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  1. Article ; Online: Author reply.

    Denniss, Dominique L

    Internal medicine journal

    2017  Volume 47, Issue 8, Page(s) 976–977

    Language English
    Publishing date 2017-08
    Publishing country Australia
    Document type Letter
    ZDB-ID 2045436-3
    ISSN 1445-5994 ; 1444-0903
    ISSN (online) 1445-5994
    ISSN 1444-0903
    DOI 10.1111/imj.13510
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article ; Online: Advance Care Planning in Cardiology.

    Denniss, Dominique L / Denniss, A Robert

    Heart, lung & circulation

    2017  Volume 26, Issue 7, Page(s) 643–644

    MeSH term(s) Advance Care Planning/organization & administration ; Aged ; Australia ; Cardiology ; Female ; Humans ; Male ; Terminal Care/organization & administration
    Language English
    Publishing date 2017-05-31
    Publishing country Australia
    Document type Editorial
    ZDB-ID 2020980-0
    ISSN 1444-2892 ; 1443-9506
    ISSN (online) 1444-2892
    ISSN 1443-9506
    DOI 10.1016/j.hlc.2017.05.111
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article ; Online: Need for Routine Screening of Health-Related Quality of Life in Families of Young Children with Complex Congenital Heart Disease.

    Denniss, Dominique L / Sholler, Gary F / Costa, Daniel S J / Winlaw, David S / Kasparian, Nadine A

    The Journal of pediatrics

    2018  Volume 205, Page(s) 21–28.e2

    Abstract: Objectives: To assess health-related quality of life (HRQOL) in families of young children with complex congenital heart disease (CHD), and identify the demographic, clinical, and psychosocial factors that place these children and their mothers at ... ...

    Abstract Objectives: To assess health-related quality of life (HRQOL) in families of young children with complex congenital heart disease (CHD), and identify the demographic, clinical, and psychosocial factors that place these children and their mothers at greater risk of vulnerability.
    Study design: This cross-sectional study took place from June 2015 to October 2016 at The Sydney Children's Hospitals Network Cardiac Service, Australia. Mothers of a child aged 1-5 years with either single ventricle CHD or CHD requiring neonatal biventricular repair were invited to participate. Eighty-seven mothers completed a suite of validated measures, including the Pediatric Quality of Life Inventory, which assessed the outcomes of child and maternal HRQOL.
    Results: Sixty percent of children with single ventricle CHD and 25% of children with biventricular repair had total Pediatric Quality of Life Inventory scores within the at-risk range. Lower child HRQOL was strongly associated with single ventricle CHD (β = -0.38; P < .001), physical comorbidity (β = -0.32; P = .001), feeding difficulties (β = -0.26; P = .008), and greater maternal psychological stress (β = -0.18; P = .045), accounting for 52% of the variance in child HRQOL. Lower maternal HRQOL was strongly associated with poorer family functioning (β = 0.61; P < .001), greater maternal psychological stress (β = -0.23; P = .004), child physical comorbidity (β = -0.17; P = .01), and a 'difficult' child temperament (β = -0.14; P = .01), accounting for 73% of the variance in maternal HRQOL.
    Conclusions: Lower HRQOL is common in young children with complex CHD, particularly single ventricle CHD. Several predictors of HRQOL are potentially modifiable, offering possible pathways for prevention and early intervention. Routine screening is a necessary first step toward developing models of care to improve HRQOL in this population.
    MeSH term(s) Adult ; Anxiety/psychology ; Case-Control Studies ; Child, Preschool ; Cognition ; Cross-Sectional Studies ; Female ; Heart Defects, Congenital/psychology ; Heart Defects, Congenital/surgery ; Humans ; Infant ; Male ; Mothers/psychology ; Quality of Life/psychology ; Stress, Psychological/psychology ; Surveys and Questionnaires
    Language English
    Publishing date 2018-10-23
    Publishing country United States
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 3102-1
    ISSN 1097-6833 ; 0022-3476
    ISSN (online) 1097-6833
    ISSN 0022-3476
    DOI 10.1016/j.jpeds.2018.09.037
    Database MEDical Literature Analysis and Retrieval System OnLINE

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