID 2147664-0
    ISSN 1526-0550 ; 1526-0542
    ISSN (online) 1526-0550
    ISSN 1526-0542
    DOI 10.1016/j.prrv.2019.03.002
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  7. Article ; Online: Reply to Dournes and Benlala: Hierarchical Computed Tomography Scoring Systems Cannot Discriminate Between Reversible Bronchiectasis and Mucus Plugs.

    McNally, Paul / Davies, Jane / Ciet, Pierluigi / Tiddens, Harm

    American journal of respiratory and critical care medicine

    2024  Volume 209, Issue 8, Page(s) 1039–1040

    MeSH term(s) Humans ; Tomography ; Mucus
    Language English
    Publishing date 2024-02-12
    Publishing country United States
    Document type Letter
    ZDB-ID 1180953-x
    ISSN 1535-4970 ; 0003-0805 ; 1073-449X
    ISSN (online) 1535-4970
    ISSN 0003-0805 ; 1073-449X
    DOI 10.1164/rccm.202311-2199LE
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  8. Article ; Online: An exploration of managing emotional labour and maintaining professional integrity in children's hospice nursing.

    Brimble, Mandy J / Anstey, Sally / Davies, Jane / Dunn, Catherine

    International journal of palliative nursing

    2024  Volume 30, Issue 4, Page(s) 180–188

    Abstract: Background: Research exploring nurse-parent relationships in children's hospices is rare.: Aim: To investigate how children's hospice nurses manage emotional labour and professional integrity in their long-term relationships with parents.: Methods!# ...

    Abstract Background: Research exploring nurse-parent relationships in children's hospices is rare.
    Aim: To investigate how children's hospice nurses manage emotional labour and professional integrity in their long-term relationships with parents.
    Methods: A purposive sample of six children's nurses, from hospices across England, recorded audio diaries and participated in telephone interviews. Narratives were thematically analysed.
    Findings: Three overarching, cross-cutting themes were identified-purposeful positioning; balancing personability and professionalism; coping with and counterbalancing emotional labour. All themes were indicative of and/or built upon emotional intelligence constructs, such as self-awareness, self-regulation, appropriate (managed) empathy, social skills and intrinsic motivation. Innate features of children's hospice work were important for perpetuating intrinsic motivation and satisfaction.
    Conclusion: This study provided an insight into the management of emotional labour and professional integrity by experienced children's hospice nurses. The identification of emotional intelligence skills merits further exploration in this environment, as well as other children's palliative care settings.
    MeSH term(s) Child ; Humans ; Hospice and Palliative Care Nursing ; Attitude of Health Personnel ; Hospice Care ; Palliative Care ; Emotions ; Hospices
    Language English
    Publishing date 2024-04-17
    Publishing country England
    Document type Journal Article
    ZDB-ID 2115109-X
    ISSN 2052-286X ; 1357-6321
    ISSN (online) 2052-286X
    ISSN 1357-6321
    DOI 10.12968/ijpn.2024.30.4.180
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  9. Article: Perspective: Care in the age of COVID-19

    Davies, Jane

    Nature

    Abstract: The pandemic has accelerated the drive towards telemedicine for people with cystic fibrosis - but the system needs critical appraisal, says Jane Davies Care for people with cystic fibrosis involves frequent hospital visits For these reasons, alternative ... ...

    Abstract The pandemic has accelerated the drive towards telemedicine for people with cystic fibrosis - but the system needs critical appraisal, says Jane Davies Care for people with cystic fibrosis involves frequent hospital visits For these reasons, alternative solutions have been considered over the past few years, including telemedicine and video consultations, the provision of home monitoring equipment (such as spirometers to measure lung function), the use of smart devices to motivate and measure adherence to treatment, and research into point-of-care diagnostics for infection Once the pressures of the current situation have lessened, it is imperative that this question is fully addressed by, for example, the studies within a trial approach launched by the UK National Institute for Health Research
    Keywords covid19
    Publisher WHO
    Document type Article
    Note WHO #Covidence: #824160
    Database COVID19

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